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Your search keyword '"Guillette, H."' showing total 2 results
Start Over Author "Guillette, H." Publisher american medical informatics association
2 results on '"Guillette, H."'

1. An automated communication system in a Contact Registry for persons with rare diseases: tools for retaining potential clinical research participants.

Author

Richesson RL, Young K, Lloyd J, Adams T, Guillette H, Malloy J, and Krischer JP

Subjects
Communication, Humans, Clinical Trials as Topic, Electronic Mail, Rare Diseases, Registries
Abstract

Strategies to enhance recruitment are useful in clinical research network settings. Our network data center maintains a Contact Registry of patients who express a willingness to be contacted to enroll in clinical studies. An automated system generates periodic and customized communications to notify registrants of potential studies and network events. The majority of these communications are sent by email, although the system also supports postal communications. A database tracks the sending of all communications and facilitates reports of registry activity.

Published
2007

2. Standard terminology on demand: facilitating distributed and real-time use of SNOMED CT during the clinical research process.

Author

Richesson R, Young K, Guillette H, Tuttle M, Abbondondolo M, and Krischer J

Subjects
Biomedical Research, Forms and Records Control, Humans, Rare Diseases, Systematized Nomenclature of Medicine
Abstract

The NIH roadmap endorses the use of data standards in clinical research that are compatible with health care data standards. To facilitate standards use, members of the Rare Disease Clinical Research Network have developed tools to support study investigators and research staff to code clinical research data using SNOMED CT at the point of research. This tool is customized to help the user will find desired and appropriate SNOMED CT concepts quickly.

Published
2006

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