1. Using Blockchain Technology to Mitigate Challenges in Service Access for the Homeless and Data Exchange Between Providers: Qualitative Study
- Author
-
Anjum Khurshid, Steven B. Andrews, and Vivian Rajeswaren
- Subjects
blockchain ,homeless ,Service (systems architecture) ,Knowledge management ,020205 medical informatics ,data sharing ,Population ,Interoperability ,Health Informatics ,02 engineering and technology ,lcsh:Computer applications to medicine. Medical informatics ,03 medical and health sciences ,0302 clinical medicine ,Health care ,0202 electrical engineering, electronic engineering, information engineering ,Humans ,030212 general & internal medicine ,education ,distributed ledger technology ,education.field_of_study ,Original Paper ,business.industry ,End user ,Information Dissemination ,lcsh:Public aspects of medicine ,data autonomy ,lcsh:RA1-1270 ,Service provider ,health care ,Data sharing ,Disparate system ,Ill-Housed Persons ,lcsh:R858-859.7 ,business ,Delivery of Health Care - Abstract
Background In the homeless population, barriers to housing and supportive services include a lack of control or access to data. Disparate data formats and storage across multiple organizations hinder up-to-date intersystem access to records and a unified view of an individual’s health and documentation history. The utility of blockchain to solve interoperability in health care is supported in recent literature, but the technology has yet to be tested in real-life conditions encompassing the complex regulatory standards in the health sector. Objective This study aimed to test the feasibility and performance of a blockchain system in a homeless community to securely store and share data across a system of providers in the health care ecosystem. Methods We performed a series of platform demonstrations and open-ended qualitative feedback interviews to determine the key needs and barriers to user and stakeholder adoption. Account creation and data transactions promoting organizational efficiency and improved health outcomes in this population were tested with homeless users and service providers. Results Persons experiencing homelessness and care organizations could successfully create accounts, grant and revoke data sharing permissions, and transmit documents across a distributed network of providers. However, there were issues regarding the security of shared data, user experience and adoption, and organizational preparedness for service providers as end users. We tested a set of assumptions related to these problems within the project time frame and contractual obligations with an existing blockchain-based platform. Conclusions Blockchain technology provides decentralized data sharing, validation, immutability, traceability, and integration. These core features enable a secure system for the management and distribution of sensitive information. This study presents a concrete evaluation of the effectiveness of blockchain through an existing platform while revealing limitations from the perspectives of user adoption, cost-effectiveness, scalability, and regulatory frameworks.
- Published
- 2020