1. Public Policy in ALS/MND Care : An International Perspective
- Author
-
Robert H. Blank, Jerome E. Kurent, David Oliver, Robert H. Blank, Jerome E. Kurent, and David Oliver
- Subjects
- Political planning, Medical policy, Medical care, Public health administration
- Abstract
This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions.
- Published
- 2020