46 results on '"Bogaardt, Hans"'
Search Results
2. Ankyloglossia in Australia: Experiences and perspectives of parents and caregivers
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Akbari, Donna, Bogaardt, Hans, and Docking, Kimberley
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- 2024
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3. Exploring the relationship between manual dexterity and cognition in people with multiple sclerosis: 9-hole peg and multiple cognitive functions
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Abraham, Rinu, Waldman-Levi, Amiya, Barrera, Marissa A., Bogaardt, Hans, Golan, Daniel, Bergmann, Catherine, Sullivan, Cynthia, Wilken, Jeffrey, Zarif, Myassar, Bumstead, Barbara, Buhse, MariJean, Covey, Thomas J, Doniger, Glen M, Penner, Iris-Katharina, Hancock, Laura M., Morrow, Sarah A., Giroux, Erin, and Gudesblatt, Mark
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- 2024
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4. Dosages of Swallowing Exercises Prescribed in Stroke Rehabilitation: A Medical Record Audit
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Choy, Jacinda, Pourkazemi, Fereshteh, Anderson, Caitlin, and Bogaardt, Hans
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- 2023
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5. Multiple sclerosis and quality of life: The role of cognitive impairment on quality of life in people with multiple sclerosis
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Bergmann, Catherine, Becker, Shenira, Watts, Adreanna, Sullivan, Cynthia, Wilken, Jeffrey, Golan, Daniel, Zarif, Myassar, Bumstead, Barbara, Buhse, MariJean, Kaczmarek, Olivia, Covey, Thomas J, Doniger, Glen M., Penner, Iris-Katharina, Hancock, Laura M., Bogaardt, Hans, Barrera, Marissa A., Morrow, Sara, and Gudesblatt, Mark
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- 2023
- Full Text
- View/download PDF
6. Managing Communication Changes in Persons with Multiple Sclerosis: Findings from Qualitative Focus Groups
- Author
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El-Wahsh, Sarah, Balandin, Susan, Bogaardt, Hans, Kumfor, Fiona, and Ballard, Kirrie J.
- Abstract
Background: There is growing recognition that communication can be affected in multiple sclerosis (MS) and can negatively impact relationships, employment and psychological well-being. Some persons with MS (PwMS) implement strategies to facilitate their communication; however, some do not. Most PwMS who report communication changes do not engage with speech-language pathology (SLP) services. This raises concerns that a large portion of communication changes associated with MS go under-recognized and unmanaged. Little is known about what PwMS want and need to facilitate effective communication. Aim: To explore what PwMS want and need to better manage their communication changes. Methods & Procedures: Three focus groups were conducted online using Zoom, with a total of 12 PwMS. Participants were an opportunistic sample of PwMS within Australia recruited via advertisements distributed to various MS organizations and clinics. Data were transcribed verbatim and analysed using thematic content analysis to provide a qualitative analysis of the data. Outcomes & Results: Two main themes emerged: (1) accessible knowledge and a holistic approach; and (2) partnerships. Specifically, the identified wants and needs of participants included: (1) assessment; (2) information; (3) raising awareness; (4) support groups; (5) a whole-person approach to intervention; (6) geographically and economically accessible and navigable services; (7) effective patient-physician interactions; and (8) a multidisciplinary team-based approach (e.g., SLP, psychology, neuropsychology, occupational therapy). Conclusions & Implications: This study identified a wide range of unmet wants and needs of PwMS related to communication changes. Participants wanted improved collaborative partnerships with healthcare professionals to better manage their communication changes. For example, healthcare professionals could ask PwMS about potential communication changes, provide education and make appropriate referrals. Education and information provision could focus on communication changes in MS, factors that trigger or exacerbate communication changes, impacts, self-management strategies, and available supports and services. Specific implications for clinical practice and future research are suggested in this paper, including ideas for patient education materials and content, suggestions for communication-specific screening and information that could be shared in patient-physician interactions, the development of guidelines to systematically screen, assess, manage and monitor communication changes in MS, and the design of evidence-based communication interventions for this clinical population. The results from this study can be used to guide the design of supports and services to help PwMS better manage communication changes, with the aim to reduce the negative impacts.
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- 2022
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- View/download PDF
7. Ankyloglossia in Australia: Practices of health professionals
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Akbari, Donna, Bogaardt, Hans, Lau, Timothea, and Docking, Kimberley
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- 2023
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8. Ankyloglossia in Central Australia: Prevalence, identification and management in infants
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Akbari, Donna, Bogaardt, Hans, and Docking, Kimberley
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- 2023
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9. Thickened Formulas Used for Infants with Dysphagia: Influence of Time and Temperature
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Ng, Vivian, Bogaardt, Hans, Tzannes, Gloria, Collins, Sheridan, and Docking, Kimberley
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- 2022
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10. The effects of the COVID-19 pandemic on neuropsychiatric symptoms in dementia and carer mental health: an international multicentre study
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Wei, Grace, Diehl-Schmid, Janine, Matias-Guiu, Jordi A., Pijnenburg, Yolande, Landin-Romero, Ramon, Bogaardt, Hans, Piguet, Olivier, and Kumfor, Fiona
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- 2022
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11. Responding to the real problem of sustainable resuscitation skills with real assessment. Mixed‐methods evaluation of an authentic assessment programme.
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Thompson, James, Verrall, Claire, Bogaardt, Hans, Thirumanickam, Abi, Marley, Charles, and Boyle, Malcolm
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CONSENSUS (Social sciences) ,EMERGENCY medical technicians ,QUESTIONNAIRES ,TEACHING ,RESUSCITATION ,DESCRIPTIVE statistics ,LONGITUDINAL method ,SURVEYS ,ALLIED health personnel ,STUDENTS ,THEMATIC analysis ,CLINICAL competence ,RESEARCH methodology ,NATIONAL competency-based educational tests ,ADVANCED cardiac life support - Abstract
Introduction: The retention of resuscitation skills is a widespread concern, with a rapid decay in competence frequently following training. Meanwhile, training programmes continue to be disconnected with real‐world expectations and assessment designs remain in conflict with the evidence for sustainable learning. This study aimed to evaluate a programmatic assessment pedagogy which employed entrustment decision and the principles of authentic and sustainable assessment (SA). Methods: We conducted a prospective sequential explanatory mixed methods study to understand and address the sustainable learning challenges faced by final‐year undergraduate paramedic students. We introduced a programme of five authentic assessments based on actual resuscitation cases, each integrating contextual elements that featured in these real‐life events. The student‐tutor consensus assessment (STCA) tool was configured to accommodate an entrustment scale framework. Each test produced dual student led and assessor scores. Students and assessors were surveyed about their experiences with the assessment methodologies and asked to evaluate the programme using the Ottawa Good Assessment Criteria. Results: Eighty‐four students participated in five assessments, generating dual assessor‐only and student‐led results. There was a reported mean score increase of 9% across the five tests and an 18% reduction in borderline or below scores. No statistical significance was observed among the scores from eight assessors across 420 unique tests. The mean student consensus remained above 91% in all 420 tests. Both student and assessor participant groups expressed broad agreement that the Ottawa criteria were well‐represented in the design, and they shared their preference for the authentic methodology over traditional approaches. Conclusion: In addition to confirming local sustainability issues, this study has highlighted the validity concerns that exist with conventional resuscitation training designs. We have successfully demonstrated an alternative pedagogy which responds to these concerns, and which embodies the principles of SA, quality in assessment practice, and the real‐world expectations of professionals. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Factors influencing speech pathology practice in dysphagia after stroke: A qualitative focus group study.
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Choy, Jacinda, Pourkazemi, Fereshteh, Bogaardt, Hans, Anderson, Caitlin, Chai, Shing Yee, and Pebdani, Roxanna N.
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QUALITATIVE research ,FOCUS groups ,INTERPROFESSIONAL relations ,WORK environment ,INTERVIEWING ,DECISION making in clinical medicine ,BEHAVIOR ,CONTINUUM of care ,THEMATIC analysis ,RESEARCH methodology ,STROKE ,PHENOMENOLOGY ,SPEECH therapy ,DEGLUTITION disorders ,HEALTH care teams ,DISEASE complications - Abstract
Background: Dysphagia affects over half of adults after stroke. Dysphagia rehabilitation aims to improve swallowing and reduce negative outcomes for these adults. However, significant variability exists in dysphagia rehabilitation. Research is needed to explore the underlying clinician‐specific and workplace factors that contribute to variability in dysphagia rehabilitation after stroke. Aim: To explore factors influencing speech pathology practice in dysphagia rehabilitation after stroke. Methods & Procedures: We used a phenomenological approach with an interpretivist perspective. Twenty speech pathologists working in dysphagia rehabilitation participated from different workplace settings around Australia. Five semi‐structured focus groups were conducted online. Data were inductively analysed using thematic analysis with a coding reliability method. Outcomes & Results: Four themes were discussed within focus groups: (1) relationship between experienced and less experienced clinicians: 'Following what other people have done', (2) need for collaborative learning: 'A safe space to share and train', (3) variation between settings impacts on continuity of care: 'There's a difference between community and acute', and (4) working effectively with multidisciplinary teams (MDT): 'An MDT which can listen to the voice of speech pathology'. Conclusions & Implications: Relationships between senior and junior speech pathologists, within speech pathology and MDT, and across inpatient and community settings influenced speech pathology practice. Flattened hierarchies in speech pathology, collaborative learning in workplaces, mutual respect within teams and connection across inpatient and community settings could improve the quality and consistency of dysphagia rehabilitation after stroke. WHAT THIS PAPER ADDS: What is already known on this subject: Dysphagia rehabilitation can improve swallowing after a stroke. However, dysphagia rehabilitation is characterised by variability in clinical practice. Clinician‐specific and workplace factors influence clinical practice and may contribute to variability in dysphagia rehabilitation. What this study adds: Professional relationships influence speech pathologists' clinical practice, including relationships between senior and junior clinicians, between inpatient and community settings and with peers and multidisciplinary teams. Workplace norms and hierarchies, poor continuity of care between settings and competing priorities from other disciplines can hinder dysphagia rehabilitation. However, collaborative learning, positive workplace cultures and respectful transdisciplinary care can improve the quality and consistency of clinical practice. What are the clinical implications of this work?: Flattening hierarchies in the workplace can foster a safe learning space. Further, questioning workplace norms and seeking out peer learning within and across settings can build clinical skills and confidence. Developing positive workplace cultures that support continuous development may be key for empowering speech pathologists to provide high‐quality and consistent dysphagia rehabilitation. [ABSTRACT FROM AUTHOR]
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- 2024
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13. The impact of childhood obstructive sleep apnea on speech and oral language development: a systematic review
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Mohammed, Dania, Park, Veronica, Bogaardt, Hans, and Docking, Kimberley
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- 2021
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14. Clinical Predictors for Oropharyngeal Dysphagia and Laryngeal Dysfunction after Lung and Heart Transplantation
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Black, Rebecca J., Bogaardt, Hans, McCabe, Patricia, Glanville, Allan R., MacDonald, Peter, and Madill, Catherine
- Abstract
Background: Oropharyngeal dysphagia and laryngeal dysfunction are two lesser known complications after lung and heart transplantation. The presence of these features places this immunocompromised population at high risk of pulmonary complications and subsequent medical deterioration. Early identification of swallowing and voice dysfunction would be beneficial to optimize management. Aims: To examine the association between patient risk factors and postoperative outcomes with referral to speech pathology (SP) following signs of swallowing and voice dysfunction. Methods & Procedures: A retrospective review was conducted on demographic data, patient risk factors and postoperative course in 284 patients following lung and/or heart transplantation between 2010 and 2013. Variables were analysed for any association between pre- and postoperative factors and SP referral. Outcomes & Results: A total of 24% were referred to SP with a mean age of 47 years. Binary logistic regression identified a statistically significant association between the number of intubations (odds ratio (OR) = 2.066, p = 0.028), intubation duration (OR = 1.004, p < 0.01), length of stay in the intensive care unit (ICU) (OR = 1.068, p < 0.01), and number of ICU admissions (OR = 1.384, p = 0.046) and SP referral. Intubation time and the total days in ICU were greater for patients referred to SP. Mortality also increased for these variables and for the numbers of reintubations and readmissions. Analysis of pre-operative risk factors revealed cerebrovascular disease to be a significant predictor of SP referral (OR = 6.747, p = 0.032). Conclusions & Implications: This study demonstrates significant clinical indicators for referral to SP for the management of oropharyngeal dysphagia and laryngeal dysfunction in patients after lung or heart transplantation. Further studies are needed to investigate the most efficacious intervention approaches to manage swallowing and voice dysfunction in these patients.
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- 2019
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15. "One of the biggest grey areas": A focus group study exploring dosage of swallowing exercises from speech-language pathologist perspectives.
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Choy, Jacinda, Pourkazemi, Fereshteh, Bogaardt, Hans, Anderson, Caitlin, Chai, Shing Yee, and Pebdani, Roxanna N.
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SPEECH therapists ,MEDICAL protocols ,FOCUS groups ,HEALTH attitudes ,EXERCISE therapy ,INTERVIEWING ,DECISION making in clinical medicine ,DESCRIPTIVE statistics ,UNCERTAINTY ,DOSE-response relationship in biochemistry ,THEMATIC analysis ,PROFESSIONS ,ATTITUDES of medical personnel ,STROKE rehabilitation ,RESEARCH methodology ,DEGLUTITION ,PHENOMENOLOGY ,INDIVIDUALIZED medicine ,COUNSELING ,HEALTH care rationing - Abstract
Purpose: To explore the perspectives and practices of speech-language pathologists on dosage of swallowing exercises in stroke rehabilitation. Method: Online focus groups involved 20 speech-language pathologists working in various settings across Australia. Focus group data were recorded, deidentified, and analysed using inductive thematic analysis guided by an interpretivist phenomenological approach. Result: Analysis resulted in four main themes: (1) "Getting the most bang for your buck": Importance of dosage in swallowing, (2) "No patient is identical": Personalising swallowing exercise dosage to the patient, (3) "You've got what you should do, and then what you can do": Gap between recommendations and practical application, and (4) "Not much guidance out there about dosage": More research needed to guide dosage. Speech-language pathologists agreed that dosage was theoretically important for swallowing exercises, but practical application of dosage was impacted by patient factors, limited access to resources, and lack of research-based guidelines. Conclusion: Speech-language pathologists reported trying to provide optimal care despite multiple barriers to prescribing dosages of swallowing exercises in practice. Personalising exercise dosage to the patient, creative clinician strategies, improved and equitable access to resources, and research-based guidelines on swallowing exercise dosages are needed to address these barriers. [ABSTRACT FROM AUTHOR]
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- 2024
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16. The frequency of dysphagia and its impact on adults with multiple sclerosis based on patient-reported questionnaires
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Alali, Dalal, Ballard, Kirrie, and Bogaardt, Hans
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- 2018
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17. Dosages of swallowing exercises in stroke rehabilitation: a systematic review.
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Choy, Jacinda, Pourkazemi, Fereshteh, Anderson, Caitlin, and Bogaardt, Hans
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STROKE rehabilitation ,DEGLUTITION ,EXERCISE therapy ,DEGLUTITION disorders ,DATABASE searching - Abstract
Purpose: To investigate the dosages of swallowing exercises reported in intervention studies on post-stroke dysphagia through systematic review. Methods: Five electronic databases were searched from inception until February 2022 with reference tracing of included studies. Studies were included, where adults with post-stroke dysphagia received rehabilitative, behavioural swallowing exercises, pre/post outcomes were reported, and intervention dosage was described in detail, including frequency, intensity, time, and type of exercise. Two reviewers independently screened studies and rated quality using ASHA Levels of Evidence tool. Data was tabulated and narratively described. Results: 54 studies were included with a total 1501 participants. Studies included 28 randomised controlled trials, 8 non-randomised controlled trials, 12 pre/post studies, 3 retrospective case controls and 3 case studies. Results showed inconsistent reporting of intervention dosage, with intensity the least consistently reported dosage component. While swallowing intervention was most commonly provided five times per week for four weeks, there was a wide breadth of type, frequency, intensity and duration of swallowing exercises reported. Dosage under-reporting and variation was particularly observed in "standard care" co-interventions or control groups. Study strengths included following PRISMA guidelines, providing a comprehensive review of swallowing exercise methodology and dosages, and including non-English studies. The limitation was lack of meta-analysis due to the heterogeneity of included studies. Conclusions: Dosages of swallowing exercises are inconsistently reported and vary significantly in post-stroke dysphagia studies. Results indicate the need for consistent and comprehensive dosage reporting in dysphagia studies, and for further research into evidence-based principles to optimise swallowing exercise dosages. Systematic review registration number: 131294 [ABSTRACT FROM AUTHOR]
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- 2023
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18. Swallowing Problems at the End of the Palliative Phase: Incidence and Severity in 164 Unsedated Patients
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Bogaardt, Hans, Veerbeek, Laetitia, Kelly, Katherine, van der Heide, Agnes, van Zuylen, Lia, and Speyer, Renée
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- 2015
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19. Maximum Phonation Time: Variability and Reliability
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Speyer, Renée, Bogaardt, Hans C.A., Passos, Valéria Lima, Roodenburg, Nel P.H.D., Zumach, Anne, Heijnen, Mariëlle A.M., Baijens, Laura W.J., Fleskens, Stijn J.H.M., and Brunings, Jan W.
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- 2010
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20. Swallowing and communication outcomes following primary transoral robotic surgery for advanced or recurrent oropharyngeal cancer: Case series.
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Charters, Emma, Bogaardt, Hans, Freeman-Sanderson, Amy, Ballard, Kirrie, Davies, Sarah, Oates, Justine, and Clark, Jonathan
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- 2022
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21. Quality of Life in Oncological Patients with Oropharyngeal Dysphagia: Validity and Reliability of the Dutch Version of the MD Anderson Dysphagia Inventory and the Deglutition Handicap Index
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Speyer, Renée, Heijnen, Bas J., Baijens, Laura W., Vrijenhoef, Femke H., Otters, Elsemieke F., Roodenburg, Nel, and Bogaardt, Hans C.
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- 2011
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22. Managing communication changes in persons with multiple sclerosis: Findings from qualitative focus groups.
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El‐Wahsh, Sarah, Balandin, Susan, Bogaardt, Hans, Kumfor, Fiona, and Ballard, Kirrie J.
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TREATMENT of communicative disorders ,MULTIPLE sclerosis ,FOCUS groups ,NEUROPSYCHOLOGY ,SELF-management (Psychology) ,PSYCHOLOGY ,QUALITATIVE research ,OCCUPATIONAL therapy ,PATIENTS' attitudes ,HEALTH care teams ,DESCRIPTIVE statistics ,THEMATIC analysis ,CONTENT analysis ,MEDICAL needs assessment - Abstract
Background: There is growing recognition that communication can be affected in multiple sclerosis (MS) and can negatively impact relationships, employment and psychological well‐being. Some persons with MS (PwMS) implement strategies to facilitate their communication; however, some do not. Most PwMS who report communication changes do not engage with speech–language pathology (SLP) services. This raises concerns that a large portion of communication changes associated with MS go under‐recognized and unmanaged. Little is known about what PwMS want and need to facilitate effective communication. Aim: To explore what PwMS want and need to better manage their communication changes. Methods & Procedures: Three focus groups were conducted online using Zoom, with a total of 12 PwMS. Participants were an opportunistic sample of PwMS within Australia recruited via advertisements distributed to various MS organizations and clinics. Data were transcribed verbatim and analysed using thematic content analysis to provide a qualitative analysis of the data. Outcomes & Results: Two main themes emerged: (1) accessible knowledge and a holistic approach; and (2) partnerships. Specifically, the identified wants and needs of participants included: (1) assessment; (2) information; (3) raising awareness; (4) support groups; (5) a whole‐person approach to intervention; (6) geographically and economically accessible and navigable services; (7) effective patient–physician interactions; and (8) a multidisciplinary team‐based approach (e.g., SLP, psychology, neuropsychology, occupational therapy). Conclusions & Implications: This study identified a wide range of unmet wants and needs of PwMS related to communication changes. Participants wanted improved collaborative partnerships with healthcare professionals to better manage their communication changes. For example, healthcare professionals could ask PwMS about potential communication changes, provide education and make appropriate referrals. Education and information provision could focus on communication changes in MS, factors that trigger or exacerbate communication changes, impacts, self‐management strategies, and available supports and services. Specific implications for clinical practice and future research are suggested in this paper, including ideas for patient education materials and content, suggestions for communication‐specific screening and information that could be shared in patient–physician interactions, the development of guidelines to systematically screen, assess, manage and monitor communication changes in MS, and the design of evidence‐based communication interventions for this clinical population. The results from this study can be used to guide the design of supports and services to help PwMS better manage communication changes, with the aim to reduce the negative impacts. What this paper adds: What is already known on this subject: PwMS can experience communication changes across a range of domains, including speech, voice, fluency, expressive and receptive language, and cognitive–linguistic functions. These changes can have profound and far‐reaching negative impacts on educational and vocational outcomes, social participation, relationships, psychological well‐being, and quality of life. Most PwMS who report communication changes do not engage with SLP services. There has been little research exploring what PwMS want and need to help manage their communication changes. What this paper adds to the existing knowledge: This research is the first study of its kind that sets out specifically to explore what PwMS want and need to better manage their communication changes. This study increases our understanding of, and provides valuable insights into, the specific types of supports and services PwMS desire to access, and the partnerships and kinds of interactions PwMS dream of having with healthcare professionals to manage these changes. This information can facilitate the development of future interventions to manage communication changes in MS. What are the potential or actual clinical implications of this work?: PwMS wanted healthcare professionals to ask about potential communication changes, provide education and make appropriate referrals. When providing education and information on communication changes in MS, healthcare professionals should focus on covering symptoms, triggers, impacts, self‐management strategies, and available supports and services. There is a timely need to develop guidelines and interventions to manage communication changes in MS to reduce their negative impacts. [ABSTRACT FROM AUTHOR]
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- 2022
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23. Perspectives from the patient: A content analysis of communication changes, impact, and strategies to facilitate communication in multiple sclerosis.
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El-Wahsh, Sarah, Layfield, Claire, Bogaardt, Hans, Kumfor, Fiona, and Ballard, Kirrie J.
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MULTIPLE sclerosis ,WELL-being ,SPEECH therapy ,FACILITATED communication ,CROSS-sectional method ,PATIENTS' attitudes ,COMMUNICATIVE disorders ,RISK assessment ,SURVEYS ,INTERPERSONAL relations ,DESCRIPTIVE statistics ,CONTENT analysis ,DISEASE risk factors ,DISEASE complications - Abstract
Purpose: Communication changes in multiple sclerosis (MS) are under-explored and under-recognised. Persons with MS (PwMS) are experts in their condition and play a valuable role in informing clinicians and researchers of their condition. This study aimed to investigate the perspectives of PwMS on: (1) MS-related communication changes, (2) the impact of these communication changes across key aspects of a person's life, including work/studies, relationships, and general quality of life, and (3) strategies used to facilitate communication in daily interactions. Method: Two-hundred and sixty PwMS were recruited internationally and completed an online questionnaire. Content analysis was used to analyse open-ended questionnaire responses. Result: One-hundred and ninety-seven (75.8%) participants reported communication changes, including language, cognitive, speech, voice, and fluency changes. Participants described a variety of personal and environmental factors that influence communication negatively, such as fatigue, stress, and heat. Communication changes were reported to impact on psychological wellbeing, interpersonal relationships, participation and identity in the workforce and career pathways, and tertiary studies. Around 40% of participants reported using a range of overt and covert strategies to manage communication changes. Only 11.2% (n = 22/197) of participants who reported communication changes accessed speech-language pathology (SLP) services. Conclusion: PwMS can experience a wide spectrum of communication changes. These communication changes can have a profound and far-reaching impact on psychological wellbeing and societal participation. Engagement with SLP services is limited compared to the reported prevalence of communication changes. There is a need to raise awareness of the role of SLP in service provision for PwMS to manage communication changes. This paper discusses and provides suggestions for SLP services for PwMS with communication changes. There is a timely need to develop evidence-based interventions to support PwMS manage communication changes and reduce their impact. [ABSTRACT FROM AUTHOR]
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- 2022
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24. Functional swallowing outcomes related to radiation exposure to dysphagia and aspiration‐related structures in patients with head and neck cancer undergoing definitive and postoperative intensity‐modulated radiotherapy.
- Author
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Charters, Emma, Bogaardt, Hans, Clark, Jonathan, Milross, Chris, Freeman‐Sanderson, Amy, Ballard, Kirrie, Britton, Rafe, McCabe, Natalie, Davis, Hannah, Sullivan, Tom, and Wu, Raymond
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HEAD & neck cancer ,INTENSITY modulated radiotherapy ,RADIATION exposure ,VOLUMETRIC-modulated arc therapy ,DEGLUTITION disorders ,RADIATION doses - Abstract
Background: The relationship between swallowing outcomes and radiotherapy dose to dysphagia and aspiration‐related structures (DARS) may be different following definitive versus postoperative radiotherapy (PORT) for mucosal head and neck cancer (HNC) and has not been well‐studied. Method: Patient‐ and clinician‐reported swallowing measures were prospectively collected at six time points from baseline to 24 months postradiotherapy HNC. Radiotherapy plans were retrospectively analyzed to assess dose delivered to DARS. The association between swallowing outcomes and participant demographics, tumor characteristics, and radiotherapy dose in definitive and postoperative treatment cohorts was assessed. Results: Ninety‐three participants who received radiotherapy for HNC were included in the analysis (n = 49 definitive radiotherapy for laryngeal/pharyngeal primary tumors and n = 44 postoperative PORT for predominantly oral cavity/salivary gland tumors). Participants undergoing PORT had lower doses to DARS than those undergoing definitive RT. High dose to the pharyngeal constrictors and base of tongue for definitive RT and the esophageal inlet, supraglottic larynx and cervical esophagus for the PORT group were associated with worse swallowing function. Conclusion: Radiation dose to DARS is associated with post‐treatment swallowing outcomes. These dose/outcome relationships may vary between the definitive and postoperative settings. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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25. Native language development of Dutch-English bilingual children in Australia.
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Janabi, Marrit, Duursma, Elisabeth, Bochane, Margot, Knijnik, Stefani Ribeiro, and Bogaardt, Hans
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NATIVE language ,LANGUAGE attrition ,CHILDREN'S language ,DUTCH language ,LANGUAGE maintenance - Abstract
This study aimed to track language development and possible factors of language loss in 50 primary-school-aged bilingual Dutch-English children, and it follows up a study conducted one year prior. Dutch language skills were assessed through the standardized language test CELF4-NL and language background factors were assessed through the Alberta Language Environment Questionnaire. Reading books in the native language Dutch contributed significantly to children's language development. Speaking the native language at home with both parents and siblings contributed to better Dutch language skills. Additionally, schooling outside of the home situation in the native language seems to contribute to positive language development in children after one-year follow up. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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26. Swallowing and communication outcomes following primary transoral robotic surgery.
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Charters, Emma, Wu, Raymond, Milross, Chris, Bogaardt, Hans, Freeman‐Sanderson, Amy, Ballard, Kirrie, Davies, Sarah, Oates, Justine, and Clark, Jonathan
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SURGICAL robots ,DEGLUTITION ,FUNCTIONAL assessment ,FEEDING tubes ,OROPHARYNGEAL cancer - Abstract
Background: Heterogeneity within studies examining transoral robotic surgery (TORS) for oropharyngeal cancer (OPC) has made it challenging to make clear conclusions on functional outcomes. Infrequent use of instrumental swallow examinations compounds uncertainty surrounding the proposed functional advantage to TORS. Methods: A prospective cohort of 49 patients underwent speech and swallowing assessment 12 months following treatment for OPC. Patients were assessed using fibreoptic endoscopic evaluation of swallowing (FEES), clinician‐ and patient‐reported outcomes. Participants were matched according to tumor site, T category, and age. Speech and swallowing outcomes were compared for those receiving TORS versus chemoradiation. Results: When adjuvant radiotherapy to the primary site could be avoided, TORS demonstrated an advantage for feeding tube duration, secretion severity, penetration/aspiration, M. D. Anderson Dysphagia Inventory (MDADI), and airway protection. Conclusion: This explorative study suggests that a treatment philosophy of selecting patients for TORS where adjuvant therapy can be omitted or confined to the neck warrants further evaluation. [ABSTRACT FROM AUTHOR]
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- 2021
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27. Variables Associated with Self-reported Language Impairment in Multiple Sclerosis: A Regression Analysis.
- Author
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El-Wahsh, Sarah, Heard, Rob, Bogaardt, Hans, Kumfor, Fiona, and Ballard, Kirrie J.
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MULTIPLE sclerosis ,COGNITION disorders ,EXPERIMENTAL design ,STATISTICS ,SOCIAL networks ,SELF-evaluation ,AGE distribution ,INTERNET ,SPEECH disorders ,CONTINUING education units ,REGRESSION analysis ,QUANTITATIVE research ,QUALITY of life ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,FATIGUE (Physiology) ,DATA analysis software ,STATISTICAL correlation ,DATA analysis ,LANGUAGE disorders ,VOICE disorders ,SYMPTOMS - Abstract
Background: Persons with multiple sclerosis (MS) can experience language-related symptoms such as difficulty with word finding, understanding verbal information, and structuring discourse. These symptoms have negative psychological and interpersonal consequences. Studies exploring characteristics of language impairment in MS are limited. The aim of this study was to investigate what symptom-related (eg, fatigue), demographic (eg, age), clinical (eg, MS type), social network, and quality of life (QOL) variables are associated with language impairment in MS. Methods: Participants were recruited internationally to complete an online questionnaire. A forward stepwise regression analysis was run with the dependent variable being a language impairment index from the Communication and Language Assessment questionnaire for persons with Multiple Sclerosis (CLAMS). Nineteen independent variables were entered into the regression. Results: Two hundred and two participants completed the questionnaire. The CLAMS language impairment score was significantly associated with self-reported cognitive impairment, speech and voice impairment, yes/no response to a binary question on presence of language impairment, group membership and participation, and QOL. The adjusted R² value was 0.717 (P < .001). Conclusions: Self-reported language impairment in MS is significantly associated with several symptom-related, social network, and QOL variables. These results provide an early model of language impairment in MS to guide future studies of treatment approaches and causative relationships between variables. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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28. Early fiberoptic endoscopic evaluation of swallow in transoral robotic surgery: Description of swallow function and recovery in the acute postoperative period for oropharyngeal squamous cell carcinoma.
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Charters, Emma K., Bogaardt, Hans, Freeman‐Sanderson, Amy L., Ballard, Kirrie J., Davies, Sarah, Oates, Justine, and Clark, Jonathan
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VIDEOFLUOROSCOPY ,SURGICAL robots ,SQUAMOUS cell carcinoma ,POSTOPERATIVE period ,OROPHARYNGEAL cancer ,DEGLUTITION - Abstract
Background: Transoral robotic surgery (TORS) is a minimally invasive approach for the treatment of oropharyngeal cancer. The effects on swallowing and speech need to be comprehensively evaluated to understand the associated morbidity. Methods: A prospective cohort of 21 patients was recruited to undergo pre‐TORS and post‐TORS swallowing and communication assessment. Fiberoptic endoscopic evaluation of swallowing (FEES) was used in the first postoperative week. Results: Sixteen participants (76.2%) had penetration‐aspiration scores ≥3 or higher, seven (33.3%) aspirated on thin liquids, three (14.3%) did so silently. Prolonged recovery trajectory occurred for the majority of the cohort, particularly if TORS was followed by adjuvant radiotherapy. Swallowing and communication scores were significantly worse in base of tongue primary tumors and with advanced age. Conclusion: Early FEES demonstrates a significant decline in swallowing function, including increased secretion load, pharyngeal residue, laryngeal penetration, and aspiration. Silent aspiration occurred in 14% and thus highlights the necessity for instrumental assessment to ascertain aspiration risk. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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29. Assessment, Diagnosis, and Treatment of Dysphagia in Patients Infected With SARS-CoV-2: A Review of the Literature and International Guidelines.
- Author
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Vergara, José, Skoretz, Stacey A., Brodsky, Martin B., Miles, Anna, Langmore, Susan E., Wallace, Sarah, Seedat, Jaishika, Starmer, Heather M., Bolton, Lee, Clavé, Pere, Vaz Freitas, Susana, Bogaardt, Hans, Matsuo, Koichiro, Madeira de Souza, Cinthia, and Figueiredo Mourão, Lucia
- Subjects
CORONAVIRUS diseases ,DEGLUTITION disorders ,MEDLINE ,ONLINE information services ,SYSTEMATIC reviews ,DISEASE management ,DESCRIPTIVE statistics - Abstract
Purpose: Speech-language pathologists are playing a crucial role in the assessment and management of patients infected with severe acute respiratory syndrome coronavirus 2. Our goal was to synthesize peer-reviewed literature and association guidelines from around the world regarding dysphagia assessment and management for this specific population. Method: A review of publications available in the PubMed database and official guidelines of international groups was performed on May 23, 2020. The information was synthesized and categorized into three content areas for swallowing: clinical evaluation, instrumental assessment, and rehabilitation. Results: Five publications were identified in the PubMed database. Following title, abstract, and full-text review, only three publications met inclusion criteria: two reviews and one narrative report. Additionally, 19 international guidelines were reviewed. To assess swallowing, a modified clinical evaluation was recommended and only following a risk assessment. Instrumental assessments were often considered aerosol generating, especially transnasal procedures such as endoscopy and manometry. For this reason, many associations recommended that these examinations be performed only when essential and with appropriate personal protective equipment. Guidelines recommended that intervention should focus on compensatory strategies, including bolus modification, maneuvers/postural changes, and therapeutic exercises that can be conducted with physical distancing. Respiratory training devices were not recommended during rehabilitation. Conclusions: International associations have provided extensive guidance regarding the level of risk related to the management of dysphagia in this population. To date, there are no scientific papers offering disease and /or recovery profiling for patients with dysphagia and coronavirus disease 2019. As a result, research in this area is urgently needed. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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30. Oropharyngeal dysphagia and laryngeal dysfunction after lung and heart transplantation: A systematic review.
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Black, Rebecca, McCabe, Patricia, Glanville, Allan, Bogaardt, Hans, MacDonald, Peter, and Madill, Catherine
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SURGICAL complication risk factors ,CINAHL database ,DEGLUTITION disorders ,HEART transplantation ,LARYNGEAL diseases ,LUNG transplantation ,MEDLINE ,TRANSPLANTATION of organs, tissues, etc. ,SYSTEMATIC reviews - Abstract
Purpose: Oropharyngeal dysphagia and laryngeal dysfunction are known to impact on health outcomes of patients with critical illness. The incidence in patients after heart and/or lung transplantation is unknown. This paper investigates the frequency, characteristics and risk factors for these complications following such transplantation. Method: Eight databases were systematically searched. Inclusion criteria were (a) adults who underwent heart and/or lung transplantation as their primary surgery, (b) new onset of oropharyngeal dysphagia and/or laryngeal dysfunction and dysphonia identified in the acute hospital phase (c) original studies (d) in English. Results: Two thousand six hundred and sixteen articles were identified. Five met the inclusion criteria. Studies were few and heterogeneous in design and sample size, therefore meta–analysis was not performed. All included studies were of relatively low quality. However, rates of oropharyngeal dysphagia up to 70.5% were reported, with 25% of these patients presenting with vocal cord palsy. Conclusions: Limited conclusions can be drawn from the available evidence regarding the frequency, characteristics and risk factors for the development of oropharyngeal dysphagia and/or laryngeal dysfunction after heart and/or lung transplantation due to limited evidence and low quality of the included studies. This highlights the need for high quality studies in this population. Oropharyngeal dysphagia and dysphonia are known to impact on mortality and quality of life There is a paucity of literature describing these complications after lung and/or heart transplantation, however the data available indicates high rates of swallowing and voice disorders in this immunosuppressed population Early identification and management of oropharyngeal dysphagia and dysphonia is vital to aid rehabilitation and improve mortality and quality of life in patients following lung and/or heart transplantation [ABSTRACT FROM AUTHOR]
- Published
- 2020
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31. Development and validation of a speech pathology-specific questionnaire for persons with multiple sclerosis (SMS).
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El-Wahsh, Sarah, Heard, Robert, and Bogaardt, Hans
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CHI-squared test ,DEGLUTITION ,EXPERIMENTAL design ,FACTOR analysis ,INTERNET ,LANGUAGE & languages ,RESEARCH methodology ,MULTIPLE sclerosis ,NONPARAMETRIC statistics ,HEALTH outcome assessment ,PSYCHOMETRICS ,QUESTIONNAIRES ,RESEARCH evaluation ,SPEECH ,STATISTICS ,HUMAN voice ,DATA analysis ,LITERATURE reviews ,STATISTICAL reliability ,RESEARCH methodology evaluation ,DATA analysis software ,DESCRIPTIVE statistics ,INTRACLASS correlation - Abstract
Purpose: The aim of this study was to develop and validate the Speech pathology-specific questionnaire for persons with Multiple Sclerosis (SMS). Method: Forty-one items were generated through a literature review. Items were submitted to a preliminary psychometric validation process consisting of principal component analysis, internal consistency, test-retest reliability, and floor and ceiling effects using data from 164 participants. Criterion validity was assessed by comparing the SMS with the 12-item Short Form Health Survey (SF-12). Participants were recruited internationally through online channels and questionnaires were completed online. Result: The SMS contains 16 items describing three components: speech and voice, language, and swallowing. Internal consistency (Cronbach's alpha) of the three components was satisfactory (α = 0.89–α = 0.91). Criterion validity was evaluated using Spearman's rank correlation coefficient (ρ). A statistically significant weak to moderate correlation between the SMS and the SF-12 was identified (ρ = –0.004–ρ = –0.359). No floor or ceiling effects were present. The SMS demonstrated strong test-retest reliability. All items had an intra-class correlation coefficient ≥0.70. Conclusion: The SMS is a psychometrically robust patient-reported outcome measure to assess speech-language pathology symptoms in persons with MS. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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32. Clinical predictors for oropharyngeal dysphagia and laryngeal dysfunction after lung and heart transplantation.
- Author
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Black, Rebecca J., Bogaardt, Hans, McCabe, Patricia, Glanville, Allan R., MacDonald, Peter, and Madill, Catherine
- Subjects
- *
DEGLUTITION disorders , *HEART transplantation , *LENGTH of stay in hospitals , *INTENSIVE care units , *LARYNX , *LUNG transplantation , *MEDICAL referrals , *NONPARAMETRIC statistics , *QUESTIONNAIRES , *RESEARCH funding , *STATISTICAL sampling , *SURGICAL complications , *TRACHEA intubation , *LOGISTIC regression analysis , *CROSS-sectional method , *RETROSPECTIVE studies , *DATA analysis software , *DESCRIPTIVE statistics , *ODDS ratio , *MANN Whitney U Test , *DISEASE risk factors - Abstract
Background: Oropharyngeal dysphagia and laryngeal dysfunction are two lesser known complications after lung and heart transplantation. The presence of these features places this immunocompromised population at high risk of pulmonary complications and subsequent medical deterioration. Early identification of swallowing and voice dysfunction would be beneficial to optimize management. Aims: To examine the association between patient risk factors and postoperative outcomes with referral to speech pathology (SP) following signs of swallowing and voice dysfunction. Methods & Procedures: A retrospective review was conducted on demographic data, patient risk factors and postoperative course in 284 patients following lung and/or heart transplantation between 2010 and 2013. Variables were analysed for any association between pre‐ and postoperative factors and SP referral. Outcomes & Results: A total of 24% were referred to SP with a mean age of 47 years. Binary logistic regression identified a statistically significant association between the number of intubations (odds ratio (OR) = 2.066, p = 0.028), intubation duration (OR = 1.004, p < 0.01), length of stay in the intensive care unit (ICU) (OR = 1.068, p < 0.01), and number of ICU admissions (OR = 1.384, p = 0.046) and SP referral. Intubation time and the total days in ICU were greater for patients referred to SP. Mortality also increased for these variables and for the numbers of reintubations and readmissions. Analysis of pre‐operative risk factors revealed cerebrovascular disease to be a significant predictor of SP referral (OR = 6.747, p = 0.032). Conclusions & Implications: This study demonstrates significant clinical indicators for referral to SP for the management of oropharyngeal dysphagia and laryngeal dysfunction in patients after lung or heart transplantation. Further studies are needed to investigate the most efficacious intervention approaches to manage swallowing and voice dysfunction in these patients. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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33. Evidence-based practice self-efficacy of undergraduate speech pathology students following training.
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Doble, Maree, Short, Kate, Murray, Elizabeth, Bogaardt, Hans, and McCabe, Patricia
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CLINICAL competence ,STATISTICAL correlation ,CURRICULUM ,FISHER exact test ,HEALTH occupations students ,INFORMATION storage & retrieval systems ,MEDICAL databases ,INTERNSHIP programs ,PHYSICAL therapy ,SCALE analysis (Psychology) ,SELF-efficacy ,SPEECH therapists ,STUDENT attitudes ,TIME ,EVIDENCE-based medicine ,PROFESSIONAL practice ,EFFECT sizes (Statistics) ,UNDERGRADUATES ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
Aim: The aims of this study were to determine the self-efficacy of speech pathology students in conducting evidence-based practice before and after a comprehensive evidence-based practice course, and the impact of timing of the course (Semester 1/2). Method: Students attended a 13-week course in their final year of study. The evidence-based practice confidence scale (EPIC) was used to measure the students' self-efficacy pre- and post-training. Results: Ninety-two percent of students enrolled over six semesters participated. Students began the evidence-based practice course with high confidence in asking patients their preferences but low confidence in interpreting and analysing statistics. A significant improvement in confidence in all evidence-based practice areas was found, with greatest improvement occurring in the critical appraisal of research. Overall, the teaching had greatest effect on a group of skills for finding valid EBP information. There were significant differences between semester one and two students in only 18% of responses. Semester two students were more confident in half of these responses. Conclusions: An evidence-based practice course made a significant difference to student self-efficacy across all aspects, with few differences related to timing of the course. Implications are discussed. Health professionals must be confident implementing evidence-based practice throughout the course of their careers, as best practice changes over time. A capstone unit of study/course for undergraduate speech pathology students significantly improved their self-efficacy in implementing evidence-based practice. This has positive implications for evidence-based practice across a wide range of clinical settings including rehabilitation and disability as the graduate entry level students enter the workforce. For on-going success, graduate entry level students must continue to implement evidence-based practice as clinicians if they are to maintain their confidence and further develop their skill set. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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34. Systematic review and meta‐analysis of the impact of dosimetry to dysphagia and aspiration related structures.
- Author
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Charters, Emma Kristen, Bogaardt, Hans, Ballard, Kirrie J., and Freeman‐Sanderson, Amy L.
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META-analysis ,RADIATION dosimetry ,HEAD & neck cancer ,RADIATION doses ,RESPIRATORY aspiration - Abstract
Background: Technological advances in radiotherapy have allowed investigations into new methods to spare healthy tissue in those treated for head and neck cancer. This systematic review with meta‐analysis demonstrates the effect that radiation has on swallowing. Methods: Selection and analysis of studies examining the effect of radiation to swallowing structures. A fixed effects meta‐analysis calculated the pooled proportions for select outcomes of dysphagia, common across many studies. Results: The majority of the papers found a correlation between radiation dose to the swallowing structures and dysphagia, however a meta‐analysis found the studies carried a significant degree of heterogeneity. The appraisal demonstrates the need for large‐scale studies using a randomized design and instrumental dysphagia assessments. Conclusions: Radiation dose to dysphagia and aspiration structures is correlated with incidence of dysphagia and aspiration. The variables in this population contribute to the heterogeneity within and cross studies and future studies should consider controlling for this. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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35. Dysphagia in Multiple Sclerosis: Evaluation and Validation of the DYMUS Questionnaire.
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Alali, Dalal, Ballard, Kirrie, Vucic, Steve, and Bogaardt, Hans
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DEGLUTITION disorders ,MULTIPLE sclerosis ,PSYCHOMETRICS ,QUALITY of life ,QUESTIONNAIRES ,RESEARCH evaluation ,DISEASE complications - Abstract
Objective: The 10-item Dysphagia in Multiple Sclerosis (DYMUS) questionnaire is a self-administered tool used to identify swallowing problems in adults with MS. The questionnaire was not validated against other existing questionnaires to assess its convergent validity. Moreover, its test-retest reliability was not measured previously. Therefore, the purpose of this study was to assess the factor analysis, internal consistency and test-retest reliability of the DYMUS, as well as its convergent validity against an established and validated questionnaire, the EAT-10.Method: English-speaking adults with MS in New South Wales, Australia who were seen for routine medical check-ups were invited to complete two questionnaires across two phases. One hundred participants completed phase 1, while 55 completed phase 2. Statistical analyses were performed to investigate the psychometric properties of the DYMUS questionnaire.Results: Internal consistency (Cronbach's Alpha) reduced the DYMUS questionnaire from ten to five items. The shortened version of the DYMUS showed high internal consistency (alpha = 0.904). It also showed satisfactory reproducibility, and adequate correlation with the 10-item Eating Assessment Tool (EAT-10).Conclusion: Evaluation of the DYMUS resulted in a shortened version of the questionnaire with five questions related to dysphagia. This shortened version is considered an easy and useful tool in identifying patients with MS-related dysphagia. [ABSTRACT FROM AUTHOR]- Published
- 2018
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36. Getting comfortable with “comfort feeding”: An exploration of legal and ethical aspects of the Australian speech-language pathologist’s role in palliative dysphagia care.
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Kelly, Katherine, Cumming, Steven, Kenny, Belinda, Smith-Merry, Jennifer, and Bogaardt, Hans
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PALLIATIVE treatment ,DEGLUTITION disorders ,SPEECH therapists ,OCCUPATIONAL roles ,PATIENT-centered care ,ETHICS ,THERAPEUTICS - Abstract
Purpose: With an ageing population, speech-language pathologists (SLPs) can expect to encounter legal and ethical challenges associated with palliative and end-of-life care more frequently. An awareness of the medico-legal and ethical framework for palliative dysphagia management will better equip SLPs to work effectively in this area. Method: This narrative review examines a range of legislation, legal, ethical and SLP literature that is currently available to orient SLPs to legal and ethical palliative dysphagia management in the Australian context. Result: Relevant legal and ethical considerations in palliative and end-of-life care are described. Conclusion: SLPs have a role in palliative dysphagia management, however, this can involve unique legal and ethical challenges. The legal position on provision and cessation of nutrition and hydration differs between Australian States and Territories. Decisions by the courts have established a body of relevant case law. This article introduces SLPs to some of the important considerations for legal and ethical palliative care, but is not intended to be directive. SLPs are encouraged to explore their local options for ethical and medico-legal guidance. It is hoped that increasing SLPs awareness of many of the concepts discussed in this article enhances the provision of high-quality patient-centred care. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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37. EFFECTS OF TELEHEALTH BY ALLIED HEALTH PROFESSIONALS AND NURSES IN RURAL AND REMOTE AREAS: A SYSTEMATIC REVIEW AND META-ANALYSIS.
- Author
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SPEYER, Renée, DENMAN, Deborah, WILKES-GILLAN, Sarah, Yu-Wei CHEN, BOGAARDT, Hans, Jae-Hyun KIM, HECKATHORN, Dani-Ella, and CORDIER, Reinie
- Published
- 2018
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38. Cognitive impairment, fatigue and depression in multiple sclerosis: Is there a difference between benign and non-benign MS?
- Author
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Bogaardt, Hans, Golan, Daniel, Barrera, Marissa A, Attrill, Stacie, Kaczmarek, Olivia, Zarif, Myassar, Bumstead, Barbara, Buhse, Marijean, Wilken, Jeffrey, Doniger, Glen M, Hancock, Laura M, Penner, Iris-Katharina, Halper, June, Morrow, Sarah A, Covey, Thomas J, and Gudesblatt, Mark
- Abstract
• Benign MS (BMS) is a subgroup of MS where PwMS experience minimal physical disability. • There has always been debate about whether BMS really exists. • In a group of 141 PwBMS, 38% of persons were found to have cognitive impairment. • Fatigue (78%) and depression (55%) were also common findings. • This data questions the further use of the term 'benign MS'. Multiple Sclerosis (MS) is a chronic inflammatory and degenerative disease of the central nervous system (CNS). The severity of disability in people with MS (PwMS) is generally measured with the Expanded Disability Status Scale (EDSS). A variant of MS known as 'benign MS' (BMS) has been defined as an EDSS score of 3 or lower, combined with a disease duration of 10 years or longer; however, there is disagreement in the field about whether BMS really exists. Given that the EDSS does not capture cognitive issues, communication dysfunction, fatigue, depression, or anxiety properly, its ability to accurately represent disability in all PwMS, including BMS, remains questionable. In this study, 141 persons with BMS (PwBMS) were included, consisting of 115 females (82%) and 26 males (18%) with a mean age of 50.8 (±8.68). A computerized test battery (NeuroTrax®) was used to assess cognition, covering seven cognitive domains (memory, executive function, visual-spatial processing, verbal function, attention, information processing, and motor skills). Fatigue was measured using the Fatigue Severity Scale (FSS). The Beck Depression Inventory (BDI) was used to assess symptoms of depression. Cognitive impairment was defined for this study as when someone has a score lower than 85 in at least two subdomains of the cognitive test battery. Rates of impairment were compared to 158 persons with non-benign MS (PwNBMS; with a disease duration of 10 years and longer and an EDSS score higher than 3) and 487 PwMS with a disease duration of fewer than 10 years. Cognitive impairment was found in 38% of PwBMS and in 66% of PwNBMS (p <0.001). In PwBMS, the lowest rate of impairment was found in the verbal function domain (18%) and the highest rate of impairment in the domain of information processing (32%). Fatigue and depression were found in 78% and 55% of all PwBMS, with no difference in these rates between PwBMS and PwNBMS (p = 0.787 and p = 0.316 resp.) Cognitive impairment, fatigue and depression are common among people with an EDSS-based definition of benign MS. These aspects should be incorporated into a new and better definition of truly benign MS [ABSTRACT FROM AUTHOR]
- Published
- 2023
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39. Cognitive impairment in people with multiple sclerosis: Perception vs. performance – factors that drive perception of impairment differ for patients and clinicians.
- Author
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Jackson, Daija A., Nicholson, Rachel, Bergmann, Catherine, Wilken, Jeffrey, Kaczmarek, Olivia, Bumstead, Barbara, Buhse, Marijean, Zarif, Myassar, Penner, Iris-Katharina, Hancock, Laura M., Golan, Daniel, Doniger, Glen M., Bogaardt, Hans, Barrera, Marissa, Covey, Thomas J., and Gudesblatt, Mark
- Abstract
Neurologists' perceptions of the presence of cognitive impairment (CI) in people with multiple sclerosis (PwMS) may not always align with findings of objective cognitive assessment. The accuracy of self-reported CI in PwMS can also be highly variable across individuals, and may not align with objective measurement of cognitive disturbances. Research suggests that additional factors impact perceived cognitive ability, such as depression and fatigue. Objective cognitive screening regardless of patient or neurologist perception has been recommended but still is often limited in routine care. Moreover, comprehensive neuropsychological assessment is even less routinely done. To explore how neurologists' perceptions of PwMS' CI compare to the perception of the patient by determining whether PwMS and their clinicians are accurate in detecting the presence and degree of CI as defined by a multi-domain validated computerized test battery in PwMS, as well as investigate what factors influence perception of CI in each group. PwMS completed a computerized multi-domain cognitive testing battery, and self-reported measures of disease impact (MSIS-29), fatigue (MFIS), and depression (BDI-II). Disability was assessed by the clinician using the Expanded Disability Status Scale (EDSS). Clinicians and patients also provided an estimation of cognitive deficits along a Likert scale. In this cohort of PwMS (N=202, age range: 20 to 88, gender: 71% female), their level of accuracy in detecting attention deficits (k = -.028, p =.010) was low but statistically significant. In contrast, clinicians' accuracy in detecting global CI (k = -.037, p <.001) and a number of specific domain deficits was moderate. Fatigue (p <.001) and cognitive performance (p =.012) significantly predicted patient perceived cognitive deficits. Clinician perceived cognitive performance was significantly predicted by multiple factors: cognitive scores (p <.001), physical disability (p =.011), age (p =.021), and depression (p =.038). The need to objectively screen for CI in PwMS, regardless of perception, can be aided by a better understanding of the agreement and discrepancies between the patient and clinician regarding perceived cognitive disturbances and the presence of CI defined by a multi-dimensional objective screening battery. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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40. The role of speech-language pathologists in palliative care: Where are we now? A review of the literature.
- Author
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Kelly, Katherine, Cumming, Steven, Corry, Anna, Gilsenan, Kerry, Tamone, Claire, Vella, Kylie, and Bogaardt, Hans
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RESEARCH evaluation ,CINAHL database ,COMMUNICATION ,DEGLUTITION disorders ,MEDICAL information storage & retrieval systems ,MEDLINE ,PALLIATIVE treatment ,SPEECH therapy ,SYSTEMATIC reviews ,OCCUPATIONAL roles ,THEMATIC analysis - Abstract
Introduction: Dysphagia and communication changes are common in life-limiting conditions and Speech-Language Pathology (SLP) involvement to facilitate effective communication, eating and drinking contributes to the goals of comprehensive palliative care. Aim: To examine the existing literature around the role of SLPs in palliative care to define the best practice role for SLPs in this area, identify current services and interventions provided by SLPs to patients with life-limiting conditions, assess for potential gaps between best practice in the literature and everyday SLP practice and opportunities for improvement. Methods: The methods used were electronic literature searches within MEDLINE, EMBASE and CINAHL, and manual searching. Papers were classified according to type. Meta-analysis was not appropriate due to the nature of the papers, and so a narrative exploration of themes was conducted. Results: Thirty-two papers were included (eight research, twenty-four non-research). Discussion: Specific roles for SLPs in dysphagia, communication, and holistic professional practice were identified. There is insufficient research to determine whether this is reflected in everyday SLP practice. Potential challenges to providing services include the impact of working with people who are dying, limited professional preparation, ongoing education constraints, and legal and ethical considerations. Further research into SLP activities with patients with life-limiting conditions is required to explore the valuable contributions already being made by SLPs to the care of patients with life-limiting illnesses and to identify opportunities to develop and improve evidence-based services in this area. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
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41. Treatment Effects for Dysphagia in Adults with Multiple Sclerosis: A Systematic Review.
- Author
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Alali, Dalal, Ballard, Kirrie, and Bogaardt, Hans
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BOTULINUM toxin ,THERAPEUTICS ,DEGLUTITION ,DEGLUTITION disorders ,ELECTROTHERAPEUTICS ,MULTIPLE sclerosis ,SYSTEMATIC reviews ,TREATMENT effectiveness ,DISEASE complications - Abstract
Dysphagia or swallowing difficulties have been reported to be a concern in adults with multiple sclerosis (MS). This problem can result in several complications including aspiration pneumonia, reduced quality of life and an increase in mortality rate. No previous systematic reviews on treatment effects for dysphagia in MS have been published. The main objective of this study is to summarise and qualitatively analyse published studies on treatment effects for dysphagia in MS. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines were applied to conduct a systematic search of seven databases, using relevant key words, and subsequent analysis of the identified studies. The studies were required to meet all three inclusion criteria of including a statement on intention to treat, or measure the effects of treatment for dysphagia in adults with MS and data on treatment outcomes for at least one adult diagnosed with MS. Retained studies were evaluated by two independent reviewers using a critical appraisal tool. This study has not been registered. A total of 563 studies were identified from the database searches. After screening and assessment of full articles for eligibility, five studies were included in the review. Three examined electrical stimulation and two examined the use of botulinum toxin. One study testing electrical stimulation was a randomised controlled trial, two were well-designed case series and two were case series lacking experimental control. All studies reported some positive effects on dysphagia; however, treatments that involved the use of electrical stimulation showed larger effect sizes. There is a paucity of evidence to guide treatment of dysphagia in MS, with only electrical stimulation and botulinum toxin treatment represented in the literature search conducted here. While both treatments show initial promise for reducing the swallowing impairment, they require further research using well-controlled experimental designs to determine their clinical applicability and long-term treatment effects for dysphagia across different types and severity of MS. [ABSTRACT FROM AUTHOR]
- Published
- 2016
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42. Pulmonary Rehabilitation After Total Laryngectomy.
- Author
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Parrilla, Claudio, Minni, Antonio, Bogaardt, Hans, Macri, Gian Franco, Battista, Mariapina, Roukos, Raymond, Pandolfini, Manlio, Ruoppolo, Giovanni, Paludetti, Gaetano, D’Alatri, Lucia, and de Vincentiis, Marco
- Subjects
ANALYSIS of variance ,CLINICAL trials ,COST effectiveness ,LARYNGECTOMY ,LUNG diseases ,MEDICAL cooperation ,MEDICAL rehabilitation ,PATIENT satisfaction ,QUALITY of life ,QUESTIONNAIRES ,RESEARCH ,STATISTICS ,T-test (Statistics) ,TRACHEOTOMY equipment ,DATA analysis ,EQUIPMENT & supplies ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
Background:Both the immediate beneficial physiological changes in a laboratory setting and the long-term clinical outcomes of heat and moisture exchanger (HME) use are well described. So far, there has not been any research published that provides detailed insight in the pattern of changes in both respiratory function and patients’ experiences with HMEs in the first weeks of use.Methods:A multicenter time-series study design with a 2-week double baseline period. All patients used the XtraHME for 12 weeks afterward. Data were collected 2 weeks, 6 weeks, and 12 weeks after the start of HME use.Results:Data of 30 patients were analyzed. Pulmonary symptoms decreased significantly during the 12 weeks of HME use. After 2 weeks, a significant decrease in daily coughs and daily forced expectorations was seen. The general quality of life showed a significant increase throughout the study. More general physical complaints also significantly decreased with HME use. Patient satisfaction with the HME was high.Conclusions:This study shows that there is a significant influence of the XtraHME on pulmonary status that can already be observed after 2 weeks of using the XtraHME and continues to improve further after 6 weeks of XtraHME use. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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43. Long-Term Use of Heat and Moisture Exchangers Among Laryngectomees: Medical, Social, and Psychological Patterns.
- Author
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Brook, Itzhak, Bogaardt, Hans, and van As-Brooks, Corina
- Subjects
- *
EVALUATION of medical care , *THERMOTHERAPY , *CHI-squared test , *STATISTICAL correlation , *FISHER exact test , *HUMIDITY , *LARYNGECTOMY , *MATHEMATICAL statistics , *NONPARAMETRIC statistics , *OSTOMATES , *PATIENT compliance , *POSTOPERATIVE care , *QUESTIONNAIRES , *STATISTICAL sampling , *STATISTICS , *U-statistics , *DATA analysis , *PARAMETERS (Statistics) , *DATA analysis software , *STATISTICAL models , *DESCRIPTIVE statistics - Abstract
Objectives: After laryngectomy, pulmonary protection is mostly acquired by means of a heat and moisture exchanger (HME) that is placed on an airtight seal around the stoma. The effects of HMEs on the tracheal climate have been well described, and the filtration effect of an HME with an electrostatic filter has been described in vitro. The effects of HME use in patients have been documented in several trials in different countries. The follow-up time of the patients in these trials, however, is limited. Less is known about long-term use of HMEs, and studies describing long-term compliance with HME use are scarce. This study investigated the long-term use of HMEs in laryngectomees. Methods: Questionnaires were sent to 195 laryngectomees, and 75 questionnaires were returned. Results: More than 85% of the respondents used an HME, of whom 77% were compliant users (ie, use for more than 20 hours per day). The incidence of pulmonary illnesses (either before or after surgery) was about 25%. More than 90% of the respondents were heavy smokers before laryngectomy. One third of the respondents are regularly exposed to dusty environments. Compliant HME users tend to make less use of external humidifiers and vaporizers, and have better pulmonary status and lower health-care costs. Regarding quality of life, patients who use a FreeHands device tended to have more frequent social contacts (r = 0.251; p = 0.030). The prevalence of depression is high, pointing to an urgent need to recognize and treat psychiatric problems such as depression and suicidal ideation in this patient group. Conclusions: These findings have implications for any postlaryngectomy research that uses pulmonary parameters. [ABSTRACT FROM AUTHOR]
- Published
- 2013
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44. Use of Neuromuscular Electrostimulation in the Treatment of Dysphagia in Patients With Multiple Sclerosis.
- Author
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Bogaardt, Hans, van Dam, Danielle, Wever, Nienke M., Bruggeman, Caroline E., Koops, Johan, and Fokkens, Wytske J.
- Subjects
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DEGLUTITION disorders , *MULTIPLE sclerosis , *DEMYELINATION , *MYELIN sheath diseases , *ENDOSCOPY , *PATIENTS - Abstract
Objectives: We explored the possible effects of neuromuscular electrostimulation on the swallowing function of patients with multiple sclerosis and swallowing problems. Methods: Twenty-five patients (average age, 53,1 years; SD, 9,8 years) with multiple sclerosis and swallowing problems were treated for 3 weeks with 2 sessions per week of neuromuscular electrostimulation. The average time since the onset of multiple sclerosis was 16.5 years (SD, 10.2 years). Seventeen patients were examined with transnasal flexible endoscopy I week before treatment and 1 week after treatment. Results: After treatment, a significant decrease in pooling of saliva in the pyriform sinuses was seen in 6 patients (p = 0.03), and significantly less aspiration during swallowing of thin liquids (p < 0.01) was seen in 9 patients. Overall, the 25 patients reported that their swallowing had improved (p < 0.01), and in 20% of the patients, it had become less strenuous. No adverse effects of the treatment were reported. Conclusions: Our study showed that the treatment of swallowing problems with neuromuscular electrostimulation in patients with multiple sclerosis in this sample was successful in the reduction of pooling of saliva and in the reduction of aspiration. [ABSTRACT FROM AUTHOR]
- Published
- 2009
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- View/download PDF
45. Prevalence of self-reported language impairment in multiple sclerosis and the association with health-related quality of life: An international survey study.
- Author
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El-Wahsh, Sarah, Ballard, Kirrie, Kumfor, Fiona, and Bogaardt, Hans
- Abstract
• 75% of persons with MS self-reported a language impairment. • Language impairment in MS can affect both expressive and receptive language. • Language impairment in MS is associated with lower health-related quality of life. • Language impairment in MS is associated with lower employment rates. • Persons with MS with self-reported language impairment should be referred to a speech pathologist for further evaluation. Language impairment has only recently begun to be considered a clinical manifestation of MS. A decline in language abilities can lead to restricted participation in everyday activities that require communication, including vocational, social, and educational contexts. The objectives of this study were to identify the prevalence and nature of self-reported language impairment in MS using a validated MS-specific patient-reported outcome measure and to determine the association with health-related quality of life (HRQoL) and demographic and clinical variables. In this cross-sectional study, 160 persons with MS completed the language items of the Speech pathology-specific questionnaire for persons with MS (SMS) to assess language and the 12-Item Short Form Survey (SF-12) to assess HRQoL. Participants were recruited internationally through professional MS bodies and support groups and completed all questionnaires online. 75% of persons with MS in this sample self-reported a language impairment. Of the total sample, 65.7% reported difficulty with word retrieval, 53.8% reported difficulty with expressive language, 49.4% reported difficulty with confrontational naming, and 40.6% reported difficulty with receptive language in spoken discourse. Statistical analyses revealed that age, sex, educational status, country of residence, disease duration, age at time of diagnosis, MS subtype, and medication management, were not associated with the prevalence of self-reported language impairment. Participants with self-reported language impairment had lower HRQoL than those without language impairment, scoring lower on both the SF-12 mental and physical component summary scores, with medium to large effect sizes (Cohen's d = 0.66 – 0.83). Participants with self-reported language impairment had higher rates of unemployment than those without language impairment (χ
2 = 18.2; p < 0.001). Language can be compromised in persons with MS regardless of clinical and demographic characteristics and is associated with lower HRQoL. These findings indicate that frontline healthcare providers need to be aware of potential language impairment in MS and should make timely referrals to speech pathologists for further evaluation and support. Further research is needed to investigate the underlying neural mechanisms of language impairment in MS. In future, this will help guide the design of evidence-based intervention for these symptoms. [ABSTRACT FROM AUTHOR]- Published
- 2020
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46. Vocal efficiency in tracheoesophageal phonation
- Author
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Grolman, Wilko, Eerenstein, Simone E.J., Tange, Rinze A., Canu, Gabriella, Bogaardt, Hans, Dijkhuis, Job P., Dreschler, Wouter A., and Schouwenburg, Paul F.
- Subjects
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PATIENTS , *ARTIFICIAL implants , *PLASTIC surgery , *BIOMEDICAL materials - Abstract
Abstract: Objective: Voice rehabilitation after total laryngectomy is challenging. In order to investigate and understand the function of the neoglottis sophisticated measurements need to be made. During voice production, aerodynamic energy is transformed into sound energy. In non-laryngectomized patients, the voice production efficiency is called the vocal efficiency. Vocal efficiency is an indication of how efficient the transformation of energy takes place. Vocal efficiency is calculated by dividing the output sound power by the aerodynamic power. Patients and methods: In a group of eight laryngectomees with tracheoesophageal voice, we measured aerodynamic and acoustic quantities and calculated vocal efficiency. We used a computer setup with airflow transducers, pressure transducers, mikrotip transducers and sound intensity measurement to allow calculation of the needed parameters. Results: The tables show the results of the power used and produced in various phonatory tasks. Relatively high levels of aerodynamic power are interpreted as increased effort to speak. Conclusion: The aerodynamic power is an indication of the effort needed for voice generation. The efficiency of TE-voice production is lower compared to laryngeal voice production but does show an increase when sound intensity increases, a known phenomenon in healthy laryngeal voice production. [Copyright &y& Elsevier]
- Published
- 2008
- Full Text
- View/download PDF
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