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2. Health care use and remaining needs for support among women with breast cancer in the first 15 months after diagnosis: the role of the GP

Author

Lo-Fo-Wong, Deborah N, primary, de Haes, Hanneke C, primary, Aaronson, Neil K, primary, van Abbema, Doris L, primary, Admiraal, Jolien M, primary, den Boer, Mathilda D, primary, van Hezewijk, Marjan, primary, Immink, Marcelle, primary, Kaptein, Ad A, primary, Menke-Pluijmers, Marian B, primary, Russell, Nicola S, primary, Schriek, Manon, primary, Sijtsema, Sieta, primary, van Tienhoven, Geertjan, primary, and Sprangers, Mirjam A, primary

Published
2019
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3. Health care use and remaining needs for support among women with breast cancer in the first 15 months after diagnosis: the role of the GP.

Author

Lo-Fo-Wong, Deborah N, Haes, Hanneke C de, Aaronson, Neil K, Abbema, Doris L van, Admiraal, Jolien M, Boer, Mathilda D den, Hezewijk, Marjan van, Immink, Marcelle, Kaptein, Ad A, Menke-Pluijmers, Marian B, Russell, Nicola S, Schriek, Manon, Sijtsema, Sieta, Tienhoven, Geertjan van, Sprangers, Mirjam A, de Haes, Hanneke C, van Abbema, Doris L, den Boer, Mathilda D, van Hezewijk, Marjan, and van Tienhoven, Geertjan

Subjects
MEDICAL care use, BREAST cancer, MEDICAL care, WOMEN'S health, NEEDS assessment
Abstract

Background: The number of women with breast cancer in general practice is rising. To address their needs and wishes for a referral, GPs might benefit from more insight into women's health care practices and need for additional support.Objective: To examine the prevalence of health care use and remaining needs among women with breast cancer in the first 15 months after diagnosis.Methods: In this multicentre, prospective, observational study women with breast cancer completed a questionnaire at 6 and 15 months post-diagnosis. Medical data were retrieved through chart reviews. The prevalence of types of health care used and remaining needs related to medical, psychosocial, paramedical and supplementary service care (such as home care), was examined with descriptive analyses.Results: Seven hundred forty-six women completed both questionnaires. At both assessments patients reported that they had most frequent contact with medical and paramedical providers, independent of types of treatment received. Three to fifteen percent of the patients expressed a need for more support. Prominent needs included a wish for more frequent contact with a physiotherapist, a clinical geneticist and a psychologist. Patients also wanted more help for chores around the house, particularly in the early post-treatment phase.Conclusion: A small but relevant percentage of women with breast cancer report having unmet needs. GPs may need to be particularly watchful of their need for more support from specific providers. Future research into the necessity of structural needs assessment among cancer patients in general practice is warranted. [ABSTRACT FROM AUTHOR]

Published
2020
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4. Patients' and Health Care Providers' Opinions on a Supportive Health App During Breast Cancer Treatment : A Qualitative Evaluation

Author

Young Afat, Danny A, van Gils, Carla H, Bruinvels, David J., van der Pol, Carmen C, Witkamp, Arjen J, Sijtsema, Sieta, Jonasse, Yvette, Bijlsma, Rhodé M, Ausems, Margreet G, Bos, Annelies M, van den Bongard, Desirée H, Verkooijen, Helena M, Young Afat, Danny A, van Gils, Carla H, Bruinvels, David J., van der Pol, Carmen C, Witkamp, Arjen J, Sijtsema, Sieta, Jonasse, Yvette, Bijlsma, Rhodé M, Ausems, Margreet G, Bos, Annelies M, van den Bongard, Desirée H, and Verkooijen, Helena M

Published
2016

5. Patients' and Health Care Providers' Opinions on a Supportive Health App During Breast Cancer Treatment: A Qualitative Evaluation

Author

Cancer, JC onderzoeksprogramma Kanker, Onderzoek Radiotherapie, Epi Kanker Team A, MS CGO, Other research (not in main researchprogram), Zorg Heelkundig Oncologische Disciplines, Verpleegkundig Specialisten, Zorgeenheid Plastische Chirurgie Medisch, MS Medische Oncologie, Genetica Sectie Oncogenetica, Child Health, MS VPG/Gynaecologie, MS Radiotherapie, Trialbureau Beeld, Circulatory Health, Young Afat, Danny A, van Gils, Carla H, Bruinvels, David J., van der Pol, Carmen C, Witkamp, Arjen J, Sijtsema, Sieta, Jonasse, Yvette, Bijlsma, Rhodé M, Ausems, Margreet G, Bos, Annelies M, van den Bongard, Desirée H, Verkooijen, Helena M, Cancer, JC onderzoeksprogramma Kanker, Onderzoek Radiotherapie, Epi Kanker Team A, MS CGO, Other research (not in main researchprogram), Zorg Heelkundig Oncologische Disciplines, Verpleegkundig Specialisten, Zorgeenheid Plastische Chirurgie Medisch, MS Medische Oncologie, Genetica Sectie Oncogenetica, Child Health, MS VPG/Gynaecologie, MS Radiotherapie, Trialbureau Beeld, Circulatory Health, Young Afat, Danny A, van Gils, Carla H, Bruinvels, David J., van der Pol, Carmen C, Witkamp, Arjen J, Sijtsema, Sieta, Jonasse, Yvette, Bijlsma, Rhodé M, Ausems, Margreet G, Bos, Annelies M, van den Bongard, Desirée H, and Verkooijen, Helena M

Published
2016

6. Patients’ and Health Care Providers’ Opinions on a Supportive Health App During Breast Cancer Treatment: A Qualitative Evaluation

Author

Young-Afat, Danny A, primary, van Gils, Carla H, additional, Bruinvels, David J, additional, van der Pol, Carmen C, additional, Witkamp, Arjen J, additional, Sijtsema, Sieta, additional, Jonasse, Yvette, additional, Bijlsma, Rhodé M, additional, Ausems, Margreet G, additional, Bos, Annelies M, additional, van den Bongard, Desirée H, additional, and Verkooijen, Helena M, additional

Published
2016
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7. Additional file 1: of Psychometric properties of the 45-item supportive care needs surveyâ partners and caregivers - Dutch (SCNS-P&C45-D) in partners of patients with breast cancer

Author

Rietveld, Mark, Peters, Esmee, Husson, Olga, Amstel, Floortje Ploos Van, Y. Kamm, Sijtsema, Sieta, Diepenbroek, Marieke, Heier, Josca, Celine Zoetbrood, Zielstra, Marijke, Lambert, Sylvie, Prins, Judith, and Ottevanger, Petronella

Subjects
3. Good health
Abstract

Table S1. Scale and item characteristics of the SCNS-P&C45-D. (DOCX 23 kb)

8. Additional file 1: of Psychometric properties of the 45-item supportive care needs surveyâ partners and caregivers - Dutch (SCNS-P&C45-D) in partners of patients with breast cancer

Author

Rietveld, Mark, Peters, Esmee, Husson, Olga, Amstel, Floortje Ploos Van, Y. Kamm, Sijtsema, Sieta, Diepenbroek, Marieke, Heier, Josca, Celine Zoetbrood, Zielstra, Marijke, Lambert, Sylvie, Prins, Judith, and Ottevanger, Petronella

Subjects
3. Good health
Abstract

Table S1. Scale and item characteristics of the SCNS-P&C45-D. (DOCX 23 kb)

9. Additional file 2: of Psychometric properties of the 45-item supportive care needs surveyâ partners and caregivers - Dutch (SCNS-P&C45-D) in partners of patients with breast cancer

Author

Rietveld, Mark, Peters, Esmee, Husson, Olga, Amstel, Floortje Ploos Van, Y. Kamm, Sijtsema, Sieta, Diepenbroek, Marieke, Heier, Josca, Celine Zoetbrood, Zielstra, Marijke, Lambert, Sylvie, Prins, Judith, and Ottevanger, Petronella

Subjects
3. Good health
Abstract

Table S2. Percentage participants with at least one unmet moderate/high need by age and time since diagnosis (nâ =â 272). (DOCX 14 kb)

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