1. Computerized prospective screening for high levels of emotional distress in head and neck cancer patients and referral rate to psychosocial care.
- Author
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Verdonck-de Leeuw IM, de Bree R, Keizer AL, Houffelaar T, Cuijpers P, van der Linden MH, and Leemans CR
- Subjects
- Adult, Aged, Aged, 80 and over, Anxiety Disorders diagnosis, Data Collection methods, Depressive Disorder diagnosis, Female, Humans, Male, Middle Aged, Prevalence, Prospective Studies, Quality of Life, Referral and Consultation statistics & numerical data, Risk Factors, Social Support, Stress, Psychological diagnosis, Surveys and Questionnaires, Anxiety Disorders epidemiology, Depressive Disorder epidemiology, Head and Neck Neoplasms psychology, Stress, Psychological epidemiology
- Abstract
To investigate prospectively the prevalence of high levels of emotional distress and referral rate to psychosocial care in head and neck cancer (HNSCC) patients. Fifty-five consecutive newly diagnosed HNSCC patients were asked to complete the hospital anxiety and depression scale (HADS) and the EORTC QLQ-C30 and H&N35 quality of life questionnaires on a touch screen computer-assisted data collection system on their first visit and during follow-up visit. Sociodemographic, clinical, and quality of life parameters were compared to a high level of distress (HADS score >15). Number of patients with a high level of distress were compared to referral rates to psychosocial care as retrieved from patient hospital files. At time of diagnosis, 18% (10/55) of the patients had a high level of distress (related to tumor stage and site, and global quality of life and social eating) versus 25% (14/55) at follow-up (related to a variety of quality of life parameters). Low levels of distress at baseline or follow-up was noted in 64%; 18% had normal scores at baseline and developed distress at follow-up; 11% had high levels at baseline and returned to normal scores at follow-up, and 7% had persistent distress from baseline to follow-up. No patients were referred to psychosocial care at time of diagnosis. At follow-up visit 21% (3/14) were referred, all patients who developed a high level of distress after initial diagnosis. High level of emotional distress is common and few patients are referred to psychosocial care. Development of a stepped care model (including careful monitoring by using a touch screen computer system) may meet the potentially unmet needs of HNC patients and contribute improving cancer care.
- Published
- 2009
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