1. 'You Don’t Have a Normal Life': Coping with Chagas Disease in Los Angeles, California
- Author
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Salvador Hernandez, Grecia Marquez, Juan Sequeira, J. Maribel Nieto, Colin J. Forsyth, Harry Sequeira, Mario F. Roman, Sheba Meymandi, and Carmen A. Flores
- Subjects
Adult ,Male ,Chagas disease ,Gerontology ,Coping (psychology) ,medicine.medical_specialty ,Health (social science) ,Disease ,Health Services Accessibility ,Health care ,medicine ,Humans ,Chagas Disease ,Mexico ,business.industry ,Anthropology, Medical ,Public health ,Tropical disease ,Central America ,Middle Aged ,medicine.disease ,Los Angeles ,Cultural consensus analysis ,Anthropology ,Neglected tropical diseases ,Female ,Psychology ,business - Abstract
Chagas disease is the neglected tropical disease of greatest public health impact in the United States, where it affects over 300,000 people. Diverse barriers limit healthcare access for affected people; fewer than 1% have obtained testing or treatment. We interviewed 50 people with Chagas disease in Los Angeles, California, and administered a cultural consensus analysis questionnaire. Participants were asked about their experiences and perceptions of Chagas disease, access to healthcare, and strategies for coping with the disease. In participants' narratives, the physical and emotional impacts of the disease were closely interwoven. Participant explanatory models highlight difficulties in accessing care, despite a desire for biomedical treatment. Obtaining testing and treatment for Chagas disease poses substantial challenges for US patients.
- Published
- 2021