1. Developing Country-Specific Question Prompt Lists About Dementia Palliative Care for Family Caregivers
- Author
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Laura Bavelaar, Wilco P. Achterberg, Kevin Brazil, Sophie Morris, Jenny T. van der Steen, Sharon Kaasalainen, and Maria Nicula
- Subjects
medicine.medical_specialty ,Health (social science) ,Palliative care ,Family caregivers ,business.industry ,Developing country ,medicine.disease ,Health Professions (miscellaneous) ,Abstracts ,Family medicine ,medicine ,Dementia ,Session 7180 (Symposium) ,Life-span and Life-course Studies ,business ,AcademicSubjects/SOC02600 - Abstract
We aimed to develop question prompt lists for family caregivers of nursing home residents with advanced dementia to augment advance care planning conversations. In the context of a joint European-Canadian study, we used standardized nominal group methods to create country-specific lists of questions. (Bereaved) family caregivers of persons with dementia read an information booklet about end-of-life care for people with dementia, and generated questions to ask healthcare professionals. They also marked the most important questions from pre-selected questions from other lists. In the Netherlands, 20 participants contributed to a question prompt list of 24 questions that gravitated towards questions about terminating life and the responsibilities of physicians and family involved in decision making. In Canada, 4 participants came up with a question prompt list of 15 questions, related mostly to staff-family communication, with some the same as selected in the Netherlands. Data from the other countries will be presented too.
- Published
- 2020