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This article describes a voluntary Friends Scheme that sits alongside a temporary relocation scheme for Human Rights Defenders at the University of York, UK. Members of the Scheme, including the scheme's co-ordinators, are all volunteers drawn from the local community with a remit to befriend the Defenders, help orient them to the city and UK lifestyles and offer the opportunity to experience day-to-day life outside of the university. With the erosion globally of the operational space for Human Rights Defenders' work, many are in situations of serious risk to their health, well-being and even life, jeopardizing their long-term ability to conduct their work. This has in turn increased their protection needs with temporary relocation providing one mechanism for meeting these. The Protective Fellowship Scheme for Human Rights Defenders at Risk (PFS) at York offers an institutionalized programme and the Friends Scheme arose from the identified need for additional informal well-being support. In describing key aspects of its operation, their evolution over time, and its challenges and rewards, the article draws on feedback from both Defenders and Friends. It is brought up to date, outlining the impact of Covid-19. Experience to date suggests the use of a Friends Scheme can be a valuable part of temporary relocation programmes for Defenders, staff running such schemes, the volunteer Friends and the local community. The use of a systemic approach to its organization through having clear processes, regular communication from and between the co-ordinators and PFS, and providing individual and group support appears valuable. [ABSTRACT FROM AUTHOR]

A survey of UK fertility counsellors' experiences of the impact on their service, including its availability, during the first phase of the COVID-19 pandemic in the spring of 2020 received 64 responses. Fifty three respondents had continued to provide a service. Forty now worked from a wholly/substantially different location to normal but many clinics provided no practical support for this (n = 17), or remote access to relevant clinic (n = 17) or client information (n = 12) and twenty five respondents reported reduced multi-disciplinary involvement. Few received regular information updates. Some whose service was stopped (n = 11) abruptly lost income and/or were unsure whether they could or would resume working. Increased remote counselling proved crucial for accessibility and could be effective. Concerns included fatigue, technical and practical challenges, confidentiality, lowered therapeutic effectiveness. Respondents supported patients having choice over how to receive counselling in the future but a third (n = 21) had not been included in such planning. These findings suggest the need for increased involvement and support of fertility counsellors in the event of a future waves, other pandemic or healthcare crisis. More needs to be understood about why clinic responses varied; how to improve the safety and efficacy of remote counselling; and how to accommodate future needs for face-to-face contact. [ABSTRACT FROM AUTHOR]

Fertility counselling services have had to respond to significant developments in fertility treatments in recent years, prompting increasingly complex personal and professional ethical challenges. This Commentary focuses on those rising from donor conception and/or surrogacy. The profile of those seeking such treatments has changed to include growing numbers of same sex couples, single people, people who are transitioning or have done, people seeking posthumous use of gametes, and people using cross-border services. Alongside, awareness has grown of life-span implications, the impact of commercial DNA testing, and the need for 'later-life' support. Responses vary internationally and the time for debate is overdue. Who should provide fertility counselling and how? Should specialist qualifications, training, continuing professional development, and regulation be required? Should counsellors play a role in assessing suitability to parents? What aspects of different contractual arrangements and conflicts of interest need attention? Has the time come for counselling to be mandatory as part of pre-treatment pathways? What should be the relationship between fertility counsellors and multi-disciplinary clinic teams? How might fertility counsellors be represented nationally and internationally? What should be their relationship to 'later life' professional support? What place should professional knowledge hold in the evidence base? [ABSTRACT FROM AUTHOR]

This article considers two key policy documents concerning donor-assisted conception in the UK, The British Fertility Society's Recommendations for Good Practice on the Screening of Egg and Embryo Donors and the Human Fertilisation and Embryology Authority's Guidance for Egg Sharing Arrangements. It discusses both the process and the evidence used in formulating those sections of the documents which relate to donor anonymity. The paper concludes that psycho-social policy developments in assisted conception, such as those relating to donor anonymity, should be subjected to comparable levels of rigour and scrutiny to those that are applied in the formulation of medical and scientific policies. Keywords: Human fertilisation and embryology authority; British fertility society; Donor anonymity; Egg sharing; UK

This article discusses the topic of surrogacy and its impact on surrogate-born infants and their families. It highlights the ongoing debate and controversy surrounding surrogacy laws and regulations, particularly in the UK. The article argues for a shift in perspective to view surrogacy within a child and family framework, emphasizing the importance of considering the well-being and long-term outcomes for the children involved. It also raises concerns about the lack of research on surrogacy and the need for more evidence-based approaches to support surrogate families. [Extracted from the article]

Increasing numbers of donor-conceived individuals (and/or parents) are seeking individuals genetically related through donor conception. One route is through ‘direct-to-consumer’ (DTC) DNA testing, prompting calls for fertility services to alert donors and prospective parents to the increasing unsustainability of anonymity and secrecy. The complexity of interpreting DNA results in this context has also been discussed, including their lack of absolute certainty, as has the need for professional and peer support. This commentary highlights a different ‘threat’, from individuals learning of their donor-conception origins through the use of such tests by themselves or relatives for such purposes as genealogy or health checks. It illustrates the personal complexities faced by three older women and their families on learning not only of their genetic relationship to each other but also to 15 more donor-related siblings. DTC DNA services are a growing feature of modern life. This commentary raises ethical questions about their responsibilities towards those inadvertently learning of donor conception origins and the responsibilities of fertility services to inform prospective parents and donors of this new phenomenon. Considerations of how and when parents should tell their children of their donor-conception origins here instead become how and when children should inform their parents. [ABSTRACT FROM AUTHOR]

This paper considers the experiences of adults conceived following sperm donation, who were registered with a voluntary DNA linking register and considers: how awareness of being donor-conceived affected their identity and family relationships; and the process of searching for their donor and donor-conceived siblings. The views and experiences of donor-conceived adults has, until recently, been a relatively neglected research area. This study is the first, to our knowledge, to consider the experiences of donor-conceived adults using a DNA-based register. This paper presents qualitative data from a questionnaire-based study with 65 adults conceived following sperm donation. It examines how ideas of relatedness, kinship and identity are enacted and how narrative certainties are challenged by opening up new conceptions of what it means to be ‘related’. No single story of being donor-conceived emerged - with competing narratives about the effects and implications for respondents’ kinship relationships and sense of identity. The knowledge of being donor-conceived could be both a powerful disrupter and a consolidator of existing family relationships. This study sheds light on how identity and kinship relationships are negotiated and managed by donor-conceived adults, both with their existing family and donor ‘relations’, and how these can change over the life-course. [ABSTRACT FROM AUTHOR]

Abstract: This article considers the disclosure, sharing and exchange of information on being donor conceived within families, drawing on data from a study undertaken with donor‐conceived adults registered with UK Donor Link (a voluntary DNA‐linking register). This paper considers the narratives of how respondents found out they were donor‐conceived and what events triggered disclosure of this information. This paper then goes on to examine the role secrecy played in their family life and uses the concept of ‘display’ to explore how secrecy affected their relationships with their immediate and extended family. Secrets are notoriously ‘leaky’ and we found complex patterns of knowing and uncertainty about whom in the family knew that the person was donor‐conceived. We argue that what is kept secret and from whom provides insights into the multifaceted web of social relationships that can be created by donor‐conception, and how knowledge can be managed and controlled in attempts to display and maintain family narratives of biogenetic connection. [ABSTRACT FROM AUTHOR]