1. The aging of families with members with intellectual disabilities.
- Author
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Takebayashi RB, Fernandes H, Cruz MGDSD, Perseguino MG, Marques SEM, and Horta ALM
- Subjects
- Aged, Family Relations psychology, Female, Humans, Intellectual Disability psychology, Interviews as Topic methods, Male, Qualitative Research, Aging psychology, Family psychology, Intellectual Disability complications
- Abstract
Objective: to understand the structure and dynamics of families in the late stage of the life cycle that have a member with intellectual disability., Method: qualitative research using the Calgary Family Assessment Model as methodological framework. The study had 38 participants, distributed into 10 families that had a member with intellectual disability and whose parents were elderly. The interviews were analyzed with content analysis technique., Results: the following analytical categories were evidenced: "living with intellectual disability", "communication as a strategy for encounter", "family isolation and the need for support" and "concerns about care in the future"., Conclusion: families in the late life cycle who had a member with intellectual disability are arranged in a structure that overloads a single caregiver (mother), has little support network, uses communication as an instrument for understanding themselves and the other, besides having difficulties in projecting the future.
- Published
- 2019
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