91 results on '"MacKay, Crystal"'
Search Results
2. Resources, relationships, and resilience: The psychosocial experiences of women with lower limb absence during pregnancy and postpartum
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Cumming, Donna, MacKay, Crystal, Phillips, Clara, Azhari, Fae, and Pousett, Brittany Mae
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- 2024
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3. Do Exercise Programs Improve Fitness, Mobility, and Functional Capacity in Adults With Lower Limb Amputation? A Systematic Review on the Type and Minimal Dose Needed
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Dupuis, Frédérique, Ginis, Kathleen A. Martin, MacKay, Crystal, Best, Krista L., Blanchette, Virginie, Cherif, Amira, Robert, Maxime T., Miller, William C., Gee, Cameron, Habra, Natalie, Brousseau-Foley, Magalie, and Zidarov, Diana
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- 2024
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4. Multi-level strategies to improve equitable timely person-centred osteoarthritis care for diverse women: qualitative interviews with women and healthcare professionals
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Gagliardi, Anna R., Abbaticchio, Angelina, Theodorlis, Madeline, Marshall, Deborah, MacKay, Crystal, Borkhoff, Cornelia M., Hazlewood, Glen Stewart, Battistella, Marisa, Lofters, Aisha, and Ahluwalia, Vandana
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- 2023
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5. Identifying strategies that support equitable person-centred osteoarthritis care for diverse women: content analysis of guidelines
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Abuwa, Chidinma, Abbaticchio, Angelina, Theodorlis, Madeline, Marshall, Deborah, MacKay, Crystal, Borkhoff, Cornelia M., Hazlewood, Glen Stewart, Battistella, Marisa, Lofters, Aisha, Ahluwalia, Vandana, and Gagliardi, Anna R.
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- 2023
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6. Improving diagnosis and treatment of knee osteoarthritis in persons with type 2 diabetes: development of a complex intervention
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King, Lauren K., Ivers, Noah M., Waugh, Esther J., MacKay, Crystal, Stanaitis, Ian, Krystia, Owen, Stretton, Jane, Wong, Sim, Weisman, Alanna, Bardai, Zahra, Ross, Susan, Brady, Shawn, Shloush, Marlee, Stier, Tara, Gakhal, Natasha, Agarwal, Payal, Parsons, Janet, Lipscombe, Lorraine, and Hawker, Gillian A.
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- 2023
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7. The relationship between periarticular muscle properties and knee pain in non-overweight postmenopausal females
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Liu, Si Wen, Tam, Kenneth, Yazdankhah, Nima, Anwari, Vahid, Ha, Emily, Whyte, Rachel, Naraghi, Ali, Sussman, Marshall S., Mohankumar, Rakesh, Johnston, James D., Probyn, Linda, Wong, Evelyn, MacKay, Crystal, Rozenberg, Dmitry, and Wong, Andy Kin On
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- 2023
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8. Health utility in community-dwelling adults with dysvascular lower limb loss
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Hitzig, Sander L., Rios, Jorge, Devlin, Michael, Guilcher, Sara J. T., MacKay, Crystal, Dilkas, Steven, Payne, Michael W., Viana, Ricardo, Kayssi, Ahmed, Cimino, Stephanie R., and Mayo, Amanda L.
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- 2023
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9. Understanding the behavioural determinants of seeking and engaging in care for knee osteoarthritis in persons with type 2 diabetes mellitus: A qualitative study using the theoretical domains framework
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King, Lauren K., Krystia, Owen, Waugh, Esther J., MacKay, Crystal, Stanaitis, Ian, Stretton, Jane, Weisman, Alanna, Ivers, Noah M., Parsons, Janet A., Lipscombe, Lorraine, and Hawker, Gillian A.
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- 2022
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10. Barriers and enablers to health care providers assessment and treatment of knee osteoarthritis in persons with type 2 diabetes mellitus: A qualitative study using the Theoretical Domains Framework
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King, Lauren K., Krystia, Owen, Waugh, Esther J., MacKay, Crystal, Stanaitis, Ian, Stretton, Jane, Weisman, Alanna, Ivers, Noah M., Parsons, Janet A., Lipscombe, Lorraine, and Hawker, Gillian A.
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- 2022
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11. Understanding transitions in care for persons with limb loss: a qualitative study exploring health care providers' perspectives.
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Witt, Micah, Domazet, Teah, Dong, Alexandra, Handler, Carly, Nella, Katrina, Dilkas, Steve, Campbell, Janet, Guilcher, Sara J. T., and MacKay, Crystal
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QUALITATIVE research ,INTERPROFESSIONAL relations ,SELF-management (Psychology) ,HOSPITAL care ,INTERVIEWING ,EMERGENCY room visits ,STATISTICAL sampling ,AMPUTEES ,COMMUNITIES ,JUDGMENT sampling ,DESCRIPTIVE statistics ,DISCHARGE planning ,TRANSITIONAL care ,REHABILITATION centers ,THEMATIC analysis ,ATTITUDES of medical personnel ,RESEARCH methodology ,RESEARCH ,COMMUNICATION ,HOME rehabilitation ,SOCIAL support ,MEDICAL care costs ,PEOPLE with disabilities - Abstract
Purpose: To explore health care providers' (HCP) experiences related to transitions in care from inpatient rehabilitation to the community for patients with limb loss. Materials and Methods: A qualitative study was conducted using semi-structured interviews. Participants were eligible if they were HCPs currently working in amputation rehabilitation at a rehabilitation hospital in Ontario, Canada, with at least 1-year experience in this setting, and could speak and understand English. Data were analyzed thematically using the six-step process of the DEPICT model dynamic reading, engaged codebook development, participatory coding, inclusive reviewing and summarizing of categories, collaborative analyzing and translating. Results: Fourteen HCPs from a variety of health care professions participated in this study. Five key themes describe participants' perspectives on the factors impacting patients' transition in care following limb loss. Specifically, participants emphasized patient preparedness, HCP follow-up, finances and funding, patient self-management skills, and psychosocial support as factors that could influence the transition in care. Conclusion: This study identified challenges to transitions in care for people with limb loss. Future research is needed to evaluate solutions to address these challenges in transitions in care. IMPLICATIONS FOR REHABILITATION: Suboptimal transitions in care can result in readmission to the hospital, emergency department visits, and increased health care costs. Patient preparedness, follow-up, finances and funding, patient self-management skills, and psychosocial support are perceived to influence transitions in care from inpatient rehabilitation to the community. Improved access to follow-up and supports in the community and improved communication across the continuum of care could improve transitions for people with limb loss. [ABSTRACT FROM AUTHOR]
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- 2024
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12. A qualitative study exploring healthcare professionals' perceptions of lower limb 3D printed sockets.
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Li, Lynn, Miguel, Marian, Phillips, Clara, Verweel, Lee, Wasilewski, Marina B., and MacKay, Crystal
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LEG surgery ,ARTIFICIAL limbs ,SOCIAL media ,DIGITAL technology ,MATERIALS testing ,AMPUTATION ,MEDICAL personnel ,THREE-dimensional imaging ,QUALITATIVE research ,PATIENT safety ,COMPUTER software ,LEG ,STATISTICAL sampling ,PROFESSIONAL associations ,INTERVIEWING ,FIELD notes (Science) ,JUDGMENT sampling ,ORTHOPEDIC casts ,THEMATIC analysis ,EMAIL ,ATTITUDES of medical personnel ,RESEARCH methodology ,TELEPHONES ,CLINICAL competence ,THREE-dimensional printing ,DATA analysis software ,QUALITY assurance ,PSYCHOSOCIAL factors ,PROSTHESIS design & construction - Abstract
Purpose: The purpose of this study was to explore healthcare professionals' (HCPs) perceptions and experiences related to 3D scanning and 3D printing for fabricating lower limb prosthetic sockets. Materials and methods: This study used a qualitative descriptive approach. Participants were recruited through HCPs' professional associations, social media posts, and snowball sampling. Purposive sampling was used to attain variation in provider type. One-on-one telephone interviews were conducted using a semi-structured interview guide. Inductive thematic analysis was performed to identify the main themes. Results: Three themes were identified: (1) 3D scanning of the residual limb for designing prosthetic sockets is perceived as clean, quick, and convenient; (2) concerns about the strength and safety of 3D printed sockets for long-term use; (3) Adoption of 3D scanning and 3D printing technology for fabricating prosthetic sockets. Conclusion: We identified perceived benefits and challenges with digital technologies for fabricating prosthetic sockets. To increase adoption, more research demonstrating its efficacy compared to conventional methods, increasing 3D printing material quality, and improving software training programs are needed. Implications for Rehabilitation: 3D printing and 3D scanning are emerging digital technologies that can be used as alternative methods for prosthetic socket manufacturing in the field of rehabilitation. Our research identified perceived benefits of using digital technologies for fabricating prosthetics sockets (3D scanning is perceived as clean, quick, and convenient) and perceived challenges (concerns about the strength and safety of 3D printed sockets for long-term use and a prolonged learning curve). To increase adoption of these digital technologies, more training should be provided to prosthetists and support provided to integrate new processes into staff workloads. [ABSTRACT FROM AUTHOR]
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- 2024
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13. Quality of life following non-dysvascular lower limb amputation is contextualized through occupations: a qualitative study.
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Cimino, Stephanie R., Hitzig, Sander L., Fung, Vera, Dainty, Katie N., MacKay, Crystal, Sale, Joanna E. M., Mayo, Amanda L., and Guilcher, Sara J. T.
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AMPUTATION ,LEG ,OCCUPATIONS ,QUALITATIVE research ,PATIENTS ,RESEARCH funding ,INTERVIEWING ,JUDGMENT sampling ,THEMATIC analysis ,QUALITY of life ,RESEARCH methodology ,MEDICAL rehabilitation ,HEALTH outcome assessment ,ACTIVITIES of daily living ,PATIENTS' attitudes ,REHABILITATION - Abstract
Purpose: To understand how persons with non-dysvascular lower limb amputation (LLA) use occupations to contextualize their quality of life (QoL). Methods: A qualitative study using an interpretative description approach was conducted. Analysis of the interviews was guided by an occupational perspective, which considers the day-to-day activities that are important to an individual. Results: Twenty adults with an adult-acquired non-dysvascular amputation (e.g., trauma, cancer or infection) were interviewed. Following thematic analysis, two main themes were developed: (1) sense of self expressed through occupations; and (2) sense of belonging with others influenced by occupations. Participants expressed the way they felt about themselves through their activities and placed high value on whether they could participate in certain occupations. Participants also described how their sense of belonging was changed through the context of their changing occupations. Conclusion: The findings from this work can be leveraged by clinicians and researchers alike to improve care for this population. Rehabilitation programs should consider interventions and programming that help to restore occupations or develop new ones given the importance placed on occupations by persons with non-dysvascular LLA. IMPLICATIONS FOR REHABILITATION: Quality of life is affected following non-dysvascular lower limb amputation due to physical, mental and psychosocial changes. Occupations (or day-to-day activities) are important components of quality of life for persons with lower limb amputation. Rehabilitation professionals should take into account the influence that occupations have on how persons with lower limb amputation perceive themselves when developing interventions and programming for this population. The influence occupations have on sense of belonging should also be considered by rehabilitation professionals when developing these interventions and programs for persons with non-dysvascular lower limb amputation. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Sexuality and Sexual Health In Adults with Limb Loss: A Systematic Review
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Brooks, Stephanie G., Atkinson, Samantha L., Cimino, Stephanie R., MacKay, Crystal, Mayo, Amanda L., and Hitzig, Sander L.
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- 2021
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15. Patterns of inpatient acute care and emergency department utilization within one year post-initial amputation among individuals with dysvascular major lower extremity amputation in Ontario, Canada: A population-based retrospective cohort study.
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Guilcher, Sara J. T., Mayo, Amanda L., Swayze, Sarah, de Mestral, Charles, Viana, Ricardo, Payne, Michael W., Dilkas, Steven, Devlin, Michael, MacKay, Crystal, Kayssi, Ahmed, and Hitzig, Sander L.
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LEG amputation ,EMERGENCY room visits ,INPATIENT care ,AMPUTATION ,INTEGRATED health care delivery - Abstract
Introduction: Lower extremity amputation (LEA) is a life altering procedure, with significant negative impacts to patients, care partners, and the overall health system. There are gaps in knowledge with respect to patterns of healthcare utilization following LEA due to dysvascular etiology. Objective: To examine inpatient acute and emergency department (ED) healthcare utilization among an incident cohort of individuals with major dysvascular LEA 1 year post-initial amputation; and to identify factors associated with acute care readmissions and ED visits. Design: Retrospective cohort study using population-level administrative data. Setting: Ontario, Canada. Population: Adults individuals (18 years or older) with a major dysvascular LEA between April 1, 2004 and March 31, 2018. Interventions: Not applicable. Main outcome measures: Acute care hospitalizations and ED visits within one year post-initial discharge. Results: A total of 10,905 individuals with major dysvascular LEA were identified (67.7% male). There were 14,363 acute hospitalizations and 19,660 ED visits within one year post-discharge from initial amputation acute stay. The highest common risk factors across all the models included age of 65 years or older (versus less than 65 years), high comorbidity (versus low), and low and moderate continuity of care (versus high). Sex differences were identified for risk factors for hospitalizations, with differences in the types of comorbidities increasing risk and geographical setting. Conclusion: Persons with LEA were generally more at risk for acute hospitalizations and ED visits if higher comorbidity and lower continuity of care. Clinical care efforts might focus on improving transitions from the acute setting such as coordinated and integrated care for sub-populations with LEA who are more at risk. [ABSTRACT FROM AUTHOR]
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- 2024
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16. Comparison of Socket Geometry, Socket Comfort, and Patient Experience between Manually- and Digitally-Designed Prosthetic Sockets for Lower-Limb Amputees: A Feasibility Study.
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Eshraghi, Arezoo, Phillips, Clara, MacKay, Crystal, Dilkas, Steven, Riondato, Zonsire, Lehkyj, Stefania, and Heim, Winfried
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ARTIFICIAL limbs ,PROSTHETICS ,COMPUTER-aided design ,LEG ,COMPUTER software ,PILOT projects ,AMPUTEES ,EVALUATION of medical care ,ORTHOPEDIC casts ,DESCRIPTIVE statistics ,EXPERIENCE ,LEG amputation ,MANUFACTURING industries ,HUMAN comfort ,THREE-dimensional printing ,ADVERSE health care events ,PROSTHESIS design & construction ,PATIENTS' attitudes - Abstract
Prosthetic socket manufacturing is experiencing a revolutionary shift towards using digital methods, such as 3D scanning and 3D printing. However, using digital methods requires the clinician to transfer their skills from making sockets by hand to making sockets with a computer. This shift in practice may change the socket geometry and fit; however, to what extent is unknown. Thus, the aim of this study was to explore the feasibility of analyzing geometric and clinical differences between digitally- and manually-designed sockets. Nine adult inpatients with below-knee amputation were recruited. Two sockets were 3D printed for each participant from 3D socket models that were developed from: (1) 3D scanning a manually-modified hand-casted positive mold of the residuum; and (2) a digitally-modified 3D scan of the residuum. Manual and digital procedures were compared for three measures: final socket geometry, the Socket Comfort Score, and a patient experience survey. Feasibility data were collected to measure protocol implementation fidelity to inform a future larger study. These data revealed that 89% of participants followed the intended protocol, no participants dropped out, and only one adverse event was report. As no significant geometric differences were found and participants experienced similar comfort scores between manually- and digitally-designed sockets, study feasibility was determined to be successful. Thus, a randomized control trial study will be conducted to draw statistically relevant conclusions from these outcome measures that may provide meaningful information for improving digital design procedures. [ABSTRACT FROM AUTHOR]
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- 2024
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17. Barriers and Facilitators to Cardiovascular Rehabilitation Programmes for People with Lower Limb Amputation: A Survey of Clinical Practice in Canada.
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Marzolini, Susan, Brunne, Amanda, Hébert, Andrée-Anne, Mayo, Amanda L., and MacKay, Crystal
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HEALTH services accessibility ,MEDICAL care use ,DISABILITIES ,PATIENT education ,LEG ,HUMAN services programs ,PHYSICAL therapists' attitudes ,CARDIOVASCULAR diseases ,PATIENT safety ,QUESTIONNAIRES ,EXERCISE therapy ,AMPUTEES ,CARDIOVASCULAR diseases risk factors ,CONFIDENCE ,EXERCISE intensity ,DESCRIPTIVE statistics ,PROFESSIONS ,RESISTANCE training ,ELIGIBILITY (Social aspects) ,AEROBIC exercises ,DATA analysis software ,CARDIAC rehabilitation ,MEDICAL referrals ,PHYSICAL mobility - Abstract
Copyright of Physiotherapy Canada is the property of University of Toronto Press and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2024
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18. The Quality and Cultural Safety of Online Osteoarthritis Information for Affected Persons and Health Care Professionals: Content Analysis.
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Dhakal, Smita, Merani, Shermeen, Ahluwalia, Vandana, Battistella, Marisa, Borkhoff, Cornelia M, Hazlewood, Glen Stewart, Lofters, Aisha, Marshall, Deborah A, MacKay, Crystal, and Gagliardi, Anna R
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MEDICAL personnel ,WEBSITES ,WOMEN immigrants ,WOMEN executives ,BUSINESSWOMEN - Abstract
Background: Osteoarthritis is more prevalent and severe among women than among men, but women are less likely to access early diagnosis and first-line management, particularly racialized immigrant women. Previous research advocated for greater access to culturally safe osteoarthritis information for both diverse women and health care professionals. The internet can reduce disparities by facilitating access to health information, but online materials can vary in quality. Objective: This study aimed to assess the quality and cultural safety of online osteoarthritis materials for persons affected by osteoarthritis and health care professionals. Methods: Content analysis was used to describe publicly available materials on osteoarthritis first-line management developed by Canadian organizations for affected persons or health care professionals. Searching, screening, and data extraction were performed in triplicate. We identified materials by searching Google, MEDLINE, and references of osteoarthritis-relevant guidelines and policies, and consulting our research team and collaborators. We assessed quality using DISCERN (University of Oxford) and a compiled framework for affected persons and health care professionals. We compiled frameworks to assess cultural safety. We derived an overall score, categorized as low (<50%), moderate (50%-69%), or high (≥70%+) for criteria met. Results: After screening 176 items and eliminating 129, we included 47 osteoarthritis materials published between 2013 and 2023. Of those, 43 were for persons with osteoarthritis, most were developed by charities (n=31, 72.1%), based on expert advice (n=16, 55.2%), and in the format of booklets (n=15, 34.9%) or text on web pages (n=10, 23.3%). Of those, 23.3% (10/43) low, 46.5% (20/43) moderate, and 30.2% (13/43) high scored quality; and 25.6% (11/43), 48.8% (21/43), and 25.6% (11/43) were rated low, moderate, and high cultural safety, respectively. Of the 47 included osteoarthritis materials, 4 were for health care professionals. They were developed by a consortium (2/4, 50%), a charity (1/4, 25%), and a professional society (1/4, 25%), and largely based on expert advice (3/4, 75%). The format included infographics (3/4, 75%) and text on web pages (1/4, 25%). Of those, 25% (1/4), 25% (1/4), and 50% (2/4) were rated low, moderate, and high quality, respectively; and all were rated low for cultural safety. Quality and cultural safety did not appear to be associated with the characteristics of osteoarthritis materials (eg, type of developer, development method, and format). Conclusions: Overall, included osteoarthritis materials for persons with osteoarthritis and health care professionals were of low to moderate quality and cultural safety. These findings reveal the need for further efforts to improve existing or develop new osteoarthritis materials for both affected persons, including ethnoculturally diverse immigrant women, and health care professionals. Further research is needed to assess the quality and cultural safety of osteoarthritis materials developed by organizations outside of Canada and to establish a framework or instrument to assess cultural safety in the osteoarthritis context. [ABSTRACT FROM AUTHOR]
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- 2024
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19. Peer support for traumatic injury survivors: a scoping review.
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Wasilewski, Marina B., Rios, Jorge, Simpson, Robert, Hitzig, Sander L., Gotlib Conn, Lesley, MacKay, Crystal, Mayo, Amanda L., and Robinson, Lawrence R.
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AFFINITY groups ,WELL-being ,PSYCHOLOGY information storage & retrieval systems ,CINAHL database ,SOCIAL support ,MEDICAL information storage & retrieval systems ,CONVALESCENCE ,SYSTEMATIC reviews ,PATIENTS ,CONCEPTUAL structures ,HUMAN services programs ,EMERGENCY medical services ,QUALITY assurance ,DESCRIPTIVE statistics ,RESEARCH funding ,BRAIN injuries ,WOUNDS & injuries ,LITERATURE reviews ,MEDLINE - Abstract
Peers are uniquely able to draw on their lived experiences to support trauma survivors' recovery. By understanding the functions and outcomes of peer support and the factors that impact implementation, evidence can be mobilized to enhance its application and uptake into standard practice. As such, we aimed to review the literature on peer support for trauma survivors to: examine the role of peer support in recovery; describe the nature and extent of peer support; Examine the influence of peer support on health and well-being; and identify the barriers and facilitators to developing and implementing peer support. Scoping review methodology as outlined by Arksey and O'Malley. Ninety-three articles were reviewed. Peer support was highlighted as an important component of care for trauma survivors and provided hope and guidance for the future post-injury. Most peer support programs were offered in the community and provided one-on-one support from peer mentors using various modalities. Interventions were successful when they involved knowledgeable peer mentors and maintained participant engagement. Prior negative experiences and stigma/privacy concerns deterred trauma survivors from participating. Peer support fulfills several functions throughout trauma survivors' recovery that may not otherwise be met within existing health care systems. By understanding the functions and outcomes and the factors that impact implementation of peer support, evidence can be mobilized to enhance its application and uptake into standard practice. Peers provide trauma survivors with socioemotional support as well as assistance in daily management and life navigation post-injury. Peer support provided hope and guidance for the future after injury and improved self-efficacy amongst trauma survivors. Peer support programs are most likely to be successful when they involve knowledgeable peer mentors, are flexibly delivered, align with organizations' values and priorities, and have adequate resources and funding to support their implementation. [ABSTRACT FROM AUTHOR]
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- 2023
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20. Factors influencing physical activity among individuals with lower limb amputations: a qualitative study.
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Lee, Leanna S., Hitzig, Sander L., Mayo, Amanda, Devlin, Michael, Dilkas, Steven, and MacKay, Crystal
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REHABILITATION centers ,HUMAN research subjects ,HEALTH services accessibility ,PAIN ,ATTITUDES of medical personnel ,RESEARCH methodology ,MOTIVATION (Psychology) ,MEDICAL care ,INTERVIEWING ,FEAR ,AMPUTEES ,PHYSICAL activity ,LEG ,QUALITATIVE research ,INFORMED consent (Medical law) ,CONCEPTUAL structures ,QUESTIONNAIRES ,ACCIDENTAL falls ,RESEARCH funding ,LEG amputation ,JUDGMENT sampling ,STATISTICAL sampling ,THEMATIC analysis - Abstract
The purpose of this study was to explore the barriers and facilitators to physical activity from multiple stakeholder perspectives including individuals with LLA and health professionals. A qualitative descriptive study situated within an interpretive research paradigm was conducted. Semi-structured interviews were held with individuals with LLA recruited from rehabilitation hospitals in a metropolitan city in Canada. Health professionals with experience in amputation care were recruited from across Canada. Data were analysed using codebook thematic analysis. Thirty-three individuals with LLA and eighteen health professionals participated. Six themes were generated which represent the perceived barriers and facilitators to physical activity. Themes including Informal and Formal Supports, Availability of and Access to Community Resources, and Fit and Function of the Prosthesis were perceived by many individuals as facilitators, while acting as a barrier for others depending on an individual's circumstances. These findings provide us with a basis of understanding from which we can begin addressing barriers to physical activity for individuals with LLA, in support of developing patient-centred interventions and physical activity programs for this population. Irrespective of amputation etiology, individuals who have lower limb amputation experience several barriers to engaging in physical activity. Many system-level barriers to physical activity exist for people with lower limb amputation, which include lack of availability and access to community resources and specialised prostheses conducive to physical activity participation. A participatory approach engaging both patients and rehabilitation professionals can address the patient-provider discordance with respect to a patient's motivation and attitude towards physical activity participation by creating a supportive environment conducive to behaviour change. The development of future, patient-centered interventions, and physical activity programs for individuals with lower limb amputation must consider fear of falling as a prominent barrier to physical activity and devise potential strategies to address this barrier, by setting realistic and actionable goals. [ABSTRACT FROM AUTHOR]
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- 2023
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21. Protocol for a randomized controlled trial to assess the effect of Self-Management for Amputee Rehabilitation using Technology (SMART): An online self-management program for individuals with lower limb loss.
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Esfandiari, Elham, Miller, WC, King, Sheena, Payne, Michael, Mortenson, W. Ben, Underwood, Heather, MacKay, Crystal, and Ashe, Maureen C.
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RANDOMIZED controlled trials ,ONLINE education ,PROSTHETICS ,REHABILITATION technology ,AMPUTEES ,SOCIAL contact - Abstract
Background: Lower limb loss (LLL) is a distressing experience with psychological, physical, and social challenges. Education is needed to enhance the coping skills and confidence of patients to improve LLL outcomes. However, access to rehabilitation services and education is limited outside of urban centers. To address this service gap, we co-created an eHealth platform, called Self-Management for Amputee Rehabilitation using Technology (SMART). Objectives: First, we will test the effect of SMART and usual care compared with usual care only on walking capacity and confidence among individuals with LLL. Second, we will describe key implementation factors for program delivery and adoption at the person- and provider-level. Methods: This is a Type 1 Effectiveness-Implementation Hybrid Design, mixed-methods, multi-site (British Columbia and Ontario, Canada), parallel, assessor-blinded randomized controlled trial. Participants will include adults with unilateral LLL, during early prosthetic fitting (<2 years after casting for initial prosthesis). Participants in both groups will receive usual care. The experimental group will receive SMART with weekly support sessions from a trained peer mentor for goal setting and action planning for six weeks. Participants will be encouraged to continue using SMART for an additional four weeks. The control group will receive usual care, and weekly social contacts for six weeks. The primary outcome measure is walking capacity operationalized as the performance based Timed Up and Go test. The secondary outcome is walking confidence using the Ambulatory Self-Confidence Questionnaire. Outcome measures will be assessed at baseline, immediately post-intervention, and four weeks follow-up. We will describe key implementation factors (such as, participant experience, intervention adoption, fidelity) throughout the study using questionnaires, semi-structured interviews, and direct observation. Results: No participants have been enrolled. Conclusions: SMART has the potential to provide knowledge and skill development to augment rehabilitation outcomes for adults with LLL. Trial registration: NCT04953364 in Clinical Trial Registry (https://clinicaltrials.gov/). [ABSTRACT FROM AUTHOR]
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- 2023
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22. Developing a research agenda on exercise and physical activity for people with limb loss in Canada.
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MacKay, Crystal, Lee, Leanna, Best, Krista, Campbell, Janet, Cimino, Stephanie R., Cowley, Heather, Delvin, Michael, Dilkas, Steven, Landry, Mireille, Marzolini, Susan, Mayo, Amanda, Oh, Paul, Payne, Michael, Viana, Ricardo, Totosy de Zepetnek, Julia, Domingo, Aristotle, King, Sheena, Miller, William C., Robert, Maxime, and Tang, Ada
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LEG surgery , *MEETINGS , *STRATEGIC planning , *PRIORITY (Philosophy) , *STAKEHOLDER analysis , *PROFESSIONAL employee training , *PEER counseling , *AMPUTEES , *PHYSICAL activity , *HUMAN services programs , *MEDICAL care research , *INTERPROFESSIONAL relations , *QUESTIONNAIRES , *CARDIAC rehabilitation , *RESEARCH funding , *AMPUTATION , *EXERCISE therapy , *DELPHI method , *REHABILITATION ,RESEARCH evaluation - Abstract
There is a lack of high-quality evidence about the effects of exercise or physical activity interventions for adults with lower limb amputations (LLAs). A planning meeting involving stakeholders (i.e., people with LLA, community advocates, health care providers, researchers) was organized to identify key research priorities related to exercise and physical activity for people with LLAs. We used a collaborative prioritized planning process with a pre-meeting survey and 2-day virtual meeting that included: identification and prioritization of challenges or gaps; identification and consolidation of solutions; and action planning. This process integrated a modified Delphi approach, including anonymous feedback in two surveys. Thirty-five stakeholders participated. Six challenges related to exercise and physical activity for people with LLA were prioritized. One solution was prioritized for each challenge. After consolidation of solutions, participants developed five research action plans for research including: developing an on-line interface; developing and evaluating peer-support programs to support physical activity; examining integration of people with LLA into cardiac rehabilitation; development and evaluation of health provider education; and determining priority outcomes related to physical activity and exercise. This collaborative process resulted in an action plan for amputation research and fostered collaborations to move identified priorities into action. Lower limb amputations impact mobility leading to lower levels of physical activity. There are research gaps in our understanding of the effects of exercise or physical activity interventions for adults with lower limb amputations. Through a collaborative planning process, participants prioritized research directions on physical activity and exercise for people with LLA to advance research in the field. Action plans for research focused on developing online resources, peer support, cardiac rehabilitation for people with LLA, health provider education and determining priority outcomes related to physical activity and exercise. [ABSTRACT FROM AUTHOR]
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- 2022
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23. Formulating Knee Osteoarthritis Management Plans Taking Type 2 Diabetes Into Account: Qualitative Study of Arthritis Therapists Using Theoretical Domains Framework.
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King, Lauren K., Waugh, Esther J., MacKay, Crystal, Stanaitis, Ian, Krystia, Owen, Stretton, Jane, Ross, Susan, Brady, Shawn, Weisman, Alanna, Lipscombe, Lorraine, and Hawker, Gillian A.
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- 2022
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24. Sex and gender differences in quality of life and related domains for individuals with adult acquired lower-limb amputation: a scoping review.
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Cimino, Stephanie R., Vijayakumar, Abirami, MacKay, Crystal, Mayo, Amanda L., Hitzig, Sander L., and Guilcher, Sara J. T.
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LEG surgery ,ARTIFICIAL limbs ,HUMAN sexuality ,SYSTEMATIC reviews ,DATABASE searching ,MENTAL health ,SEX distribution ,TREATMENT effectiveness ,QUALITY of life ,DESCRIPTIVE statistics ,QUESTIONNAIRES ,AMPUTATION ,LITERATURE reviews ,THEMATIC analysis ,EMPLOYMENT reentry ,MEDLINE ,DATA analysis software ,REHABILITATION - Abstract
To understand what is known about sex and gender differences in quality of life (QoL) and related domains for individuals with an adult acquired lower limb amputation (LLA). A computer-assisted literature search of four online databases was completed. Articles were included if they incorporated sex or gender as part of their data analysis with a focus on QoL-related domains. Data were analyzed using descriptive numerical analysis and thematic analysis. One hundred and eleven articles were included in this review. Women were under-represented across studies, with most of the participants being men. No articles described the inclusion of trans or non-binary persons. Differences by sex or gender were reported by 66 articles. Articles reporting on gender seldom provided descriptions of how gender was defined. Overall, women/females seemed to have worse outcomes in terms of prosthesis-related outcomes, mental health, and return to occupations. Articles included in this review were not clear with how gender was defined. In order for more targeted interventions that account for sex and gender differences, studies need to be more forthcoming about how they use and define gender. Future research should seek to include gender non-conforming participants to identify additional needs. Sex and gender are important constructs that influence outcomes following lower limb amputation. Rehabilitation professionals should consider sex and gender-specific outcomes when tailoring programs to ensure ethical clinical care. [ABSTRACT FROM AUTHOR]
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- 2022
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25. Understanding transitions in care for people with major lower limb amputations from inpatient rehabilitation to home: a descriptive qualitative study.
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Radenovic, Marija, Aguilar, Kamille, Wyrough, Anne B., Johnson, Clara L., Luong, Shirley, Everall, Amanda C., Hitzig, Sander L., Dilkas, Steven, MacKay, Crystal, and Guilcher, Sara J. T.
- Subjects
HEALTH services accessibility ,HOME care services ,RESEARCH methodology ,COMMUNITIES ,INTERVIEWING ,CONTINUUM of care ,PATIENTS' attitudes ,QUALITATIVE research ,HOSPITAL care ,SOUND recordings ,RESEARCH funding ,LEG amputation ,THEMATIC analysis ,DISCHARGE planning ,MEDICAL coding ,REHABILITATION - Abstract
To understand how people with major limb amputation experience the transition in care from inpatient rehabilitation to the community. A qualitative study was conducted using semi-structured interviews. Individuals were eligible if they had undergone a major lower limb amputation and had been discharged from inpatient rehabilitation to the community within one to twelve months. Interviews explored participants' experiences and factors associated with the transition in care. The interviews were audio-recorded, transcribed, and thematically analyzed. Nine individuals with major lower limb amputation participated. Five themes were identified to describe the transition in care experience: (a) Preparedness: differing experiences during inpatient rehabilitation; (b) Challenges with everyday tasks: "everything has to be thought out"; (c) Importance of coping strategies; "gradually you accept it more and more" (d) Importance of support and feeling connected; "if I needed anything, they're right there" and (e) Not everyone has access to the same resources: "left to your own devices". The identified themes concurrently influenced the transition from inpatient rehabilitation to the community. Common challenges during the initial transition were identified. Areas of improvement within inpatient rehabilitation included individualized care, discussions surrounding expectations, and better access to ongoing community support. Transition in care are difficult and vulnerable times for people with major lower limb amputation, especially when transitioning home following inpatient rehabilitation. Rehabilitation should prepare individuals for completing meaningful tasks in the home and community. Access to ongoing support in the community in the form of practical and emotional support can ease the challenges of transitioning home. [ABSTRACT FROM AUTHOR]
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- 2022
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26. A qualitative study exploring individuals' experiences living with dysvascular lower limb amputation.
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MacKay, Crystal, Cimino, Stephanie R., Guilcher, Sara J. T., Mayo, Amanda L., Devlin, Michael, Dilkas, Steven, Payne, Michael W., Viana, Ricardo, and Hitzig, Sander L.
- Subjects
- *
LEG surgery , *REHABILITATION centers , *HEALTH services accessibility , *RESEARCH methodology , *INTERVIEWING , *HEALTH status indicators , *PATIENTS' attitudes , *EXPERIENCE , *QUALITATIVE research , *SOCIOECONOMIC factors , *INDEPENDENT living , *DESCRIPTIVE statistics , *RESEARCH funding , *AMPUTATION , *JUDGMENT sampling , *DATA analysis software , *CONTENT analysis - Abstract
The majority of lower extremity amputations (LEAs) are the result of diabetes or peripheral vascular disease. There is a paucity of literature on individuals' experiences living with dysvascular LEAs in the community, particularly in Canada. The purpose of this study was to explore the perceptions and experiences of community-dwelling adults living with dysvascular LEA. Semi-structured qualitative interviews were conducted with individuals with a dysvascular LEA recruited from three rehabilitation hospitals. Participants were included if they were English-speaking adults at least three months post-amputation and no longer receiving inpatient rehabilitation. Sampling was purposive to ensure variation by gender, level of amputation, and geographic location. Data were analyzed using an inductive content-analysis approach. Thirty-five interviews were completed with individuals with dysvascular LEA. Study participants portrayed LEA as having an impact on many aspects of their lives, resulting in changes in their mobility, social activities and roles, and psychological wellbeing. Three main factors shaped individuals' experiences with dysvascular LEA including social support, accessibility, and socioeconomic factors. Our findings highlight the impacts of dysvascular LEA in peoples' lives. Future research is warranted to explore how community-based interventions and strategies can address the ongoing needs of individuals with dysvascular LEA. Our findings highlight the long-term impacts of dysvascular lower extremity amputations, which resulted in changes in mobility, social activities and roles, and psychological wellbeing. Participants identified issues in access to community services and resources, including rehabilitation. Mechanisms to identify people at risk for social isolation need to be developed and implemented in rehabilitation centers. Access to ongoing rehabilitation services in the community are needed to optimize mobility outcomes and address ongoing psychological needs. [ABSTRACT FROM AUTHOR]
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- 2022
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27. Expanding roles in orthopaedic care: a comparison of physiotherapist and orthopaedic surgeon recommendations for triage
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MacKay, Crystal, Davis, Aileen M, Mahomed, Nizar, and Badley, Elizabeth M
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- 2009
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28. A Qualitative Study of Patient Perspectives on Adaptive Gaming in Rehabilitation.
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Lee, Kristyn, Subhani, Faiqa, Park, Tim, Verweel, Lee, Assivero, Kandace, and MacKay, Crystal
- Abstract
To understand Complex Continuing Care (CCC) patients' perspectives on adaptive gaming at a rehabilitation hospital in Toronto, Canada. Specifically, we explored: the meaning of adapting gaming to participants; the perceived impact of adaptive gaming; and the role of the environment on patient experiences in the adaptive gaming program. A qualitative descriptive study situated within an interpretive research paradigm was conducted. We conducted semi-structured qualitative interviews with adults who participated in the adaptive gaming program within CCC. A thematic analysis was conducted. Complex continuing care unit in a rehabilitation hospital. Individuals in CCC who were 18 years or older and have participated in the adaptive gaming program at least once were recruited. Nine participants were included for this study. Not applicable. Not applicable. Four themes were constructed: brain and body; the impact of adaptive gaming; the role of the environment; the value of leisure activities; and systems accessibility. The findings of this study indicate that participants generally identified positive impacts of the adaptive gaming program to their cognitive and physical health. Participants also identified that there are different motivators for their participation, highlighting the impact of the physical, institutional, and social environmental factors on their engagement. This study provides an understanding of the participants' perspectives on the adaptive gaming program. The study will inform improvements to the program and provide information for other hospitals considering the implementation of a similar program. The authors have no disclosures. [ABSTRACT FROM AUTHOR]
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- 2024
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29. Identifying priorities and developing strategies for building capacity in amputation research in Canada.
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Hitzig, Sander L., Mayo, Amanda L., Kayssi, Ahmed, Viana, Ricardo, MacKay, Crystal, Devlin, Michael, Dilkas, Steven, Domingo, Aristotle, Hebert, Jacqueline S., Miller, William C., Andrysek, Jan, Azhari, Fae, Baltzer, Heather L., de Mestral, Charles, Dittmer, Douglas K., Dudek, Nancy L., Grad, Sharon, Guilcher, Sara J. T., Habra, Natalie, and Hunter, Susan W.
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RESEARCH ,CONSENSUS (Social sciences) ,RESEARCH evaluation ,PRIORITY (Philosophy) ,STAKEHOLDER analysis ,HEALTH outcome assessment ,HUMAN services programs ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,INTERPROFESSIONAL relations ,DECISION making ,RESEARCH funding ,AMPUTATION ,ADULT education workshops ,DELPHI method - Abstract
Compared to other patient population groups, the field of amputation research in Canada lacks cohesion largely due to limited funding sources, lack of connection among research scientists, and loose ties among geographically dispersed healthcare centres, research institutes and advocacy groups. As a result, advances in clinical care are hampered and ultimately negatively influence outcomes of persons living with limb loss. To stimulate a national strategy on advancing amputation research in Canada, a consensus-workshop was organized with an expert panel of stakeholders to identify key research priorities and potential strategies to build researcher and funding capacity in the field. A modified Delphi approach was used to gain consensus on identifying and selecting an initial set of priorities for building research capacity in the field of amputation. This included an anonymous pre-meeting survey (N = 31 respondents) followed by an in-person consensus-workshop meeting that hosted 38 stakeholders (researchers, physiatrists, surgeons, prosthetists, occupational and physical therapists, community advocates, and people with limb loss). The top three identified research priorities were: (1) developing a national dataset; (2) obtaining health economic data to illustrate the burden of amputation to the healthcare system and to patients; and (3) improving strategies related to outcome measurement in patients with limb loss (e.g. identifying, validating, and/or developing outcome measures). Strategies for moving these priorities into action were also developed. The consensus-workshop provided an initial roadmap for limb loss research in Canada, and the event served as an important catalyst for stakeholders to initiate collaborations for moving identified priorities into action. Given the increasing number of people undergoing an amputation, there needs to be a stronger Canadian collaborative approach to generate the necessary research to enhance evidence-based clinical care and policy decision-making. Limb loss is a growing concern across North America, with lower-extremity amputations occurring due to complications arising from diabetes being a major cause. To advance knowledge about limb loss and to improve clinical care for this population, stronger connections are needed across the continuum of care (acute, rehabilitation, community) and across sectors (clinical, advocacy, industry and research). There are new surgical techniques, technologies, and rehabilitation approaches being explored to improve the health, mobility and community participation of people with limb loss, but further research evidence is needed to demonstrate efficacy and to better integrate them into standard clinical care. [ABSTRACT FROM AUTHOR]
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- 2021
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30. A single group follow-up study of non-surgical patients seen by physiotherapists working in expanded roles in orthopaedic departments: recall of recommendations, change in exercise and self-efficacy
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MacKay Crystal, Davis Aileen M, Mahomed Nizar N, and Badley Elizabeth M
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Arthritis ,Physiotherapists ,Advanced practice ,Non-surgical ,Self-management behaviours ,Orthopaedics ,Medicine ,Biology (General) ,QH301-705.5 ,Science (General) ,Q1-390 - Abstract
Abstract Background Specially trained physiotherapists (advanced practice physiotherapists (APP)) are working in orthopaedic clinics to improve access to orthopaedic services and support chronic disease management. Little attention has been paid to the impact APPs may have on non-surgical patients. In non-surgical patients with hip or knee arthritis consulting an APP in an orthopaedic clinic, the objectives were to: 1) describe patients’ recall of APP recommendations, use of self-management strategies, and barriers to management six weeks following consultation; and, 2) compare exercise behaviour and self-efficacy at baseline and six weeks. Findings This was a single group pre-and post-intervention study of patients who saw an APP when consulting the orthopaedic departments of two hospitals. At baseline and six weeks participants completed the adapted Stanford Exercise Behaviour Scale (response options: none, < 60 minutes/week, 1–3 hours/week or > 3 hours/week), and the Chronic Disease Self-efficacy Scale (range 1–10; higher scores indicate higher self-efficacy). At follow-up participants completed questions on recall of APP recommendations, use of self-management strategies and barriers to management. Seventy three non-surgical patients with hip or knee arthritis participated, a response rate of 89% at follow-up. Seventy one percent of patients reported that the APP recommended exercise, of whom 83% reported exercising to manage their arthritis since the visit. Almost 50% reported an increase in time spent stretching; over 40% reported an increase in time spent walking or doing strengthening exercises at follow-up. Common barriers to arthritis management were time, cost and other health problems. Mean chronic disease self-efficacy scores significantly improved from 6.3 to 7.2 (p Conclusions This pilot study of an APP intervention for non-surgical patients referred for orthopaedic consultation showed promising results, particularly for enhancing use of conservative management strategies such as exercise.
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- 2012
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31. Magnitude of impact and healthcare use for musculoskeletal disorders in the paediaric: a population-based study
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Gunz Anna C, Canizares Mayilee, MacKay Crystal, and Badley Elizabeth M
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Diseases of the musculoskeletal system ,RC925-935 - Abstract
Abstract Background Although musculoskeletal disorders (MSD) are among the most prevalent chronic conditions, minimal attention has been paid to the paediatric population. The aim of this study is to describe the annual prevalence of healthcare contacts for MSD by children and youth age 0-19 years, including type of MSD, care delivery setting and the specialty of the physician consulted. Methods Analysis of data on all children with healthcare contacts for MSD in Ontario, Canada using data from universal health insurance databases on ambulatory physician and emergency department (ED) visits, same-day outpatient surgery, and in-patient admissions for the fiscal year 2006/07. The proportion of children and youth seeing different physician specialties was calculated for each physician and condition grouping. Census data for the 2006 Ontario population was used to calculate person visit rates. Results 122.1 per 1,000 children and youth made visits for MSD. The majority visited for injury and related conditions (63.2 per 1,000), followed by unspecified MSD complaints (33.0 per 1,000), arthritis and related conditions (27.7 per 1,000), bone and spinal conditions (14.2 per 1,000), and congenital anomalies (3 per 1,000). Injury was the most common reason for ED visits and in-patient admissions, and arthritis and related conditions for day-surgery. The majority of children presented to primary care physicians (74.4%), surgeons (22.3%), and paediatricians (10.1%). Paediatricians were more likely to see younger children and those with congenital anomalies or arthritis and related conditions. Conclusion One in eight children and youth make physician visits for MSD in a year, suggesting that the prevalence of MSD in children may have been previously underestimated. Although most children may have self-limiting conditions, it is unknown to what extent these may deter involvement in physical activity, or be indicators of serious and potentially life-threatening conditions. Given deficiencies in medical education, particularly of primary care physicians and paediatricians, it is important that training programs devote an appropriate amount of time to paediatric MSD.
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- 2012
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32. A population-based study of ambulatory and surgical services provided by orthopaedic surgeons for musculoskeletal conditions
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Davis Aileen M, MacKay Crystal, Canizares Mayilee, Mahomed Nizar, and Badley Elizabeth M
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Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background The ongoing process of population aging is associated with an increase in prevalence of musculoskeletal conditions with a concomitant increase in the demand of orthopaedic services. Shortages of orthopaedic services have been documented in Canada and elsewhere. This population-based study describes the number of patients seen by orthopaedic surgeons in office and hospital settings to set the scene for the development of strategies that could maximize the availability of orthopaedic resources. Methods Administrative data from the Ontario Health Insurance Plan and Canadian Institute for Health Information hospital separation databases for the 2005/06 fiscal year were used to identify individuals accessing orthopaedic services in Ontario, Canada. The number of patients with encounters with orthopaedic surgeons, the number of encounters and the number of surgeries carried out by orthopaedic surgeons were estimated according to condition groups, service location, patient's age and sex. Results In 2005/06, over 520,000 Ontarians (41 per 1,000 population) had over 1.3 million encounters with orthopaedic surgeons. Of those 86% were ambulatory encounters and 14% were in hospital encounters. The majority of ambulatory encounters were for an injury or related condition (44%) followed by arthritis and related conditions (37%). Osteoarthritis accounted for 16% of all ambulatory encounters. Orthopaedic surgeons carried out over 140,000 surgeries in 2005/06: joint replacement accounted for 25% of all orthopaedic surgeries, whereas closed repair accounted for 16% and reductions accounted for 21%. Half of the orthopaedic surgeries were for arthritis and related conditions. Conclusion The large volume of ambulatory care points to the significant contribution of orthopaedic surgeons to the medical management of chronic musculoskeletal conditions including arthritis and injuries. The findings highlight that surgery is only one component of the work of orthopaedic surgeons in the management of these conditions. Policy makers and orthopaedic surgeons need to be creative in developing strategies to accommodate the growing workload of orthopaedic surgeons without sacrificing quality of care of patients with musculoskeletal conditions.
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- 2009
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33. Characteristics of evolving models of care for arthritis: A key informant study
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Veinot Paula, MacKay Crystal, and Badley Elizabeth M
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Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background The burden of arthritis is increasing in the face of diminishing health human resources to deliver care. In response, innovative models of care delivery are developing to facilitate access to quality care. Most models have developed in response to local needs with limited evaluation. The primary objective of this study is to a) examine the range of models of care that deliver specialist services using a medical/surgical specialist and at least one other health care provider and b) document the strengths and challenges of the identified models. A secondary objective is to identify key elements of best practice models of care for arthritis. Methods Semi-structured interviews were conducted with a sample of key informants with expertise in arthritis from jurisdictions with primarily publicly-funded health care systems. Qualitative data were analyzed using a constant comparative approach to identify common types of models of care, strengths and challenges of models, and key components of arthritis care. Results Seventy-four key informants were interviewed from six countries. Five main types of models of care emerged. 1) Specialized arthritis programs deliver comprehensive, multidisciplinary team care for arthritis. Two models were identified using health care providers (e.g. nurses or physiotherapists) in expanded clinical roles: 2) triage of patients with musculoskeletal conditions to the appropriate services including specialists; and 3) ongoing management in collaboration with a specialist. Two models promoting rural access were 4) rural consultation support and 5) telemedicine. Key informants described important components of models of care including knowledgeable health professionals and patients. Conclusion A range of models of care for arthritis have been developed. This classification can be used as a framework for discussing care delivery. Areas for development include integration of care across the continuum, including primary care.
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- 2008
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34. How Do Physical Therapists Approach Management of People With Early Knee Osteoarthritis? A Qualitative Study.
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MacKay, Crystal, Hawker, Gillian A, and Jaglal, Susan B
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BEHAVIOR modification , *REGULATION of body weight , *CHRONIC diseases , *COMMUNITY health services , *CONTINUING education , *EXERCISE therapy , *OUTPATIENT services in hospitals , *INTERVIEWING , *KNEE diseases , *RESEARCH methodology , *OSTEOARTHRITIS , *PROFESSIONAL employee training , *QUESTIONNAIRES , *STATISTICAL sampling , *EVIDENCE-based medicine , *DECISION making in clinical medicine , *DISEASE management , *QUALITATIVE research , *JUDGMENT sampling , *THEMATIC analysis , *PATIENT-centered care , *EARLY medical intervention , *WORK experience (Employment) , *PHYSICAL therapists' attitudes , *DESCRIPTIVE statistics - Abstract
Background Knee osteoarthritis (OA) is a leading cause of disability. There is increasing emphasis on initiating treatment earlier in the disease. Physical therapists are central to the management of OA through the delivery of exercise programs. There is a paucity of research on physical therapists' perceptions and clinical behaviors related to early knee OA management. Objective The study aimed to explore how physical therapists approached management of early knee OA, with a focus on evidence-based strategies. This is an important first step to begin to optimize care by physical therapists for this population. Design We used a qualitative, descriptive research design. Methods Semistructured interviews were conducted with 33 physical therapists working with people with knee symptoms and/or diagnosed knee OA in community or outpatient settings in Canada. Data were analyzed using thematic analysis. Results Five main themes were constructed: (1) Physical therapists' experience and training: clinical experiences and continuing professional development informed clinical decision-making. (2) Tailoring treatment from the physical therapist "toolbox:" participants described their toolbox of therapeutic interventions, highlighting the importance of tailoring treatments to people. (3) The central role of exercise and physical activity in management: exercise was consistently recommended by participants. (4) Variability in support for weight management: there was variation related to how participants addressed weight management. (5) Facilitating "buy-in" to management: physical therapists used a range of strategies to gain "buy-in." Limitations Participants were recruited through a professional association specializing in orthopedic physical therapy and worked an average of 21 years. Conclusions Participants' accounts emphasized tailoring of interventions, particularly exercises, which is an evidence-based strategy for OA. Findings illuminated variations in management that warrant further exploration to optimize early intervention (eg, weight management, behavior change techniques). [ABSTRACT FROM AUTHOR]
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- 2020
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35. An Examination of Health-Utilities in People with Dysvascular Lower Extremity Amputation.
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Hitzig, Sander, Cimino, Stephanie, Viana, Ricardo, Dilkas, Steven, Devlin, Michael, Guilcher, Sara J.T., Payne, Michael W., MacKay, Crystal, Kayssi, Ahmed, and Mayo, Amanda L.
- Abstract
To examine health utility scores in people with dysvascular lower extremity amputation (LEA). Cross-sectional telephone survey. Community. A total of 231 community-dwelling adults with dysvascular LEA participated in the study. Participants were mostly male (80.5%), were an average 63.4 years of age, and were an average 3.36 years post-amputation. Not applicable. The main outcome measures included the Special Interest Group in Amputee Medicine (SIGAM), the Dysvascular Conditions Scale (DCS), and 6D health utility scores derived from the Short Form-36 (SF-36). The mean SF-6D health utility score was 0.689 (0.127) for the sample. An association was detected between the 6D health utility score and SIGAM grade (p< 0.001). Health utility was positively associated with age (r = 0.137, p=0.037) and months post-amputation (r = 0.141, p = 0.032), and negatively associated with DCS severity (r =-0.526, p< 0.001). The 6D health utility scores were lower for participants in the DCS high-impact groups for the following conditions: diabetes mellitus, phantom limb pain, musculoskeletal pain, back pain, psychological distress, depression, vision problems, and other pain. The results of this study provides a list of health utility scores for the community-dwelling dysvascular LEA population; providing insight on how these scores are influenced by mobility and health status. 6D health utility scores can serve to inform policy and resource allocation for the LEA population. The authors have no conflicts of interest to disclose. [ABSTRACT FROM AUTHOR]
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- 2024
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36. A Qualitative Study Exploring Individuals' Perceptions of Physical Activity following Amputation.
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MacKay, Crystal, Hitzig, Sander, Devlin, Michael, Buzelli, Andresa Marinho, Mayo, Amanda L., Dilkas, Steven, and Lee, Leanna
- Abstract
To explore perceptions of physical activity from the perspective of people with lower limb amputations (LLA). A qualitative descriptive study situated within an interpretive research paradigm. Semi-structured interviews were conducted by telephone or in-person with adults living with major LLAs recruited from rehabilitation hospitals in Toronto, Canada, and advertisements on social media. Thirty-three people with LLA participated. Eligibility criteria included: 1) ≥18 years of age with a major LLA; 2) ability to communicate in English; and 3) ability to participate in a 60-minute interview. Purposive sampling was employed to ensure variation by sex, geographic location, cause and level of amputation. Not applicable. Not applicable. The majority of individuals had a unilateral, transtibial amputation (∼50% dysvascular LLA; 23 men/10 women; median age 63 years). Three main themes were developed to characterize participants' perceptions of physical activity: 1. Physical activity is perceived as important but can be challenging following amputation; 2. Physical activity has physical and mental health benefits; and 3. Physical activity is a means to maintain independence and engagement in community and social life. The findings from this qualitative study provide important insights on how people with LLA perceive physical activity. Given that people with LLA are often sedentary because of deficits in balance and community walking, these data may inform future interventions since these data illustrate how people with LLA think about physical activity, what motivates them, and what can be done to optimize their physical activity levels. Future research is needed to evaluate the effectiveness of interventions to enhance physical activity in this population. There are no disclosures for any of the authors on this proposal. [ABSTRACT FROM AUTHOR]
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- 2024
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37. Quality of Life Following Non-Dysvascular Lower Limb Amputation is Contextualized through Occupations: A Qualitative Study.
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Cimino, Stephanie, Hitzig, Sander, Fung, Vera, Sale, Joanna, Dainty, Katie, MacKay, Crystal, Mayo, Amanda L., and Guilcher, Sara J.T.
- Abstract
To understand how persons with non-dysvascular lower limb amputation (LLA) use occupations (i.e., daily activities) to construct their quality of life (QoL). Qualitative, exploratory. Tertiary rehabilitation hospital. Twenty individuals with adult-acquired non-dysvascular LLA (i.e., amputation due to trauma, cancer or infection) who were at least three months post-amputation and not undergoing in-patient rehabilitation. Not applicable. Not applicable. Two main themes were developed from the interviews using an interpretive description approach: 1) sense of self was expressed through occupations; and 2) sense of belonging with others was influenced by occupations. Participation in occupations was of high importance to persons with LLA and their ability to participate influence the way they felt about themselves. Participants also described how the change in their occupations influenced their sense of belonging. By maintaining or adapting occupations, disruptions in identity can be reduced and sense of belonging can be improved. This is an important consideration as both of these constructs have been linked to mental health and QoL in persons with LLA. Clinicians and researchers should take these findings into consideration when developing new interventions and programming that aim at improving care for this population. There are no disclosures for any of the authors on this proposal. [ABSTRACT FROM AUTHOR]
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- 2024
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38. Confidence and Attitudes Toward Osteoarthritis Care Among the Current and Emerging Health Workforce: A Multinational Interprofessional Study.
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Briggs, Andrew M., Hinman, Rana S., Darlow, Ben, Bennell, Kim L., Leech, Michelle, Pizzari, Tania, Greig, Alison M., MacKay, Crystal, Bendrups, Andrea, Larmer, Peter J., Francis‐Cracknell, Alison, Houlding, Elizabeth, Desmond, Lucy A., Jordan, Joanne E., Minaee, Novia, and Slater, Helen
- Abstract
Objective: To measure confidence and attitudes of the current and emerging interprofessional workforce concerning osteoarthritis (OA) care. Methods: Study design is a multinational (Australia, New Zealand, Canada) cross‐sectional survey of clinicians (general practitioners [GPs], GP registrars, primary care nurses, and physiotherapists) and final‐year medical and physiotherapy students. GPs and GP registrars were only sampled in Australia/New Zealand and Australia, respectively. The study outcomes are as follows: confidence in OA knowledge and skills (customized instrument), biomedical attitudes to care (Pain Attitudes Beliefs Scale [PABS]), attitudes toward high‐ and low‐value care (customized items), attitudes toward exercise/physical activity (free‐text responses). Results: A total of 1886 clinicians and 1161 students responded. Although a number of interprofessional differences were identified, confidence in OA knowledge and skills was consistently greatest among physiotherapists and lowest among nurses (eg, the mean difference [95% confidence interval (CI)] for physiotherapist‐nurse analyses were 9.3 [7.7‐10.9] for knowledge [scale: 11‐55] and 14.6 [12.3‐17.0] for skills [scale: 16‐80]). Similarly, biomedical attitudes were stronger in nurses compared with physiotherapists (6.9 [5.3‐8.4]; scale 10‐60) and in medical students compared with physiotherapy students (2.0 [1.3‐2.7]). Some clinicians and students agreed that people with OA will ultimately require total joint replacement (7%‐19% and 19%‐22%, respectively), that arthroscopy is an appropriate intervention for knee OA (18%‐36% and 35%‐44%), and that magnetic resonance imaging is informative for diagnosis and clinical management of hip/knee OA (8%‐61% and 21%‐52%). Most agreed (90%‐98% and 92%‐97%) that exercise is indicated and strongly supported by qualitative data. Conclusion: Workforce capacity building that de‐emphasizes biomedical management and promotes high‐value first‐line care options is needed. Knowledge and skills among physiotherapists support leadership roles in OA care for this discipline. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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39. Qualitative study exploring the factors influencing physical therapy management of early knee osteoarthritis in Canada.
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MacKay, Crystal, Hawker, Gillian A., and Jaglal, Susan B.
- Abstract
Objectives Increasingly, there is emphasis on identifying and initiating treatment of osteoarthritis (OA) in the early phases of the disease. This study aimed to identify the perceived barriers and facilitators to managing clients with early knee OA and the contextual factors affecting implementation of care by physical therapists (PTs). Design Qualitative study using in-depth semistructured interviews with 33 PTs. The interviews were audio-recorded, transcribed verbatim and analysed inductively using thematic analysis. Setting Canada. Participants A purposive sample of PTs who managed clients with knee symptoms and/or diagnosed knee OA in community/outpatient settings in three provinces in Canada (Ontario, Alberta, British Columbia). Results Factors that affected physical therapy management of early knee OA were identified at four levels: the community, healthcare system, healthcare provider and client level. Some healthcare provider factors acted primarily as enablers of management, such as PTs' confidence in their ability to manage perceived early knee OA, PTs' beliefs about consequences of OA and the PT scope of practice. However, the study illuminated a range of modifiable factors that can act as barriers to management. These factors included access to services in the community and healthcare system; healthcare provider factors such as time, access to evidence and physician's role in referrals and messaging; and client factors related to client characteristics (eg, general health, socioeconomic status), engagement in management and beliefs about OA. Conclusion These findings provide us with a basis to begin to address specific barriers and to optimise care for early knee OA. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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40. Commonalities and differences in the implementation of models of care for arthritis: key informant interviews from Canada.
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Cott, Cheryl A., Davis, Aileen M., Badley, Elizabeth M., Wong, Rosalind, Canizares, Mayilee, C. Li, Linda, Jones, Allyson, Brooks, Sydney, Ahlwalia, Vandana, Hawker, Gillian, Jaglal, Susan, Landry, Michel, MacKay, Crystal, Mosher, Dianne, and Li, Linda C
- Subjects
TREATMENT of arthritis ,MEDICAL care use ,NATIONAL health services ,HEALTH insurance ,STATE health plans ,ARTIFICIAL joints ,INTERVIEWING ,MATHEMATICAL models ,MEDICAL care ,HEALTH policy ,MEDICAL referrals ,RESEARCH funding ,MEDICAL triage ,THEORY - Abstract
Background: Timely access to effective treatments for arthritis is a priority at national, provincial and regional levels in Canada due to population aging coupled with limited health human resources. Models of care for arthritis are being implemented across the country but mainly in local contexts, not from an evidence-informed policy or framework. The purpose of this study is to examine existing models of care for arthritis in Canada at the local level in order to identify commonalities and differences in their implementation that could point to important considerations for health policy and service delivery.Methods: Semi-structured key informant interviews were conducted with 70 program managers and/or care providers in three Canadian provinces identified through purposive and snowball sampling followed by more detailed examination of 6 models of care (two per province). Interviews were transcribed verbatim and analyzed thematically using a qualitative descriptive approach.Results: Two broad models of care were identified for Total Joint Replacement and Inflammatory Arthritis. Commonalities included lack of complete and appropriate referrals from primary care physicians and lack of health human resources to meet local demands. Strategies included standardized referrals and centralized intake and triage using non-specialist health care professionals. Differences included the nature of the care and follow-up, the role of the specialist, and location of service delivery.Conclusions: Current models of care are mainly focused on Total Joint Replacement and Inflammatory Arthritis. Given the increasing prevalence of arthritis and that published data report only a small proportion of current service delivery is specialist care; provision of timely, appropriate care requires development, implementation and evaluation of models of care across the continuum of care. [ABSTRACT FROM AUTHOR]- Published
- 2016
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41. Qualitative Study Exploring the Meaning of Knee Symptoms to Adults Ages 35-65 Years.
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MacKay, Crystal, Sale, Joanna, Badley, Elizabeth M., Jaglal, Susan B., and Davis, Aileen M.
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OSTEOARTHRITIS diagnosis ,OSTEOARTHRITIS treatment ,AGE distribution ,ECONOMIC aspects of diseases ,FOCUS groups ,GROUNDED theory ,HEALTH attitudes ,INTERVIEWING ,KINEMATICS ,KNEE ,OSTEOARTHRITIS ,KNEE diseases ,SENSORY perception ,QUALITY of life ,READABILITY (Literary style) ,RESEARCH funding ,QUALITATIVE research ,DISEASE complications ,JOINT pain ,PREVENTION ,DIAGNOSIS ,THERAPEUTICS - Abstract
Objective: While osteoarthritis (OA) has mainly been viewed as a disease affecting older people, its prevalence in younger adults is substantial. However, there is limited research on how younger adults understand knee symptoms. This article explores the meaning of knee symptoms to adults ages 35-65 years.Methods: This qualitative study comprised 6 focus groups and 10 one-on-one interviews with 51 participants (median age 49, 61% female), who self-reported knee OA or reported knee symptoms (i.e., pain, aching, or stiffness) on most days of the past month. Constructivist grounded theory guided the sampling, data collection, and analysis. Data were analyzed using a constant comparative method.Results: Central to participants' understanding of knee symptoms was the perception that symptoms were preventable, meaning that there was the potential to prevent the onset of symptoms and to alter the course of symptoms. This understanding was demonstrated in participants' explanation of symptoms. Participants commented on the cause, prevention, and course of symptoms. Moreover, participants reflected on their experience with symptoms, indicating that symptoms made them feel older than their current age. However, they did not perceive their symptoms as normal or acceptable.Conclusion: Participants interpreted knee symptoms as potentially preventable, suggesting that they may be open to primary and secondary prevention strategies. [ABSTRACT FROM AUTHOR]- Published
- 2016
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42. Arthritis has an impact on the daily lives of Canadians young and old: results from a population-based survey.
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O'Donnell, Siobhan, Rusu, Corneliu, Hawker, Gillian A., Bernatsky, Sasha, McRae, Louise, Canizares, Mayilee, MacKay, Crystal, and Badley, Elizabeth M.
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ARTHRITIS patients ,AGE factors in disease ,CANADIANS ,HEALTH impact assessment ,DISEASES in older people ,DISEASES - Abstract
Background: There is a perception that the impacts of arthritis are greatest among older adults. However, the effect of age on health-related outcomes in individuals with arthritis has not been explicitly studied. This study examined whether the physical and mental health impacts of arthritis are greater in older (75+ years) versus younger (20-44, 45-64 and 65-74 years) Canadian adults. Methods: Data were from the arthritis component of the 2009 Survey on Living with Chronic Diseases in Canada. The responses were weighted to be representative of Canadians (≥20 years) with arthritis. Associations between age and the prevalence of severe/frequent joint pain, severe/frequent fatigue, sleep limitations, instrumental activities of daily living (IADLs) limitations, high levels of stress, suboptimal general and suboptimal mental health, were examined descriptively prior to conducting multivariate log-binomial regression analyses. Results: A total of 4565 respondents completed the survey (78 % response rate). Individuals with arthritis were mostly female (63 %), of working age (57 %) and overweight or obese (67 %). Upon adjusting for covariates, younger (20-44 years) and/or middle aged (45-64 years) adults were more likely than those older (75+ years) to report severe/frequent joint pain, sleep limitations, high levels of stress and suboptimal mental health. After adjusting for covariates, age was not associated with IADL limitations, severe/frequent fatigue or suboptimal general health. Conclusions: Contrary to the belief that older adults with arthritis experience more severe physical and mental health outcomes, we found that older adults were less likely to report worse outcomes than younger adults. In light of these findings, public health messaging should stress that arthritis does not just affect the elderly and emphasize the importance of timely diagnosis and management at all ages in order to prevent or, minimize arthritis-related impairment. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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43. A qualitative study of the consequences of knee symptoms: 'It's like you're an athlete and you go to a couch potato'.
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MacKay, Crystal, Jaglal, Susan B., Sale, Joanna, Badley, Elizabeth M., and Davis, Aileen M.
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Objectives: To explore the perceived consequences of knee symptoms on the lives of people aged 35-65 years who had diagnosed osteoarthritis (OA) or OA-like symptoms. Design: A qualitative study with six focus groups and 10 one-on-one interviews. Constructivist grounded theory guided data collection and analysis. Data were analysed using the constant comparative method. Setting: Toronto, Canada. Participants: 51 participants (median age 49; 61% female) who self-reported knee OA or reported knee pain, aching or stiffness on most days of the past month participated in the study. Results: The core finding, disruption and change, illustrates the range of perceived consequences of knee symptoms in peoples' lives. Participants described the consequences of symptoms on their physical activity (giving up high-level activities or changing how or how much they performed activities), social life (leisure, family and work) and emotional life. Knee symptoms also altered the way participants thought about their bodies and themselves. They reported that they had a new awareness of their knee and that they no longer trusted their knee. They also conveyed that their sense of self was altered. Conclusions: This study illuminates the significant and varied consequences that mild to moderate knee symptoms have on the lives of adults age 35-65 years. Findings highlight the need for clinicians to tailor advice and support to the individual's needs considering their symptoms, the consequences of symptoms on their lives and their personal context. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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44. "We're all looking for solutions": a qualitative study of the management of knee symptoms.
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MacKay, Crystal, Badley, Elizabeth M, Jaglal, Susan B, Sale, Joanna, and Davis, Aileen M
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Objective: While the prevalence of osteoarthritis (OA) increases with age, the first signs begin in the fourth or fifth decade. Little is known about how younger adults respond to OA. This study explores how people ages 35-65 years manage knee symptoms.Methods: Six focus groups were conducted with 41 participants (mean age 50.9 years, 63% women) who self-reported a diagnosis of OA or reported knee symptoms (i.e., pain, aching, or stiffness) on most days of the past month. Purposive sampling was used, seeking variation in age and sex. The principles of constructivist grounded theory guided data collection and analysis. Data were analyzed using a constant comparative method.Results: Participants engaged in a process of proactively trying to find ways to control knee symptoms and disease progression. Their approach to management was not linear, but rather a process that moved back and forth between searching for "solutions" and active management (ongoing use of strategies). During the process, participants consulted health care providers, but often perceived that medical care offered limited options and guidance. Management was constructed as a "never-ending" process that entailed effort and personal resources.Conclusion: Participants were proactive in seeking ways to manage knee OA symptoms. There is a mismatch between participants' proactive approach and the reactive approach of the health care system that has focused on late-stage disease. Programs and supports within the formal and informal health care system are required to enable people to successfully manage knee symptoms across their lifespan. [ABSTRACT FROM AUTHOR]- Published
- 2014
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45. Exercise/Physical Activity and Weight Management Efforts in Canadians With Self-Reported Arthritis.
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O'Donnell, Siobhan, Rusu, Corneliu, Bernatsky, Sasha, Hawker, Gillian, Canizares, Mayilee, MacKay, Crystal, and Badley, Elizabeth
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Objective To describe the exercise/physical activity and weight management efforts of Canadians with self-reported arthritis, to examine factors associated with their engagement in these strategies to help manage their arthritis, and to explore reasons for lack of engagement. Methods Data were from the arthritis component of the 2009 Survey on Living with Chronic Diseases in Canada. The responses (78% response rate; n = 4,565) were weighted to be representative of Canadians (ages ≥20 years) with arthritis. Logistic regression analyses were used to examine factors associated with engaging in exercise/physical activity and weight control/loss (among overweight/obese respondents) for arthritis management purposes. Results Individuals with arthritis were mostly women (63%), ages ≥45 years (89%), overweight/obese (67%), married (68%), and white (87%), with postsecondary education (69%). Sixty-three percent were exercising and of those who were overweight or obese, 68% were trying to control/lose weight; only 46% were engaged in both. Having received a clinical recommendation was the factor most strongly associated with engaging in exercise/physical activity and/or controlling/losing weight. The most common reason for not exercising was a coexisting health condition/problem (22%), while the most common reason for not controlling/losing weight among those who were overweight/obese was that it was felt not to be necessary (51%). Conclusion The provision of clinical recommendations from a health professional, providing advice on safe and suitable exercises/physical activities, as well as addressing misperceptions of the need to lose weight among the overweight/obese, may facilitate engagement in these health behaviors and ultimately reduce the consequences of arthritis. [ABSTRACT FROM AUTHOR]
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- 2013
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46. Surgery or Consultation: A Population-Based Cohort Study of Use of Orthopaedic Surgeon Services.
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Badley, Elizabeth M, Canizares, Mayilee, MacKay, Crystal, Mahomed, Nizar N., and Davis, Aileen M.
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ORTHOPEDIC surgery ,COHORT analysis ,SOCIAL epidemiology ,PUBLIC health ,MEDICAL statistics ,POPULATION biology - Abstract
Background: This population-based cohort study has the objective to understand the sociodemographic characteristics and health conditions of patients who do not receive surgery within 18 months following an ambulatory visit to an orthopaedic surgeon. Methods: Administrative healthcare databases in Ontario, Canada were linked to identify all patients making an initial ambulatory visit to orthopaedic surgeons between October 1
st , 2004 and September 30th , 2005. Logistic regression was used to examine predictors of not receiving surgery within 18 months. Results: Of the 477,945 patients in the cohort 49% visited orthopaedic surgeons for injury, and 24% for arthritis. Overall, 79.3% did not receive surgery within 18 months of the initial visit, which varied somewhat by diagnosis at first visit (84.5% for injury and 73.0% for arthritis) with highest proportions in the 0–24 and 25–44 age groups. The distribution by income quintile of patients visiting was skewed towards higher incomes. Regression analysis for each diagnostic group showed that younger patients were significantly more likely to be non-surgical than those aged 65+ years (age 0–24: OR 3.45 95%CI 3.33–3.57; age 25–44: OR 1.30 95%CI 1.27–1.33). The odds of not getting surgery were significantly higher for women than men for injury and other conditions; the opposite was true for arthritis and bone conditions. Conclusion: A substantial proportion of referrals were for expert diagnosis or advice on management and treatment. The findings also suggest socioeconomic inequalities in access to orthopaedic care. Further research is needed to investigate whether the high caseload of non-surgical cases affects waiting times to see a surgeon. This paper contributes to the development of evidence-based strategies to streamline access to surgery, and to develop models of care for non-surgical patients to optimize the use of scarce orthopaedic surgeon resources and to enhance the management of musculoskeletal disorders across the care continuum. [ABSTRACT FROM AUTHOR]- Published
- 2013
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47. Arthritis Extended-Role Practitioners: Impact on Community Practice (An Exploratory Study)
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Lineker, Sydney C., Lundon, Katie, Shupak, Rachel, Schneider, Rayfel, MacKay, Crystal, and Varatharasan, Nirupa
- Abstract
Purpose: We compared practice of extended role practitioners and experienced therapists without extended practice training to determine differences in assessment and management of clients with inflammatory arthritis, in preparation for a randomized controlled trial. Methods: Retrospective review of randomly selected charts of extended-role trained occupational therapists or physiotherapists and from experienced therapists matched on therapist discipline, geographical location, and time of referral. Three trained reviewers used standardized forms to extract data independently. Results: We reviewed 58 charts of adult clients with inflammatory arthritis. Compared with experienced therapists, extended-role practitioners were more likely to receive referrals specifically for assessments (52% vs. 14%); to treat clients with undifferentiated arthritis (48% vs. 10%); to document comorbidities (90% vs. 66%); to advocate on behalf of the client with the client's family, physician, or specialist (52% vs. 21%); to recommend or provide exercise or physical activity (86% vs. 62%); to educate clients about pain management (41% vs. 28%), energy conservation (24% vs. 14%), and posture (21% vs. 7%); to recommend splints (41% vs. 31%); and to refer for or recommend radiologic or laboratory assessments (14% vs. 3%). Experienced therapists were more likely to provide education about joint protection (41% vs. 31%), community resources (31% vs. 7%), and assistive devices (45% vs. 21%). Conclusions: We identified possible differences in practice between extended-role practitioners and experienced therapists without training for extended practice. Capturing these details in future studies evaluating the efficacy of extended role practitioner interventions will be important. [ABSTRACT FROM AUTHOR]
- Published
- 2011
48. Educational Needs of Patients Undergoing Total Joint Arthroplasty.
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Soever, Leslie J., MacKay, Crystal, Saryeddine, Tina, Davis, Aileen M., Flannery, John F., Jaglal, Susan B., Levy, Charissa, and Mahomed, Nizar
- Abstract
Purpose: To identify the educational needs of adults who undergo total hip and total knee replacement surgery. Methods: A qualitative research design using a semi-standardized interviewing method was employed. A purposive sampling technique was used to recruit participants, who were eligible if they were scheduled to undergo total hip or total knee replacement or had undergone total hip or total knee replacement in the previous 3 to 6 months. A comparative contrast method of analysis was used. Results: Of 22 potential participants who were approached, 15 participated. Five were booked for upcoming total hip or total knee replacement and 10 had undergone at least one total hip or total knee replacement in the previous 3 to 6 months. Several themes related to specific educational needs and factors affecting educational needs, including access, preoperative phase, surgery and medical recovery, rehabilitation process and functional recovery, fears, and expectations counterbalanced with responsibility, emerged from the interviews. Conclusions: Educational needs of adults who undergo total hip and knee replacement surgery encompass a broad range of topics, confirming the importance of offering an all-inclusive information package regarding total hip and total knee replacement. [ABSTRACT FROM AUTHOR]
- Published
- 2010
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49. A population-based study of ambulatory and surgical services provided by orthopaedic surgeons for musculoskeletal conditions.
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Canizares, Mayilee, MacKay, Crystal, Davis, Aileen M., Mahomed, Nizar, and Badley, Elizabeth M.
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OUTPATIENT medical care ,AMBULATORY surgery ,ORTHOPEDIC surgery ,ORTHOPEDISTS - Abstract
Background: The ongoing process of population aging is associated with an increase in prevalence of musculoskeletal conditions with a concomitant increase in the demand of orthopaedic services. Shortages of orthopaedic services have been documented in Canada and elsewhere. This population-based study describes the number of patients seen by orthopaedic surgeons in office and hospital settings to set the scene for the development of strategies that could maximize the availability of orthopaedic resources. Methods: Administrative data from the Ontario Health Insurance Plan and Canadian Institute for Health Information hospital separation databases for the 2005/06 fiscal year were used to identify individuals accessing orthopaedic services in Ontario, Canada. The number of patients with encounters with orthopaedic surgeons, the number of encounters and the number of surgeries carried out by orthopaedic surgeons were estimated according to condition groups, service location, patient's age and sex. Results: In 2005/06, over 520,000 Ontarians (41 per 1,000 population) had over 1.3 million encounters with orthopaedic surgeons. Of those 86% were ambulatory encounters and 14% were in hospital encounters. The majority of ambulatory encounters were for an injury or related condition (44%) followed by arthritis and related conditions (37%). Osteoarthritis accounted for 16% of all ambulatory encounters. Orthopaedic surgeons carried out over 140,000 surgeries in 2005/06: joint replacement accounted for 25% of all orthopaedic surgeries, whereas closed repair accounted for 16% and reductions accounted for 21%. Half of the orthopaedic surgeries were for arthritis and related conditions. Conclusion: The large volume of ambulatory care points to the significant contribution of orthopaedic surgeons to the medical management of chronic musculoskeletal conditions including arthritis and injuries. The findings highlight that surgery is only one component of the work of orthopaedic surgeons in the management of these conditions. Policy makers and orthopaedic surgeons need to be creative in developing strategies to accommodate the growing workload of orthopaedic surgeons without sacrificing quality of care of patients with musculoskeletal conditions. [ABSTRACT FROM AUTHOR]
- Published
- 2009
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50. Characteristics of evolving models of care for arthritis: A key informant study.
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MacKay, Crystal, Veinot, Paula, and Badley, Elizabeth M.
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ARTHRITIS ,MEDICAL quality control ,BEST practices ,MEDICAL triage ,CONTINUUM of care ,PRIMARY care - Abstract
Background: The burden of arthritis is increasing in the face of diminishing health human resources to deliver care. In response, innovative models of care delivery are developing to facilitate access to quality care. Most models have developed in response to local needs with limited evaluation. The primary objective of this study is to a) examine the range of models of care that deliver specialist services using a medical/surgical specialist and at least one other health care provider and b) document the strengths and challenges of the identified models. A secondary objective is to identify key elements of best practice models of care for arthritis. Methods: Semi-structured interviews were conducted with a sample of key informants with expertise in arthritis from jurisdictions with primarily publicly-funded health care systems. Qualitative data were analyzed using a constant comparative approach to identify common types of models of care, strengths and challenges of models, and key components of arthritis care. Results: Seventy-four key informants were interviewed from six countries. Five main types of models of care emerged. 1) Specialized arthritis programs deliver comprehensive, multidisciplinary team care for arthritis. Two models were identified using health care providers (e.g. nurses or physiotherapists) in expanded clinical roles: 2) triage of patients with musculoskeletal conditions to the appropriate services including specialists; and 3) ongoing management in collaboration with a specialist. Two models promoting rural access were 4) rural consultation support and 5) telemedicine. Key informants described important components of models of care including knowledgeable health professionals and patients. Conclusion: A range of models of care for arthritis have been developed. This classification can be used as a framework for discussing care delivery. Areas for development include integration of care across the continuum, including primary care. [ABSTRACT FROM AUTHOR]
- Published
- 2008
- Full Text
- View/download PDF
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