1. Clinical Practice Guidelines on the Treatment of Patients with Cleft Lip, Alveolus, and Palate: An Executive Summary
- Author
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Janet J M Dijkstra-Putkamer, Anne Marie Kuijpers-Jagtman, Ronald J.C. Admiraal, Christl Vermeij-Keers, Hester de Wilde, Martine C M van Gemert-Schriks, Henriette F. N. Swanenburg de Veye, Frank Bierenbroodspot, Dirk Bittermann, Andrea L J Kortlever, Léon N A Van Adrichem, Johanna M. M. van Breugel, Pieter H Broos, Nanouk van Tol-Verbeek, Chantal M Mouës-Vink, Aebele B. Mink van der Molen, Nard G Janssen, Marie-José H. van den Boogaard, and Paediatric Dentistry
- Subjects
medicine.medical_specialty ,Recommendation clinical care ,medicine.medical_treatment ,recommendation clinical care ,Cleft lip, alveolus and palate ,MEDLINE ,610 Medicine & health ,Cochrane Library ,Article ,Rhinoplasty ,quality of health care ,Multidisciplinary approach ,medicine ,Genetic testing ,Clinical practice guideline ,Executive summary ,medicine.diagnostic_test ,treatment ,business.industry ,Cleft lip ,SDG 10 - Reduced Inequalities ,General Medicine ,alveolus and palate ,Treatment ,Family medicine ,Inclusion and exclusion criteria ,Quality of health care ,Medicine ,cleft lip, alveolus and palate ,business ,Psychosocial ,clinical practice guideline - Abstract
Significant treatment variation exists in the Netherlands between teams treating patients with cleft lip, alveolus, and/or palate, resulting in a confusing and undesirable situation for patients, parents, and practitioners. Therefore, to optimize cleft care, clinical practice guidelines (CPGs) were developed. The aim of this report is to describe CPG development, share the main recommendations, and indicate knowledge gaps regarding cleft care. Together with patients and parents, a multidisciplinary working group of representatives from all relevant disciplines assisted by two experienced epidemiologists identified the topics to be addressed in the CPGs. Searching the Medline, Embase, and Cochrane Library databases identified 5157 articles, 60 of which remained after applying inclusion and exclusion criteria. We rated the quality of the evidence from moderate to very low. The working group formulated 71 recommendations regarding genetic testing, feeding, lip and palate closure, hearing, hypernasality, bone grafting, orthodontics, psychosocial guidance, dentistry, osteotomy versus distraction, and rhinoplasty. The final CPGs were obtained after review by all stakeholders and allow cleft teams to base their treatment on current knowledge. With high-quality evidence lacking, the need for additional high-quality studies has become apparent.
- Published
- 2021
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