1. Differential Family Experience of Palliative Sedation Therapy in Specialized Palliative or Critical Care Units
- Author
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Chia Chin Lin, Jung Jae Lee, Denise Shuk Ting Cheung, Shu Yi Wang, Szu Yin Chen, and Hui Shan Shen
- Subjects
Male ,medicine.medical_specialty ,Time Factors ,Palliative care ,Critical Care ,media_common.quotation_subject ,Terminally ill ,Context (language use) ,Palliative sedation ,law.invention ,03 medical and health sciences ,0302 clinical medicine ,law ,Neoplasms ,Intensive care ,medicine ,Humans ,Hypnotics and Sedatives ,Terminally Ill ,Family ,030212 general & internal medicine ,General Nursing ,Aged ,media_common ,Terminal Care ,business.industry ,Palliative Care ,Middle Aged ,Intensive care unit ,Intensive Care Units ,Anesthesiology and Pain Medicine ,Feeling ,030220 oncology & carcinogenesis ,Family medicine ,Female ,Grief ,Neurology (clinical) ,business ,Specialization - Abstract
No study has examined the varying family experience of palliative sedation therapy (PST) for terminally ill patients in different settings.To examine and compare family concerns about PST use and its effect on the grief suffered by terminally ill patients' families in palliative care units (PCUs) or intensive care units (ICUs).A total of 154 family members of such patients were recruited in Taiwan, of whom 143 completed the study, with 81 from the PCU and 62 from the ICU. Data were collected on their concerns regarding PST during recruitment. Grief levels were assessed at three days and one month after the patient's death with the Texas Revised Inventory of Grief.Families' major concern about sedated patients in the PCU was that "there might be other ways to relieve symptoms" (90.2%), whereas families of ICU sedated patients gave the highest ratings to "feeling they still had something more to do" (93.55%), and "the patient's sleeping condition was not dignified" (93.55%). Family members recruited from the ICU tended to experience more grief than those from the PCU (P = 0.005 at Day 3 and 0.001 at Month 1). PST use predicted higher levels of grief in family members recruited from the PCU (P 0.001 at Day 3 and Month 1).Family experiences with the use of PST in terminally ill patients varied in different settings. Supportive care should address family concerns about PST use, and regular attention should be paid to the grief of individuals at higher risk.
- Published
- 2018