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1. Contributors

Author

Khaled Alamri, Molly L. Aldridge, Larry Alphs, Barbara E. Bierer, Eric P. Borrelli, Jaclyn L.F. Bosco, Nicholas Brooke, Emily S. Brouwer, Aisling R. Caffrey, Alicyn Campbell, Timothy S. Carey, Wendy Camelo Castillo, John Chaplin, Jennifer B. Christian, Thomas W. Concannon, Catherine Copley-Merriman, Kourtney Davis, Robert S. Epstein, Nicolle M. Gatto, Cynthia J. Girman, Rolf H.H. Groenwold, Cynthia Grossman, Kristen A. Hahn, Anne Marie Hamior, Katherine E. Harris, Ehab Hasan, Austin R. Horn, Phyo T. Htoo, Kristy Iglay, Michele Jonsson Funk, Sylvia Baedorf Kassis, Bray Patrick Lake, Suzanne N. Landi, Craig Lipset, Vincent Lo Re, Jennifer L. Lund, Kenneth Man, Elizabeth Manning, Leah McGrath, Michelle Medeiros, Marilyn A. Metcalf, Margaret Mordin, Mary Stober Murray, Nabil Natafgi, Catherine A. Panozzo, Jeanne M. Pimenta, Sudha R. Raman, Jeanne M. Regnante, Nicole A. Richie, Mary E. Ritchey, Jamie Roberts, Ify Sargeant, Roslyn F. Schneider, Suzanne Schrandt, Joe V. Selby, Soko Setoguchi, Ju-Young (Judy) Shin, Joanna Siegel, Fabian Somers, Komathi Stem, Til Stürmer, Elizabeth A. Suarez, J. Russell Teagarden, Kevin E. Thorpe, Lina Titievsky, Andrea B. Troxel, Priscilla Velentgas, Cunlin Wang, Jenna Wong, Stephen Yates, Guy Yeoman, and Wei Zhou

Published
2021
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2. Patient voice in clinical trial programs in industry

Author

Bray Patrick Lake, Nicholas Brooke, Jamie Roberts, Cynthia Grossman, Anne Marie Hamior, Elizabeth Manning, Roslyn F. Schneider, Fabian Somers, Nicole Richie, Stephen Yates, Alicyn Campbell, Sylvia Baedorf Kassis, Jeanne M. Regnante, Barbara E. Bierer, Guy Yeoman, Suzanne Schrandt, Ify Sargeant, Mary Stober Murray, Marilyn A. Metcalf, and Craig Lipset

Subjects
Clinical trial, education.field_of_study, Incentive, business.industry, Perspective (graphical), Population, New product development, Psychological intervention, Experiential knowledge, Business, Public relations, education, Care Continuum
Abstract

In this Chapter, Patient Voice in Clinical Trial Programs in Industry, we argue that the Life Sciences industry must adapt if they are to succeed and make medicines with (rather than just for) patients. Those companies able to deliver medicines and interventions that reflect patient priorities and needs as identified through meaningful patient engagement will ultimately prosper. Regulatory bodies and initiatives established to promote patient engagement are providing incentives and platforms for multiple stakeholders to embed the patient perspective in product development. Collaborative approaches are providing practical guidance and frameworks for capturing patient insights. Increasingly, patients’ experiential knowledge is being incorporated into clinical research – including in real-world studies – facilitated by the availability of technology. Authentic patient engagement should strive to ensure representation of the whole population and care continuum. If the patient voice is to be respected in clinical trials programs, open, two-way communication and education will be essential.

Published
2021
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