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4. Adherence to treatment regimen and bleeding rates in a prospective cohort of youth and young adults on low-dose daily prophylaxis for severe hemophilia A.

5. Validity of the Aboriginal children's health and well-being measure: Aaniish Naa Gegii?

6. Assessing children's interpretations of the Aboriginal Children's Health and Well-Being Measure (ACHWM).

7. Evaluation of health related quality of life in children with immune thrombocytopenia with the PedsQLTM 4.0 Generic core scales: a study on behalf of the pays de Loire pediatric hematology network.

8. Cross-cultural adaptation of the CHO-KLAT for boys with hemophilia in rural and urban china.

9. How do existing HIV-specific instrumentsmeasure up? Evaluating the ability of instrumentsto describe disability experienced by adults livingwith HIV.

10. Cross-cultural adaptation of the CHO-KLAT for boys with hemophilia in rural and urban China.

11. How do existing HIV-specific instruments measure up? Evaluating the ability of instruments to describe disability experienced by adults living with HIV.

12. Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation.

13. Exploring disability from the perspective of adults living with HIV/AIDS: development of a conceptual framework.

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