Search

This study compares service use, perceived unmet needs, and expectations of providers of Latino and Euro-American families of children with disabilities enrolled in a Title V Program. Eighty-four families and 20 providers participated in open-ended, semistructured, and structured interviews. Latino families underused Title V services (p <.001). The Latino families were more likely to cite unmet needs in the following areas: an unresolved health problem (p <.05), rehabilitation therapy programs (p <.001), or need for more information or a support group (p <.001). The Euro-American families cited unmet needs in the following areas: lack of day care (p <.001), respite services (p <.001), recreational programs (p <.001), and home health aides (p <.007). Textual analysis of open interviews revealed that the two groups of families had different expectations of providers. Latino cultural values play a role in these differences, creating barriers for effectively communicating with providers and for meeting children's needs.

Increasingly, surgeons are traveling from the developed to the developing world to volunteer their services. They can often make an enormous difference in the lives of patients they serve, but they must understand that these patients exist in a sociocultural matrix in which the meaning of the condition they have and the future they face are determined by a host of factors over and above the specific surgery itself. This means that programs in which teams quickly go in and out of a country must take into account and plan for longer term follow-up by colleagues within that country as well as develop and target rehabilitation services and educational messages to ensure maximum benefits from the intervention performed. This study examines the long-term implications of a short-term surgical team intervention for pediatric patients with cleft lip/cleft palate and their families in the Amazon region of Brazil.