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2. Responsible Research with Human Tissues: The Need for Reciprocity Toward Both Collectives and Individuals

Author

Annelien L. Bredenoord, Johannes J. M. van Delden, Sarah N. Boers, Karin R. Jongsma, and Michael A. Lensink

Subjects
Issues, ethics and legal aspects, Technological change, Health Policy, Engineering ethics, Business, Precision medicine, Reciprocity (evolution), Biological materials
Abstract

Precision medicine research involving human biological material is becoming an increasingly central component of healthcare, and its potential is quickly growing due to rapid technological progress...

Published
2021
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3. Understanding (in) Consent for Governance

Author

Annelien L. Bredenoord, Sarah N. Boers, Karin R. Jongsma, and Michael A. Lensink

Subjects
Issues, ethics and legal aspects, Informed consent, Health Policy, Political science, Corporate governance, Engineering ethics, Biobank, Health policy
Abstract

The low level of understanding by biobank participants of the information provided during the consent procedure is a well-known challenge in responsible biobanking research (Eisenhauer et al. 2019;...

Published
2019
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4. Fair Governance of Biotechnology: Patents, Private Governance, and Procedural Justice

Author

Nienke de Graeff, Karin R. Jongsma, Léon Dijkman, and Annelien L. Bredenoord

Subjects
0301 basic medicine, Health Policy, Corporate governance, 06 humanities and the arts, Procedural justice, Public administration, 0603 philosophy, ethics and religion, Private governance, 03 medical and health sciences, Issues, ethics and legal aspects, Core (game theory), 030104 developmental biology, Political science, 060301 applied ethics, Health policy
Abstract

In their article “Patenting Foundational Technologies: Lessons From CRISPR and Other Core Biotechnologies,” Feeney and colleagues (2018) provide a critical analysis of Farrelly’s (2016) take on pat...

Published
2018
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5. Geometry of Trust: Why We Need to Distinguish Between Horizontal and Vertical Trust

Author

Annelien L. Bredenoord and Karin R. Jongsma

Subjects
03 medical and health sciences, Issues, ethics and legal aspects, 0302 clinical medicine, Horizontal and vertical, Computer science, Health Policy, 060301 applied ethics, 030212 general & internal medicine, 06 humanities and the arts, 0603 philosophy, ethics and religion, Data science
Abstract

The authors of the article “Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research” (Kraft et al. 2018) describe the role of trust with respect to p...

Published
2018
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6. Next Generation DNA Sequencing: Always Allow an Opt Out

Author

Hans van Delden, Annelien L. Bredenoord, and Rhodé M Bijlsma

Subjects
Whole genome sequencing, Genetics, Issues, ethics and legal aspects, Metagenomics, Health Policy, Primary prevention, Computational biology, Personal autonomy, Biology, Genome, Exome, DNA sequencing
Abstract

With the rapid development of next-generation sequencing (NGS) technologies, among them whole exome and whole genome sequencing, it is now possible and affordable to sequence genomes in a short per...

Published
2015
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7. Disclosure of Risks and Uncertainties Are Especially Vital in Light of Regenerative Medicine

Author

J.J.M. van Delden, Michelle G. J. L. Habets, Sophie L. Niemansburg, and Annelien L. Bredenoord

Subjects
Issues, ethics and legal aspects, medicine.medical_specialty, Ethical obligation, business.industry, Health Policy, Alternative medicine, Medicine, Engineering ethics, business, Regenerative medicine
Abstract

In “Is There an Ethical Obligation to Disclose Controversial Risk?” De Marco and colleagues (2014) discuss the disclosure of disputed evidence of serious risk to future research participants. We ag...

Published
2014
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9. Toward a 'Post-Posthuman Dignity Area' in Evaluating Emerging Enhancement Technologies

Author

Annelien L. Bredenoord, Rieke van der Graaf, and Johannes J. M. van Delden

Subjects
business.industry, Personhood, Health Policy, media_common.quotation_subject, Posthuman, Environmental ethics, Context (language use), Issues, ethics and legal aspects, Dignity, Enhancement Technologies, Medicine, business, Socioeconomics, media_common
Abstract

In his paper, Fabrice Jotterand clearly illustrates the difficulties of applying the concept of human dignity in the context of emerging enhancement technologies. Unfortunately, however, Jotterand'...

Published
2010
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