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1. National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project

Author

Bausewein, C., Hodiamont, F., Berges, N., Ullrich, A., Gerlach, C., Oechsle, K., Pauli, B., Weber, J., Stiel, S., Schneider, N., Krumm, N., Rolke, R., Gebel, C., Jansky, M., Nauck, F., Wedding, U., van Oorschot, B., Roch, C., Werner, L., Fischer, M., Schallenburger, M., Reuters, M. C., Schwartz, J., Neukirchen, M., Gülay, A., Maus, K., Jaspers, B., Radbruch, L., Heckel, M., Klinger, I., Ostgathe, C., Kriesen, U., Junghanß, C., Lehmann, E., Gesell, D., Gauder, S., Boehlke, C., Becker, G., Pralong, A., Strupp, J., Leisse, C., Schloesser, K., Voltz, R., Jung, N., and Simon, S. T.

Published
2022
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2. Caring for seriously ill and dying patients in pandemic times – a national strategy

Author

Pauli, B, Schlösser, K, Pralong, A, Strupp, J, Bausewein, C, Hodiamont, F, Berges, N, Ullrich, A, Gerlach, C, Oechsle, K, Weber, JP, Stiel, S, Schneider, N, Krumm, N, Rolke, R, Gebel, C, Wedding, U, Jansky, M, Nauck, F, van Oorschot, B, Roch, C, Werner, L, Fischer, M, Schallenburger, M, Reuters, MC, Schwartz, J, Neukirchen, M, Ates, G, Maus, K, Jaspers, B, Radbruch, L, Heckel, M, Klinger, I, Ostgathe, C, Kriesen, U, Junghanß, C, Lehmann, E, Gesell, D, Gauder, S, Meesters, S, Böhlke, C, Becker, G, Leisse, C, Jung, N, Voltz, R, and Simon, ST

Subjects
ddc: 610, Medicine and health
Abstract

Background and status of (inter)national research: During the beginning of the SARS-CoV2 pandemic, medical care focused on providing intensive care beds and ventilation capacities for acutely ill SARS-CoV2 patients. More than 124 000 (03/2022) people died in Germany because of or with COVID-19 [for full text, please go to the a.m. URL]

Published
2022
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3. Additional file 15 of National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project

Author

Bausewein, C., Hodiamont, F., Berges, N., Ullrich, A., Gerlach, C., Oechsle, K., Pauli, B., Weber, J., Stiel, S., Schneider, N., Krumm, N., Rolke, R., Gebel, C., Jansky, M., Nauck, F., Wedding, U., van Oorschot, B., Roch, C., Werner, L., Fischer, M., Schallenburger, M., Reuters, M. C., Schwartz, J., Neukirchen, M., G��lay, A., Maus, K., Jaspers, B., Radbruch, L., Heckel, M., Klinger, I., Ostgathe, C., Kriesen, U., Junghan��, C., Lehmann, E., Gesell, D., Gauder, S., Boehlke, C., Becker, G., Pralong, A., Strupp, J., Leisse, C., Schloesser, K., Voltz, R., Jung, N., and Simon, S. T.

Subjects
Data_FILES
Abstract

Additional file 15: Supplementary file WP6. Interview guide Pandemic Teams.

Published
2022
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4. Additional file 3 of National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project

Author

Bausewein, C., Hodiamont, F., Berges, N., Ullrich, A., Gerlach, C., Oechsle, K., Pauli, B., Weber, J., Stiel, S., Schneider, N., Krumm, N., Rolke, R., Gebel, C., Jansky, M., Nauck, F., Wedding, U., van Oorschot, B., Roch, C., Werner, L., Fischer, M., Schallenburger, M., Reuters, M. C., Schwartz, J., Neukirchen, M., G��lay, A., Maus, K., Jaspers, B., Radbruch, L., Heckel, M., Klinger, I., Ostgathe, C., Kriesen, U., Junghan��, C., Lehmann, E., Gesell, D., Gauder, S., Boehlke, C., Becker, G., Pralong, A., Strupp, J., Leisse, C., Schloesser, K., Voltz, R., Jung, N., and Simon, S. T.

Subjects
Data_FILES
Abstract

Additional file 3: Supplementary file WP1. Interview Online Survey Relatives.

Published
2022
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5. Additional file 5 of National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project

Author

Bausewein, C., Hodiamont, F., Berges, N., Ullrich, A., Gerlach, C., Oechsle, K., Pauli, B., Weber, J., Stiel, S., Schneider, N., Krumm, N., Rolke, R., Gebel, C., Jansky, M., Nauck, F., Wedding, U., van Oorschot, B., Roch, C., Werner, L., Fischer, M., Schallenburger, M., Reuters, M. C., Schwartz, J., Neukirchen, M., G��lay, A., Maus, K., Jaspers, B., Radbruch, L., Heckel, M., Klinger, I., Ostgathe, C., Kriesen, U., Junghan��, C., Lehmann, E., Gesell, D., Gauder, S., Boehlke, C., Becker, G., Pralong, A., Strupp, J., Leisse, C., Schloesser, K., Voltz, R., Jung, N., and Simon, S. T.

Abstract

Additional file 5: Supplementary file WP2. Interview guide Oncologists.

Published
2022
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6. Additional file 8 of National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project

Author

Bausewein, C., Hodiamont, F., Berges, N., Ullrich, A., Gerlach, C., Oechsle, K., Pauli, B., Weber, J., Stiel, S., Schneider, N., Krumm, N., Rolke, R., Gebel, C., Jansky, M., Nauck, F., Wedding, U., van Oorschot, B., Roch, C., Werner, L., Fischer, M., Schallenburger, M., Reuters, M. C., Schwartz, J., Neukirchen, M., G��lay, A., Maus, K., Jaspers, B., Radbruch, L., Heckel, M., Klinger, I., Ostgathe, C., Kriesen, U., Junghan��, C., Lehmann, E., Gesell, D., Gauder, S., Boehlke, C., Becker, G., Pralong, A., Strupp, J., Leisse, C., Schloesser, K., Voltz, R., Jung, N., and Simon, S. T.

Subjects
Data_FILES
Abstract

Additional file 8: Supplementary file WP3. Online Survey SPHC.

Published
2022
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7. Additional file 7 of National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project

Author

Bausewein, C., Hodiamont, F., Berges, N., Ullrich, A., Gerlach, C., Oechsle, K., Pauli, B., Weber, J., Stiel, S., Schneider, N., Krumm, N., Rolke, R., Gebel, C., Jansky, M., Nauck, F., Wedding, U., van Oorschot, B., Roch, C., Werner, L., Fischer, M., Schallenburger, M., Reuters, M. C., Schwartz, J., Neukirchen, M., G��lay, A., Maus, K., Jaspers, B., Radbruch, L., Heckel, M., Klinger, I., Ostgathe, C., Kriesen, U., Junghan��, C., Lehmann, E., Gesell, D., Gauder, S., Boehlke, C., Becker, G., Pralong, A., Strupp, J., Leisse, C., Schloesser, K., Voltz, R., Jung, N., and Simon, S. T.

Abstract

Additional file 7: Supplementary file WP3. Interview Guide SPHC.

Published
2022
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8. Additional file 4 of National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project

Author

Bausewein, C., Hodiamont, F., Berges, N., Ullrich, A., Gerlach, C., Oechsle, K., Pauli, B., Weber, J., Stiel, S., Schneider, N., Krumm, N., Rolke, R., Gebel, C., Jansky, M., Nauck, F., Wedding, U., van Oorschot, B., Roch, C., Werner, L., Fischer, M., Schallenburger, M., Reuters, M. C., Schwartz, J., Neukirchen, M., G��lay, A., Maus, K., Jaspers, B., Radbruch, L., Heckel, M., Klinger, I., Ostgathe, C., Kriesen, U., Junghan��, C., Lehmann, E., Gesell, D., Gauder, S., Boehlke, C., Becker, G., Pralong, A., Strupp, J., Leisse, C., Schloesser, K., Voltz, R., Jung, N., and Simon, S. T.

Subjects
Data_FILES
Abstract

Additional file 4: Supplementary file WP2. Interview guide Mobile care services.

Published
2022
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9. Additional file 6 of National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project

Author

Bausewein, C., Hodiamont, F., Berges, N., Ullrich, A., Gerlach, C., Oechsle, K., Pauli, B., Weber, J., Stiel, S., Schneider, N., Krumm, N., Rolke, R., Gebel, C., Jansky, M., Nauck, F., Wedding, U., van Oorschot, B., Roch, C., Werner, L., Fischer, M., Schallenburger, M., Reuters, M. C., Schwartz, J., Neukirchen, M., G��lay, A., Maus, K., Jaspers, B., Radbruch, L., Heckel, M., Klinger, I., Ostgathe, C., Kriesen, U., Junghan��, C., Lehmann, E., Gesell, D., Gauder, S., Boehlke, C., Becker, G., Pralong, A., Strupp, J., Leisse, C., Schloesser, K., Voltz, R., Jung, N., and Simon, S. T.

Subjects
Data_FILES
Abstract

Additional file 6: Supplementary file WP2. Online Survey Oncologists.

Published
2022
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10. Additional file 9 of National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project

Author

Bausewein, C., Hodiamont, F., Berges, N., Ullrich, A., Gerlach, C., Oechsle, K., Pauli, B., Weber, J., Stiel, S., Schneider, N., Krumm, N., Rolke, R., Gebel, C., Jansky, M., Nauck, F., Wedding, U., van Oorschot, B., Roch, C., Werner, L., Fischer, M., Schallenburger, M., Reuters, M. C., Schwartz, J., Neukirchen, M., G��lay, A., Maus, K., Jaspers, B., Radbruch, L., Heckel, M., Klinger, I., Ostgathe, C., Kriesen, U., Junghan��, C., Lehmann, E., Gesell, D., Gauder, S., Boehlke, C., Becker, G., Pralong, A., Strupp, J., Leisse, C., Schloesser, K., Voltz, R., Jung, N., and Simon, S. T.

Abstract

Additional file 9: Supplementary file WP4. Interview guide PC Hospital.

Published
2022
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11. Additional file 2 of National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project

Author

Bausewein, C., Hodiamont, F., Berges, N., Ullrich, A., Gerlach, C., Oechsle, K., Pauli, B., Weber, J., Stiel, S., Schneider, N., Krumm, N., Rolke, R., Gebel, C., Jansky, M., Nauck, F., Wedding, U., van Oorschot, B., Roch, C., Werner, L., Fischer, M., Schallenburger, M., Reuters, M. C., Schwartz, J., Neukirchen, M., G��lay, A., Maus, K., Jaspers, B., Radbruch, L., Heckel, M., Klinger, I., Ostgathe, C., Kriesen, U., Junghan��, C., Lehmann, E., Gesell, D., Gauder, S., Boehlke, C., Becker, G., Pralong, A., Strupp, J., Leisse, C., Schloesser, K., Voltz, R., Jung, N., and Simon, S. T.

Subjects
Data_FILES
Abstract

Additional file 2: Supplementary file WP1. Interview Guide Relatives.

Published
2022
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12. COVID-19: considering palliative and end-of-life care in pandemic response teams in Germany (PallPan)

Author

Heckel, M, Klinger, I, Shahda, S, Junghanß, C, Kriesen, U, and Ostgathe, C

Subjects
ddc: 610, Medicine and health
Abstract

Background and current state of (inter)national research:The COVID-19 pandemic impacted palliative care structures mainly in two ways: palliative care needs increased due to terminally ill COVID-19 patients and hygiene measures impaired the maintenance of palliative care provision. Pandemic response [for full text, please go to the a.m. URL]

Published
2021
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14. Feasibility of individualized home exercise programs for patients with head and neck cancer-study protocol and first results of a multicentre single-arm intervention trial (OSHO #94).

Author

Felser S, Rogahn J, Glass Ä, Bonke LA, Strüder DF, Stolle J, Schulze S, Blaurock M, Kriesen U, Junghanss C, and Grosse-Thie C

Subjects
Humans, Prospective Studies, Male, Female, Middle Aged, Aged, Exercise, Adult, Head and Neck Neoplasms therapy, Exercise Therapy methods, Quality of Life, Feasibility Studies
Abstract

Introduction: Patients with head and neck cancer (PwHNC) benefit from targeted exercise interventions: symptom relief, compensation for dysfunction, improvement in quality of life (QoL). Data on acceptance physical interventions in PwHNC are rare. The 'OSHO #94' trial investigates the short- and medium-term effects of individualized home exercise in PwHNC on QoL, physical activity and functionality. The study includes a feasibility phase (proof of concept) in order to evaluate the acceptance. Here we present the study protocol as well as the feasibility results., Methods and Analysis: This prospective, multicentre, single-arm intervention study includes PwHNC ≥18 years of age in aftercare or palliative care with stable remission under immunotherapy. The study opened in January 01, 2021, with estimated completion by December 31, 2024. The PwHNC receive an individualized home exercise program consisting of mobilization, coordination, strengthening and stretching exercises. This should be carried out at least three times a week over 12 weeks for 15 to 30 minutes, supplemented by aerobic training two to three times a week for 30 minutes (intervention). Once weekly telephone calls with a physiotherapist are performed. Subsequently, there is a 12-week follow-up (FU) without exercise specifications/contact. Outcomes are measured before and after the intervention and following the FU. Primary outcome of the feasibility phase (n = 25) was the determination of the dropout rate during the intervention with a termination cut off if more than 30% PwHNC withdrew premature. The primary outcome of the OSHO #94' trial (N = 53) is the change in global QoL score from pre- to post-intervention (EORTC QLQ-C30). Secondary outcomes include clinical and patient-reported measures, training details as well as functional diagnostic data (e.g. level of physical activity, training frequency, flexibility, fall risk and aerobic performance)., Results: 25 PwHNC were enrolled onto the feasibility cohort. Only16% (4/25 patients) did not complete the study. Therefore, recruitment of PwHNC was continued. The dropout rate was adjusted from 30% (N = 60) to 20% (N = 53, calculated sample size n = 42 PwHNC and 20% (n = 11) to dropout)., Conclusions: Individualized home exercise programs in PwHNC in aftercare seem feasible. Consequently, the aim is now to evaluate the short and medium-term effects of individualized home exercise., Competing Interests: The authors have declared that no competing interests exist., (Copyright: © 2024 Felser et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.)

Published
2024
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15. Relatives Experience More Psychological Distress Due to COVID-19 Pandemic-Related Visitation Restrictions Than In-Patients.

Author

Felser S, Sewtz C, Kriesen U, Kragl B, Hamann T, Bock F, Strüder DF, Schafmayer C, Dräger DL, and Junghanss C

Subjects
Humans, Pandemics, Stress, Psychological psychology, Surveys and Questionnaires, COVID-19 epidemiology, Psychological Distress
Abstract

Background: The COVID-19 pandemic led to visiting restrictions (VRs) of patients in hospitals. Social contacts between patients' relatives play an important role in convalescence. Isolation may cause new psychological comorbidity. The present study investigated the psychological distress of VR in in-patients and their relatives., Methods: From April 1, 2020 to May 20, 2020, 313 in-patients (≥14 years) of the University Medical Center Rostock were interviewed by questionnaires and 51 relatives by phone. Subjective psychological distress was assessed by a distress thermometer [0 (not at all)-100 (extreme)]. The study also investigated stressors due to VR, psychological distress in dependence on demographic or disease-related data, currently used communication channels and desired alternatives and support., Results: Relatives were more psychologically distressed by VR than in-patients (59 ± 34 vs. 38 ± 30, p = 0.002). Loss of direct physical contact and facial expressions/gestures resulted in the most distress. Psychological distress due to VR was independent of demographics and indicates small positive correlations with the severity of physical restriction and the general psychological distress of in-patients. The most frequent ways of communication were via phone and social media. Frequently requested alternatives for patients were other interlocutors and free phone/tablet use, for relatives visiting rooms with partitions., Conclusion: VRs are a stressor for patients and their relatives. The establishment of visiting rooms with partitions and the free use of phones/tablets could reduce the additional distress., Competing Interests: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest., (Copyright © 2022 Felser, Sewtz, Kriesen, Kragl, Hamann, Bock, Strüder, Schafmayer, Dräger and Junghanss.)

Published
2022
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