1. A call for global action for rare diseases in Africa
- Author
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Ann Nordgren, Stephanie Broley, Mengchun Gong, James Chipeta, Zhang Shuyang, Durhane Wong-Rieger, Stephen C. Groft, Benjamin Djoudalbaye, Kristen J. Nowak, Maja Stojiljkovic, Kenjiro Kosaki, William A. Gahl, Safiyya D. Gassman, Maximilian Muenke, Sarah Bowdin, Emily P. Coles, David R. Adams, Judit Kumuthini, Manuel Posada, Tebogo Selebatso, Christopher P. Austin, Annika Larsson, Moses Selebatso, Eda Selebatso, Ruty Mehrian-Shai, Ratna D. Puri, Helene Cederroth, Christoffer Nellåker, Barbara Wuebbels, Gareth Baynam, Virginia A. Llera, Domenica Taruscio, Simon Easteal, Juergen K. V. Reichardt, Nicholas Pachter, Sergi Beltran, Maryke Schoonen, Dipesalema Joel, Feng Zhang, Francois H. van der Westhuizen, Barend Christiaan Vorster, Kelly du Plessis, Désirée Gavhed, Kym M. Boycott, Emilio J. A. Roldán, Petra Kaufmann, John Forman, Gemma A. Bilkey, Boikobo Gaobinelwe, Clara D.M. van Karnebeek, AGEM - Inborn errors of metabolism, Paediatric Metabolic Diseases, 10213503 - Van der Westhuizen, Francois Hendrikus, and 22713077 - Vorster, Barend Christiaan
- Subjects
medicine.medical_specialty ,International Cooperation ,education ,MEDLINE ,Health Promotion ,Biology ,Global Health ,Orphan drug ,03 medical and health sciences ,Rare Diseases ,0302 clinical medicine ,Genetics ,Global health ,medicine ,Humans ,Health planning ,health care economics and organizations ,030304 developmental biology ,0303 health sciences ,business.industry ,Public health ,Public relations ,Call to action ,Health Planning ,Health promotion ,Action (philosophy) ,Africa ,business ,030217 neurology & neurosurgery - Abstract
The 11th International Conference on Rare Diseases and Orphan Drugs (ICORD), South Africa, included the Africa-Rare initiative launch and facilitated multi-stakeholder engagement in the challenges facing, and opportunities for, Africans living with rare diseases. The following ICORD Global Call to Action, developed in collaboration with the International Rare Diseases Research Consortium, synthesizes the outcomes of the deliberations and emphasizes the international collaborative efforts required to address the global effects of rare diseases on public health.
- Published
- 2019
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