23,352 results
Search Results
2. Position Paper: fragmented youth healthcare services in the Netherlands endanger treatment of teenage boys with psychiatric disorders.
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IJsselhof, Rinske, Hintjens, Amy, Pelzer, Anne, and Nieuwenhuis, Edward
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MENTAL illness treatment , *HEALTH services accessibility , *PSYCHIATRIC treatment , *MENTAL health services , *SUICIDAL ideation , *SEX distribution , *RETROSPECTIVE studies , *PSYCHOLOGICAL adaptation , *SEX discrimination , *DESCRIPTIVE statistics , *SELF-mutilation , *GENDER inequality , *HEALTH equity ,MEDICAL care for teenagers - Abstract
For children who show strongly deviant behaviour in the Netherlands, a distinction is made between behavioural problems and psychiatric problems. As a result, two different domains have emerged over time, each with its own legal frameworks and inclusion and exclusion criteria. Consequently, there is no well-organized, coherent system for youth mental health care in the Netherlands. This strong dichotomy raises the question whether patients are being admitted to facilities where they are receiving appropriate care. In addition, referral bias can arise, because the type of complaint with which a young person presents is often dependent on the type of coping of the individual and thus, in turn, the gender of the patient. In this Position Paper, we examined the gender distribution at a youth psychiatric high and intensive care (HIC-Y) and other streams of youth care in the Netherlands to explore possible inequities in access to psychiatric care among children and adolescents. Results show that girls are significantly more likely than boys to be admitted to the HIC-Y for suicidal thoughts, self-harm and emotional dysregulation. In fact, girls account for 80% of all admissions, while boys account for only 20%. In contrast, regional and national reports from youth services and probation show a majority of boys being admitted (56–89%). The way care is organized (lack of cross-domain collaboration and the interplay between gender-dependent coping and exclusion criteria) seems to play a role in the underrepresentation of boys in acute psychiatry and their overrepresentation in secure youth care. Based on our research results, the concern is raised whether boys have a greater chance of undertreatment for psychiatric problems. Further research is needed to better understand the underlying factors that contribute to gender bias in psychiatric admissions, and to develop interventions that promote gender equality in healthcare. [ABSTRACT FROM AUTHOR]
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- 2024
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3. "No Papers, No Treatment": a scoping review of challenges faced by undocumented immigrants in accessing emergency healthcare.
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Kisa, Sezer and Kisa, Adnan
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HEALTH services accessibility , *MEDICAL information storage & retrieval systems , *EMERGENCY medical services , *SYSTEMATIC reviews , *MEDLINE , *LITERATURE reviews , *HEALTH equity , *ONLINE information services - Abstract
Background: Undocumented immigrants face many obstacles in accessing emergency healthcare. Legal uncertainties, economic constraints, language differences, and cultural disparities lead to delayed medical care and thereby exacerbate health inequities. Addressing the healthcare needs of this vulnerable group is crucial for both humanitarian and public health reasons. Comprehensive strategies are needed to ensure equitable health outcomes. Objective: This study aimed to identify and analyze the barriers undocumented immigrants face in accessing emergency healthcare services and the consequences on health outcomes. Methods: We used a scoping review methodology that adhered to established frameworks. Utilizing MEDLINE/PubMed, Embase, Web of Science, PsychoInfo, and the Cumulative Index to Nursing and Allied Health Literature (CINAHL), we identified 153 studies of which 12 focused on the specific challenges that undocumented immigrants encounter when accessing emergency healthcare services based on the inclusion and exclusion criteria. Results: The results show that undocumented immigrants encounter significant barriers to emergency healthcare, including legal, financial, linguistic, and cultural challenges. Key findings were the extensive use of emergency departments as primary care due to lack of insurance and knowledge of alternatives, challenges faced by health professionals in providing care to undocumented migrants, increased hospitalizations due to severe symptoms and lack of healthcare access among undocumented patients, and differences in emergency department utilization between irregular migrants and citizens. The findings also serve as a call for enhanced healthcare accessibility and the dismantling of existing barriers to mitigate the adverse effects on undocumented immigrants' health outcomes. Conclusions: Undocumented immigrants' barriers to emergency healthcare services are complex and multifaceted and therefore require multifaceted solutions. Policy reforms, increased healthcare provider awareness, and community-based interventions are crucial for improving access and outcomes for this vulnerable population. Further research should focus on evaluating the effectiveness of these interventions and exploring the broader implications of healthcare access disparities. [ABSTRACT FROM AUTHOR]
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- 2024
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4. A Clash of Culture and Structure: Considering Barriers to Access for People Without Papers.
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Robb, Jaime Shamado
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IMMIGRANTS , *CULTURE , *HEALTH services accessibility , *RESEARCH methodology , *CONVERSATION , *INTERVIEWING , *RULES , *SOCIAL structure , *QUALITATIVE research , *FIELD notes (Science) , *HEALTH insurance , *DESCRIPTIVE statistics , *THEMATIC analysis , *HEALTH equity , *HEALTH care rationing , *TRUST - Abstract
As the United States' population grows via migration and immigration, with this rise in diverse identities, there has been increasing concern regarding disparities for undocumented immigrants living in the U.S. with limited access to the health system. Given the various constraints involving communication and social structures that undocumented immigrants face, a culture-centered approach is drawn on to investigating how this group goes about navigating a dominant health system given their restricted access. I explore co-constructed themes that emerged through conversations with undocumented immigrants, (people without papers as I call them in this work) living in the United States to gain an understanding as to the structural and cultural limitations faced by this group. By doing qualitative semi-structured interviews with local participants living in the South Florida region, I describe the various features of a complex U.S. health system that undocumented immigrants (people without papers) deemed as important obstacles that limit their willingness to interact with official medical spaces. This work draws on narratives and accounts to shed light on the intersection of disparities this group has to overcome in order to consider entering a medical space to receive the treatment they might need. The findings of this article highlighted the structural violence that certain subaltern groups, such as people without papers experience due to their limited access to foundational systems in their environment. [ABSTRACT FROM AUTHOR]
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- 2023
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5. Disparities in Overdose Deaths: Looking Back at Larochelle and Colleagues' 2021 Paper.
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Volkow, Nora D., Han, Beth, and Chandler, Redonna K.
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SUBSTANCE abuse treatment , *DRUG overdose , *RISK assessment , *HEALTH services accessibility , *MEDICAL quality control , *OPIOID abuse , *OPIOID analgesics , *HEALTH equity , *NALOXONE - Abstract
The article discusses an article by M. R. Larochelle and colleagues about disparities in overdose deaths. Topics include reason that the opioid overdose crisis most heavily affected non-Hispanic White people, major events that could not have been predicted at the time the article by Larochelle and colleagues was written, and lessons learned about the need for timely data on drug use patterns and overdoses to guide interventions.
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- 2024
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6. The palliative clinical specialist radiation therapist: A CAMRT White Paper.
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Lavergne, Carrie, Rozanec, Natalie, and Harnett, Nicole
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MEDICAL quality control ,HEALTH services accessibility ,CANCER patients ,RADIOTHERAPY ,INTERDISCIPLINARY education ,PALLIATIVE treatment ,ALLIED health personnel - Abstract
Copyright of Journal of Medical Imaging & Radiation Sciences is the property of Elsevier B.V. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2021
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7. Call for Considering the Impact of Depression on the Elderly Population: A Commentary Paper.
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Keisuke Tang and Ndayisenga, Jean Pierre
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PREVENTION of mental depression ,HEALTH services accessibility ,COMMUNITY health nursing ,MEDICAL technology ,SOCIAL determinants of health ,SELF-efficacy ,LIFE expectancy ,DISEASE prevalence ,NURSING care facilities ,NURSING practice ,QUALITY of life ,SOCIAL support ,MENTAL depression ,OLD age - Abstract
Depression is a global health issue. It is spoken about everywhere and can affect anyone at any age. In the past century, medical technology and preventative medicines have increased in availability and accessibility, resulting in an increase in global life expectancy. However, as a result of increased life expectancy, the number of elderly adults have also increased. Due to chronic conditions, decreased social support, increased physical dependency and other natural events that come with age, it has caused a great number of elderly individuals to be impacted by depression. Furthermore, changes in traditional family and social structures have made it harder for the elderly to be cared for at home by their children and has resulted in an increase of elderly individuals living in nursing homes. Due to the loss of independence associated with nursing homes, it has further increased the prevalence of depression amongst the elderly. Elderly depression is not normal and can greatly impact quality of life and result in poor health outcomes, thus it is imperative that nurses address this issue. The purpose of this paper is to explore the significance of depression to the elderly population and to community health nursing, as well as to explore potential solutions for elderly depression using a strengths-based approach. Furthermore, this paper discussed implications for nursing practice on elderly depression. Depression is a serious health concern to the elderly population that nurses must address using strength and asset-based perspectives. [ABSTRACT FROM AUTHOR]
- Published
- 2024
8. Multi-dimensional microfluidic paper-based analytical devices (μPADs) for noninvasive testing: A review of structural design and applications.
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Chen, Ting, Sun, Ce, Abbas, Syed Comail, Alam, Nur, Qiang, Sheng, Tian, Xiuzhi, Fu, Chenglong, Zhang, Hui, Xia, Yuanyuan, Liu, Liu, Ni, Yonghao, and Jiang, Xue
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MICROFLUIDIC devices , *RESOURCE-limited settings , *ONE-dimensional flow , *HEALTH services accessibility , *NONINVASIVE diagnostic tests - Abstract
The rapid emergence of microfluidic paper-based devices as point-of-care testing (POCT) tools for early disease diagnosis and health monitoring, particularly in resource-limited areas, holds immense potential for enhancing healthcare accessibility. Leveraging the numerous advantages of paper, such as capillary-driven flow, porous structure, hydrophilic functional groups, biodegradability, cost-effectiveness, and flexibility, it has become a pivotal choice for microfluidic substrates. The repertoire of microfluidic paper-based devices includes one-dimensional lateral flow assays (1D LFAs), two-dimensional microfluidic paper-based analytical devices (2D μPADs), and three-dimensional (3D) μPADs. In this comprehensive review, we provide and examine crucial information related to paper substrates, design strategies, and detection methods in multi-dimensional microfluidic paper-based devices. We also investigate potential applications of microfluidic paper-based devices for detecting viruses, metabolites and hormones in non-invasive samples such as human saliva, sweat and urine. Additionally, we delve into capillary-driven flow alternative theoretical models of fluids within the paper to provide guidance. Finally, we critically examine the potential for future developments and address challenges for multi-dimensional microfluidic paper-based devices in advancing noninvasive early diagnosis and health monitoring. This article showcases their transformative impact on healthcare, paving the way for enhanced medical services worldwide. [Display omitted] • Structure design strategies for microfluidic paper-based analytical devices. • Sensing mechanism and application in noninvasive testing. • Theoretical models of capillary-driven fluids within paper. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Wellbeing Outcomes and Risk and Protective Factors for Parents with Migrant and Refugee Backgrounds from the Middle East in the First 1000 Days: A Systematic Review.
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Winter, Amelia Kate, Due, Clemence, and Ziersch, Anna
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MENTAL illness risk factors ,MENTAL illness prevention ,ANXIETY prevention ,PREVENTION of mental depression ,RISK assessment ,MEDICAL information storage & retrieval systems ,EMIGRATION & immigration ,HEALTH services accessibility ,INFANT development ,HEALTH attitudes ,HEALTH status indicators ,RESEARCH funding ,PSYCHOLOGICAL distress ,MATERNAL health services ,PSYCHOLOGY of refugees ,MOTHERS ,CHILD health services ,PARENT attitudes ,POSTPARTUM depression ,HELP-seeking behavior ,DESCRIPTIVE statistics ,DISEASE prevalence ,LONELINESS ,PARENTING ,FAMILY roles ,FAMILIES ,PREGNANCY outcomes ,POPULATION geography ,EXPERIENCE ,SYSTEMATIC reviews ,MEDLINE ,THEMATIC analysis ,MIGRANT labor ,CHILD development ,PATIENT-professional relations ,PSYCHOLOGY of parents ,ONLINE information services ,SOCIAL support ,PATIENT satisfaction ,PSYCHOSOCIAL factors ,WELL-being ,PSYCHOLOGY information storage & retrieval systems ,MENTAL depression ,SOCIAL isolation ,COMMUNICATION barriers ,COVID-19 pandemic ,PREGNANCY - Abstract
The First 1000 Days (the period from conception to a child's second birthday) is an important developmental period. However, little is known about experiences of parents with refugee and migrant backgrounds during this period. A systematic review was conducted according to PRISMA guidelines. Publications were identified through searches of the Embase, PsycINFO, PubMed, and Scopus databases, critically appraised, and synthesised using thematic analysis. A total of 35 papers met inclusion criteria. Depressive symptomatology was consistently higher than global averages, however maternal depression conceptualisations differed across studies. Several papers reported changes in relationship dynamics as a result of having a baby post-migration. Consistent relationships were found between social and health support and wellbeing. Conceptualisations of wellbeing may differ among migrant families. Limited understanding of health services and relationships with health providers may impede help-seeking. Several research gaps were identified, particularly in relation to the wellbeing of fathers, and of parents of children over 12 months old. [ABSTRACT FROM AUTHOR]
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- 2024
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10. Integration of Population Health, Social Determinants, and Social Justice in Transcultural Nursing and Culturally Competent Care: White Paper by the Scholars Education Interest Group.
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Pacquiao, Dula F., Maxwell, Joanna Basuray, Ludwig-Beymer, Patti, Stievano, Alessandro, Sagar, Priscilla L., Purnell, Larry, Daub, Katharyn F., and Halabi, Jehad O.
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OCCUPATIONAL roles , *SOCIAL determinants of health , *HEALTH services accessibility , *SOCIAL justice , *TRANSCULTURAL nursing , *CULTURAL competence , *NURSES , *POPULATION health , *PATIENT safety , *HEALTH promotion - Abstract
Introduction: As part of its mission to advance Transcultural Nursing worldwide, the Transcultural Nursing Society Scholars upholds the central role of the discipline and cultural competence in advocacy, empowerment, and transformation of the life conditions of disadvantaged populations. This White Paper affirms the Scholars' core belief in the value of Transcultural Nursing and culturally competent care in addressing social determinants to promote health equity. Methods: The Scholars Education Interest Group proposes recommendations for changes in education, practice, and research undergirding the discipline and expand cultural competence to directly address social structural and historical forces that perpetuate health vulnerability in diverse populations. Results: Collaborative leadership between the TCNS Scholars, Board of Trustess and members should develop initiatives to foster implementation of the recommendations and promote global dissemination of exemplars in education, research and practice. Discussion: Collaborative implementation of recommendations will generate evidence of health equity outcomes through TCN and culturally competent care. [ABSTRACT FROM AUTHOR]
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- 2023
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11. Migrant workers occupational health research: an OMEGA-NET working group position paper.
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Aktas, Emine, Bergbom, Barbara, Godderis, Lode, Kreshpaj, Bertina, Marinov, Mario, Mates, Dana, McElvenny, Damien M., Mehlum, Ingrid Sivesind, Milenkova, Valentina, Nena, Evangelia, and Glass, Deborah C.
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INDUSTRIAL hygiene , *MIGRANT labor , *GROUP work in research , *PUBLIC health research , *OCCUPATIONAL health services , *HEALTH services accessibility - Abstract
Objective: The aims of the study were: (1) to clarify the definitions of "migrant" used in occupational health research; (2) to summarize migrant workers' industry sectors, occupations and employment conditions; (3) to identify the occupational health and safety services available to migrant workers; (4) to summarize work-related health problems found among migrant workers; (5) to identify the methodological challenges to research into occupational health of migrant workers; and (6) to recommend improvements in migrant occupational health research. Methods: This position paper was prepared by researchers from several European countries and Australia, working within the EU COST Action OMEGA-NET. The paper drew on two recent systematic reviews on the occupational health of international migrant workers and other literature, and also identified uncertainties and gaps in the research literature. Migrants may, for example, be temporary or permanent, moving for specific jobs migrants or other reasons. Their ethnicity and language capabilities will affect their work opportunities. Results: The occupational health literature seldom adequately identifies the heterogeneity or characteristics of the migrant group being studied. Migrants tend to work in more physically and mentally demanding environments with higher exposures than native workers. Migrants tend to have an increased risk of physical and mental ill health, but less access to health care services. This has been demonstrated recently by high rates of COVID-19 and less access to health care. There have been a number of cross-sectional studies of migrant health but few long-term cohort studies were identified. Other study designs, such as registry-based studies, surveys and qualitative studies may complement cross-sectional studies. Mixed-methodology studies would be valuable in research on migrants' occupational health. Language and lack of trust are barriers to migrant research participation. Conclusion: Targeted research, especially longitudinal, identifying how these economically important but often-vulnerable workers can be best assisted is needed. Researchers should identify the characteristics of the migrant workers that they are studying including visa/migration circumstances (temporary, permanent, undocumented), racial and ethnic characteristics, existing skills and language abilities. [ABSTRACT FROM AUTHOR]
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- 2022
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12. Principles for Ending Human Immunodeficiency Virus as an Epidemic in the United States: A Policy Paper of the Infectious Diseases Society of America and the HIV Medical Association.
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Person, Anna K, Armstrong, Wendy S, Evans, Tyler, Fangman, John J W, Goldstein, Robert H, Haddad, Marwan, Jain, Mamta K, Keeshin, Susana, Tookes, Hansel E, Weddle, Andrea L, and Feinberg, Judith
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HIV infection epidemiology , *HIV prevention , *HEALTH services accessibility , *MEDICAL care , *HEALTH care reform , *QUALITY of life , *MEDICAL societies - Abstract
While we have the tools to achieve this goal, the persistent barriers to healthcare services experienced by too many individuals will need to be addressed to make significant progress and improve the health and quality of life of all people with human immunodeficiency virus (HIV). The necessary structural changes require actions by federal, state, and local policymakers and range from ensuring universal access to healthcare services to optimizing care delivery to ensuring a robust and diverse infectious diseases and HIV workforce. In this article, we outlines 10 key principles for policy reforms that, if advanced, would make ending the HIV epidemic in the United States possible and could have much more far-reaching effects in improving the health of our nation. [ABSTRACT FROM AUTHOR]
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- 2023
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13. The health of detainees and the role of primary care: Position paper of the European Forum for Primary Care.
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Groenewegen, Peter, Dirkzwager, Anja, van Dam, Anke, Massalimova, Dina, Sirdifield, Coral, and Smith, Lauren
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HEALTH services accessibility , *PRISONERS , *PRIMARY health care , *CONTINUUM of care , *POLICY sciences , *MEDICAL needs assessment - Abstract
This position paper aims to increase awareness among primary care practitioners and policymakers about the specific and complex health needs of people who experience incarceration. We focus on the importance of primary care and of continuity of care between prison and community. We highlight what is known from the literature on the health of people who experience incarceration, on the organisation of prison health care, and on the role of primary care both during and after detention. We present three case descriptions of detainees' encounters with the organisation of prison health care in three European countries. Finally, we describe the position that the European Forum for Primary Care takes. Prisoners and ex-prisoners have a worse physical and mental health compared with a cross-section of the population. However, access to good quality treatment and care is often worse than in the outside situation. In particular, well-organised primary care in the prison context could benefit prisoners and, indirectly, society at large. Moreover, continuity of care between the community and the prison situation needs improvement. [ABSTRACT FROM AUTHOR]
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- 2022
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14. Demonstrated in This Issue's Papers: Complexity and Diversity of the Field of Visual Impairment.
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Lewis, Sandra
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SERIAL publications , *HEALTH services accessibility , *VISION disorders , *BODY image , *CERTIFICATION , *REHABILITATION of blind people , *EXPERIENCE , *STUDENTS , *TEACHERS , *ONLINE education , *VIDEOCONFERENCING , *LABOR demand , *OPTOMETRY - Abstract
An introduction is presented in which the author discusses articles within the issue on topics including the role of visual experiences and sociocultural pressures in the shaping of body images of people diagnosed with blindness, feasibility and acceptability of using videoconferencing tools to present an adapted job-search intervention, and low vision rehabilitation of optometrists providing services in the Pubjab, Pakistan.
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- 2024
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15. Recommendations to improve maternal health equity among Black women in "The South": A position paper from the SNRS minority health research interest & implementation group.
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Eapen, Doncy, Mbango, Catherine, Daniels, Glenda, Mathew Joseph, Nitha, Mary, Annapoorna, Mathews, Nisha, Carr, Kathryn Kravetz, Wells, Cheryl, Suriaga, Armiel, and Saint Fleur, Angeline
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MATERNAL health services ,MEDICAL quality control ,HEALTH services accessibility ,MINORITIES ,BLACK people ,WOMEN ,QUALITY assurance ,NURSING research ,PREGNANCY complications ,HEALTH care teams ,PROFESSIONAL associations ,MATERNAL mortality - Abstract
Black women in the United States experience a higher maternal mortality rate compared to other racial groups. The maternal mortality rate among non‐Hispanic Black women is 3.5 times that of non‐Hispanic White women and is higher in the South compared to other regions. The majority of pregnancy‐related deaths in Black women are deemed to be preventable. Healthy People 2030 directs healthcare providers to advance health equity through societal efforts to address avoidable inequalities, historical and contemporary injustices, and the elimination of health and healthcare disparities. The Southern Nursing Research Society has put forward this position paper to provide recommendations to improve maternal health equity among Black women. Recommendations for nurses, multidisciplinary healthcare providers, policymakers, and researchers are discussed. [ABSTRACT FROM AUTHOR]
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- 2023
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16. Rethinking 'need' for clinical support in transgender and gender non‐conforming children without clinical classification: Learning from 'the paper I almost wrote'.
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Horowicz, Edmund
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SOCIAL support , *HEALTH services accessibility , *SOCIAL stigma , *GENDER dysphoria , *GENDER identity , *GENDER nonconformity , *NEEDS assessment , *NEED (Psychology) , *MEDICAL needs assessment , *BIOETHICS , *CHILDREN - Abstract
There have been ongoing debates as to how, or even whether, we should clinically classify gender diversity in children through clinical classification manuals. So‐called 'depathologizing' is argued as being vital to address the stigma that these children are somehow disordered or sick. Yet one argument in favour of continued clinical classification for transgender and gender non‐conforming children is that it better facilitates access to specialist psychological support. I argue that whilst continued clinical classification offers a seemingly pragmatic solution to ensuring access, it does in fact obscure our understanding of the individual needs of these children. In this paper I address fundamental issues that aim to better our understanding of need and thus why a child may benefit from specialist support. I do so by critiquing a paper I nearly wrote, which argued for the ongoing continued classification of gender incongruence in children. Ultimately, I argue that specialist psychological support and care should be driven by the needs of the individual child, as determined by the child and those involved with their care. By bettering our understanding as to why specialist psychological support may be beneficial for some, we move past the focus of such specialist support being provided because of the child's gender diversity. Methodologically the paper may be unusual, in comparison to traditional normative counter‐argumentative bioethical position papers, but by presenting an argument for depathologization of gender diversity of children in this way there is also an alternative insight into the methods of bioethics. [ABSTRACT FROM AUTHOR]
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- 2021
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17. “On paper” and “having papers”: Zimbabwean migrant women’s experiences in accessing healthcare in Giyani, Limpopo province, South Africa.
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Chekero, Tamuka and Ross, Fiona C.
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HEALTH services accessibility , *MEDICAL care of women immigrants , *REPRODUCTIVE health services , *WOMEN'S health services , *LEGAL status of women immigrants , *HEALTH policy , *ZIMBABWEANS - Abstract
South Africa is signatory to international protocols that secure migrant rights to healthcare. Its national health policy prohibits discrimination. Pregnant women and children under six years ostensibly enjoy access to free healthcare, irrespective of migration status. What is clear “on paper,” however, becomes considerably more opaque when experienced by those who do not “have papers.” We explore this in Giyani, South Africa, an important migrant destination. Despite a progressive healthcare policy and immigrant rights regime, migrant women’s lack of proper documentation precludes them in practice from accessing state-provided reproductive healthcare. The result is twofold. Women who are entitled to public healthcare prefer to make use of private healthcare, despite the costs, and they make recourse to a range of extra-state relations for healthcare. We focus on one unexpected consequence: that the same healthcare providers who have formally refused access to state institutions may be available to migrants through personal networks, such as in churches. Here, medical care is seen as taking place in a religious register. The difference between what is “on paper” and “what papers migrants have” is critical but may be mediated by access to other realms of the social. [ABSTRACT FROM AUTHOR]
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- 2018
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18. Culturally Congruent Health Care of COVID-19 in Minorities in the United States: A Clinical Practice Paper From the National Coalition of Ethnic Minority Nurse Associations.
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Cuellar, Norma G., Aquino, Elizabeth, Dawson, Martha A., Garcia-Dia, Mary Joy, Im, Eun-Ok, Jurado, Leo-Felix M., Lee, Young Shin, Littlejohn, Sandy, Tom-Orme, Lillian, and Toney, Debra A.
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NURSES' associations , *BLACK people , *COALITIONS , *ETHNOPSYCHOLOGY , *HEALTH services accessibility , *HEALTH status indicators , *HISPANIC Americans , *NATIVE Americans , *MEDICAL care , *PSYCHOLOGY of Minorities , *RACE , *CULTURAL competence , *HEALTH & social status , *COVID-19 - Abstract
Introduction: Race and ethnicity along with social determinants of health have been identified as risk factors for COVID-19. The purpose of this clinical paper is to provide an overview of the National Coalition of Ethnic Minority Nurse Associations (NCEMNA), present COVID-19 epidemiological data on five racial–ethnic groups, identify culturally congruent health care strategies for each group, and provide directions for practice and research. Method : NCEMNA collaborated to provide a clinical paper that addresses information about COVID-19 and culturally congruent health care in five racial–ethnic groups. Results : Every organization presented common themes across the different groups and unique perspectives that each group is faced with during this challenge. Discussion : This article provides an introduction to the issues that minority groups are facing. It is imperative that data are collected to determine the extent of the impact of COVID-19 in diverse communities in the country. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
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19. Strategies to optimise culturally appropriate perioperative care for Aboriginal and Torres Strait Islander peoples: A discussion paper.
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Joye, Maureen and Foran, Paula
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PERIOPERATIVE care ,INDIGENOUS Australians ,NURSE liaisons ,HEALTH services accessibility ,PATIENT advocacy ,OPERATING room nurses ,NURSE-patient relationships ,HEALTH equity ,EVIDENCE-based nursing ,NURSING interventions ,TRUST - Abstract
The disparity in health outcomes between Indigenous and non-indigenous Australians continues to increase. Barriers to accessing health care, particularly surgical treatment, contribute to health inequalities among Indigenous Australians. Despite a positive correlation between improved patient experiences and health outcomes, there is little research available on nursing interventions to improve Indigenous patients' perioperative health care treatment. This discussion paper investigates culturally appropriate and evidence- based nursing interventions that can be applied in the perioperative setting to improve the surgical experience of Indigenous patients. It was shown that establishing trust among Aboriginal and Torres Strait Islander patients through anaesthetic nurse practices and advocating for family involvement is critical in providing culturally safe care and enhancing patient experiences. Indigenous health liaison officers were also identified as a valuable resource in bridging cultural and communication gaps between health care providers and Indigenous patients. These findings demonstrate that using tailored nursing strategies while providing perioperative care to Indigenous Australians can enhance their perioperative health care experience and contribute to improving health outcomes of Indigenous Australians. It is therefore recommended that perioperative nurses adopt these strategies; however, further research is needed to investigate implementation of an enhanced role for anaesthetic nurses, advocating for family involvement and referral to Indigenous health liaison officers. Such research should evaluate the impact of these new holistic and patient-centred approaches on the health outcomes and experiencecs of Indigenous patients. [ABSTRACT FROM AUTHOR]
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- 2023
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20. A discursive paper on the importance of health literacy among foreign domestic workers during outbreaks of communicable diseases.
- Author
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Ho, Ken Hok Man and Smith, Graeme Drummond
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EDUCATION of immigrants , *ACCULTURATION , *COMMUNICABLE diseases , *COMMUNITY health nursing , *EPIDEMICS , *HEALTH , *HEALTH promotion , *HEALTH services accessibility , *NURSES , *INFORMATION resources , *OCCUPATIONAL roles , *SOCIAL support , *ACCESS to information , *HEALTH literacy , *FAKE news , *STAY-at-home orders , *COVID-19 pandemic - Abstract
Aim: Using an integrated model of health literacy, we discuss the importance of health literacy among foreign domestic workers in the provision of informal caregiving during outbreaks of communicable diseases. COVID‐19 pandemic is used as an example. Background: Adequate health literacy in the population is known to be important for the prevention of communicable diseases. Foreign domestic workers, a group of marginalised caregivers in private households, are generally presumed to have limited health literacy because of numerous socio‐cultural disadvantages. To date, there is limited evidence that these informal healthcare providers receive support from community‐based nurses. Design: A discursive paper. Conclusion: Foreign domestic workers, with varying levels of health literacy, may be viewed either as a resource to break the chain of infection or as a potential reservoir of communicable diseases in the community. Meanwhile, restrictions imposed in response to diseases transmissions (e.g. stay‐at‐home measures for COVID‐19) may directly exacerbate the social support received by these foreign domestic works and their ability to access health‐related information. There are also concerns about their ability to appraise and evaluate information related to communicable diseases at a time when fake news and misinformation are being disseminated through social media. Language and cultural barriers are important issues that need to be addressed to ensure that foreign domestic workers are in a position to follow public health recommendations. Relevance to clinical practice: Nurses hold an important position in empowering foreign domestic workers with adequate health literacy, by engaging groups of foreign domestic workers in the community and their consulates in planning educational programmes and effectively disseminating information. At a time of global pandemic, an assessment of the health literacy levels of foreign domestic workers in places like Hong Kong is urgently required. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
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21. An ethical exploration of the narratives surrounding substance use and pain management at the end of life: a discussion paper.
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Witham, Gary, Yarwood, Gemma, Wright, Sam, and Galvani, Sarah
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ANALGESICS , *BIOETHICS , *COST effectiveness , *DRUG addiction , *HEALTH services accessibility , *PATIENT-professional relations , *NARCOTICS , *PALLIATIVE treatment , *SOCIAL stigma , *SUBSTANCE abuse , *PAIN management - Abstract
This discussion article examines narrative positioning related to pain management for people who use substances at the end of life. We explore how dominant narrative genres associated with biomedicine, such as 'restitution' and narratives common within the context of drug services such as 'recovery' can hinder effective pain management within this population. We argue that these discourses can marginalise the ethical self-identity of patients who use substances at the end of life. It can also trouble health and social care professionals in supporting patients and generating counter-narratives that challenge those often associated with substance use. Stigma is a common experience for this population with stereotyping as 'junkies' and associated with criminality. They are positioned as drug-seeking, and this requires more surveillance at the end of life when opioid therapy is potentially more available and authorised. This can make it challenging to generate 'companion' stories that are positive and maintain moral adequacy. Dominant biomedical narrative genres often prevent the recognition of the fractured stories that people using substances can often present with. This can lead to narrative silencing and to the under treatment of pain. The person's self-identity is invested in narratives of recovery, and opioid use symbolises their addicted past because for practitioners, this population is at clinical risk with the potential for drug seeking behaviours. Whilst not requiring formal ethical review this discussion paper was constructed in accordance with good scientific practice with the work of other researchers respected and cited appropriately. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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22. "A piece of paper is not the same as having someone to talk to": accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities.
- Author
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Giebel, Clarissa, Hanna, Kerry, Tetlow, Hilary, Ward, Kym, Shenton, Justine, Cannon, Jacqueline, Butchard, Sarah, Komuravelli, Aravind, Gaughan, Anna, Eley, Ruth, Rogers, Carol, Rajagopal, Manoj, Limbert, Stan, Callaghan, Steve, Whittington, Rosie, Shaw, Lisa, and Gabbay, Mark
- Subjects
- *
TREATMENT of dementia , *HEALTH services accessibility , *SOCIAL support , *CAREGIVERS , *COVID-19 , *TELEPHONES , *HEALTH status indicators , *INTERVIEWING , *DEMENTIA patients , *EXPERIENCE , *DESCRIPTIVE statistics , *THEMATIC analysis , *COVID-19 pandemic - Abstract
Background: Social support services such as day care centres are important in post-diagnostic dementia care to enable people living with dementia stay at home for longer. Little research has addressed potential inequalities in access, with no research on variations before and since COVID-19. The aim of this study was to explore inequalities in social support service usage before and since the pandemic. Methods: Unpaid carers and people living with dementia were interviewed over the phone about their experiences of accessing social support services before and since the COVID-19 pandemic. Transcripts were analysed for key themes using inductive and deductive thematic analysis. Results: Fifty participants (42 unpaid carers; eight people living with dementia) were interviewed, and five themes identified: (1) Service issues; (2) Access issues; (3) Relying on own initiative; (4) New inequalities due to COVID-19; and (5) Missing out on the benefits of support services. Participants reported transport, finances, and location as factors reducing their ability to access support service pre-COVID, with inequalities remaining and at times exacerbated since. Carers and people living with dementia also reported struggling with accessing basic necessities during COVID, including food and medicines. Conclusions: Considering the benefits of accessing support services, resourced procedures and facilities are needed to maintain access to support services with more accessible remote support provision, enabling people from all backgrounds to access the care they need. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
23. Canadian Association of Radiologists White Paper on De-identification of Medical Imaging: Part 2, Practical Considerations.
- Author
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Parker, William, Jaremko, Jacob L., Cicero, Mark, Azar, Marleine, El-Emam, Khaled, Gray, Bruce G., Hurrell, Casey, Lavoie-Cardinal, Flavie, Desjardins, Benoit, Lum, Andrea, Sheremeta, Lori, Lee, Emil, Reinhold, Caroline, Tang, An, and Bromwich, Rebecca
- Subjects
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ALGORITHMS , *ARTIFICIAL intelligence , *DATA encryption , *DATABASE management , *DIAGNOSTIC imaging , *HEALTH services accessibility , *MACHINE learning , *MEDICAL protocols , *DICOM (Computer network protocol) , *COVID-19 pandemic - Abstract
The application of big data, radiomics, machine learning, and artificial intelligence (AI) algorithms in radiology requires access to large data sets containing personal health information. Because machine learning projects often require collaboration between different sites or data transfer to a third party, precautions are required to safeguard patient privacy. Safety measures are required to prevent inadvertent access to and transfer of identifiable information. The Canadian Association of Radiologists (CAR) is the national voice of radiology committed to promoting the highest standards in patient-centered imaging, lifelong learning, and research. The CAR has created an AI Ethical and Legal standing committee with the mandate to guide the medical imaging community in terms of best practices in data management, access to health care data, de-identification, and accountability practices. Part 2 of this article will inform CAR members on the practical aspects of medical imaging de-identification, strengths and limitations of de-identification approaches, list of de-identification software and tools available, and perspectives on future directions. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
24. WORKSHOP: SHORT PAPER AND POSTER ABSTRACTS.
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OCCUPATIONAL roles ,CULTURAL identity ,HEALTH services accessibility ,ORAL health ,LEADERSHIP ,TRANSCULTURAL medical care ,CONFERENCES & conventions ,DENTAL therapists ,CLINICAL competence ,HEALTH promotion - Published
- 2023
25. Patient blood management in India - Review of current practices and feasibility of applying appropriate standard of care guidelines. A position paper by an interdisciplinary expert group.
- Author
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Gandhi, Ajay, Görlinger, Klaus, Nair, Sukesh, Kapoor, Poonam, Trikha, Anjan, Mehta, Yatin, Handoo, Anil, Karlekar, Anil, Kotwal, Jyoti, John, Joseph, Apte, Shashikant, Vohra, Vijay, Gupta, Gajendra, Tiwari, Aseem, Rani, Anjali, and Singh, Shweta
- Subjects
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MEDICAL personnel , *HEALTH facilities , *PLATELET function tests , *HEALTH services accessibility , *HEMORRHAGE - Abstract
In a developing country like India, with limited resources and access to healthcare facilities, dealing with massive hemorrhage is a major challenge. This challenge gets compounded by pre-existing anemia, hemostatic disorders, and logistic issues of timely transfer of such patients from peripheral hospitals to centers with adequate resources and management expertise. Despite the awareness amongst healthcare providers regarding management modalities of bleeding patients, no uniform Patient Blood Management (PBM) or perioperative bleeding management protocols have been implemented in India, yet. In light of this, an interdisciplinary expert group came together, comprising of experts working in transfusion medicine, hematology, obstetrics, anesthesiology and intensive care, to review current practices in management of bleeding in Indian healthcare institutions and evaluating the feasibility of implementing uniform PBM guidelines. The specific intent was to perform a gap analysis between the ideal and the current status in terms of practices and resources. The expert group identified interdisciplinary education in PBM and bleeding management, bleeding history, viscoelastic and platelet function testing, and the implementation of validated, setting-specific bleeding management protocols (algorithms) as important tools in PBM and perioperative bleeding management. Here, trauma, major surgery, postpartum hemorrhage, cardiac and liver surgery are the most common clinical settings associated with massive blood loss. Accordingly, PBM should be implemented as a multidisciplinary and practically applicable concept in India in a timely manner in order to optimize the use the precious resource blood and to increase patients' safety. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
26. White Paper for the WHO International Meeting of World Pharmacopoeias: Value of Pharmacopoeial Standards for Access to Quality Medicines.
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DRUGSTORES , *HEALTH services accessibility , *INTERPROFESSIONAL relations , *MEETINGS , *PATIENT safety , *PHARMACEUTICAL industry , *PHARMACY information services , *QUALITY assurance , *WORLD health , *COVID-19 pandemic - Abstract
The article discusses healthcare systems for the world, medicines play an important role in treating illness, preventing disease, and ultimately, saving lives. Topics include a broader sense, medicines have valuable to society as tools to protect the public health; and the quality of medicines has ensured by the control of many factors such as the quality of components.
- Published
- 2020
27. Developing an integrated emergency medical services in a low-income country like Nepal: a concept paper.
- Author
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Bhandari, Deepak and Yadav, Nabin Krishna
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EMERGENCY medical services , *HEALTH services accessibility , *HEALTH status indicators , *INCOME , *INTEGRATED health care delivery , *INTERPROFESSIONAL relations , *MEDICAL care costs , *POVERTY , *GOVERNMENT aid - Abstract
Background: The main aim of emergency medical services (EMS) should be to provide universal emergency medical care which is EMS system available to all those who need it. Most of the developed countries have an integrated EMS system that is accessible by a single dial number in the whole country. Nepal does not have a proper EMS system. We conducted a literature review regarding methods of developing an integrated EMS system in Nepal. Result: The fragmented system, high demand–low supply, inequity with the service, and inadequately trained responders are major problems associated with EMS in Nepal. Nepal too should develop an integrated single dial number EMS system to meet the current demand of EMS. Having a paramedic in ambulances as the first responders will prevent chaos and save critical time. Funding models have to be considered while developing an EMS considering the capital as well as operational cost. Conclusion: Nepal can develop a public private partnership model of EMS where capital cost is provided by the government and operational cost by other methods. Community-based insurance system looks more feasible in a country like Nepal for generating operational cost. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
28. A community engaged primary healthcare strategy to address rural school student inequities: a descriptive paper.
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Jones, Debra, Ballard, Jacqueline, Dyson, Robert, Macbeth, Peter, Lyle, David, Sunny, Palatty, Thomas, Anu, and Sharma, Indira
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- *
COMMUNITY health nursing , *HEALTH services accessibility , *HEALTH status indicators , *HIGH school students , *INTERPROFESSIONAL relations , *LABOR supply , *NURSING services , *PRIMARY health care , *RESEARCH funding , *RURAL conditions , *STRATEGIC planning , *SOCIOECONOMIC factors , *EDUCATIONAL attainment - Abstract
Aim: This descriptive paper aims to describe the design and implementation of a community engaged primary healthcare strategy in rural Australia, the Primary Healthcare Registered Nurse: Schools-Based strategy. This strategy seeks to address the health, education and social inequities confronting children and adolescents through community engaged service provision and nursing practice. Background: There have been increasing calls for primary healthcare approaches to address rural health inequities, including contextualised healthcare, enhanced healthcare access, community engagement in needs and solutions identification and local-level collaborations. However, rural healthcare can be poorly aligned to community contexts and needs and be firmly entrenched in health systems, marginalising community participation. Methods: This strategy has been designed to enhance nursing service and practice responsiveness to the rural context, primary healthcare principles, and community experiences and expectations of healthcare. The strategy is underpinned by a cross-sector collaboration between a local health district, school education and a university department of rural health. A research framework is being developed to explore strategy impacts for service recipients, cross-sector systems, and the establishment and maintenance of a primary healthcare nursing workforce. Findings: Although in the early stages of implementation, key learnings have been acquired and strategic, relationship, resource and workforce gains achieved. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
29. Rural Health Scenario – Role of family medicine: Academy of Family Physicians of India Position Paper.
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Kumar, Pratyush and Kumar, Raman
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FAMILY medicine , *FAMILY roles , *RURAL health , *MEDICAL personnel , *PHYSICIANS , *HEALTH services accessibility - Abstract
Half the world’s people currently live in rural and remote areas. About 70% of the world’s 1.4 billion people who are extremely poor live in rural areas. The problem is that the majority of healthcare providers prefer to serve in urban areas. Only a comprehensive and systematic approach can address these inequities. India, the largest democratic republic in the world, possesses 2.4% of the world’s land area and supports 16% of the world’s population. According to census 2011, 68.84% of population resides in rural areas. Nearly 86% of all the medical visits in India are made by rural inhabitants with a majority still traveling more than 100 km to avail healthcare facility, of which 70%–80% is born out of pocket landing them in poverty. A country’s approach must systematically and simultaneously address legal coverage and rights, health worker shortages, extension of healthcare protection, and quality of care. Only then can equitable access for all be fully achieved. Those living in rural areas have access to health protection and services that meet the criteria of availability, affordability, accessibility, acceptability, and quality. Family medicine as a broad specialty has its role from womb till tomb. Family medicine is defined as a specialty of medicine which is concerned with providing comprehensive care to individuals and families by integrating biomedical, behavioral, and social sciences. As an academic discipline, it includes comprehensive healthcare services, education, and research. A family doctor provides primary and continuing care to the entire family within the communities; addresses physical, psychological, and social problems; and coordinates comprehensive healthcare services with other specialists, as needed. The practitioners in family medicine can play an important role in providing healthcare services to the suffering humanity. The general practitioner’s responsibility in Medicare includes management of emergencies, treatment of problems relating to various medical and surgical specialties, care of entire family in its environment, appropriate referrals, and follow-up. He or she is the first-level contact for the patients and his or her family. Family medicine is the ideal solution to growing rural healthcare challenges. This article is a formal position paper of the Academy of Family Physicians of India. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
30. The importance of ethical aspects when implementing eHealth services in healthcare: A discussion paper.
- Author
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Skär, Lisa and Söderberg, Siv
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- *
TELEMEDICINE , *CINAHL database , *DIGNITY , *HEALTH services accessibility , *INFORMATION technology , *MEDICAL quality control , *MEDLINE , *NURSING practice , *ONLINE information services , *SYSTEMATIC reviews , *PATIENTS' rights , *PATIENT-centered care , *ELECTRONIC health records , *PATIENT autonomy , *ETHICS - Abstract
Abstract: Aim: The aim of this paper was to discuss the importance of ethical aspects when implementing eHealth services in health care. Background: Challenges in healthcare today include a growing older population and, as a consequence, an increased need for healthcare services. One possible solution is the use of eHealth services. Design: Discussion paper. Data sources: Research literature published from 2000–2017 in CINAHL, PubMed and Scopus. Implications for nursing: Implementing eHealth services in health care involves ethical challenges where different technologies can solve different problems in different ways. eHealth services should therefore be developed and implemented based on the patient's specific needs and conditions for use and in accordance with the healthcare professionals' presumption to provide high‐quality care. Conclusion: To preserve patients' integrity, dignity and autonomy, healthcare professionals must include ethical aspects when implementing and using eHealth services in health care. Healthcare professionals have to take responsibility for the eHealth services introduced, explaining why and how they are implemented based on a person‐centred approach. More knowledge is needed about ethical aspects when implementing eHealth services to improve the quality of care. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
31. Medical journal's refusal to retract paper used to restrict abortion in US sparks independence row.
- Author
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Davies, Madlen
- Subjects
ABORTION laws ,ABORTION in the United States ,HEALTH services accessibility ,ETHICS ,SERIAL publications ,PROFESSIONAL autonomy ,MIFEPRISTONE ,MISINFORMATION ,MEDICAL literature - Published
- 2023
- Full Text
- View/download PDF
32. White Paper for Global Palliative Care Advocacy: Recommendations from a PAL-LIFE Expert Advisory Group of the Pontifical Academy for Life, Vatican City.
- Author
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Puchalski, Christina, Rajagopal, M.R., Yong, Julianna, Centeno, Carlos, Garralda, Eduardo, Sitte, Thomas, de Lima, Liliana, Callaway, Mary, Pettus, Katherine, Alsirafy, Sami, Bruera, Eduardo, Foley, Kathleen, Luyirika, Emmanuel, Mosoiu, Daniela, Rhee, John Y., and Comoretto, Nunziata
- Subjects
- *
ACADEMIC medical centers , *CLUSTER analysis (Statistics) , *CONCEPTUAL structures , *DELPHI method , *EXECUTIVES , *HEALTH services accessibility , *MEDICAL personnel , *PALLIATIVE treatment , *PATIENT advocacy , *CERTIFICATION , *UNDERGRADUATES - Abstract
Background: The Pontifical Academy for Life (PAV) is an academic institution of the Holy See (Vatican), which aims to develop and promote Catholic teachings on questions of biomedical ethics. Palliative care (PC) experts from around the world professing different faiths were invited by the PAV to develop strategic recommendations for the global development of PC ("PAL-LIFE group"). Design: Thirteen experts in PC advocacy participated in an online Delphi process. In four iterative rounds, participants were asked to identify the most significant stakeholder groups and then propose for each, strategic recommendations to advance PC. Each round incorporated the feedback from previous rounds until consensus was achieved on the most important recommendations. In a last step, the ad hoc group was asked to rank the stakeholders' groups by order of importance on a 13-point scale and to propose suggestions for implementation. A cluster analysis provided a classification of the stakeholders in different levels of importance for PC development. Results: Thirteen stakeholder groups and 43 recommendations resulted from the first round, and, of those, 13 recommendations were chosen as the most important (1 for each stakeholder group). Five groups had higher scores. The recommendation chosen for these top 5 groups were as follows: (1) Policy makers: Ensure universal access to PC; (2) Academia: Offer mandatory PC courses to undergraduates; (3) Healthcare workers: PC professionals should receive adequate certification; (4) Hospitals and healthcare centers: Every healthcare center should ensure access to PC medicines; and (5) PC associations: National Associations should be effective advocates and work with their governments in the process of implementing international policy framework. A recommendation for each of the remaining eight groups is also presented. Discussion: This white paper represents a position statement of the PAV developed through a consensus process in regard to advocacy strategies for the advancement of PC in the world. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
33. Empty stocks and loose paper: Governing access to medicines through informality in Northern India.
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Dahdah, Marine Al, Kumar, Aalok, and Quet, Mathieu
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HEALTH services accessibility , *MEDICAL care , *INFORMAL sector , *ETHNOLOGY , *HEALTH policy - Abstract
Based upon research in the state of Bihar, India, this article argues that informal access to medicines in Northern India is a core element of the government of healthcare. Informal providers such as unlicensed village doctors and unlicensed drug sellers play a major role in access to medicines in Bihar, in the particular context of the dismantling of public procurement services. Building on recent works in the socio-anthropology of pharmaceuticals, the article shows the importance of taking into account the political economy of drugs in India, in order to understand local problems of access more fully. If informal providers occupy such an important position in the government of healthcare in India, this is partly due to the shaping of healthcare as access to drugs on health markets. Elaborating the argument from interviews with health professionals and patients, the article first shows the situation of public healthcare and public procurement in Bihar; then it presents the role of informal medicine providers; lastly, it shows how patients deal with the fact that they live in a ‘pharmaceutical world’ where access to health equates with access to medicines. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
34. White paper on designing a risk evaluation and mitigation strategies (REMS) system to optimize the balance of patient access, medication safety, and impact on the health care system.
- Subjects
HEALTH risk assessment ,HEALTH services accessibility ,MEDICAL care ,PATIENT education ,PHARMACISTS ,QUALITY control - Abstract
Objective: To convene a group of expert stakeholders to develop recommendations for standardizing systems for the implementation of risk evaluation and mitigation strategies (REMS). Data sources: On July 15, 2009, the American Pharmacists Association convened an expert panel of stakeholders to explore standardized solutions to REMS development and implementation. Meeting participants included pharmacists from various practice settings, physicians, researchers, patient advocates, and a nursing delegate, and the meeting was observed by a U.S. Food and Drug Administration representative. The stakeholders' recommendations were combined with themes arising from discussion of their experiences with existing REMS, and a review of the literature on REMS and risk management was performed by the author. Summary: A systematic, standardized REMS process that balances the need to control the risks of medications with the need to minimize the impact on patient access is required. A standardized REMS system could address various aspects of development and implementation, including the creation of specific REMS "levels," centralized systems for data management and program structure, public education, individualized patient education, provider education, access to medications, pilot testing, outcomes monitoring, and quality of care. Conclusion: Several strategies to streamline the development and implementation of a REMS system are feasible. Incorporating such strategies is necessary to manage the rapidly growing number of individual and diverse REMS programs that patients and health care providers must navigate. Furthermore, a standardized REMS system could be used to improve quality of care and support patient education and empowerment. [ABSTRACT FROM AUTHOR]
- Published
- 2009
- Full Text
- View/download PDF
35. Nurses leading male lower urinary tract symptom (LUTS) clinics: A scoping review.
- Author
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Middleton, Claire and Dunleavy, Stephanie
- Subjects
FERTILITY clinics ,CINAHL database ,RESEARCH ,UROLOGICAL nursing ,BLADDER ,NURSING ,HEALTH services accessibility ,URINARY tract infections ,SYSTEMATIC reviews ,TREATMENT effectiveness ,NURSES ,QUALITY of life ,HEALTH care teams ,DESCRIPTIVE statistics ,LITERATURE reviews ,MEDLINE ,NURSE practitioners ,SYMPTOMS - Abstract
Nurse‐led clinics are known to positively impact and benefit patients; however, there is little understanding of the role of the nurse in a nurse‐led male Lower Urinary Tract Symptoms (LUTS) clinic. LUTS affect up to 30% of males over 65 in the United Kingdom and can significantly impact the quality of life of the person experiencing them. LUTS can be managed with conservative changes, as well as with medication and surgical intervention. The aim of this scoping review is to map what is known about the role of the nurse in a nurse‐led male LUTS clinic and what research tells us regarding, the barriers and enablers in nurses leading a male LUTS clinic. This scoping review follows the Preferred Reporting Items for Systematic Reviews and Meta‐Analyses extension for Scoping Reviews (PRISMA‐SCR) checklist and the methodological guidelines set out by the Joanna Briggs institute. A literature search was carried out over three databases (CINAHL, Medline Ovid, ProQuest health and medical collection) and systematically searched from 2000 to 2021. Grey literature was also searched, and citation chaining was undertaken. Following a systematic review of the literature, four papers met the inclusion criteria for this scoping review. The emergent themes across the four papers consisted of structure, assessment and resources, and effectiveness of the nurse‐led male LUTS clinic. There was clear agreement across the literature regarding the investigations and assessment the nurse should carry out. Ongoing practical, theoretical, and observational training and education is required to ensure the nurse is competent in running a male LUTS clinic. The papers reviewed showed the nurse provided a supportive role to the consultant. However, there is evidence indicating there is a move towards autonomous practice. There is a dearth of the current research relating to the role of the nurse in nurse‐led male LUTS clinics and the enablers and barriers in nurses leading male LUTS clinics. Further research should be considered to gain a better understanding of where nurse‐led male LUTS clinics currently take place, what the role of the nurse is in leading a LUTS clinic and what enablers and barriers exist. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
36. Acupuncture's Role in Solving the Opioid Epidemic: Evidence, Cost-Effectiveness, and Care Availability for Acupuncture as a Primary, Non-Pharmacologic Method for Pain Relief and Management - White Paper 2017.
- Author
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Yin Fan, Arthur, Miller, David W., Bolash, Bonnie, Bauer, Matthew, McDonald, John, Faggert, Sarah, Hongjian He, Yong Ming Li, Matecki, Amy, Camardella, Lindy, Koppelman, Mel Hopper, Stone, Jennifer A. M., Meade, Lindsay, and Pang, John
- Subjects
- *
CHRONIC pain treatment , *PREVENTION of drug addiction , *SUBSTANCE abuse treatment , *PAIN management , *ACUPUNCTURE , *PSYCHOLOGICAL adaptation , *ANALGESIA , *ANALGESICS , *COST effectiveness , *HEALTH services accessibility , *INSURANCE , *MEDICAL care costs , *MILITARY medicine , *NARCOTICS , *NEUROPLASTICITY , *SAFETY , *EVIDENCE-based medicine , *TREATMENT effectiveness - Abstract
The United States is facing a national opioid epidemic, and medical systems are in need of non-pharmacologic strategies that can be employed to decrease the public's opioid dependence. Acupuncture has emerged as a powerful, evidence-based, safe, cost-effective, and available treatment modality suitable to meeting this need. Acupuncture has been shown to be effective for the management of numerous types of pain conditions, and mechanisms of action for acupuncture have been described and are understandable from biomedical, physiologic perspectives. Further, acupuncture's cost-effectiveness can dramatically decrease health care expenditures, both from the standpoint of treating acute pain and through avoiding addiction to opioids that requires costly care, destroys quality of life, and can lead to fatal overdose. Numerous federal regulatory agencies have advised or mandated that healthcare systems and providers offer non-pharmacologic treatment options for pain. Acupuncture stands out as the most evidence-based, immediately available choice to fulfill these calls. Acupuncture can safely, easily, and cost-effectively be incorporated into hospital settings as diverse as the emergency department, labor and delivery suites, and neonatal intensive care units to treat a variety of commonly seen pain conditions. Acupuncture is already being successfully and meaningfully utilized by the Veterans Administration and various branches of the U.S. military, in some studies demonstrably decreasing the volume of opioids prescribed when included in care. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
37. Impact of colonialism on Māori and Aboriginal healthcare access: a discussion paper.
- Author
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Zambas, Shelaine I. and Wright, Jennifer
- Subjects
- *
INDIGENOUS Australians , *ACCULTURATION , *HEALTH services accessibility , *HEALTH status indicators , *MAORI (New Zealand people) , *MEDICAL care costs , *PRACTICAL politics , *RACISM , *SOCIOECONOMIC factors , *EDUCATIONAL attainment - Abstract
Background: Historical socio-political processes have produced gross inequity of health resource for Aboriginal Australians and New Zealand Māori. Objectives: This paper argues that socio-political factors resulting from the entrenchment of colonialism have produced significant personal and structural barriers to the utilisation of healthcare services and directly impact the health status of these two vulnerable groups. Design: Discussion Paper. Conclusions: Understanding the actual barriers preventing the utilisation of healthcare facilities, as perceived by Indigenous people, is essential in reducing the gross disparity between Indigenous and non-Indigenous morbidity and mortality in Australia and New Zealand. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
38. Using Community Health Workers to Address Barriers to Participation and Retention in Diabetes Prevention Program: A Concept Paper.
- Author
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Zare, Hossein, Delgado, Paul, Spencer, Michelle, Thorpe Jr., Roland J., Thomas, Laurine, Gaskin, Darrell J., Werrell, Lori K., and Carter, Ernest L.
- Subjects
SOCIAL participation ,ONLINE information services ,PROFESSIONAL peer review ,SERVICES for caregivers ,HEALTH services accessibility ,SYSTEMATIC reviews ,TIME ,HOSPITAL health promotion programs ,MEDICAL care costs ,TYPE 2 diabetes ,HEALTH literacy ,CONCEPTUAL structures ,HEALTH behavior ,RESEARCH funding ,MEDLINE ,PATIENT education ,BEHAVIOR modification ,TRANSPORTATION ,PREDIABETIC state ,ADULTS - Abstract
Objective: The PreventionLink of Southern Maryland is a 5-year project to eliminate barriers to participation and retention in the National Diabetes Prevention Program (DPP) lifestyle change program to prevent or delay the onset of type 2 diabetes in adults with prediabetes. This is the study to identify the obstacles to participation and retention in the DPP lifestyle change program among high burden populations and learn how CHWs have reduced the identified barriers to participation and retention for high burden populations. Methods: We followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) to conduct this literature review. We have used the Scopus and PubMed, including all types of studies and peer-reviewed documents published in English between 2010 and 2020. Results: From 131 identified articles, 18 articles were selected for qualitative synthesis. The reviewed literature documented following as main barriers to participate in a DPP lifestyle change program: time, cost, lack of transportation, cost of transportation, commute distance, technology access, access to facilities and community programs, caregiver responsibilities, lack of health literacy and awareness, and language. CHWs can address these barriers to participation and retention, they were involved in educating and supporting roles; they worked as bridges between healthcare providers and participants and as intervention team members. Conclusions: Diabetes prevention program participants with social determinant risk factors who most need CHW services are unlikely to have financial resources to pay for CHW services out-of-pocket. Hence, the public and private health plans that pay for their prediabetes care should consider paying for these CHW services and there is a need to trust more to CHW and have them as a "community health teams" member. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
39. Joint position paper on rural surgery and operative delivery.
- Author
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Iglesias, Stuart, Kornelsen, Jude, Woollard, Robert, Caron, Nadine, Warnock, Garth, Friesen, Randall, Miles, Peter, Haines, Victoria Vogt, Batchelor, Bret, Blake, Jenny, Mazowita, Garey, Wyman, Roy, Geller, Brian, and de Klerk, Braam
- Subjects
- *
DELIVERY (Obstetrics) , *HEALTH services accessibility , *INFANT health services , *INTEGRATED health care delivery , *MEDICAL practice , *MEDICAL societies , *PATIENT safety , *PHYSICIANS , *GENERAL practitioners , *QUALITY assurance , *RURAL health services , *OPERATIVE surgery , *JOB qualifications , *WORK environment , *OCCUPATIONAL roles ,STUDY & teaching of medicine - Abstract
Our professional organizations have prepared this paper as part of an integrated, multidisciplinary plan to ensure the availability of well-trained practitioner teams to sustain safe, effective and high-quality rural surgical and operative delivery services. Without these robust local (or nearby) surgical services, sustaining rural maternity care is much more difficult. This paper describes the "network model" as a health human resources solution to meet the surgical needs, including operative delivery, of rural residents; outlines necessary policy directions for achieving this solution; and poses a series of enabling recommendations. [ABSTRACT FROM AUTHOR]
- Published
- 2015
40. Assessment of completion of early medical abortion using a text questionnaire on mobile phones compared to a self-administered paper questionnaire among women attending four clinics, Cape Town, South Africa.
- Author
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Constant, Deborah, de Tolly, Katherine, Harries, Jane, and Myer, Landon
- Subjects
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ABORTION , *ALGORITHMS , *COUNSELING , *HEALTH services accessibility , *INTERVIEWING , *OBSTETRICAL extraction , *QUESTIONNAIRES , *RESEARCH funding , *SELF-evaluation , *STATISTICS , *RANDOMIZED controlled trials , *SMARTPHONES , *MISOPROSTOL - Abstract
In-clinic follow-up to assess completion of medical abortion is no longer a requirement according to World Health Organization guidance, provided adequate counselling is given. However, timely recognition of ongoing pregnancy, complications or incomplete abortion, which require treatment, is important. As part of a larger trial, this study aimed to establish whether women having a medical abortion could self-assess whether their abortion was complete using an automated, interactive questionnaire on their mobile phones. All 469 participants received standard abortion care and all returnees filled in a self-assessment on paper at clinic follow-up 2–3 weeks later. The 234 women allocated to receive the phone messages were also asked to do a mobile phone assessment at home ten days post-misoprostol. Completion of the mobile assessment was tracked by computer and all completed assessments, paper and mobile, were compared to providers’ assessments at clinic follow-up. Of the 226 women able to access the mobile phone assessment, 176 (78%) completed it; 161 of them (93%) reported it was easy to do so. Neither mobile nor paper self-assessments predicted all cases needing additional treatment at follow-up. Prediction of complete procedures was good; 71% of mobile assessments and 91% of paper assessments were accurate. We conclude that an interactive questionnaire assessing completion of medical abortion on mobile phones is feasible in the South African setting; however, it should be done later than day 10 and combined with an appropriate pregnancy test to accurately detect incomplete procedures. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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41. The case for nurses as central providers of health and social care services for ex-offenders: a discussion paper.
- Author
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Eshareturi, Cyril, Serrant‐Green, Laura, Bayliss‐Pratt, Lisa, and Galbraith, Victoria
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COMMUNITY health nursing , *COMMUNITY health services , *CORRECTIONAL institutions , *CRIMINALS , *DATABASES , *HEALTH promotion , *HEALTH services accessibility , *HEALTH status indicators , *HEPATITIS B , *HEPATITIS C , *MEDICAL information storage & retrieval systems , *MEDICAL care , *MEDICAL needs assessment , *MEDICAL care use , *REHABILITATION of people with mental illness , *NURSES , *POVERTY , *PREVENTIVE health services , *MEDICAL care of prisoners , *RECIDIVISTS , *SEXUALLY transmitted diseases , *SOCIAL services , *SOCIAL stigma , *SUBSTANCE abuse , *CRIMINALS with mental illness , *OCCUPATIONAL roles , *INDEPENDENT living - Abstract
Aims A discussion on the case for nurse-led community delivery of health and social care interventions to ex-offenders. Background Ex-offenders re-enter their communities with limited pre-release preparation for the continuity of access to health care once outside prison. Once released, these individuals become hard to reach, do not consider health a priority and consequently use services to address their health and social care needs in a crisis-led way. Nevertheless, how nurses can best support these health-excluded group of individuals in the community remains vague and requires discussion. Design Discussion paper. Data sources Several databases were searched for papers published in English from 1990-2012 using the Population, Intervention and Outcome framework to help structure search. Discussion It is argued that current dominant discourses around equity of care are contradicted in the provision of health and social care services to ex-offenders in the community. Effective engagement with community interventions may be achieved if ex-offenders maintain contact with frontline providers who can support both their structural and health needs. Implication for nursing Nurses are uniquely positioned to initiate and sustain contact with ex-offenders, intervening at points of greatest need in the community to address the socially significant health and social care issues that plague them. Conclusion The use of nurses in the provision of health and social care interventions to ex-offenders is a strategy, which could increase equity in access to health care, reduce reoffending and improve both the health and life chances of these individuals. [ABSTRACT FROM AUTHOR]
- Published
- 2014
- Full Text
- View/download PDF
42. TimelinePTC: Development of a unified interface for pathways to care collection, visualization, and collaboration in first episode psychosis.
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Mathis, Walter S., Ferrara, Maria, Cahill, John, Karmani, Sneha, Tayfur, Sümeyra N., and Srihari, Vinod
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PSYCHOSES ,DATA entry ,DATA conversion ,HEALTH services accessibility ,ACQUISITION of data ,DIGITAL technology - Abstract
This paper presents TimelinePTC, a web-based tool developed to improve the collection and analysis of Pathways to Care (PTC) data in first episode psychosis (FEP) research. Accurately measuring the duration of untreated psychosis (DUP) is essential for effective FEP treatment, requiring detailed understanding of the patient's journey to care. However, traditional PTC data collection methods, mainly manual and paper-based, are time-consuming and often fail to capture the full complexity of care pathways. TimelinePTC addresses these limitations by providing a digital platform for collaborative, real-time data entry and visualization, thereby enhancing data accuracy and collection efficiency. Initially created for the Specialized Treatment Early in Psychosis (STEP) program in New Haven, Connecticut, its design allows for straightforward adaptation to other healthcare contexts, facilitated by its open-source codebase. The tool significantly simplifies the data collection process, making it more efficient and user-friendly. It automates the conversion of collected data into a format ready for analysis, reducing manual transcription errors and saving time. By enabling more detailed and consistent data collection, TimelinePTC has the potential to improve healthcare access research, supporting the development of targeted interventions to reduce DUP and improve patient outcomes. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
43. Evaluating diabetes care in primary healthcare centers in Abuja, Nigeria: a cross-sectional formative assessment.
- Author
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Orji, Ikechukwu A., Baldridge, Abigail S., Ikechukwu-Orji, Mercy U., Banigbe, Bolanle, Eze, Nelson C., Chopra, Aashima, Omitiran, Kasarachi, Iyer, Guhan, Odoh, Deborah, Alex-Okoh, Morenike, Reng, Rifkatu, Hirschhorn, Lisa R., Huffman, Mark D., and Ojji, Dike B.
- Subjects
DIAGNOSIS of diabetes ,TREATMENT of diabetes ,HEALTH services accessibility ,CROSS-sectional method ,MEDICAL protocols ,MEDICAL personnel ,RURAL health ,BLOOD sugar monitors ,MANAGEMENT information systems ,RESEARCH funding ,PRIMARY health care ,DESCRIPTIVE statistics ,RURAL health services ,ROUTINE diagnostic tests ,MEDICAL screening ,DRUGS ,DATA analysis software ,HEALTH information systems ,EQUIPMENT & supplies - Abstract
Introduction: Noncommunicable diseases (NCDs) are associated with high and rising burden of morbidity and mortality in sub-Saharan Africa, including Nigeria. Diabetes mellitus (DM) is among the leading causes of NCD-related deaths worldwide and is a foremost public health problem in Nigeria. As part of National policy, Nigeria has committed to implement the World Health Organization (WHO) Package of Essential Non-communicable Disease interventions for primary care. Implementing the intervention requires the availability of essential elements, including guidelines, trained staff, health management information systems (HMIS), equipment, and medications, in primary healthcare centers (PHCs). This study assessed the availability of the DM component of the WHO package, and the readiness of the health workers in these PHCs to implement a DM screening, evaluation, and management program to inform future adoption and implementation. Methods: This cross-sectional formative assessment adapted the WHO Service Availability and Readiness Assessment (SARA) tool to survey 30 PHCs selected by multistage sampling for readiness to deliver DM diagnosis and care in Abuja, Nigeria, between August and October 2021. The SARA tool was adapted to focus on DM services and the availability and readiness indicator scores were calculated based on the proportion of PHCs with available DM care services, minimum staff requirement, diagnostic tests, equipment, medications, and national guidelines/protocols for DM care within the defined SARA domain. Results: All 30 PHCs reported the availability of at least two full-time staff (median [interquartile range] = 5 [4–9]), which were mostly community health extension workers (median [interquartile range]) = 3 [1–4]. At least one staff member was recently trained in DM care in 11 PHCs (36%). The study also reported high availability of paper-based HMIS (100%), and DM screening services using a glucometer (87%), but low availability of DM job aids (27%), treatment (23%), and national guidelines/protocols (0%). Conclusion: This formative assessment of PHCs' readiness to implement a DM screening, evaluation, and management program in Abuja demonstrated readiness to integrate DM care into PHCs regarding equipment, paper-based HMIS, and nonphysician health workers' availability. However, strategies are needed to promote DM health workforce training, provide DM management guidelines, and supply essential DM medications. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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44. ‘This is real now because it’s a piece of paper’: texts, disability, and LGBTQ parents.
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Gibson, Margaret F.
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PARENTS of children with disabilities , *GAY parents , *SERVICES for people with disabilities , *MEDICAL care , *DOCUMENTATION , *PARENTS , *HUMAN services , *ADOPTION , *BIRTH certificates , *DISCRIMINATION (Sociology) , *HEALTH services accessibility , *INTERVIEWING , *MEDICAL records , *RESEARCH funding , *QUALITATIVE research , *LGBTQ+ people , *SOCIAL attitudes , *PARENT attitudes , *ATTITUDES toward sex , *PSYCHOLOGY ,MEDICAL care for people with disabilities - Abstract
What role do texts play in LGBTQ (lesbian, gay, bisexual, transgender, and queer) parents’ experiences of disability service systems? In interviews with 15 LGBTQ parents of disabled children in Toronto, Canada, participants selected documents to be used as a focus for discussion. Parents considered how LGBTQ identity and other intersectional identities influenced their experiences of institutional texts including adoption certificates, intake forms, and assessments. Findings suggest that documentation practices can operate as forms of systemic gatekeeping. LGBTQ identity was sometimes very significant in parents’ accounts, and sometimes less central than other aspects of their families' identities and experiences. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
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45. Views and experiences of primary care among Black communities in the United Kingdom: a qualitative systematic review.
- Author
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Ojo-Aromokudu, Oyinkansola, Suffel, Anne, Bell, Sadie, and Mounier-Jack, Sandra
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PSYCHOLOGY of Black people ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,CULTURE ,COMPUTER software ,MEDICAL information storage & retrieval systems ,HEALTH services accessibility ,SYSTEMATIC reviews ,MOTIVATION (Psychology) ,FAMILY medicine ,ATTITUDES of medical personnel ,HELP-seeking behavior ,MEDICAL care ,LANGUAGE & languages ,PRIMARY health care ,PATIENTS' attitudes ,QUALITATIVE research ,PSYCHOSOCIAL factors ,HEALTH attitudes ,HEALTH behavior ,RESEARCH funding ,MEDLINE ,FINANCIAL management ,ETHNIC groups ,DATA analysis software ,THEMATIC analysis ,PATIENT-professional relations ,TRUST ,GREY literature - Abstract
In the United Kingdom, people with non-white ethnicities are more likely to report being in worse health conditions and have poorer experiences of healthcare services than white counterparts. The voices of those of Black ethnicities are often merged in literature among other non-white ethnicities. This literature review aims to analyse studies that investigate Black participant experiences of primary care in the UK. We conducted a systematic literature review searching Medline, Web of Science, EMBASE, SCOPUS, Social Policy and Practice, CINAHL plus, Psych INFO and Global Health with specific search terms for appropriate studies. No publish date limit was applied. 40 papers (39 articles and 1 thesis) were deemed eligible for inclusion in the review. A number of major themes emerged. Patient expectations of healthcare and the health seeking behaviour impacted their interactions with health systems in the UK. Both language and finances emerged as barriers through which some Black participants interacted with primary care services. (Mis)trust of clinicians and the health system was a common theme that often negatively impacted views of UK primary care services. The social context of the primary care service and instances of a cultural disconnect also impacted views of primary care services. Some papers detail patients recognising differential treatment based on ethnicity. The review included the voices of primary care professionals where descriptions of Black patients were overwhelmingly negative. Views and experiences of Black groups may be radically different to other ethnic minorities and thus, should be teased out of broader umbrella terms like Black and Asian Minority Ethnic (BAME) and Black Minority Ethnic (BME). To address ethnicity-based health inequalities, culturally sensitive interventions that engage with the impacted community including co-designed interventions should be considered while acknowledging the implications of being racialised as Black in the UK. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
46. A special section: Recruiting and retaining couples from underrepresented backgrounds in intervention research.
- Author
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Mitchell, Erica A. and Gordon, Kristina Coop
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HUMAN research subjects ,PATIENT participation ,MINORITIES ,HEALTH services accessibility ,PATIENT selection ,COUPLES therapy ,MEDICAL care ,INTERPERSONAL relations ,MEDICAL research - Abstract
This special section represents a collection of papers on recruitment and retention of couples from underrepresented backgrounds in couple intervention research. Research shows that couples from underrepresented backgrounds tend to be missing from intervention research. This gap is concerning; conclusions about the effectiveness of these interventions are not being drawn from diverse and representative samples and it may be that scholars are inadvertently creating inappropriate and inaccessible services for these couples. Recruiting and retaining these couples require specialized efforts and attention. In this summary paper, we describe (a) the origins of this special section, (b) the existing research on recruitment and retention in couple intervention research, (c) an overview of the papers in this special section, and (d) future recommendations and directions for this aspect of methodology in couple research. This collection of papers elevates the need to involve community members from the beginning, reduce barriers to access, and create recruitment materials and a service delivery environment that is specific for the target population. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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47. Research Priorities for Childhood Apraxia of Speech: A Long View.
- Author
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McCabe, Patricia, Beiting, Molly, Hitchcock, Elaine R., Maas, Edwin, Meredith, Amy, Morgan, Angela T., Potter, Nancy L., Preston, Jonathan L., Moorer, Laura, Aggarwal, Pooja, Ballard, Kirrie, Baskall Smith, Laura, Caballero, Nicole F., Cabbage, Kathryn, Case, Julie, Caspari, Susan, Chenausky, Karen V., Cook, Shina, Grzelak, Ewa, and Gomez, Maryane
- Subjects
HEALTH services accessibility ,MEDICAL protocols ,PROFESSIONAL practice ,DATABASE management ,RESEARCH evaluation ,CONFERENCES & conventions ,DATA analytics ,THEMATIC analysis ,PRIORITY (Philosophy) ,COMMUNICATIVE disorders research ,TREATMENT of communicative disorders ,EVIDENCE-based medicine ,CONSUMER activism ,HEALTH equity ,SPEECH apraxia ,COMORBIDITY - Abstract
This article introduces the Journal of Speech, Language, and Hearing Research Special Issue: Selected Papers From the 2022 Apraxia Kids Research Symposium. The field of childhood apraxia of speech (CAS) has developed significantly in the past 15 years, with key improvements in understanding of basic biology including genetics, neuroscience, and computational modelling; development of diagnostic tools and methods; diversity of evidence-based interventions with increasingly rigorous experimental designs; and understanding of impacts beyond impairment-level measures. Papers in this special issue not only review and synthesize the some of the substantial progress to date but also present novel findings addressing critical research gaps and adding to the overall body of knowledge. A second aim of this prologue is to report the current research needs in CAS, which arose from symposium discussions involving researchers, clinicians, and Apraxia Kids community members (including parents of children with CAS). Four primary areas of need emerged from discussions at the symposium. These were: (a) What questions should we ask? (b) Who should be in the research? (c) How do we conduct the research? and (d) How do we move from research to practice? Across themes, symposium attendees emphasized the need for CAS research to better account for the diversity of people with CAS and improve the timeliness of implementation of high-level evidence-based practice across the lifespan. It is our goal that the articles and prologue discussion in this special issue provide an appreciation of advancements in CAS research and an updated view of the most pressing needs for future research. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
48. Advancing digital healthcare in Somalia: a review of modern technologies and their implications.
- Author
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Ahmed, Mohamed Mustaf, Dirie, Najib Isse, Mohamud, Abdirahman Khalif, Elmi, Abdikadir Hussein, Musa, Shuaibu Saidu, Alhammadi, Omar Abdulkarim Saeed, Lemma, Misha Abayneh, Uwamahoro, Joselyne, Bananeza, Roméo, Abdullahi, Yinusa, Othman, Zhinya Kawa, Hamid, Mohammed Raihanatu, Kasimieh, Omar, Labyad, Safouane, and Lucero-Prisno III, Don Eliseo
- Subjects
DIGITAL health ,HEALTH services accessibility ,SUSTAINABILITY ,TELEMEDICINE - Abstract
Somalia faces many challenges in providing adequate and accessible healthcare to its population, particularly in rural and remote areas. Lack of infrastructure, resources, and security hinders the delivery of quality health services and the prevention and control of diseases. However, modern technologies such as mobile phones, the Internet, and telemedicine offer new opportunities to digitize health care and improve health outcomes in Somalia. This paper explores the current state of healthcare in Somalia, the potential benefits, and challenges of using modern technologies to digitize healthcare, and the best practices and recommendations for implementing such technologies in the Somali context. This paper examines a telemedicine project that connects remote healthcare facilities with urban specialists. We assess its effectiveness and sustainability, showing its potential to improve healthcare in rural areas of Somalia. The review concludes that modern technologies can play a vital role in digitizing healthcare in Somalia, but they require careful planning, coordination, and evaluation to ensure their effectiveness and suitability. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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49. Engaging with hard-to-reach children and parents using a creative methodology.
- Author
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Poppe, Kylie and Abela, Angela
- Subjects
PATIENT selection ,HEALTH services accessibility ,FAMILY psychotherapy ,HUMAN research subjects ,PARENT-child relationships ,AT-risk people ,ETHICAL problems ,SCHOOL discipline ,COMMUNICATION ,CONCEPTUAL structures ,PSYCHOLOGY of parents ,MEDICAL needs assessment ,INTERGENERATIONAL relations ,CHILDREN ,ADULTS - Abstract
This paper delves into the creative methodology adopted whilst engaging in a research study with five families whose young children (aged between 8 and 10 years old) were excluded from school due to social, emotional and mental health difficulties. The complex needs surrounding these families often lead to them being labelled as hard-to-reach and therefore challenging to engage in research. This paper will explore these challenges, the ethical dilemmas that emerged, the constant observation throughout, the reflexivity and flexibility required by the researchers and the relationships forged. Using various creative methods as part of the Mosaic approach both the children and their parents were able to play a part in the meaning-making process throughout the research journey. The culmination of the research study took place in the format of a multi-family group session which provided a safe space for an intergenerational encounter allowing for the children's and parent's authentic voices to continue to be heard. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
50. Corporate Social Responsibility and Social Needs in Health Care Sectors—A Critical Analysis of Social Innovation in the Health Sector in Taiwan.
- Author
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Chu, Winnie and Chu, Nain-Feng
- Subjects
CORPORATE culture ,TAIWANESE people ,HEALTH services accessibility ,DIFFUSION of innovations ,RURAL health ,INTERPROFESSIONAL relations ,HEALTH policy ,SOCIAL responsibility ,PRIVATE sector ,PUBLIC relations ,CORPORATIONS ,HEALTH care industry ,MEDICAL needs assessment ,ORGANIZATIONAL goals ,URBAN health ,MEDICAL care costs - Abstract
Background: Social innovation is often used as a mechanism to jump-start public–private partnerships to leverage resources to achieve social impact; the analysis of sustainability and the impact of corporate social responsibility (CSR) cannot be emphasized enough. Due to advances in the information and communication technology industry in Taiwan, this paper aims to explore whether these advancements drive CSR as a form of social innovation to meet health needs in Taiwan. Methodology: This paper uses a case study to look at CSR programs in the health sector in Taiwan. Corporations with diverse missions and different CSR approaches that are available on the internet are selected. The analysis of the case study takes a qualitative, exploratory approach to shed light on current initiatives. Results: The majority of CSR programs in Taiwan are private sector activities that emerged during the COVID-19 pandemic; current CSR activities in Taiwan are driven by awards, public relations, and external interests. Corporations in Taiwan have the potential to address the health care gaps of urban–rural health utilization among Taiwanese indigenous communities. It is recommended for corporations to (1) develop partnerships with public health experts or to (2) employ CSR personnel with health care backgrounds who can navigate the intersection between health, business, and policies to develop CSR strategies. Conclusions: Further evaluation of the projects mentioned in this paper to assess the direct and indirect impact on health outcomes could provide a more comprehensive understanding of the field of CSR in the health sector in Taiwan. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
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