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2. Strengthening mental health research outcomes through genuine partnerships with young people with lived or living experience: A pilot evaluation study.
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Lee, Grace Yeeun, McKenna, Sarah, Song, Yun Ju C., Hutcheon, Alexis, Hockey, Samuel J., Laidler, Rachael, Occhipinti, Jo‐An, Perry, Claudia, Lindsay‐Smith, Tara, Ramsay, Annabel, Choi, Skye, Feirer, Dakota, Shim, Andrew W., Cottle, Jessica, Mukherjee, Anith, New, Joshua, Yu, Rebecca, Scott, Elizabeth Mary, Freebairn, Louise, and Hickie, Ian Bernard
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PSYCHIATRY ,PILOT projects ,RESEARCH methodology ,QUANTITATIVE research ,EXPERIENCE ,QUALITATIVE research ,SURVEYS ,SELF-efficacy ,CONCEPTUAL structures ,ACTION research ,DESCRIPTIVE statistics ,THEMATIC analysis ,DATA analysis software - Abstract
Background: Despite increasing support for stakeholder inclusion in research, there is limited evaluative research to guide safe (i.e., youth‐friendly) and meaningful (i.e., non‐tokenistic) partnerships with young people with lived experience of mental ill‐health in research. This paper describes a pilot evaluation and iterative design of a Youth Lived Experience Working Group (LEWG) protocol that was established by the Youth Mental Health and Technology team at The University of Sydney's Brain and Mind Centre, based on the results of two studies. Methods: Study one consisted of a pilot evaluation of the extent to which youth partners felt empowered to contribute, to qualitatively explore how LEWG processes could be improved. Youth partners completed online surveys, and results were shared over two LEWG meetings in 2021 to empower youth partners to collectively identify actions of positive change regarding LEWG processes. These meetings were audio‐recorded and transcripts were subsequently coded using thematic analysis. Study two assessed whether LEWG processes and proposed improvements were acceptable and feasible from the perspective of academic researchers via an online survey in 2022. Results: Quantitative and qualitative data collected from nine youth partners and 42 academic researchers uncovered initial learnings regarding facilitators, motivators, and barriers to partnering with young people with lived experience in research. Implementing clear processes for youth partners and academic researchers on effective partnership strategies, providing training opportunities for youth partners to develop research skills, and providing regular updates on how youth partner contributions led to research outcomes were identified as key facilitators. Conclusions: This pilot study provides insight into a growing international field on how to optimise participatory processes so that researchers and young people with lived experience can be better supported and engaged to make meaningful contributions to mental health research. We argue that more transparency is needed around participatory research processes so that partnerships with young people with lived experience are not merely tokenistic. Consumer Contributions: Our study has also been approved by and reflects the concepts and priorities of our youth lived experience partners and lived experience researchers, all of whom are authors of this paper. [ABSTRACT FROM AUTHOR]
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- 2023
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3. Participatory action research: An exploration from a Freirean perspective of research involving people with dementia.
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O'Connor, Deborah, Sakamoto, Mariko, Phinney, Alison, Chaudhury, Habib, and Mann, Jim
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PSYCHIATRY ,HUMAN research subjects ,TEACHING ,DISCRIMINATION (Sociology) ,SOCIAL stigma ,DEMENTIA patients ,EXPERIENCE ,CONCEPTUAL structures ,ACTION research ,REFLECTION (Philosophy) - Abstract
Background: Researchers are increasingly being called upon to involve people with dementia in research that pertains to them. Participatory Action Research (PAR) has been one of the approaches that has been utilized to do this. How people understand and apply the ideas behind this approach however has often been atheoretical and diverse. This has implications for how purpose, power, voice and agency are conceived and actualized. Objectives: This paper will examine how theoretical construction of PAR can inform the process of meaningfully involving people living with dementia in research. Specifically, drawing on the work of Paulo Freire, this paper will articulate a way of conceptualizing PAR that is explicitly critical and then demonstrate how these ideas informed a PAR study focused on addressing stigma and discrimination with people living with dementia. Conclusion: The purpose of the paper is to engage researchers and people with lived expertise in critical reflection of what it actually means to involve people with dementia in research. Key points: The importance of meaningfully engaging people with dementia in research about and for them is becoming well‐accepted but an understanding of what this means and how to do this is far less developed.Paulo Friere's critical pedagogy provides a useful framework for conceptualizing and carrying out reflective and empowering Participatory Action Research (PAR) that challenges oppression and discrimination.A Frierien‐based approach challenges conventional research relationships, promotes critical awareness of the link between personal experiences and broader structural systems of oppression and discrimination, focuses on developing a collective understanding of issues, and prioritizes the voices of those with lived experience of oppression to take action.The
project provides an example of how these ideas were put into practice to take action against dementia‐based stigma and discrimination. [ABSTRACT FROM AUTHOR] - Published
- 2023
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4. Enacting a just and sustainable blue economy through transdisciplinary action research.
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Heidkamp, C. Patrick, Garland, Michaela, and Krak, Louie
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BLUE economy ,ACTION research ,IMAGINATION ,ECONOMIC forecasting ,PROBLEM solving ,COMMUNITIES ,CRITICAL realism - Abstract
To enact a just and sustainable blue economy, one must consider all the actors involved in its shaping. This paper argues that a quintuple helix approach to stakeholder engagement – involving government, academia, the business community, and civil society – and an inclusive transdisciplinary action research (TAR) methodology are promising avenues with which to do so. Embracing critical pragmatism as a foundational framework, key ideas from three strands of research are consolidated: (1) the recent work on the geographical dimension of socio‐technical sustainability transitions; (2) the literature on just sustainabilities and just transition; and (3) action research and transdisciplinary approaches to problem solving. This allows for the reimagination of a common future for the blue economy that is developed through a different kind of democratic process driven and informed by co‐learning, and shared experiences. By adopting a transdisciplinary action research approach, actors from different disciplines and spheres of experience can gain a better mutual understanding and find commonality through the open door of collaboration. The theoretical argument presented in this paper is illustrated by a vignette of an ongoing TAR project at Southern Connecticut State University, which outlines the challenges and opportunities inherent to implementing a TAR approach. [ABSTRACT FROM AUTHOR]
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- 2023
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5. "Please send me the link for tomorrow, María" human‐rights based participatory research with people with learning disabilities via Zoom.
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de Castro, María Gómez‐Carrillo, Palazuelos, Adela, Corona, Adrián, Sánchez, Ángela, Alises, Gema, Sancho, Marta, Cauja, Paola, and Sanz, Víctor
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DIGITAL technology ,FOCUS groups ,RESEARCH funding ,HUMAN rights ,SURVEYS ,ONLINE education ,ACTION research ,COMMUNICATION ,COVID-19 pandemic ,LEARNING disabilities - Abstract
Background: This paper describes the experience of conducting a co‐researched project with people with learning disabilities in Madrid, Spain, during the COVID pandemic and lockdown. I discuss the advantages and limitations of working online and challenges encountered while coordinating and facilitating the research. Methods: Our research project was on the impact of COVID on the lives of people with learning disabilities, which the eight co‐researchers chose. As part of my PhD, I offered my services as researcher to work together with persons with learning disabilities. Eight people took up my offer. We worked together from January 2021 to March 2022 virtually and I recorded this experience. I have written the paper, but as part of my co‐researcher agreement, I have shared my reflections and work with my co‐researchers, and we have co‐written a section to share our findings. Findings: In this paper, I discuss the advantages and limitations of working online, challenges I encountered while coordinating and facilitating the research and the work together. Remote work enabled the group to work on a biweekly basis and with members from different parts of Madrid. It saved people time and effort getting around town, yet we had to introduce express times and spaces to socialise and create a working relationship that is less natural than during in‐person interactions and breaks. During our fieldwork, we found that the pandemic had spurred the access to digital devices and programmes, but people may still be reliant on their environment, carers or supporters to facilitate it. I included a section written with my co‐researchers, in which we reflect together on the experience of working online and how we reached out to their peers during our fieldwork. We identified limitations due to our online research methodology such as lack of owning a digital device, the difficulties having access to a private space from which to connect online and the joy of meeting other people to exchange experiences. Conclusion: Human rights based participatory research can be done online. There are different ways of overcoming barriers to participation. However, there are people with no access to the internet or without digital skills that are being excluded and we must ensure that we reach out to them as well. Accessible summary: I did an online participatory research project with 8 people with learning disabilities from Spain using Zoom. Participatory research means taking part and being involved in the decisions on how the research is done.I discuss online way to make decisions, share power and control over the research, have some social connection in the group, and give information.I show that people with learning disabilities can work remotely but need more opportunities to learn digital skills. Digital skills are the skills to use technological devices, e.g., a smartphone, a tablet or a computer.Digital skills were very important during the pandemic and the lockdown, for example knowing how to find and use information and stay safe online and how to communicate with others over the internet.Participatory research projects need to support co‐researchers to learn new skills and apply them. The researchers need to be creative to make the online work engaging. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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6. 'Talking the talk or walking the walk?' A bibliometric review of the literature on public involvement in health research published between 1995 and 2009.
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Boote, Jonathan, Wong, Ruth, and Booth, Andrew
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ACTION research ,BIBLIOMETRICS ,CLINICAL medicine research ,ETHNIC groups ,PROFESSIONAL peer review ,PUBLIC health ,SERIAL publications ,PATIENT participation ,MEDICAL coding - Abstract
Objectives To characterise the literature on public involvement in health research published between 1995 and 2009. Methods Papers were identified from three systematic reviews, one narrative review and two bibliographies. The analysis identified journals where papers were published; countries of lead authors; types of public involved; health topic areas; and stages of research involving the public. Papers were also classified as to whether they were literature reviews or empirical studies; focused on participatory/action research; were qualitative, quantitative or mixed-method. The number of papers published per year was also examined. Findings Of the 683 papers identified, 297 were of USA origin and 223 were of UK origin. Of the 417 empirical papers: (i) participatory/action research approach was dominant, together with qualitative data collection methods; (ii) the stage of research the public was most involved was question identification; (iii) indigenous groups were most commonly involved; (iv) mental health was the most common health topic. Published studies peaked in 2006. Conclusions The present study identifies publication patterns in public involvement in health research and provides evidence to suggest that researchers increasingly are 'walking the walk' with respect to public involvement, with empirical studies consistently out-numbering literature reviews from 1998. [ABSTRACT FROM AUTHOR]
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- 2015
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7. Public perspectives on inequality and mental health: A peer research study.
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Pinfold, Vanessa, Thompson, Rose, Lewington, Alex, Samuel, Gillian, Jayacodi, Sandra, Jones, Oliver, Vadgama, Ami, Crawford, Achille, Fischer, Laura E., Dykxhoorn, Jennifer, Kidger, Judi, Oliver, Emily J., and Duncan, Fiona
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AFFINITY groups ,RACISM ,UNEMPLOYMENT ,SOCIAL media ,RESEARCH methodology ,SOCIAL values ,MENTAL health ,INTERVIEWING ,EMIGRATION & immigration ,HEALTH status indicators ,VIOLENCE ,NONBINARY people ,GENDER ,EXPERIENCE ,QUALITATIVE research ,PHOTOGRAPHY ,FINANCIAL stress ,ACTION research ,RESEARCH funding ,HEALTH equity ,THEMATIC analysis ,SUFFERING ,HOMELESSNESS ,PSYCHOLOGICAL adaptation ,PUBLIC opinion ,SOCIAL integration ,PSYCHOLOGICAL resilience ,PSYCHOSOCIAL factors - Abstract
Introduction: Associations between structural inequalities and health are well established. However, there is limited work examining this link in relation to mental health, or that centres public perspectives. This study explores people's experience and sense‐making of inequality in their daily lives, with particular consideration of impacts on mental health. Methods: We conducted a peer research study. Participants had to live in one of two London Boroughs and have an interest in inequalities and mental health. Using social media, newsletters, local organisations and our peer researchers' contacts, we recruited 30 participants who took photos representing their experience of inequality and discussed them during semi‐structured interviews. Data were analysed using reflexive thematic analysis. Results: Three themes were identified in this study: (1) inequalities are unjust, multilayered and intertwined with mental health. Accounts demonstrated a deep understanding of inequalities and their link to mental health outcomes, describing inequalities as 'suffering' and 'not good for anyone'. Financial, housing, immigration and healthcare problems exacerbated poor mental health, with racism, gender‐based violence and job loss also contributing factors for both poor mental health and experiences of inequality; (2) inequalities exclude and have far‐reaching mental health consequences, impacting personal sense of belonging and perceived societal value and (3) moving forwards—addressing long‐standing inequality and poor public mental health necessitated coping and resilience strategies that are often unacknowledged and undervalued by support systems. Conclusion: Lived experience expertise was central in this study, creating an innovative methodological approach. To improve public mental health, we must address the everyday, painful structural inequalities experienced by many as commonplace and unfair. New policies and strategies must be found that involve communities, redistributing resources and power, building on a collective knowledge base, to coproduce actions combatting inequalities and improving population mental health. Patient or Public Contribution: This study was peer‐led, designed and carried out by researchers who had experiences of poor mental health. Six authors of the paper worked as peer researchers on this study. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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8. Exploring participatory health research and its application to speech and language therapy research practices.
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Connery, Amy and Salsberg, Jon
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EVIDENCE gaps , *STUTTERING , *DISCUSSION , *COMMUNICATIVE disorders research , *ACTION research , *CONCEPTUAL structures , *RESEARCH methodology , *TREATMENT of communicative disorders , *SPEECH therapy - Abstract
Background: The role of participatory health research (PHR) is increasingly acknowledged by funding bodies, researchers and civil society globally; however, it continues to be under‐represented in the speech and language therapy (SLT) research literature. This collaborative research approach is associated with the increased application of research evidence, and the generation of positive impacts in practice, policy, health systems and society. Aims: To increase researchers' and other participatory partners' understanding of PHR, and to demonstrate its applicability to research in the SLT field. Methods & Procedures: This aim is achieved through a discussion on PHR, its principles, benefits and challenges, and the evaluation of its impact. A recently developed evaluation framework to support the implementation of best engagement practices is examined, and recommendations for how this framework can be used to plan and evaluate engagement in participatory stuttering research is presented. Main contribution: This paper serves as an important conversation on the value of PHR to SLT research, and presents guidance to support its increased implementation in this research field. Conclusions & Implications: Conclusions & Implications: PHR remains an under‐represented research approach in the SLT literature, despite increasing evidence demonstrating its effectiveness and value. It offers a potential solution to the research–practice gap, and challenges the ongoing research hierarchies by democrating the process of knowledge production. WHAT THIS PAPER ADDS: What is already known on this subject: PHR is increasingly attracting the attention of funders, researchers and decision‐makers due to a growing body of evidence in support of this collaborative research approach. Despite its potential to bridge the research–practice gap, PHR remains significantly under‐represented in the SLT research literature. What this paper adds to the existing knowledge: This paper discusses the principles, benefits, challenges and impact evaluation of PHR. A recently developed evaluation framework for supporting the implementation of best engagement practices is examined. A demonstration of how this framework can be used to plan and evaluate engagement in participatory stuttering research is presented. What are the potential or actual clinical implications of this work?: Speech and language therapists play a key role in PHR, as co‐researchers contributing essential context‐based knowledge. It is therefore imperative that they understand the principles and practices of this approach in order to maximize their input in future participatory partnerships. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Quality culture boosts agile transformation—Action research in a business‐to‐business software business.
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Saarikallio, Matti and Tyrväinen, Pasi
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AGILE software development ,BUSINESS software ,ACTION research ,CORPORATE culture ,BUSINESS enterprises ,ORGANIZATIONAL change - Abstract
Agile methodologies are sometimes adopted, with the assumption that benefits can be attained by only using a set of best practices, which can sometimes work to a degree. In this paper, a case is discussed where a software‐producing organization of seven teams achieved significant improvements. The goal of the research was to answer two questions: how an already agile organization could improve its performance further and what is the impact of promoting quality aspects? The questions were answered by implementing interventions based on prior literature and data emerging from semi‐structured interviews. The context was an established business with a complex revenue stream structure, meaning the mix of various project/service/product based work rendered the adoption of agile methods a challenge. Action research comprising three rounds of interventions was conducted to improve the organization and its quality culture while enforcing code review practices. Interventions resulted in a significant improvement in quality, as measured by reported defects. Therefore, it is suggested that agile methods are not sufficient on their own to take software business forward unless a quality‐focused culture is simultaneously achieved through a mindset change and organizational structures to enforce quality practices. The paper contributes to research on the managerial practices of software business and agile transformation by providing empirical support to introducing formal quality improvement to the agile mix as a method for practitioners to improve organizations with complex business models and multiple teams. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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10. Children as co‐researchers in pandemic times: Power and participation in the use of digital dialogues with children during the COVID‐19 lockdown.
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Donegan, Aoife, Devine, Dympna, Martinez‐Sainz, Gabriela, Symonds, Jennifer, and Sloan, Seaneen
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SCHOOL environment ,TEACHER-student relationships ,AFFINITY groups ,FRIENDSHIP ,INTERVIEWING ,CHILD behavior ,SELF-efficacy ,ATTITUDES toward illness ,EXPERIENCE ,ACTION research ,CASE studies ,QUESTIONNAIRES ,INTERPERSONAL relations ,STUDENTS ,PSYCHOLOGY of school children ,STUDENT attitudes ,ELEMENTARY schools ,STAY-at-home orders ,COVID-19 pandemic - Abstract
This paper documents co‐participatory research with children in six primary schools in Ireland during the COVID‐19 pandemic. It explores the use of what we term digital dialogues with diverse groups of children aged 9–10 years as members of Child Research Advisory Groups. The paper conceptualises the digital dialogues as sites of resistance as well as constraint, empowering children to articulate their voices in relation to schooling and the pandemic, whilst mediated by power dynamics—between adults and children, and between children, in the articulation of those voices. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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11. Scaling scrum with a customized nexus framework: A report from a joint industry‐academia research project.
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Joskowski, Andrzej, Przybyłek, Adam, and Marcinkowski, Bartosz
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MIDDLE managers ,ACTION research ,KNOWLEDGE transfer ,TECHNOLOGY management - Abstract
Despite a wide range of scaling frameworks available, large‐scale agile transformations are not straightforward undertakings. Few organizations have structures in place that fit the predefined workflows – while once one applies an off‐the‐shelf framework outside of its prescribed process, guidance quickly runs out. In this paper, we demonstrate how to instantiate a method configuration process using a lightweight experimental approach embedded in Action Research cycles. The proposed approach was developed to assist practitioners working on a multiple‐team project at Intel Technology Poland to find the right practices to continue their Nexus‐based transformation and integrate their in‐house method into the already established company structures, processes, and routines. In particular, it enabled identifying a series of challenges with scaled practices and coping with those. The challenges ranged from logistical problems, through poor availability of the Product Owner, to lackluster knowledge transfer and a wide array of communication/coordination issues at meetings. The study broadens the current body of knowledge within technology management and the scaled agile method‐tailoring domain. It indicates potential corrective actions that may be taken advantage of by entities that are not inclined, due to organizational constraints, to directly implement an off‐the‐shelf framework. Furthermore, our study demonstrates that a gradual transition to large‐scale agile at the project level (1) is possible with the preservation of traditional command‐and‐control management practices; (2) requires neither middle management involvement nor upfront investment; and (3) does not need to disrupt the continuous delivery of the product. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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12. Decolonizing research with Black youths.
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Salami, Bukola
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RACISM ,HUMAN research subjects ,BLACK people ,PATIENT selection ,MENTAL health ,NURSING research ,ACTION research ,GOVERNMENT policy ,REFLECTION (Philosophy) - Abstract
Black youths experience poor mental health especially due to anti‐Black racism. Research related to Black youths have been conducted on Black youths with little or no participation or engagement rather than with Black youths. This paper presents information from a dialogue on decolonizing nursing research. I draw on interviews and conversation cafes with around 120 Black youths in Canada to identify strategies for decolonizing research with Black youths. First, I reflect on my relations with the Indigenous land in which the study was conducted as well as my positionality as a Black woman. In this paper, I discuss how community based participatory action research can integrate capacity building component, amplify youth's voices and capitalize on the agency of youths as fruitful actors. I also reflect on the opportunities and benefits of decolonizing nursing research. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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13. Antonia's story: Bringing the past into the future.
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Barden, Owen, Walden, Steven J., Bennett, Davey, Bird, Nicole, Cairns, Stella, Currie, Rhiannon, Evans, Lynne, Jackson, Stephen, Oldnall, Emily, Oldnall, Sarah, Price, Dawn, Robinson, Tricia, Tahir, Amber, Taylor, Samantha, Wright, Christine, and Wright, Claire
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THOUGHT & thinking ,PSYCHOTHERAPY patients ,DEHUMANIZATION ,CONFIDENCE ,RESEARCH methodology ,DISCRIMINATION (Sociology) ,CREATIVE ability ,EXPERIENCE ,ABILITY ,TRAINING ,PSYCHOSOCIAL factors ,ACTION research ,INTERPERSONAL relations ,PEOPLE with intellectual disabilities ,ARCHIVES ,ADULT education workshops ,EVALUATION - Abstract
Background: This paper reports on a participatory project on the history of learning disability. The paper makes contributions to discourses on using participatory research methods with people labelled with learning disabilities, on the nature of research impact in participatory research, and on the lived experience of learning disability today. Methods: We used a two‐step methodology. The first step involved searching for and selecting archive material relating to the history of learning disability. The second step involved a series of participatory workshops. We worked collectively to systematically analyse the case history of Antonia Grandoni. Then we responded to it in a variety of creative ways. In doing so, we made connections between Antonia's life and our own. Findings: Many of Antonia's experiences seem very similar to what people labelled with learning disabilities often encounter today. These include discrimination, segregation and dehumanisation. Despite this, we very much enjoyed doing the research. As well as finding out about the history, some of us learned new skills, some of us grew in confidence, and we also made new friends. Conclusions: Participatory methods are an effective way of making digital archive material more accessible to people labelled with learning disabilities. In this project, using participatory methods revealed a lot of parallels between how we think somebody experienced learning disability in the mid‐19th century, and how it is experienced today. They also resulted in significant impact on the people doing the research. Accessible summary: This is a paper about how we researched learning disability history together.We used material in a digital archive as well as creative methods to do our research.Working this way helped us learn about ourselves, and each other's experiences of learning disability, whilst we learned about the history.This is important because people with learning disabilities have not often been able to do historical research.Research like this matters because doing it teaches us useful skills and can be empowering. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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14. Developing a living lab in ethics: Initial issues and observations.
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Racine, Eric, D'Anjou, Bénédicte, Dallaire, Clara, Dumez, Vincent, Favron‐Godbout, Caroline, Hudon, Anne, Montreuil, Marjorie, Olivier, Catherine, Quintal, Ariane, and Chenel, Vanessa
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SCHOOL environment , *INTERDISCIPLINARY research , *ETHICS , *STAKEHOLDER analysis , *COMMUNITIES , *ACTION research , *INTERPROFESSIONAL relations , *INTELLECT , *DIFFUSION of innovations , *BIOETHICS , *GOAL (Psychology) - Abstract
Living labs are interdisciplinary and participatory initiatives aimed at bringing research closer to practice by involving stakeholders in all stages of research. Living labs align with the principles of participatory research methods as well as recent insights about how participatory ways of generating knowledge help to change practices in concrete settings with respect to specific problems. The participatory, open, and discussion‐oriented nature of living labs could be ideally suited to accompany ethical reflection and changes ensuing from reflection. To our knowledge, living labs have not been explicitly trialed and reported in ethics literature. In this discussion paper, we report and discuss four initial issues that marked the process of setting up a living lab in ethics: (1) determining the goals and expected outcomes of an ethics living lab; (2) establishing operational procedures; (3) selecting communities and defining pilot projects; and (4) adopting a lens to tackle emerging questions and challenges. We explain these four issues and present the paths taken based on the novel and specific orientation, that is, living ethics, at the basis of this project. In alignment with living ethics and É‐LABO, we approach challenges as learning opportunities to ask not only "how" questions but also "why" questions. We hope that this discussion paper informed by our experience helps to clarify the theoretical, methodological, and practical approaches necessary to successfully adopt and employ living labs in ethics. [ABSTRACT FROM AUTHOR]
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- 2024
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15. Looking back, moving forward: 50 years of the American Journal of Community Psychology.
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Allen, Nicole E. and Blackburn, Allyson M.
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COMMUNITY psychology , *SOCIAL action , *ACTION research , *COMMUNITY-based participatory research , *MOTIVATION (Psychology) , *ACT psychology , *VIRTUAL communities - Abstract
The American Journal of Community Psychology (AJCP) was founded in 1973 and has since its inception has been the flagship journal for the Society of Community Research and Action. AJCP publishes leading scholarship in community psychology and social action research. This special issue celebrates the 50 years of scholarship in AJCP by curating and assembling previously published articles in virtual special issues (VSIs) with accompanying commentaries. Nine VSIs were compiled as part of this special issue. Each of these VSIs were organized around themes that are of critical importance to community psychology and each VSI summarizes what has been learned from their included articles and future directions for the field. In this paper, we introduce this special issue on this collection of VSIs, discussing how each of these VSIs endeavor to push the field forward. Highlights: This special issue celebrates 50 years of the American Journal of community psychology.Nine virtual special issues (VSI) curated previously published papers in AJCP.We summarize these VSI introductions and discuss how each calls for future directions for the field. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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16. Trespassing on the Law: Critical legal engineering as a strategy for action research.
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ACTION research ,URBAN research ,LEGAL reasoning ,GEOGRAPHERS ,EXPERT evidence - Abstract
This paper proposes critical legal engineering (CLE) as a new methodology for legal‐geographic action research. While legal geography is on the rise, geographers rarely participate in legal or judicial process, and when they do – for example, as court expert witnesses – they merely respond to the pre‐established agendas of the legal system. I argue that legal geographers' knowledge on the nature of law and its relations with society is a source of power that could allow them to set legal agendas and pluralise legal discussions. CLE assumes that legal geographers can put forward technical legal arguments, thus using law's own tools to implement normative agendas implied in critical research. However, CLE demands a dialectical attitude that preserves the contradiction between political ends and legal technology – while pursuing both of them at the same time. As I show, CLE can realise critical agendas in three ways. First, it co‐opts the legitimacy provided by the legal system, lending it to the agendas that are otherwise perceived as "too radical." Second, elevated by the law these radical agendas may gain greater power to influence political‐economic realities even before the legal outcomes are decided. Finally, CLE draws out of "technical" legal discussions into the heat of the public debate, thus politicising the law. Having developed this methodological proposition in the course of my research on urban movements, I illustrate it with the strategy of Berlin's campaign Deutsche Wohnen & Co. Enteignen (DWE), which has crafted a legal argumentation based on Article 15 of the German Constitution to pursue re‐municipalisation (or de‐privatisation) of housing. This paper proposes critical legal engineering (CLE) as a new methodology for legal‐geographic action research. CLE assumes that legal geographers can put forward technical legal arguments, thus using law's own tools to implement normative agendas implied in critical research. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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17. Guiding, sustaining and growing the public involvement of young people in an adolescent health research community of practice.
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Swist, Teresa, Collin, Philippa, Nguyen, Betty, Davies, Cristyn, Cullen, Patricia, Medlow, Sharon, Skinner, S. Rachel, Third, Amanda, and Steinbeck, Katharine
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PATIENT participation ,DISCUSSION ,COMMUNITY health services ,ADOLESCENT health ,MEDICAL care research ,CONCEPTUAL structures ,INTERPROFESSIONAL relations ,ACTION research ,RESEARCH funding ,JUDGMENT sampling ,ADULT education workshops - Abstract
Background: Public involvement in health research and its translation is well recognized to improve health interventions. However, this approach is insufficiently practised and evidenced in relation to young people. This paper presents an analysis of the process of co‐producing a framework, partnership model and a growing network of young people informing and guiding an adolescent health research community of practice. Methods: A Living Lab is a participatory research approach that brings together a broad range of stakeholders in iterative cycles of research, design, development, pilot‐testing, evaluation and delivery to implement effective responses to complex phenomena. The geographical setting for this study was Sydney, NSW, Australia, and involved both youth and adult stakeholders from this region. The study spanned three phases between July 2018 and January 2021, and data collection included a range of workshops, a roundtable discussion and an online survey. Results: The co‐production process resulted in three key outputs: first, an engagement framework to guide youth participation in health research; second, a partnership model to sustain youth and adult stakeholder collaboration; third, the growth of the public involvement of young people with a range of projects and partners. Conclusions: This study investigated the process of co‐producing knowledge with young people in an adolescent health community of practice. A reflexive process supported youth and adult stakeholders to collaboratively investigate, design and pilot‐test approaches that embed young people's engagement in adolescent health research. Shared values and iterative methods for co‐production can assist in advancing mutual learning, commitment and trust in specific adolescent health research contexts. Public Contribution: Young people guiding and informing an adolescent health research community of practice were involved in this study, and one of the participants is a paper co‐author. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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18. The Tree(s) of Hope and Ambition: An arts‐based social science informed, participatory research method to explore children's future hopes, ambitions and support in relation to COVID‐19.
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Williams, Sara, McEwen, Lindsey Jo, Gorell Barnes, Luci, Deave, Toity, Webber, Amanda, Jones, Verity, Fogg‐Rogers, Laura, Gopinath, Deepak, and Hobbs, Laura
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ART , *SOCIAL support , *CHILD care , *MOTIVATION (Psychology) in children , *TIME , *INDIVIDUALITY , *HOPE , *SOCIAL sciences , *ACTION research , *HEALTH care teams , *CHILDREN'S health , *RESEARCH funding , *THEMATIC analysis , *COVID-19 pandemic , *REFLECTION (Philosophy) , *HEALTH planning - Abstract
This paper offers a new child‐centred methodology that explores children's visions of their futures, encourages self‐reflection and depth and shares children's voices with peers and researchers, as unbrokered as possible. This final stage of a longitudinal, arts‐based, social science‐informed project was delivered by partnering with schools in socially disadvantaged areas of Bristol, a UK city. Our two‐phase activity used a Tree metaphor to explore children's hopes, ambitions and support, looking forward to recovery from the COVID‐19 pandemic. The analysis combined multi‐disciplinary thematic and visual‐narrative analysis, and revealed diversity, intersection and individuality in themes that scaled out from the child and their family over different timescales. Themes included emotion (concerns; empathy), experiences (happenings, resources skills; aspirations) and relationships, linked to their recent experiences of COVID‐19 mitigation. The paper reflects critically on children's and researchers' positionality, and the complexities involved in developing research methods that encourage children's autonomy, agency and authenticity. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
19. Using social network analysis as a tool in action research.
- Author
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Paterson, Susan, McInerney, Elizabeth E. W., and Evans, Scotney D.
- Subjects
SOCIAL network analysis ,ACTION research ,HOMELESS youth ,SOCIAL networks ,COMMUNITIES - Abstract
The following paper presents case examples of one research team's use of social network analysis (SNA) with three different collaboratives in South Florida: (a) a Collective Impact initiative seeking to end youth homelessness, (b) a university collaborative of campus organizations working towards Black students' concerns, and (c) a movement network of local social justice organizations. The research team used SNA to assess the level of connectivity of three different community coalitions. While research questions were slightly different for each collaborative, each project asked about the frequency of communication between organizations to determine connectivity. Results vary between case examples. Both the Youth Homeless Collaboration and the Black Student Association used Gephi to analyze results, while The Community Partnership used R to measure network centrality. The paper concludes with a general discussion of challenges related to using SNA as an action research tool, as well as the role of power in organizational networks. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
20. Distinguishing sympathisers, philanthropists, rusted on activists and radicals: Using person‐centred analyses in collective action research.
- Author
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Thomas, Emma F., Yip, Lisette, and Lizzio‐Wilson, Morgana
- Subjects
- *
ACTION research , *RADICALS , *COLLECTIVE action , *PHILANTHROPISTS , *PSYCHOLOGICAL research , *SOCIAL psychology - Abstract
Many of our theories and models within social psychology implicitly refer to 'types' or subgroups of people who engage in collective action (activists, protestors), or do not (sympathisers, bystanders). Other frameworks differentiate between actors based on their adoption of tactics (benevolents, activists, radicals). How, empirically, do we distinguish sympathisers from activists? Activists from radicals? This paper describes recent research that adopts person‐centred statistical approaches (e.g., latent profile analysis, latent transition analysis, latent growth mixture models) to address three contemporary puzzles of collective action research. We present research showing that the methods are useful in identifying and explaining sub‐groups of people who seek to bring about change in qualitatively different ways. The methods are also useful for understanding volatility in collective action as well as identifying and understanding variation in how people sustain, increase, or diminish their commitment over time. There is nothing so practical as a good method and person‐centred statistical approaches are an important complement to variable‐centred approaches in social psychological research on collective action. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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- View/download PDF
21. Recontextualising Stenhouse: Instantiations of the ‘teacher as researcher’ metaphor in Greece and Cyprus.
- Author
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Philippou, Stavroula and Tsafos, Vassilis
- Subjects
- *
TEACHER development , *METAPHOR , *GREEK language , *CURRICULUM change , *CURRICULUM planning , *LANGUAGE research - Abstract
This paper explores the transfer, translation and recontextualisation of Laurence Stenhouse's work, as encapsulated in the ‘teacher as researcher’ metaphor, to the Greek language and in the fields of research and policy in Greece and Cyprus. We first briefly frame action research work as emerging through and within a specific space‐time (and in conversation with others in North America, Australia and Europe). We then trace its translation from English to Greek in specific key publications in books and articles (including his 1975 seminal work An introduction to curriculum research and development), which have since been central to curriculum studies as an academic field in both countries. We then construct four vignettes as cases of different uses of the metaphor in different fields. The first two refer to the institutional context of a new type of school called ‘second chance schools’ and a state policy for the professional development of teachers in Greece. The other two refer to an initial teacher education university programme and to the most recent school curriculum change in the Republic of Cyprus. We conclude by discussing certain patterns of constriction across the four vignettes in the recontextualisation of the ‘teacher as researcher’ to particular aspects of the metaphor as it morphed in two rather centralised contexts with a strong historical presence of a formal, state‐mandated curriculum and of teachers as public servants. Despite these patterns of constriction, we also note how other aspects of the metaphor provided conditions for some transformation. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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- View/download PDF
22. Specifying features in terms of domain models: MuDForM method definition and case study.
- Author
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Deckers, Robert and Lago, Patricia
- Subjects
- *
METHODS engineering , *COMPUTER software development , *ACTION research , *SAFETY standards - Abstract
To enable the people involved in a software development process to communicate and reason close to their area of knowledge, we are investigating and engineering a method that formalizes and integrates knowledge of multiple domains into domain models and into specifications in terms of those domain models. We follow an action research approach, starting with a diagnosis phase, in which we have previously defined a set of method objectives, and performed a systematic literature review. During action planning, we defined how we are going to develop the method—called Multi‐Domain Formalization Method (MuDForM). This paper reports on the methodical support for using a domain model as the terminology for feature specifications. During action taking, we defined an initial version of the method and set up case studies. During the evaluation phase, we performed a case study to validate how well the method helps in the specification of processes and to realize the case‐specific objectives of the customer. The case study pertains to the formalization of the ISO26262 standard for functional safety in the automotive domain. The created models are explained to the involved experts to ensure their consistency with the original text. We found that MuDForM is suitable to systematically formalize processes described in natural language, such that the resulting process models are fully expressed in terms of domain concepts and concepts from outside the domains and processes of interest. Further, during the specifying learning phase, we have extended our method with concepts, steps, and guidelines for grammatical analysis, for formalization of constraints, and for the specification of processes. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
23. Teacher‐composed cases of practice as and for dissemination, reflection and data.
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Cowie, Bronwen, Trask, Suzanne, and Edwards, Frances
- Subjects
- *
EDUCATION research , *TEACHER attitudes , *ACTION research , *BUSINESS partnerships , *SOCIAL support - Abstract
The need to make evidence and implications of educational research widely available has prompted a burgeoning interest in knowledge mobilisation, which is a set of strategies supporting the active and intentional dissemination of research knowledge. For this, it is important to consider who might be the intended audience and end‐users of this knowledge, as this impacts decisions throughout the research process. Researcher–teacher collaborations are effective contexts for knowledge‐building and sharing, where both partners have different but equally valuable roles and contributions to make to the conduct, analysis and dissemination of research. This paper illustrates the value and uses of teacher‐composed written and video cases of colleague coaching. The cases were generated as part of the Zooming project, a seven‐school, 3‐year research–practice partnership focused on developing teachers' data literacy and capacity to coach colleagues in this. To craft the cases, the teachers reflected on their coaching practices and relationships and identified what would be most useful for new coaches to know. The cases proved to be engaging tools for research dissemination, especially to a professional audience. In addition, the case writing challenged teachers to reflect on and analyse their coaching actions and the assumptions they brought to collegial coaching. The cases as data also provided researchers with a deeper level of insights into what teachers viewed as salient when coaching colleagues in data use. Teacher case composition offers a useful approach to knowledge co‐production and a pathway to research dissemination by and for teachers and researchers. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
24. From "Invented here" to "Use it everywhere!": A Learning health system from bottom and/or top?
- Author
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Colldén, Christian and Hellström, Andreas
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INSTRUCTIONAL systems ,MATCHING theory ,CONCEPT learning ,ACTION research ,LONGITUDINAL method - Abstract
Introduction: Departing from a practical problem of how to use digitalization to improve care quality and efficiency, this paper investigates how the concept of Learning Health Systems (LHSs) can be applied to an existing organization. LHSs offer a vision for how healthcare can accelerate both scale‐up of innovations and quality improvements at all levels. However, aligning stakeholders at different levels to convergent development is challenging and translation and adaptation of the LHS concept to fit with the existing organization is essential. Methods: A one‐year longitudinal action research (AR) study was conducted within five psychiatric departments at the Sahlgrenska University Hospital in Gothenburg, Sweden. Translation of the LHS concept to the local circumstances within the organization was set as the aim, to both improve practice and further scientific understanding. An AR group led the practical and scholarly work and holistic data were collected, including field notes, documents, recordings, and workshops. Data were analyzed by an insider‐outsider approach. Results: The one‐year study is described to provide insights into the process of designing a locally adapted LHS using an AR approach. Practical needs were identified and iteratively matched with theory to form a local LHS model. A conflict between top‐down and bottom‐up views on development emerged, where higher‐level management tended to prioritize uniform solutions and developers local learning. An adapted solution to balance these approaches was negotiated, consisting of a technical and an organizational part. Conclusions: The conflict between top‐down and bottom‐up approaches for how to implement LHSs needs to be considered both in practical work to transform care organizations and in scientific studies of LHSs. The approach to translate, rather than instrumentally implement, LHSs to real‐world settings is suggested as advantageous. Furthermore, designing such endeavors as AR projects can provide excellent conditions to create LHSs that work in practice. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
25. Involving adolescents with intellectual disability in the adaptation of self‐reported subjective well‐being measures: participatory research and methodological considerations.
- Author
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Davison, J., Maguire, S., McLaughlin, M., and Simms, V.
- Subjects
WELL-being ,SELF-evaluation ,ACTION research ,SCHOOLS ,DESCRIPTIVE statistics ,COMMUNICATION ,SCALE analysis (Psychology) ,PEOPLE with intellectual disabilities ,PSYCHOLOGICAL adaptation ,ADULT education workshops ,ADOLESCENCE - Abstract
Background: The measurement of subjective well‐being is challenging with samples of adolescents with intellectual disability (ID) given the cognitive and linguistic difficulties they face in comprehending standardised measures, and as such is primarily based on proxy reports. The lack of appropriate tools needs to be addressed so that adolescents with ID can self‐report on their own well‐being. The current study reports on the use of participatory research methods to adapt and modify two standardised self‐report measures of subjective well‐being suitable for completion by adolescents with ID. Method: Two special schools were recruited for this study. At each school, staff (n = 15) and pupils aged 11–17 years (n = 35) participated. A series of co‐design workshops were conducted to adapt two standardised subjective well‐being measures: Kidscreen‐10 and short‐form Warwick–Edinburgh Mental Well‐being Scale. Results: Specific aspects for measure adaption were identified: simplifying the item wording and phrasing; inclusion of pictorial communication symbols and visual prompts to represent the meaning of items; changing of tense of questions from past to present; asking questions rather than statements; reducing 5‐point Likert scales to 3‐point or dichotomous; presenting one item at a time during administration; and developing alternate formats of the survey to ensure inclusivity. Conclusions: This paper illustrates the value of using participatory research methods when working alongside adolescents with ID and offers methodological, as well as practical, guidance in the context of adapting subjective self‐report measures for this target group, serving as a guide to fellow researchers and clinicians interested in modifying or developing self‐report measures for adolescents with ID. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
26. Co‐designing nutrition interventions with consumers: A scoping review.
- Author
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Meloncelli, Nina, Young, Adrienne, Christoffersen, Anja, Rushton, Alita, Zhelnov, Pavel, Wilkinson, Shelley A., Scott, Anna Mae, and de Jersey, Susan
- Subjects
PSYCHOLOGY information storage & retrieval systems ,CINAHL database ,MEDICAL databases ,PATIENT participation ,MEDICAL information storage & retrieval systems ,NUTRITION ,SYSTEMATIC reviews ,DIET ,HUMAN services programs ,HEALTH behavior ,ACTION research ,RESEARCH funding ,LITERATURE reviews ,MEDLINE - Abstract
Background: There is little known about nutrition intervention research involving consumer co‐design. The aim of this scoping review was to identify and synthesise the existing evidence on the current use and extent of consumer co‐design in nutrition interventions. Methods: This scoping review is in line with the methodological framework developed by Arksey and O'Malley and refined by the Joanna Briggs Institute using an adapted 2weekSR approach. We searched Medline, EMBASE, PsycInfo, CINAHL and Cochrane. Only studies that included consumers in the co‐design and met the 'Collaborate' or 'Empower' levels of the International Association of Public Participation's Public Participation Spectrum were included. Studies were synthesised according to two main concepts: (1) co‐design for (2) nutrition interventions. Results: The initial search yielded 8157 articles, of which 19 studies were included (comprising 29 articles). The studies represented a range of intervention types and participants from seven countries. Sixteen studies were published in the past 5 years. Co‐design was most often used for intervention development, and only two studies reported a partnership with consumers across all stages of research. Overall, consumer involvement was not well documented. No preferred co‐design framework or approach was reported across the various studies. Conclusions: Consumer co‐design for nutrition interventions has become more frequent in recent years, but genuine partnerships with consumers across all stages of nutrition intervention research remain uncommon. There is an opportunity to improve the reporting of consumer involvement in co‐design and enable equal partnerships with consumers in nutrition research. Key points: Of the approximately 5000 abstracts screened, only 19 studies met the criteria of co‐design at the 'Collaborate' or 'Empower' levels of Public Participation (IAP2 Public Participation Specturm), and there is high variability in co‐design approaches and definitions within health research.Similarly, there is no singular co‐design framework or theoretical approach that is commonly used, although intervention mapping and integrated knowledge translation approaches were most common.Co‐designing dietary interventions typically occurs after a research question and direction has already been predetermined, and often, researchers 'overrule' consumers' recommendations and decisions.Our scoping review included a consumer as a co‐author, which was a strength of this paper. Based on our consumer co‐author's recommendation, we developed an 'ideal co‐design' checklist to capture key elements of co‐design that should be considered in research projects – about one quarter of included studies met all or most of these elements.Although co‐design for dietary interventions has become more common in the past 5 years, consumers are rarely engaged across the entire research process, which could help improve research impact and reduce research waste. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
27. "I'm No Criminal, I'm Just Homeless": The Greensboro Homeless Union's efforts to address the criminalization of homelessness.
- Author
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Craven, Krista, Sapra, Sonalini, Harmon, Justin, and Hyde, Marcus
- Subjects
HOMELESSNESS ,HOMELESS persons ,POLICE ,COMMUNITY-based participatory research ,LEGAL education - Abstract
This paper examines how homelessness is criminalized in Greensboro, North Carolina, and the ways in which the Homeless Union of Greensboro (HUG) has contested such criminalization. This paper draws on data from a participatory action research study conducted between 2018 and 2020 by a group of researchers from two local universities and members of HUG. Findings from our study suggest that law enforcement officers in Greensboro use a vast array of laws to harass, ticket, and arrest people experiencing homelessness, particularly those who are Black. Findings also suggest that when individuals experiencing homelessness seek help for citations or arrests, it is challenging to access quality, affordable legal representation. This paper illustrates how HUG takes a multi‐pronged approach to address the variety of policies and practices that target homeless people, particularly people of color, recognizing that systems change requires a multifaceted approach that adapts to dynamic social and political contexts. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
28. The changing nature of the business processes in the knowledge economy – Action research.
- Author
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Szelągowski, Marek and Berniak‐Woźny, Justyna
- Subjects
INFORMATION economy ,ACTION research ,BUSINESS process management ,TEAMS in the workplace ,KNOWLEDGE management - Abstract
The aim of the paper is to propose the authors' business process nature assessment method and to indicate how to use the data provided by it as guidance for implementing and developing business process management (BPM) in organisations operating in the present complex and dynamic knowledge economy (KE). The study is based on the existing research literature relating to BPM and knowledge management (KM), and thus investigating how the evolving KE affects the nature of business processes and thus the whole BPM ecosystem. The empirical section of the paper employs action research methodology. The data was collected through internal documentation analysis, interviews, workshops (focus groups), process modelling and, observation during workshops. This part of the study confirmed that the use of the proposed method allows for the diagnosis of the nature of business processes in the organisation, including the identification of the nature of the key processes and their characteristics, which allows selection of the optimal BPM implementation methodology. At the same time, the use of action research allows for efficient communication between management and the team implementing BPM, which has been shown to be a necessary condition for the successful implementation of BPM. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
29. Aboriginal parents' experiences of having their children removed by statutory child protection services.
- Author
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Newton, BJ
- Subjects
CONTROL (Psychology) ,ACTION research ,CHILD welfare ,CRIME ,ETHNOPSYCHOLOGY ,DOMESTIC violence ,FOSTER home care ,INTERVIEWING ,PARENT-child relationships ,SUBSTANCE abuse ,PARENT attitudes ,INDIGENOUS Australians - Abstract
The number of Aboriginal and Torres Strait Islander children living in out‐of‐home care has more than doubled in the past decade. Research into the experiences of parents who have had their children removed is an emerging area; though very few of these studies are specific to Indigenous children and families. This paper presents a participatory research study that explored the experiences of a group of Aboriginal Australian parents who have had their children removed by child protection authorities in one Australian state, New South Wales. This paper highlights the challenges for Indigenous families navigating the child protection system, specifically the ongoing experience of feeling powerless following the removal of their children, and in creating environments that maintain quality relationships with their children. The paper then offers suggestions for supporting families in light of the findings. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
30. Practising participatory geographies: potentials, problems and politics.
- Author
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Wynne‐Jones, Sophie, North, Peter, and Routledge, Paul
- Subjects
GEOGRAPHY ,PRACTICAL politics ,COMMUNITY-based participatory research ,THOUGHT & thinking ,CRISES - Abstract
Participatory approaches have become increasingly popular within geography in recent years, but some would argue that participatory working is both in vogue and in crisis. In this special section of Area we have drawn together a series of papers to reflect on the complexities, tensions and difficulties that are caught up with the potentials and politics of participatory ways of working and thinking. In this introductory editorial we set out the impetus behind the special section, reflecting on the history of participatory geographies and the contemporary challenges arising from such ways of working. The role of the Participatory Geographies Research Group as a collective supporting and critically engaging with participatory research is also outlined. [ABSTRACT FROM AUTHOR]
- Published
- 2015
- Full Text
- View/download PDF
31. Participatory codesign of patient involvement in a Learning Health System: How can data‐driven care be patient‐driven care?
- Author
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Knowles, Sarah E., Allen, Dawn, Donnelly, Ailsa, Flynn, Jackie, Gallacher, Kay, Lewis, Annmarie, McCorkle, Grace, Mistry, Manoj, Walkington, Pat, and Brunton, Lisa
- Subjects
DATABASES ,PATIENT participation ,MEDICAL information storage & retrieval systems ,MEDICAL care ,PATIENT-centered care ,MENTAL health ,PATIENTS' attitudes ,RESEARCH ethics ,ACTION research ,FIELD notes (Science) ,DESCRIPTIVE statistics ,RESEARCH funding ,PUBLIC opinion ,ADULT education workshops - Abstract
Background: A Learning Health System (LHS) is a model of how routinely collected health data can be used to improve care, creating 'virtuous cycles' between data and improvement. This requires the active involvement of health service stakeholders, including patients themselves. However, to date, research has explored the acceptability of being 'data donors' rather than considering patients as active contributors. The study aimed to understand how patients should be actively involved in an LHS. Design: Ten participatory codesign workshops were conducted with eight experienced public contributors using visual, collective and iterative methods. This led contributors to challenge and revise not only the idea of an LHS but also revise the study aims and outputs. Results: The contributors proposed three exemplar roles for patients in patient‐driven LHS, which aligned with the idea of three forms of transparency: informational, participatory and accountability. 'Epistemic injustice' was considered a useful concept to express the risks of an LHS that did not provide active roles to patients (testimonial injustice) and that neglected their experience through collecting data that did not reflect the complexity of their lives (hermeneutic injustice). Discussion: Patient involvement in an LHS should be 'with and by' patients, not 'about or for'. This requires systems to actively work with and respond to patient feedback, as demonstrated within the study itself by the adaptive approach to responding to contributor questions, to work in partnership with patients to create a 'virtuous alliance' to achieve change. Patient or Public Contribution: Public contributors were active partners throughout, and co‐authored the paper. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
32. Exploring the experiences of autistic pupils through creative research methods: Reflections on a participatory approach.
- Author
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Lewis, Kathryn, Hamilton, Lorna G., and Vincent, Jonathan
- Subjects
- *
QUALITATIVE research , *RESEARCH funding , *AUTISM , *NEURODIVERSITY , *POSITIVE psychology , *LONGITUDINAL method , *EXPERIENCE , *RESEARCH protocols , *MEDICAL research , *ACTION research , *CONTENT mining , *CHILDREN - Abstract
The use of creative qualitative research methods in psychology and other disciplines has increased over recent decades to address power imbalances within research and to centre the voices of participants. These considerations are particularly salient when conducting research with historically marginalized groups, including neurodivergent people. However, research foregrounding the first‐person perspectives of neurodivergent children is still limited. In this paper, we discuss the application of creative qualitative research methods when conducting research with neurodivergent children with a range of communication and wider skill profiles. The benefits and challenges of each method are considered, drawing on examples from the first phase of an ongoing longitudinal study. Additional considerations for working ethically and respectfully with neurodivergent children are discussed. Readers are encouraged to consider how best to adapt their research protocols when working with neurodivergent children, in order to minimize research hierarchies, build positive relationships, and produce rich and meaningful data. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
33. Emotion Labor as Professional Development Work: Insights from Teachers Doing Action Research.
- Author
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Nazari, Mostafa, Karimpour, Sedigheh, and Ranjbar, Mohammadali
- Subjects
CAREER development ,TEACHER development ,ENGLISH teachers ,ACTION research ,EMOTION recognition ,EMOTIONS ,LANGUAGE teachers - Abstract
Over the past decades, research on language teachers' engagement in action research (AR) and more recently on their emotion labor has exponentially grown. However, little research is available on how AR and emotion labor intersect to shape language teacher professional development. This study addressed this gap by reporting on how four Iranian English language teachers used emotion labor as professional development work during participation in an AR project. Data were collected from reflective journals and classroom observations as well as the associated postclass discussions during the enactment of AR, and from interviews at two junctures in time, once during the course and once longitudinally after six and 12 months. Data analyses revealed that the teachers used AR as a mechanism for minimizing the gap between their internal feelings and external expectations, and gradually developed the identity of a teacher–researcher by using the affordances emotion labor provided. Moreover, the teachers retrospectively developed emotional learning, which facilitated their response to institutional expectations in the short term and to the professional discourses of teaching in the long term. We conclude the paper with implications for teacher education to better understand how emotions feature in AR and how emotion labor could be employed for AR‐induced professional development. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
34. Content analysis as a means of exploring research opportunities from a conference programme.
- Author
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Fourie, Ina
- Subjects
CONFERENCES & conventions ,CONTENT analysis ,CREATIVE ability ,INTERNET ,INTERPROFESSIONAL relations ,MARKETING ,MEDICAL informatics ,HISTORY of medicine ,MEDICINE information services ,PATIENT education ,PROFESSIONAL employee training ,PUBLISHING ,RESEARCH ,RURAL conditions ,RURAL health ,EVIDENCE-based medicine ,CONSUMER information services ,PROFESSIONAL practice ,MEDICAL librarianship - Abstract
Background: Health librarians should keep up-to-date in a dynamic environment and accept the importance of continuing personal development (CPD) and growth in their critical reflection and creative thinking skills. They also need to acknowledge the potential value of research activity and the challenges of ongoing improvement and development. Conference programmes may prove a useful source of stimulation, especially if supplemented by creativity techniques, action research and the ideal of 'finding flow'. Objectives: The article analyses the themes and papers presented at the 10th International Conference on International Medical Librarianship (ICML) to identify opportunities for further research, literature reviews, assessment of practices and services, etc. Methods: Content analysis approach to conference papers and suggestions for further action including supplementing with techniques of creativity and group input. Results: A fairly extensive list of further actions (although not intended to be exhaustive) is suggested for the sixteen conference themes. Although subjective, the list might help to stimulate growth in research on health librarianship and demonstrate how one source of stimulation - conference programmes (regularly presented to medical library communities) - can be used. Conclusions: Content analysis has proven a constructive means of generating research questions from a conference programme. Content analysis and other methods aimed at stimulating creative and progressive thinking, including brainstorming, force field analysis, De Bono's 6 hats, creative swiping and creative visualisation, may prove equally useful and require further investigation. To ensure an ongoing cycle, these can be linked to action research. [ABSTRACT FROM AUTHOR]
- Published
- 2012
- Full Text
- View/download PDF
35. The development and pandemic‐related adaptation of a resilience program for native middle‐school youth: A case study.
- Author
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Woods, Cedric, Kim, BoRam, Calvert, Deirdre, and Aronowitz, Teri
- Subjects
SUBSTANCE abuse prevention ,NATIVE Americans ,PROFESSIONAL practice ,ALASKA Natives ,ATTITUDE (Psychology) ,HISTORICAL trauma ,EVIDENCE-based medicine ,GROUP identity ,COGNITION ,HUMAN services programs ,PSYCHOLOGY of middle school students ,PREVENTIVE health services ,INSTITUTIONAL racism ,EXPERIENCE ,ABILITY ,TRAINING ,CONCEPTUAL structures ,REFUGEES ,ACTION research ,PSYCHOLOGICAL adaptation ,PSYCHOLOGICAL resilience ,COVID-19 pandemic ,DRUG abusers - Abstract
Background: As of 2017, American Indian/Alaska Natives (AI/AN) had the highest prevalence of illicit drug use of any ethnic group in the United States, with 17.6% of the population aged 12 and older reporting using illicit drugs in the last month. Studies have shown the positive correlation between a history of trauma and substance use disorder. In fact, the majority of youth in treatment for substance misuse reported a history of trauma. Intergenerational trauma, systematic discrimination, and displacement are downstream effects of colonization, and experiences of racism often define the life experiences of AI/ANs who use substances. This paper describes the process of designing a developmentally and culturally appropriate primary prevention supplement for an evidence‐based program to prevent substance use and increase cultural identity among AI/AN youth. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
36. Understanding the Information Creation Practices of LGBTQIA+ Community Health Workers.
- Author
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Kitzie, Vanessa L., Vera, A. Nick, and Wagner, Travis L.
- Subjects
COMMUNITY health workers ,LGBTQ+ people ,ACTION research ,BRAINSTORMING ,MEDICAL librarians - Abstract
This paper reports on preliminary findings from an action research project partnering health sciences librarians with community health workers (CHWs) who are LGBTQIA+ to create information resources for the CHW's community. Findings report on twelve virtual semistructured interviews with CHWs from South Carolina and eleven virtual brainstorming meetings between CHWs and health sciences librarians. The authors analyzed verbatim interview and meeting transcripts using a combination of deductive and inductive qualitative coding. Findings demonstrate 1) external barriers constrain and motivate information creation; 2) the presence of preexisting information, knowledge, and resources within the CHWs' communities; 3) that CHW‐librarian pairs brainstormed how to codify and iterate what already exists; 4) that librarians adopted a reference role when brainstorming and suggested resource ideas within and outside of the CHWs' communities. Implications include strategies that researchers and practitioners can adopt to leverage existing experiential and embodied knowledge within LGBTQIA+ communities. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
37. Creating places, relationships and education for refugee children in camps: Lessons learnt from the 'The School of Peace' educational model.
- Author
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Huss, Ephrat, Ben Asher, Smadar, Shahar, Eitan, Walden, Tsvia, and Sagy, Shifra
- Subjects
EDUCATION of refugees ,EXECUTIVES ,CONFLICT management ,EXPERIENCE ,REFUGEE camps ,INTERPERSONAL relations ,PHILOSOPHY of education ,SCHOOLS ,TEACHERS ,ACTION research ,STUDENTS ,THEMATIC analysis ,NEEDS assessment ,CULTURAL values ,CHILDREN - Abstract
This paper describes a unique model for building an afternoon school for refugee children sustained by volunteers and refugee teachers and based on humanistic intercultural values. The methodology is participatory including the whole school, from children to teachers to volunteers and managers. Central themes in the findings include a synergetic focus on creative placemaking, conflict negotiation and formal studies. This points to a theoretical connection between informal and formal studies. The findings teach us about the needs of refugee children. A methodological contribution is the use of arts‐based methods to capture refugee children's lived experiences of school. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
38. Inside, outside and in‐between: The process and impact of co‐producing knowledge about autism in a UK Somali community.
- Author
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Aabe, Nura O., Fox, Fiona, Rai, Dheeraj, and Redwood, Sabi
- Subjects
ACTION research ,AUTISM ,EXPERIENCE ,HEALTH services accessibility ,IMMIGRANTS ,INTERVIEWING ,RESEARCH funding ,THEMATIC analysis ,PARENT attitudes ,HEALTH literacy - Abstract
Background: Co‐production is predicated on equal power‐sharing and responsibility in research partnerships. However, relatively few accounts exist that explore the subjective experience of how co‐researchers achieve such equality, from the perspectives of public contributors and researchers. Aim: This paper aims to provide a unique insight into the process of co‐production, by weaving personal reflections with principles to evaluate the impact arising from co‐produced knowledge. It is based upon participatory research that was initiated by a 'lay' person, on behalf of a community organization, seeking support for Somali families who are affected by autism. The paper explores the evolving partnerships that began with community theatre and qualitative research and leading to extensive dissemination and impact, all of which has been jointly owned and negotiated by the co‐researchers and community organizations. Discussion: Initially, this paper reflects on the process, drawing on principles defined for co‐production in health research and combining it with the co‐researcher's personal reflections of their experiences as insiders and outsiders, stepping in and out of each other's worlds. The value of reciprocity, flexibility and continuous reflection is illustrated. The latter part of the paper explores the impact of this co‐produced knowledge using a theoretical framework, to assess the specific impacts and its broader transformative potential. It demonstrates how (1) opportunities for all partners to be equitably involved to the maximum degree possible throughout the research process can affect social change and (2) co‐produced research can become a catalyst that is dynamic and complex, achieving multi‐layered impact. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
39. Adopting a participatory methodology and post‐structural epistemology: Reflections on a research project with young people.
- Author
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Watson, Lester and Fox, Rachael
- Subjects
CHRONIC disease treatment ,MENTAL illness treatment ,ACTION research ,THEORY of knowledge ,RURAL conditions ,FIELD research ,EXTENDED families ,CAREGIVER attitudes - Abstract
This paper discusses the methodological processes of a qualitative PhD research project with young people aged between 12 and 17 years who are the primary carer for a family member with physical or mental health problems. The field work was conducted over 2 years in rural Australia and involved one‐on‐one discussions with young carers in their family homes. The research was grounded in post‐structural epistemology that questioned existing literature and challenged the assumptions of childhood on which it is based. Consequently, it sought to pursue a different approach to young carer research, one that adopted a participatory methodology that positioned the young people as co‐researchers. Young people were involved in the design and conduct of the research and the analysis process. This paper critiques the research space, reflecting on what was made possible and what was limited or not fully realised. The paper discusses the tensions between post‐structural theory and participatory methodology that reveal limitations to collaboration between adult researchers and young people. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
40. A Report and Reflection on an Application of Critical Systems Practice to Improve a Business Intelligence System's Business Requirements.
- Author
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Venter, Carin and Goede, Roelien
- Subjects
BUSINESS intelligence ,GROUP decision making ,PARADIGMS (Social sciences) ,POSTMODERNISM (Philosophy) ,PROBLEM solving ,REPORT writing ,SYSTEMS development - Abstract
Organizations require relevant and accurate information and systems for making strategic decisions. However, in practice, these business intelligence systems have a high failure rate, in part due to an overemphasis on technical implementation, and perhaps more importantly, the inability of prospective users to visualize the needs of the future system in the requirements phase. In this paper, critical systems practice is used to guide the selection of alternative requirements collection methodologies for the requirements phase, reviewing methodologies from the interpretive, critical and postmodern paradigms for their suitability for use in the described case study. In the resulting selection of critical systems heuristics for this intervention, this paper argues that although critical systems heuristics was developed in an era when the critical paradigm emerged, it can be applied from a postmodern perspective and that it may also be useful in guiding the creative process to identify requirements that improve business decision making that is sensitive to the local environment and enhance future decision making. © 2018 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
41. Using Qualitative Methods in Research with People Who Have Intellectual Disabilities.
- Author
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Beail, Nigel and Williams, Katie
- Subjects
DATA analysis ,ACTION research ,INTERVIEWING ,RESEARCH methodology ,PEOPLE with intellectual disabilities ,QUALITY assurance ,SERIAL publications ,QUALITATIVE research ,HUMAN research subjects ,META-synthesis - Abstract
Background JARID has a long and positive association with qualitative research dating back to its first issue. This paper looks at the development of qualitative methods and their application in the field of intellectual disability (ID). Method When invited to make a contribution on qualitative research for the 25th Anniversary of JARID, the present authors considered the options. We examined the frequency with which qualitative studies have been published in three major intellectual disability journals over a decade, and we considered attempting a systematic review or a meta-synthesis. Results The volume of published studies has increased, but there were too many across a diverse range of topics for a systematic review of qualitative research in general; but not enough for a systematic review or meta-synthesis with a particular focus. However, there were many issues that needed to be aired. This paper therefore contains some critical reflections on the use of qualitative methods. Conclusion If we want to hear the voices of people who have ID then we need appropriate ways to do this. Qualitative methods are playing an increasing role in bringing the unknown about people who have ID into the known. The approach plays a valuable role in informing us about the experiences and lives of people who have ID. However, we have identified many methodological issues which will need to be further explored. At the same time, we need to develop methods to enable increased participation of people who have ID in some aspects of research. The participatory paradigm is more established in qualitative approaches as it lends itself to participation in generating research questions, developing interview questions, conducting interviews and even stages of the analysis. There are clearly areas that need to be addressed by trained researchers and the whole process will need some facilitation and support. Writing up for journals is one aspect that could be very problematic: so other forms of dissemination need to be explored. [ABSTRACT FROM AUTHOR]
- Published
- 2014
- Full Text
- View/download PDF
42. Co‐creating youth justice practice with young people: Tackling power dynamics and enabling transformative action.
- Author
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Smithson, Hannah and Jones, Anna
- Subjects
HUMAN rights ,ACTION research ,DECISION making ,BOXING ,THEMATIC analysis ,POWER (Social sciences) - Abstract
This paper provides an account of an innovative research project that enabled the co‐creation with justice‐involved young people of a transformative framework of practice, termed Participatory Youth Practice (PYP). We present a description of our participatory research processes and reflect on our attempts to rebalance inherent power dynamics when working with marginalised young people. We demonstrate how young people's meaningful participation in research can strengthen their participation in service design and delivery. The embedding of the PYP framework in youth justice practice across a large region in England is a formative step in understanding the importance of young people's participation. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
43. Multi‐actor Resource Integration: A Service Approach in Public Management.
- Author
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Eriksson, Erik and Hellström, Andreas
- Subjects
PUBLIC administration ,MUNICIPAL services ,CUSTOMER satisfaction ,MODERN society ,ACTION research - Abstract
This paper addresses a service approach in public management by highlighting the insufficiently explored concept of resource integration. Specifically, we identify the actors who contribute to such integration, as well as the kind of resources they bring. The empirical material draws from two action research cases in cancer care, suggesting that, for complex challenges, resource‐integrating actors may represent public, private and third‐sector organizations, citizens/service users, as well as their private spheres. Moreover, resources may be both tangible and, more importantly, intangible. Because all actors in the system are doing the same thing – integrating resources – multi‐actor resource integration frames interorganizational collaboration and citizen/user co‐production. In contrast to the private sector's foci on profit and customer satisfaction, the gain herein concerns better usage of common resources and addressing public interests – such as access to services that meet the needs of disregarded groups. In the complex realities of contemporary societies, actors from all sectors should help meet such needs through collaborative resource integration rather than competition. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
44. Reversing a relationship spiral: From vicious to virtuous cycles in IT outsourcing.
- Author
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Akkermans, Henk, Oppen, Willem, Vos, Bart, and X. J. Ou, Carol
- Subjects
CONTRACTING out ,ACTION research ,SYSTEM dynamics ,SIMULATION methods & models ,PURCHASING agents - Abstract
IT outsourcing (ITO) remains a popular business practice, but many buyers and suppliers of IT services are caught in a vicious relationship spiral of low trust, bad collaboration and mediocre performance. This paper describes a novel process understanding of how vicious cycles work and suggests a new method for how they can be reversed into virtuous cycles. Based on the action research and complementary system dynamics simulation, this paper demonstrates how an ineffective ITO relationship between a European Harbour Authority and its main IT supplier ITCo was formed and, later, transformed. The method, involving collaborative redesign of service workflows, applied in this action research triggered the reversal of an otherwise downward relationship spiral. Both the empirical facts from the action research data and the system dynamics simulation data are provided as evidence. We conclude the paper with conceptual and methodological contributions as well as scope for future research. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
45. Self‐help/mutual aid groups for health and psychosocial problems: Key features and their perspectives in the 21st century.
- Author
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Lainas, Sotiris
- Subjects
- *
COMMUNITY psychology , *TWENTY-first century , *HEALTH products , *MEDICAL personnel , *ACTION research - Abstract
In this virtual special issue, a set of 26 papers previously published in the American Journal of Community Psychology (AJCP), focused on self‐help/mutual aid groups (SH/MAGs), are being curated given their significant impact in this domain. SH/MAGs constitute an important component of the community psychology's proposal to address various psychosocial and health problems. The American Journal of Community Psychology has played an important role in exploring the characteristics of self‐help/mutual aid groups in various fields. These articles cover important areas of the study of self‐help/mutual‐aid groups. More specifically, the selected articles address issues such as the definition and key characteristics of self‐help/mutual aid groups, the main fields that are applied, such as mental health, addictions, and disabilities. The article also addresses important issues such as the place of self‐help/mutual aid groups in health systems, the experiential knowledge generated within these groups and the relationship of health professionals with these groups. The aim is this VSI to contribute to contemporary discussion on self‐help/mutual aid groups, their challenges, and their perspectives and to highlight the crucial role that community psychology has in this field. Highlights: The crucial contribution of self‐help/mutual aid groups in addressing human problems.Community psychology as a discipline enables our understanding about self‐help/mutual aid groups.Participatory action research and self‐help/mutual aid groups: a close relationship.The importance of self‐help/mutual aid groups in the field of addictions.Challenges and perspectives for self‐help/mutual aid groups in the 21st century and the role of community psychology. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
46. A qualitative analysis of the needs and wishes of people with type 2 diabetes and healthcare professionals for optimal diabetes care.
- Author
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Vasconcelos Silva, Carina, Bird, Dominique, Clemensen, Jane, Janda, Monika, de Camargo Catapan, Soraia, Fatehi, Farhad, Gray, Len, Menon, Anish, and Russell, Anthony
- Subjects
SOCIAL support ,FOCUS groups ,SELF-management (Psychology) ,INTERVIEWING ,MEDICAL care ,TYPE 2 diabetes ,QUALITATIVE research ,ACTION research ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,NEEDS assessment ,PATIENT care ,THEMATIC analysis - Abstract
Aim: Globally, type 2 diabetes care is often fragmented and still organised in a provider‐centred way, resulting in suboptimal care for many individuals. As healthcare systems seek to implement digital care innovations, it is timely to reassess stakeholders' priorities to guide the redesign of diabetes care. This study aimed to identify the needs and wishes of people with type 2 diabetes, and specialist and primary care teams regarding optimal diabetes care to explore how to better support people with diabetes in a metropolitan healthcare service in Australia. Methods: Our project was guided by a Participatory Design approach and this paper reports part of the first step, identification of needs. We conducted four focus groups and 16 interviews (November 2019–January 2020) with 17 adults with type 2 diabetes and seven specialist clinicians from a diabetes outpatient clinic in Brisbane, Australia, and seven primary care professionals from different clinics in Brisbane. Data were analysed using reflexive thematic analysis, building on the Capability, Opportunity, Motivation and Behaviour model. Results: People with diabetes expressed the wish to be equipped, supported and recognised for their efforts in a holistic way, receive personalised care at the right time and improved access to connected services. Healthcare professionals agreed and expressed their own burden regarding their challenging work. Overall, both groups desired holistic, personalised, supportive, proactive and coordinated care pathways. Conclusions: We conclude that there is an alignment of the perceived needs and wishes for improved diabetes care among key stakeholders, however, important gaps remain in the healthcare system. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
47. Action research for tourism planning in rural areas? Examining an experience from the Couto Mixto ( Galicia, Spain).
- Author
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Paül, Valerià, Trillo‐Santamaría, Juan‐Manuel, and Pérez‐Costas, Paula
- Subjects
ACTION research ,TOURISM ,TOURISM & urban planning ,TOURISM policy ,SUSTAINABLE tourism - Abstract
This paper reviews a tourist planning experience developed for the Couto Mixto in 2007-2008. The Couto Mixto is a small territory of three hamlets situated in Galicia ( Spain) and bordering Portugal that, until the end of the 19th century, used to be a virtually independent state of 25 km
2 . This tourism planning process is compared and contrasted with the well-described Action Research ( AR) approach. The paper begins by providing the conceptual foundations of tourism planning which were used as a framework for the research. Then, the tourism planning experience is introduced in detail, focussing on the results of the interviews conducted to identify the tourism resources of the area. Therefore, 23 resources were inventoried and further audited to determine their various degrees of potential for the purposes of tourism planning. Previous AR experiences and the tourism planning initiative developed for the Couto Mixto share a common objective to facilitate change in communities in trouble. However, the case-study tourism planning experience was not fully compliant with genuine AR in several respects. We conclude by recommending AR as a worthy approach for tourism planning as a way to effectively put the local community in focus. [ABSTRACT FROM AUTHOR]- Published
- 2016
- Full Text
- View/download PDF
48. What is intersectionality and why is it important in oral health research?
- Author
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Elaine Muirhead, Vanessa, Milner, Adrienne, Freeman, Ruth, Doughty, Janine, and Macdonald, Mary Ellen
- Subjects
ACTION research ,ATTITUDE (Psychology) ,CONCEPTUAL structures ,DENTAL research ,GROUP identity ,HEALTH services accessibility ,HEALTH status indicators ,ORAL hygiene - Abstract
This paper is the second of two reviews that seek to stimulate debate on new and neglected avenues in oral health research. The first commissioned narrative review, "Inclusion oral health: Advancing a theoretical framework for policy, research and practice", published in February 2020, explored social exclusion, othering and intersectionality. In it, we argued that people who experience social exclusion face a "triple threat": they are separated from mainstream society, stigmatized by the dental profession, and severed from wider health and social care systems because of the disconnection between oral health and general health. We proposed a definition of inclusion oral health and a theoretical framework to advance the policy, research and practice agenda. This second review delves further into the concept of intersectionality, arguing that individuals who are socially excluded experience multiple forms of discrimination, stigma and disadvantage that reflect intersecting social identities. We first provide a theoretical and historical overview of intersectionality, rooted in Black feminist ideologies in the United States. Our working definition of intersectionality, requiring the simultaneous appreciation of multiple social identities, an examination of power and inequality, and a recognition of changing social contexts, then sets the scene for examining existing applications of intersectionality in oral health research. A critique of the sparse application of intersectionality in oral health research highlights missed opportunities and shortcomings related to paradigmatic and epistemological differences, a lack of robust theoretically engaged quantitative and mixed methods research, and a failure to sufficiently consider power from an intersectionality perspective. The final section proposes a framework to guide future oral health research that embraces an intersectionality agenda consisting of descriptive research to deepen our understanding of intersectionality, and transformative research to tackle social injustice and inequities through participatory research and co‐production. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
49. Designing health care: A community health science solution for reducing health disparities by integrating social determinants and the effects of place.
- Author
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DeHaven, Mark J., Gimpel, Nora A., Gutierrez, Daniel, Kitzman‐Carmichael, Heather, and Revens, Keri
- Subjects
ACTION research ,COMMUNITY health services ,CONCEPTUAL structures ,CONSENSUS (Social sciences) ,INTEGRATED health care delivery ,INTERPROFESSIONAL relations ,MATHEMATICAL models ,METROPOLITAN areas ,POPULATION geography ,PUBLIC health ,EVIDENCE-based medicine ,THEORY ,PROFESSIONAL practice ,HEALTH equity ,HEALTH & social status - Abstract
Background: In the United States chronic illnesses have become a way of life for multiple generations – they are the number one cause of death and disability (accounting for more than 70% of deaths), 60% of American adults have at least one chronic disease, and 40% have multiple chronic conditions. Although multiple factors contribute to the growth in chronic disease prevalence, a major factor has been overreliance on health care systems for promoting health and preventing disease. Large health care systems are ill equipped for this role since they are designed to detect, treat, and manage disease, not to promote health or address the underlying causes of disease. Methods: Improving health outcomes in the U.S. will require implementing broad‐based prevention strategies combining biological, behavioral, and societal variables that move beyond clinical care. According to community medicine, clinical care alone cannot create, support, or maintain health. Rather, health can only ensue from combining clinical care with epidemiology and community organization, because health is a social outcome resulting from a combination of clinical science, collective responsibility, and informed social action. Results: During the past 20 years, our team has developed an operational community medicine approach known as community health science. Our model provides a simple framework for integrating clinical care, population health, and community organization, using community‐based participatory research (CBPR) practices for developing place‐based initiatives. In the present paper, we present a brief overview of the model and describe its evolution, applications, and outcomes in two major urban environments. Conclusion: The paper demonstrates means for integrating the social determinants of health into collaborative place‐based approaches, for aligning community assets and reducing health disparities. It concludes by discussing how asset‐based community development can promote social connectivity and improve health, and how our approach reflects the emerging national consensus on the importance of place‐based population system change. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
50. Implementing the circular economy in the Amsterdam Metropolitan Area: The interplay between market actors mediated by transition brokers.
- Author
-
Cramer, Jacqueline M.
- Subjects
METROPOLITAN areas ,BROKERS ,KNOWLEDGE gap theory ,ACTION research - Abstract
This paper analyses the interplay between regime and niche actors in implementing the circular economy through mediation by transition brokers. The study is based on 'action research' carried out in the Amsterdam Metropolitan Area. Innovation science is adopted as theoretical approach. First, the analysis shows that more ambitious initiatives could be taken than by individual market actors. Whether these circular initiatives represent just incremental change—as other studies suggest—cannot be concluded. Rather, it is plausible to conceptualise the transition process as a continuous transformational change. Second, in creating circular initiatives, the interplay between regime and niche actors was evident but varied. Actors could team up more easily where their interests aligned. This conclusion corresponds with recent innovation literature, which emphasises the importance of linkages between processes at niche, regime and landscape levels. Before generalising the results, similar studies in other regional contexts would be valuable. Short informative: In moving to a circular economy, the willingness of market actors to innovate is crucial.Real‐life experiments on the implementation of circular initiatives built by market actors at local level through the mediation of independent intermediaries (here called 'transition brokers') are scarce. This study aims to bridge this knowledge gap by focussing on the interplay between niche and regime actors.Action research on implementing the circular economy programme in the Amsterdam Metropolitan Area (2015–2020) represents an example.Innovation science is adopted as leading theoretical approach.The case shows that more advanced ambitions could be achieved than through individual market actors by themselves. Whether the circular initiatives built represent just incremental change—as suggested in the few other studies—is considered too simplistic. It is concluded to conceptualise the CE transition rather as a continuous, transformational change which takes time.The interplay between niche and regime actors was evident in the case but varied. Niche actors could team up more easily with regime actors where their interests coincided. Niche CE innovations did not necessarily develop in protected environments, as suggested by early MLP studies. They could diffuse more widely if they link up with ongoing processes at regime and landscape level. This conclusion corresponds with the more recent innovation literature. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
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