1. The limits of disclosure: what research subjects want to know about investigator financial interests.
- Author
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Grady C, Horstmann E, Sussman JS, and Hull SC
- Subjects
- Biomedical Research ethics, Ethics Committees, Research ethics, Humans, Informed Consent, Interviews as Topic, Qualitative Research, Therapeutic Human Experimentation economics, Therapeutic Human Experimentation ethics, Trust, United States, Attitude to Health, Biomedical Research economics, Conflict of Interest economics, Decision Making, Disclosure ethics, Ethics Committees, Research economics, Research Subjects psychology, Research Support as Topic
- Abstract
Research participants' views about investigator financial interests were explored. Reactions ranged from concern to acceptance, indifference, and even encouragement. Although most wanted such information, some said it did not matter, was private, or was burdensome, and other factors were more important to research decisions. Very few said it would affect their research decisions, and many assumed that institutions managed potential conflicts of interest. Although disclosure of investigator financial interest information to research participants is often recommended, its usefulness is limited, especially when participation is desired because of illness.
- Published
- 2006
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