1. Understanding Daily, Emotional, and Physical Burdens and Needs of Parents Caring for Children with Type 1 Diabetes
- Author
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Heike Saßmann, Su-Jong Kim-Dorner, Verena Berndt, Torben Biester, Andrea Dehn-Hindenberg, Bettina Heidtmann, Norbert Jorch, Eggert Lilienthal, Nicole Nellen-Hellmuth, Andreas Neu, Katja Schaaf, Ralph Ziegler, and Karin Lange
- Subjects
Diseases of the endocrine glands. Clinical endocrinology ,RC648-665 - Abstract
Aims. To investigate (1) daily, emotional, and physical caregiving burdens in parents of children with type 1 diabetes, (2) the sociodemographic and clinical predictors of three burdens, and (3) support measures that parents wish to receive. Methods. The study was a multicenter cross-sectional survey conducted in nine German pediatric diabetes centers. A questionnaire assessing three types of burdens and wishes for support was distributed to parents with a child with type 1 diabetes visiting one of the pediatric centers for a routine check-up. Results. Data from 1,107 parents (83% mothers) were analyzed. Parents reported significantly higher emotional burdens compared to daily and physical burdens (p
- Published
- 2022
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