1. Mixed-Methods Study on Caregiver Strain, Quality of Life, and Perceived Health
- Author
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Kristian Pollock, Marianne Dunlop, Rowan H. Harwood, Juliette Lock, Alessandro Bosco, Claudio Di Lorito, Veronika van der Wardt, and Maureen Godfrey
- Subjects
Counseling ,Male ,Evidence-based practice ,Activities of daily living ,caregiver exhaustion ,Anxiety ,law.invention ,03 medical and health sciences ,0302 clinical medicine ,Quality of life (healthcare) ,Randomized controlled trial ,030502 gerontology ,law ,Surveys and Questionnaires ,Activities of Daily Living ,medicine ,Humans ,Dementia ,030212 general & internal medicine ,Effects of sleep deprivation on cognitive performance ,Aged ,Aged, 80 and over ,Depression ,General Neuroscience ,General Medicine ,Caregiver ,medicine.disease ,Anxiety Disorders ,Psychiatry and Mental health ,Clinical Psychology ,quality of life ,Caregivers ,randomized controlled trial ,Geriatrics and Gerontology ,Thematic analysis ,medicine.symptom ,0305 other medical science ,Psychology ,Research Article ,dementia ,Clinical psychology - Abstract
Background: Caring for someone with dementia is associated with negative and positive experiences. There is little evidence based on large datasets. Objective: To present data around the experience of caring for someone with dementia, to identify support (emotional and practical) needs, and inform future service provision. Methods: A mixed-methods study embedded in the Promoting Activity, Independence and Stability in Early Dementia (PrAISED) Randomized Controlled Trial. We administered questionnaires on strain, quality of life (QoL), and perceived health to 301 caregivers and assessment of cognitive performance, depression, anxiety, and disability in activities of daily living to 301 participants with dementia. Data were analyzed through descriptive and modelling statistics. A subsample of 20 patient-caregiver dyads were qualitatively interviewed. Data around caregivers’ experience of providing care were extrapolated and analyzed through inductive thematic analysis. Results: There were significant negative associations between caregiver strain and QoL (p
- Published
- 2021
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