1. The Social Quality Model and its impact on quality of life among patients with heart failure in the United States and the Netherlands: results from a cross-national survey
- Author
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Julie K. Johnson, Hub Wollersheim, Yvonne DeMan, Syl Jones, Reinier Akkermans, Stef Groenewoud, Paul B. Batalden, Gijs Hesselink, I.T.H.M. Maassen, Michelle D. Carlson, Brita Roy, Judith R. L. M. Wolf, and Bradley A. Bart
- Subjects
Health (social science) ,Quality of life (healthcare) ,Social quality ,Sociology and Political Science ,Health Policy ,Heart failure ,Cross national survey ,Environmental health ,medicine ,medicine.disease ,Psychology ,positive health ,quality of life ,social care ,resilience ,heart failure ,humanities - Abstract
Introduction: People living with chronic illness require a wide range of resources to attain the QOL they desire, including living conditions, support from informal caregivers and the community, capabilities like self-regulation and resilience, and formal health and social care. However, the relative contribution of these resources to overall QOL is unknown. We designed a cross-national study to explore how a variety of resources influence QOL among people living with congestive heart failure (CHF) in two settings with different systems and sociocultural contexts: United States (US) and Netherlands (NL).Theory/Methods: We spoke with CHF patients in the US and NL to elicit resources needed to support their QOL and used the Social Quality Model (SQM) to organize them. The SQM depicts four quadrants that support QOL: Living Conditions (e.g., housing, education), Social Embeddedness (e.g., social support, trust), Societal Embeddedness (e.g., access to care, responsiveness of services), and Self-Regulation (e.g., physical health, resilience).We then developed a survey comprising validated instruments to assess constructs within each quadrant of the SQM, in addition to sociodemographics. We used Cantril’s Ladder to assess overall QOL. We administered the survey in-person or by mail to adult patients with CHF seen at Hennepin Healthcare, Minneapolis, Minnesota, US, or Radboud medical center, Nijmegen, NL.We compared sociodemographic characteristics using t-tests or Chi-squared, as appropriate. Next, we used backwards stepwise regression to identify characteristics within each SQM quadrant that were independently associated with QOL among US and NL participants (p
- Published
- 2019
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