16 results
Search Results
2. Telehealth administration of narrative and procedural discourse: A UK and US comparison of traumatic brain injury and matched controls.
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Cruse, Nicole, Piotto, Victor, Coelho, Carl, and Behn, Nicholas
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HEALTH services accessibility , *COMPARATIVE grammar , *TASK performance , *PHONOLOGICAL awareness , *SAMPLE size (Statistics) , *APHASIA , *TELEREHABILITATION , *MANN Whitney U Test , *DESCRIPTIVE statistics , *TELEMEDICINE , *DISCOURSE analysis , *SOCIAL integration , *CASE-control method , *QUALITY of life , *COMMUNICATION , *BRAIN injuries , *SPEECH disorders , *DATA analysis software , *EMPLOYMENT reentry , *COVID-19 pandemic , *INTER-observer reliability , *NONPARAMETRIC statistics , *RELIABILITY (Personality trait) - Abstract
Background: Impaired discourse production is commonly reported for individuals with traumatic brain injury (TBI). Discourse deficits can negatively impact community integration, return to employment and quality of life. COVID‐19 restrictions have reduced in‐person assessment services for people with communication impairments. Advances in telehealth may help speech and language therapists (SLTs) to assess monologic discourse more systematically and improve access to services for patients who may find it difficult to attend in‐person. Aims: To examine the feasibility of telehealth administration of narrative and procedural discourse tasks with individuals with TBI and matched controls. Methods & Procedures: A total of 20 individuals with TBI and 20 healthy controls, aged 18–55 years, were directly recruited from the UK and indirectly recruited from the US. For participants with TBI, time post‐injury was at least 3 months with no diagnosis of aphasia. Control participants were matched for sex and as closely as possible for age. Feasibility of measures was based upon the time to administer both narrative tasks, the report of any technological problems, and participant feed. Discourse samples were transcribed verbatim and analysed using story grammar analysis (for narrative discourse) and identification of propositions (for procedural discourse). Interrater reliability was calculated using percentage agreement for 50% of the data. Non‐parametric analyses were used to analyse the performance of the two groups. Outcomes & Results: Narrative and procedural discourse samples were collected via telehealth in approximately 10 min with no reported technical difficulties or complaints from any participants. For narrative discourse performance, there were significant differences for the TBI and control groups for measures of complete episodes (p < 0.001) and missing episodes (p = 0.005). No significant group differences were noted for any of the procedural discourse measures. Conclusions & Implications: Results support the feasibility of collecting discourse samples via telehealth. Although the participants' discourse performance distinguished the TBI and control groups on the narrative task, no differences between the groups were noted for the procedural task. The narrative discourse task may have been more difficult than the procedural task, or video cue support reduced the cognitive load of the procedural task. This finding suggests the use of more complex procedural tasks without video cue support may be needed. WHAT THIS PAPER ADDS: What is already known on this subject: Although little research has explored the feasibility of administering discourse assessments for individuals with TBI via telehealth, some studies have found that discourse interventions can be feasibly administered via telehealth. It is also well established that individuals with TBI struggle with the supra‐structural and macro‐linguistic elements of discourse production. Both procedural and narrative discourse tasks have been found to differentiate individuals with TBI from healthy controls. What this paper adds to existing knowledge: Few studies have investigated the feasibility of, and procedures for, administering discourse tasks via telehealth. Additionally, the inclusion of multiple types of discourse tasks to parse cognitive–communication abilities is lacking in the current literature. Findings from this study support that narrative and procedural discourse can be feasibly sampled via telehealth and that international collaboration for research on this topic can facilitate such studies. Individuals with TBI performed more poorly on three measures of narrative discourse. No differences between groups were identified for the procedural task. What are the potential or actual clinical implications of this work?: Telehealth assessment for discourse provides flexibility for both the individual with TBI and the speech–language therapist and does not compromise the quality of data collected. The administration of discourse tasks and collection of data was not time‐consuming and was well accepted by the study participants. Additionally, international research collaboration not only expands potential participation in research but increases the opportunity to recruit and study more diverse groups. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Living with multimorbidity: A qualitative exploration of shared experiences of patients, family caregivers, and healthcare professionals in managing symptoms in the United States.
- Author
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Peeler, Anna, Nelson, Katie, Agrawalla, Vidisha, Badawi, Sarah, Moore, Robyn, Li, David, Street, Lara, Hager, David N., Dennison Himmelfarb, Cheryl, Davidson, Patricia M., and Koirala, Binu
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HEALTH services accessibility , *MEDICAL care use , *QUALITATIVE research , *ACADEMIC medical centers , *STATISTICAL significance , *RESEARCH funding , *HOSPITAL care , *STATISTICAL sampling , *SYMPTOM burden , *DISCHARGE planning , *SERVICES for caregivers , *DESCRIPTIVE statistics , *SUBACUTE care , *THEMATIC analysis , *CAREGIVERS , *ATTITUDES of medical personnel , *QUALITY of life , *PHYSICIAN-patient relations , *COMMUNICATION , *MATHEMATICAL models , *CONCEPTUAL structures , *HONESTY , *THEORY , *DATA analysis software , *COMORBIDITY , *PATIENTS' attitudes , *CAREGIVER attitudes , *HEALTH care teams - Abstract
Aims: To elicit experiences of patients, family caregivers, and healthcare professionals in intermediate care units (IMCUs) in an academic medical centre in Baltimore, MD related to the challenges and intricacies of multimorbidity management to inform development of a multimorbidity symptom management toolkit. Design: Experience‐based co‐design. Methods: Between July and October 2021, patients aged 55 years and older with multimorbidity admitted to IMCUs at an academic medical centre in Baltimore, Maryland, USA were recruited and interviewed in person. Interdisciplinary healthcare professionals working in the IMCU were interviewed virtually. Participants were asked questions about their role in recognizing and treating symptoms, factors affecting the quality of life, symptom burden and trajectory over time, and strategies that have and have not worked for managing symptoms. An inductive thematic analysis approach was used for analysis. Results: Twenty‐three interviews were conducted: 9 patients, 2 family caregivers, and 12 healthcare professionals. Patients' mean age was 67.5 (±6.5) years, over half (n = 5) were Black or Hispanic, and the average number of comorbidities was 3.67. Five major themes that affect symptom management emerged: (1) the patient–provider relationship; (2) open and honest communication; (3) accessibility of resources during hospitalization and at discharge; (4) caregiver support, training, and education; and (5) care coordination and follow‐up care. Conclusion: Patients, caregivers, and healthcare professionals often have similar goals but different priorities for multimorbidity management. It is imperative to identify shared priorities and target holistic interventions that consider patient and caregiver experiences to improve outcomes. Implications for the Profession and/or Patient Care and Impact: This paper addresses the paucity of research related to the shared experience of disease trajectory and symptom management for people living with multimorbidity. We found that patients, caregivers, and healthcare professionals often have similar goals but different care and communication priorities. Understanding differing priorities will help better design interventions to support symptom management so people with multimorbidity can have the best possible quality of life. Reporting Method: We have adhered to the Consolidated Criteria for Reporting Qualitative Studies (COREQ) guidelines in our reporting. Patient or Public Contribution: This study has been designed and implemented with patient and public involvement throughout the process, including community advisory board engagement in the project proposal phase and interview guide development, and member checking in the data collection and analysis phases. The method we chose, experience‐based co‐design, emphasizes the importance of engaging members of a community to act as experts in their own life challenges. In the coming phases of the study, the public will be involved in developing and testing a new intervention, informed by these qualitative interviews and co‐design events, to support symptom management for people with multimorbidity. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Society of American Gastrointestinal and Endoscopic Surgeons guidelines development: health equity update to standard operating procedure.
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Kumar, Sunjay S., Collings, Amelia T., Collins, Courtney, Colvin, Jennifer, Sylla, Patricia, and Slater, Bethany J.
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MEDICAL protocols , *HEALTH services accessibility , *MEDICAL care , *MEDICAL societies , *OPERATIVE surgery , *ENDOSCOPIC gastrointestinal surgery , *CONCEPTUAL structures , *PUBLISHING , *HEALTH equity , *EVIDENCE-based medicine - Abstract
Introduction: The SAGES Guidelines Committee creates evidence-based clinical practice guidelines. Due to existing health disparities, recommendations made in these guidelines may have different impacts on different populations. The updates to our standard operating procedure described herein will allow us to produce well-designed guidelines that take these disparities into account and potentially reduce health inequities. Methods: This paper outlines updates to the SAGES Guidelines Committee Standard Operating Procedure in order to incorporate issues of heath equity into our guideline development process with the goal of minimizing downstream health disparities. Results: SAGES has developed an evidence-based, standardized approach to consider issues of health equity throughout the guideline development process to allow physicians to better counsel patients and make research recommendations to better address disparities. Conclusion: Societies that promote guidelines within their organization must make an intentional effort to prevent the widening of health disparities as a result of their recommendations. The updates to the Guidelines Committee Standard Operating Procedure will hopefully lead to increased attention to these disparities and provide specific recommendations to reduce them. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Reproductive Justice for young Black women aging out of foster care.
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Matsuzaka, Sara, Katz, Colleen C., Jemal, Alexis, Shpiegel, Svetlana, and Feliz, Nathali
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ABORTION laws , *ABORTION in the United States , *WOMEN of color , *SEXISM , *HEALTH services accessibility , *CHILD welfare , *COMMUNITY health services , *SOCIAL justice , *AFRICAN Americans , *INSTITUTIONAL racism , *REPRODUCTIVE health , *STEREOTYPES , *HEALTH policy , *FOSTER home care , *PREGNANT women , *SOCIAL work research , *CONCEPTUAL structures , *PSYCHOLOGY of mothers , *ACADEMIC achievement , *REPRODUCTIVE rights , *HEALTH education , *SOCIAL support , *HEALTH promotion , *EDUCATIONAL attainment , *CHILDBIRTH , *ADOLESCENCE , *ADULTS - Abstract
In this paper, we apply the reproductive justice framework to discuss how gendered racism disadvantages pregnant and parenting young Black women aging out of foster care. Specifically, we highlight the reversal of Roe v Wade as reflective of the United States' long legacy of efforts to control Black women's reproduction. We then discuss the structural factors contributing to the reproductive injustices of young Black women aging out of care, including a lack of access to sexual and reproductive health education, barriers to educational attainment, and foster care-based relational and placement deficits. We conclude with research, practice, and policy enhancements. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Diversion to Treatment when Treatment is Scarce: Bioethical Implications of the U.S. Resource Gap for Criminal Diversion Programs.
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Aritürk, Deniz, Easter, Michele M., Swanson, Jeffrey W., and Swartz, Marvin S.
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SUBSTANCE abuse , *HEALTH services accessibility , *MEDICAL care use , *HUMAN services programs , *SCHOLARLY method , *ENDOWMENTS , *MENTAL illness , *BIOETHICS , *HELP-seeking behavior , *CRIMINOLOGY , *MEDICAL needs assessment , *MEDICAL care of prisoners - Abstract
Précis: Despite significant scholarship, research, and funding dedicated to implementing criminal diversion programs over the past two decades, persons with serious mental illness and substance use disorders remain substantially overrepresented in United States jails and prisons. Why are so many U.S. adults with behavioral health problems incarcerated instead of receiving treatment and other support to recover in the community? In this paper, we explore this persistent problem within the context of "relentless unmet need" in U.S. behavioral health (Alegría et al., 2021). [ABSTRACT FROM AUTHOR]
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- 2024
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7. Tele-Neuropsychology: From Science to Policy to Practice.
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Sperling, Scott A, Acheson, Shawn K, Fox-Fuller, Joshua, Colvin, Mary K, Harder, Lana, Cullum, C Munro, Randolph, John J, Carter, Kirstine R, Espe-Pfeifer, Patricia, Lacritz, Laura H, Arnett, Peter A, and Gillaspy, Stephen R
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POLICY sciences , *HEALTH services accessibility , *HEALTH equity , *MEDICAID , *COVID-19 pandemic , *SINGLE-payer health care , *TELEMEDICINE - Abstract
Objective The primary aim of this paper is to accelerate the number of randomized experimental studies of the reliability and validity in-home tele-neuropsychological testing (tele-np-t). Method We conducted a critical review of the tele-neuropsychology literature. We discuss this research in the context of the United States' public and private healthcare payer systems, including the Centers for Medicare & Medicaid Services (CMS) and Current Procedural Terminology (CPT) coding system's telehealth lists, and existing disparities in healthcare access. Results The number of tele-np publications has been stagnant since the onset of the COVID-19 pandemic. There are less published experimental studies of tele-neuropsychology (tele-np), and particularly in-home tele-np-t, than other tele-np publications. There is strong foundational evidence of the acceptability, feasibility, and reliability of tele-np-t, but relatively few studies of the reliability and validity of in-home tele-np-t using randomization methodology. Conclusions More studies of the reliability and validity of in-home tele-np-t using randomization methodology are necessary to support inclusion of tele-np-t codes on the CMS and CPT telehealth lists, and subsequently, the integration and delivery of in-home tele-np-t services across providers and institutions. These actions are needed to maintain equitable reimbursement of in-home tele-np-t services and address the widespread disparities in healthcare access. [ABSTRACT FROM AUTHOR]
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- 2024
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8. "Safety Is Elusive:" A Critical Discourses Analysis of Newspapers' Reporting of Domestic Violence During the Coronavirus Pandemic.
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Storer, Heather L., Mitchell, Brandon, and Willey-Sthapit, Claire
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SAFETY , *HOME environment , *HEALTH services accessibility , *GOVERNMENT regulation , *DOMESTIC violence , *INTIMATE partner violence , *NEWSPAPERS , *DISCOURSE analysis , *CONTENT analysis , *ABUSED women , *SOCIAL services , *DATA analysis software , *THEMATIC analysis , *COVID-19 pandemic - Abstract
The COVID-19 pandemic exacerbated incidences of domestic violence (DV). The framing of DV within media sources contributes to the public's understanding of DV. Using critical discourse analysis (CDA), this paper explores representations of safety within newspapers' reporting of DV during the pandemic. The sample included newspaper articles (n = 31) from U.S. newspapers. The analysis involved multiple rounds of coding and employing "structured questions." These articles depicted limited courses of action for DV survivors and represented safety as unattainable. Safety was constructed in four ways: homes are unsafe, social services are overburdened, government failures, and the elusiveness of safety. These discursive formations provide insight regarding "idealized" social responses to DV. [ABSTRACT FROM AUTHOR]
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- 2024
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9. A Scoping Review of Cancer Interventions with Arab Americans.
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Chebli, Perla, Strayhorn, Shaila M., Hanneke, Rosie, Muramatsu, Naoko, Watson, Karriem, Fitzgibbon, Marian, Abboud, Sarah, and Molina, Yamilé
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BREAST tumor treatment , *BREAST tumor diagnosis , *BREAST tumor risk factors , *ARAB Americans , *HEALTH education , *ONLINE information services , *PSYCHOLOGY information storage & retrieval systems , *CINAHL database , *CULTURE , *EVALUATION of human services programs , *MEDICAL information storage & retrieval systems , *HEALTH services accessibility , *HUMAN research subjects , *PATIENT participation , *SYSTEMATIC reviews , *TIME , *LINGUISTICS , *PATIENT selection , *EARLY detection of cancer , *COMMUNITY health services , *POPULATION geography , *PATIENT-centered care , *HUMAN services programs , *HEALTH literacy , *ATTITUDES toward illness , *RESEARCH funding , *COST analysis , *DESCRIPTIVE statistics , *LITERATURE reviews , *MEDLINE , *ENDOWMENTS , *DISEASE risk factors ,BREAST tumor prevention ,CERVIX uteri tumors - Abstract
This scoping review provides an overview of cancer interventions implemented with Arab Americans across the cancer control continuum, including an examination of outcomes and implementation processes. The search strategy included database searching and reviewing reference lists and forward citations to identify articles describing interventions with Arab adults living in the US, with no restrictions on date of publication or research methodology. The review included 23 papers describing 12 unique cancer interventions. Most interventions focused on individual-level determinants of breast and cervical cancer screening; used non-quasi-experimental research designs to evaluate intervention effectiveness; and demonstrated improvements in short-term cancer screening knowledge. Implementation processes were less commonly described. Most interventions were culturally and linguistically tailored to communities of focus; were delivered in educational sessions in community settings; engaged with the community mostly for recruitment and implementation; and were funded by foundation grants. Suggestions for research and intervention development are discussed. [ABSTRACT FROM AUTHOR]
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- 2024
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10. Integration of Dementia Systems in Central America: A Social Network Approach.
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CURRERI, NEREIDE A., GRIFFITHS, DAVE, and MCCABE, LOUISE
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DIAGNOSIS of dementia , *HEALTH services accessibility , *SELF-evaluation , *MEDICAL quality control , *COMPUTER software , *RESEARCH funding , *INTERVIEWING , *STATISTICAL sampling , *GOVERNMENT agencies , *DESCRIPTIVE statistics , *SOCIAL networks , *RESEARCH methodology , *PUBLIC administration , *COMPARATIVE studies , *INTEGRATED health care delivery , *DEMENTIA patients , *ACTIVE aging ,DEVELOPING countries - Abstract
Introduction: Action 3 of the UN Decade of Healthy Ageing plan is to deliver integrated care to improve older adults' lives. Integrated care is vital in meeting the complex needs of people with dementia but little is known about how this is or could be delivered in low and middle income countries (LMIC). This paper provides insights into previously unknown care system structures and on the potential and reality of delivering integrated care in Central America for people with dementia. Methods: A social network analysis (SNA) methodology was adopted to engage with providers of services for older adults and families with dementia in Guatemala, El Salvador, Honduras, Costa Rica and Panama. Sixty-eight (68) semi-structured interviews were completed, 57 with organisations and 11 with families. Results: Across the five countries there was evidence of fragmentation and low integration within the dementia care systems. A variety of services and types of providers are present in all five countries, and high levels of diversified connections exist among organisations of differing disciplines. However, unawareness among network members about other members that they could potentially form active links with is a barrier on the path to integration. Conclusion: This innovative and robust study demonstrates SNA can be applied to evaluate LMIC care systems. Findings provide baselines of system structures and insights into where resources are needed to fortify integration strategies. Results suggest that Central American countries have the building blocks in place to develop integrated care systems to meet the needs of people with dementia, but the links across service providers are opportunistic rather than context based coordinated integration policies. [ABSTRACT FROM AUTHOR]
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- 2024
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11. HHS White Paper Highlights Steps Taken to Address Drug Shortages.
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HEALTH services accessibility , *INTERPROFESSIONAL relations , *INVENTORY shortages , *MEDICAL supplies , *SUPPLY chains , *PRIVATE sector , *DRUGS - Published
- 2024
12. Horizontal and vertical equity and public subsidies for private health insurance in the U.S.
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Jacobs, Paul D. and Hill, Steven C.
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HEALTH services accessibility , *INSURANCE , *MEDICAL care , *HEALTH insurance , *PRIVATE sector , *HEALTH insurance exchanges , *GOVERNMENT aid , *EMPLOYER-sponsored health insurance , *MEDICAL care costs , *ECONOMICS - Abstract
The United States offers two markedly different subsidy structures for private health insurance. When covered through employer-based plans, employees and their dependents benefit from the exclusion from taxable income of the premiums. Individuals without access to employer coverage may obtain subsidies for Marketplace coverage. This paper seeks to understand how the public subsidies embedded in the privately financed portion of the U.S. healthcare system impact the payments families are required to make under both ESI and Marketplace coverage, and the implications for finance equity. Using the Household Component of the Medical Expenditure Panel Survey (MEPS-HC) and Marketplace premium data, we assess horizontal and vertical equity by calculating public subsidies for and expected family spending under each coverage source and using Lorenz curves and Gini and concentration coefficients. Our study pooled the 2018 and 2019 MEPS-HC to achieve a sample size of 10,593 observations. Our simulations showed a marked horizontal inequity for lower-income families with access to employer coverage who cannot obtain Marketplace subsidies. Relative to both the financing of employer coverage and earlier Marketplace tax credits, the more generous Marketplace premium subsidies, first made available in 2021 under the American Rescue Plan Act, substantially increased the vertical equity of Marketplace financing. While Marketplace subsidies have clearly improved equity within the United States, we conclude with a comparison to other OECD countries highlighting the persistence of inequities in the U.S. stemming from its noteworthy reliance on employer-based private health insurance. • United States uses employer and individual private health insurance coverage. • No recent investigations of horizontal and vertical equity of U.S. private coverage. • Analysis of Gini coefficients and Lorenz curves suggests regressivity. • Public policies including insurance subsidies can reduce inequities. [ABSTRACT FROM AUTHOR]
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- 2024
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13. Discursive trends in New York Times coverage of Evusheld access: A case study in the social production of ignorance.
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Goggins, Sydney
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THERAPEUTIC use of monoclonal antibodies , *HEALTH services accessibility , *MIDDLE-income countries , *GOVERNMENT policy , *IMMUNOCOMPROMISED patients , *NEWSPAPERS , *PRE-exposure prophylaxis , *DISCOURSE analysis , *PUBLIC health , *COVID-19 , *COVID-19 pandemic , *LOW-income countries - Abstract
English-language reporting on the continuing difficulties in accessing Evusheld reflects the marginalization of immunocompromised people in discussions about the public policy response to Covid-19. Moreover, the lack of available data on global Evusheld access, particularly in low-income countries, has emerged as a key form of nonknowledge that must be redressed within public health research. Through examining how knowledge about domestic and global barriers to Evusheld access circulates, and does not circulate, within The New York Times , this paper identifies a case study of the social production of ignorance related to a key issue in the Covid-19 pandemic. Drawing on science and technology studies, the history of science and media studies, I situate these trends in the context of longer explanatory histories of nonknowledge. First, through a critical discourse analysis of the New York Times' reporting on Evusheld access in the U.S., I trace the individualizing framework evident in many articles to longstanding trends in reporting on health and illness, and to the structural marginalization of immunocompromised people in U.S. Secondly, I argue that the near-total absence of reporting on Evusheld access in low-income countries is consistent with the longstanding structural neglect of health crises in the global south. • New York Times coverage of preventative treatment Evusheld rarely discusses access barriers. • Access barriers discussed are largely logistical rather than structural. • The perspectives of immunocompromised people are rarely included in Times articles on Evusheld. • Failure to include voices from impacted communities contributes to agnogenesis. • Centering the perspectives of constituencies most impacted by a health crisis will advance health equity. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Seeking care across the US-Mexico border: The experiences of Latinx and Indigenous Mexican caregivers of children with asthma or respiratory distress.
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Ortiz, Gabriela, Rodriguez, Sophia, Pozar, María, Moran, Ashley, and Cheney, Ann
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HISPANIC Americans , *HEALTH services accessibility , *QUALITATIVE research , *FOCUS groups , *SOCIAL determinants of health , *MEDICAL care , *INTERVIEWING , *RESPIRATORY diseases , *ASTHMA in children , *DECISION making , *DESCRIPTIVE statistics , *TOXINS , *ENVIRONMENTAL justice , *ENVIRONMENTAL exposure , *PSYCHOLOGY of caregivers , *CAREGIVER attitudes , *PSYCHOLOGICAL vulnerability - Abstract
Many Latinx and Indigenous Mexican populations in the United States Southwest live in unincorporated communities in the US-Mexico borderlands called colonias. These environmental justice communities often lack basic infrastructure, including healthcare services, prompting many to seek services across the border. However, due to geopolitical factors more vulnerable caregivers are limited to utilize healthcare services in the US. This paper reports the experiences and healthcare decision-making of caregivers living in colonias in the US-Mexico border region who care for children with respiratory health conditions. This study was carried out from September to December 2020. Focus groups and interviews were conducted with Latinx and Indigenous Mexican caregivers of children with asthma or respiratory distress. Qualitative interviews elicited caregivers' perspectives on the environmental factors affecting children's chronic health conditions and use of healthcare services. The analysis employed the concept of structure vulnerability to theorize geography as a structural determinant of health for caregivers faced with making healthcare decisions for their suffering from respiratory health conditions. A survey was administered to collect basic sociodemographic information. A total of 36 caregivers participated in the study. Structural factors including unincorporated community status and government inaction intersected with social determinants of health to prompt caregivers to cross the US-Mexico border to access healthcare services in Mexico for their children. Yet, more vulnerable caregivers (i.e., those without documentation status in the US) and their children, accessing healthcare services in the US was not an option limiting caregivers' ability to meet their children's healthcare needs. In such cases, geography acts as a structural determinant of health. This study shows the importance of geography in health. Rural unincorporated colonias located in the borderlands are precariously located and lack basic critical infrastructure including healthcare access. Within such places, historically and socially marginalized populations become invisible, are subject to the health effects of environmental hazards, and are limited depending on their positionality and thus vulnerability to healthcare services. • Municipal unincorporation contributes to health disparities among Latinx families in US-Mexico borderlands. • Latinx children in colonias are disproportionately exposed to environmental toxins. • Geography acts as a structural determinant of health for Latinx families in colonias. • A binational approach to health services should be prioritized for families in the borderlands. [ABSTRACT FROM AUTHOR]
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- 2024
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15. Sampling strategies among studies of barriers to abortion in the United States: A scoping review of abortion access research.
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Lands, Madison, Dyer, Rachel L., and Seymour, Jane W.
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ABORTION clinics , *ABORTION , *HEALTH services accessibility , *COMMUNITY organization - Abstract
Understanding barriers to abortion care is particularly important post -Dobbs. However, many abortion access studies recruit from abortion-providing facilities, which overlook individuals who do not present for clinic-based care. To our knowledge, no studies have reviewed research recruitment strategies in the literature or considered how they might affect our knowledge of abortion barriers. We aimed to identify populations included and sampling methods used in studies of abortion barriers in the United States. We used a scoping review protocol to search five databases for articles examining US-based individuals' experiences accessing abortion. We included English-language articles published between January 2011 and February 2022. For included studies, we identified the sampling strategy and population recruited. Our search produced 2763 articles, of which 71 met inclusion criteria. Half of the included papers recruited participants at abortion-providing facilities (n = 35), while the remainder recruited from online sources (n = 14), other health clinics (n = 10), professional organizations (n = 8), abortion funds (n = 2), community organizations (n = 2), key informants (n = 2), and an abortion storytelling project (n = 1). Most articles (n = 61) reported information from people discussing their own abortions; the rest asked nonabortion seekers (e.g., physicians, genetic counselors, attorneys) about barriers to care. Studies of abortion barriers enroll participants from a range of venues, but the majority recruit people who obtained abortions, and half recruit from abortion clinics. As abortion access becomes constrained and criminalized in the post- Roe context, our findings indicate how investigators might recruit study participants from a variety of settings to fully understand the abortion seeking experience. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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16. Challenges and solutions developed by the infant-toddler court teams to support child health services during the COVID-19 pandemic.
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Domanico, Rose, Harris, Sarah, Adeeb, Jackie, Brown, Joli, Casanueva, Cecilia, and Goldman Fraser, Jenifer
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HEALTH services accessibility , *INTERVIEWING , *QUALITATIVE research , *CHILD health services , *SUPPORT groups , *CHILD welfare , *COVID-19 pandemic - Abstract
• Close oversight by a Community Coordinator, relationships built with community partners, and the use of telehealth were creative solutions used by the Infant Toddler Court Teams during COVID-19 to support timely access to services. • This study builds on a companion paper that examined receipt and access to child health services at multiple Infant-Toddler Court Teams prior to and during the first year of the pandemic and details the challenges faced and the solutions identified by ITCT partners to support access to child services in the context of the COVID-19 pandemic within the US. • Understanding the challenges and solutions faced by the Infant-Toddler Court Team Community Coordinators during COVID-19 will be important for future pandemics or crises that impact care for child welfare involved children. This qualitative study examines Infant-Toddler Court Teams' (ITCT) responses to the impact of the COVID-19 pandemic on the accessibility and timeliness of services for children involved with an Infant Toddler Court Team (ITCT) within the United States. ITCTs utilize collaborative practice to improve, align, and integrate systems and build community capacity to improve outcomes for very young children and their families. This study reports findings from 350 transcripts of community partner interviews and an analysis of written case notes from ITCT Community Coordinators related to more than 700 instances of child service needs. We describe challenges faced and solutions and innovations developed by ITCTs to support and maintain child health services during the first year of the pandemic, as well as findings related to challenges associated with other types of services that reduced accessibility and timeliness. Understanding the challenges experienced and solutions developed can provide the child welfare field with insight and guidance on how to approach disruptions in care in the future and the persistent lack of service providers for court involved families. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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