1. A Service Desert: Unmet Needs of Individuals with Autism and their Families.
- Author
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Galligan, Megan, Losh, Ainsley, Veytsman, Elina, and Blacher, Jan
- Subjects
- *
CHILDREN with autism spectrum disorders , *INDIVIDUAL needs , *AUTISM , *MEDICAL education , *DEVELOPMENTAL disabilities , *RURAL health services ,INLAND Empire (Pacific Northwest) - Abstract
Background: Families face substantial barriers to timely assessment and intervention services for their children, particularly in remote areas. This study reports results of a survey in an effort to promote better service options for underserved children with autism spectrum disorder (ASD) and their families in the Inland Empire region of California. Method: Parents, medical practitioners, and service providers (N = 90) completed surveys of unmet needs. Results were analyzed quantitatively and qualitatively. Results: Only 13% of participants felt that service/healthcare needs were currently met; specific needs included: (1) increased access to a variety of services, (2) overcoming barriers to treatment and/or evaluation services, and (3) additional training and/or education for medical practitioners and service providers. Conclusions: There is a critical need for increased access to comprehensive assessment and services. Recommendations include increased practitioner training and the development of comprehensive services such as an autism centre that focuses on research, education, and service in developmental disabilities. [ABSTRACT FROM AUTHOR]
- Published
- 2022