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285 results on '"Wasserstein A"'

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1. Consensus Guidelines for the Monitoring and Management of Metachromatic Leukodystrophy in the United States

2. ScreenPlus: A comprehensive, multi-disorder newborn screening program

3. Clinical variants paired with phenotype: A rich resource for brain gene curation

6. Olipudase alfa enzyme replacement therapy reverses interstitial lung disease in adults with acid sphingomyelinase deficiency: Long-term pulmonary outcomes of the ASCEND trial

7. Improvements in liver and lipid outcomes continue in children and adults with chronic acid sphingomyelinase deficiency treated for 2 to 6.5 years with olipudase alfa in long-term clinical trials

8. Collaborative research efforts drive therapeutic advancements for free sialic acid storage disorder (FSASD)

9. The NYCKidSeq randomized controlled trial: Impact of GUÍA digitally enhanced genetic results disclosure in diverse families

10. Physician services and costs after disclosure of diagnostic sequencing results in the NYCKidSeq program

11. A randomized, placebo-controlled clinical trial evaluating olipudase alfa enzyme replacement therapy for chronic acid sphingomyelinase deficiency (ASMD) in adults: One-year results

12. Molecular diagnostic yield of genome sequencing versus targeted gene panel testing in racially and ethnically diverse pediatric patients

14. A concerted action to explore therapies for free sialic acid storage disease

16. P245: GUÍA application: Effectiveness in enhancing communication of genomic results in diverse, multilingual populations*

18. P318: Impact of genetic counseling using GUÍA on diverse families’ understanding of genomic results: Finding from the NYCKidSeq randomized controlled trial*

19. GenomeDiver: a platform for phenotype-guided medical genomic diagnosis

20. Hope versus reality: Parent expectations of genomic testing

23. GUÍA: a digital platform to facilitate result disclosure in genetic counseling

24. A randomized, placebo-controlled clinical trial evaluating olipudase alfa enzyme replacement therapy for chronic acid sphingomyelinase deficiency (ASMD) in adults: One-year results

27. A concerted action to explore therapies for free sialic acid storage disease

30. P318: Impact of genetic counseling using GUÍA on diverse families’ understanding of genomic results: Finding from the NYCKidSeq randomized controlled trial*

31. P245: GUÍA application: Effectiveness in enhancing communication of genomic results in diverse, multilingual populations*

33. eP067: Diagnostic yield of genome sequencing versus targeted gene panel testing in diverse pediatric patients in the NYCKidSeq study

35. eP280: Continued improvement in adults with acid sphingomyelinase deficiency after 2 years of olipudase alfa in the ASCEND placebo-controlled trial

36. eP236: TeleKidSeq: Incorporating telehealth into clinical care of children from diverse backgrounds undergoing clinical genome sequencing

43. Overlapping and divergent hepatic and lipoprotein phenotypes in untreated adults with acid sphingomyelinase deficiency versus untreated adults with Gaucher disease from two pivotal clinical trials

44. Screenplus: A model for collective funding of pilot newborn screening

46. Two-year results of the ASCEND trial of olipudase alfa adults with chronic acid sphingomyelinase deficiency show parallel improvements in former placebo patients and further improvement in continuing olipudase alfa patients

48. Continued improvement in pulmonary outcomes in 3 clinical trials of olipudase alfa in children and adults with chronic acid sphingomyelinase deficiency treated for 2 to 6.5 years

50. eP280: Continued improvement in adults with acid sphingomyelinase deficiency after 2 years of olipudase alfa in the ASCEND placebo-controlled trial

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