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4 results on '"Cuerda,Cristina"'

1. Registro del Grupo NADYA-SENPE de nutrición enteral domiciliaria en España, años 2014 y 2015

Author

Wanden-Berghe, Carmina, primary, Luengo, Luis Miguel, additional, Álvarez, Julia, additional, Burgos, Rosa, additional, Cuerda, Cristina, additional, Matía, Pilar, additional, Gómez Candela, Carmen, additional, Martínez Olmos, Miguel Ángel, additional, Gonzalo, Montserrat, additional, Calleja, Alicia, additional, Campos, Cristina, additional, Pérez de la Cruz, Antonio, additional, Irles, José Antonio, additional, Leyes, Pere, additional, Sánchez, Rebeca, additional, De Luis Román, Daniel, additional, Cardona, Daniel, additional, Santacruz, Nieves, additional, Suárez, José Pablo, additional, Ballesta, Carmen, additional, Salas, Jordi, additional, Penacho, María Ángeles, additional, Gardez, Carmen, additional, Martínez, María José, additional, Cánovas, Bárbara, additional, Moreno, José Manuel, additional, Del Olmo, Dolores, additional, Carabaña, Fátima, additional, Virgili, Nuria, additional, Higuera, Isabel, additional, Mauri, Silvia, additional, Sánchez-Vilar, Olga, additional, Miserachs, Nuria, additional, Ponce, Miguel Ángel, additional, García, Yaiza, additional, Morán, Jesús M., additional, Apezetxea, Antxón, additional, Tejera, Cristina, additional, Calañas, Alfonso, additional, Cantón, Ana, additional, Díaz, Patricia, additional, and NADYA-SENPE, Grupo, additional

Published
2017
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4. The NutriQoL ® questionnaire for assessing health-related quality of life (HRQoL) in patients with home enteral nutrition (HEN): validation and fi rst results

Author

Felipe F. Casanueva, Federico Cuesta, L. Carrillo, M. Layola, J. A. Irles, A. Apezetxea, Maria Nuria Virgili, Cristina Cuerda, Luis Lizán, [Apezetxea, Antonio] Org Sanitaria Integrada Bilbao Basurto, Bilbao, Spain, [Carrillo, Lourdes] Ctr Salud Victoria Acentejo, Santa Cruz De Tenerife, Spain, [Casanueva, Felipe] Univ Santiago de Compostela, CHUS, CIBER Fisiopatol Obesidad & Nutr CIBERobn, Inst Salud Carlos 3, La Coruna, Spain, [Cuerda, Cristina] Hosp Gen Univ Gregorio Maranon, Madrid, Spain, [Cuesta, Federico] Hosp Clin San Carlos, Madrid, Spain, [Antonio Irles, Jose] Hosp Univ Nuestra Senora Valme, Seville, Spain, [Nuria Virgili, Maria] Hosp Univ Bellvitge, Hosp Llobregat, Barcelona, Spain, [Layola, Miquel] Nestle Hlth Sci, Madrid, Spain, and [Lizan, Luis] Univ Jaume I Castellon, Dept Med, Castellon De La Plana, Spain

Subjects
0301 basic medicine, Pediatrics, medicine.medical_specialty, Health-related quality of life, Population, NutriQoL (R), Medicine (miscellaneous), 030209 endocrinology & metabolism, 03 medical and health sciences, Route of administration, 0302 clinical medicine, Bolus (medicine), Cronbach's alpha, medicine, In patient, education, Home enteral nutrition, Health related quality of life, education.field_of_study, 030109 nutrition & dietetics, Nutrition and Dietetics, Questionnaire, business.industry, Parenteral nutrition, Observational study, business
Abstract

Introduction: Health-related quality of life (HRQoL) provides a global view of the state of health of a patient receiving home enteral nutrition (HEN). Objective: To evaluate the HRQoL of patients receiving HEN using the NutriQoL® questionnaire, a specifi c instrument regardless of the underlying disease and route of administration.Materials and methods: Observational, prospective and multicentre study conducted in the context of the validation and assessment of the NutriQoL® questionnaire’s psychometric properties.Results: One-hundred-and-forty individuals [disease: cancer (58.6%), malabsorption and other (27.1%), neurological (13.6%); HEN: supplement (61.4%), sole source of nutrition (35.7%); administration route: oral (54.3%), ostomy (31.4%), nasoenteric tube (12.1%)] participated. NutriQoL® was reliable [ICC: 0.88 (95%CI: 0.80-0.93); Cronbach’s α: 0.77 (1st visit) and 0.83 (2nd visit)], valid (signifi cant Rho), lowly sensitive to changes (effect size 0.23), can be completed by either patients or caregivers (ICC: 0.82). The mean HRQoL (SD) with NutriQoL® was 14.98 (14.86), EQ-5D tariff: 53(0.25), EQ-5D VAS: 54.15 (20.64) and COOP/WONCA charts: 23.32(5.66). HRQoL with NutriQoL® was better (p < 0.05) for oral HEN [19.54 (13,23)], than nasoenteric tube [14(11.71)], ostomy [7.02 (15.48)]; administered orally [19.54 (13.23)], than by gravity [10.97 (14.46)], pump [8.5 (19.78)] or syringe bolus [7 (11.40)]; as a supplement [19.33 (13.73)] instead of sole source of nutrition [8.18 (14.23)].Conclusions: NutriQoL® is valid, reliable, even if lowly sensitive to change, and useful to measure HRQoL in this population. More studies are needed to know HRQoL in routine practice.

Published
2016

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