1. The mediator role of unmet needs on quality of life in myeloma patients
- Author
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Carlos Alberto Gonçalves, H Marques, H Coelho, Maria da Graça Pereira, Sara Monteiro, Magda Simone Leite Pereira, Carlos F. G. C. Geraldes, Rosário Bacalhau, Gabriela Ferreira, F Leal da Costa, Margarida Vilaça, and Universidade do Minho
- Subjects
Adult ,Male ,Quality of life ,medicine.medical_specialty ,Saúde de qualidade ,Patients ,Disease ,Hospital Anxiety and Depression Scale ,Structural equation modeling ,Unmet needs ,Social support ,03 medical and health sciences ,0302 clinical medicine ,Quality of life (healthcare) ,Multiple myeloma ,Intervention (counseling) ,hemic and lymphatic diseases ,Surveys and Questionnaires ,Medicine ,Psicologia [Ciências Sociais] ,Humans ,health care economics and organizations ,Aged ,Science & Technology ,Descriptive statistics ,business.industry ,030503 health policy & services ,Public Health, Environmental and Occupational Health ,Middle Aged ,Psychological morbidity ,030220 oncology & carcinogenesis ,Family medicine ,Scale (social sciences) ,Ciências Sociais::Psicologia ,Quality of Life ,Female ,0305 other medical science ,business ,Multiple Myeloma ,Needs Assessment - Abstract
The diagnosis of multiple myeloma (MM) has a significant impact on patients. This study analyzed the mediating role of patients’ unmet needs in the relationship between psychological morbidity/social support and quality of life (QoL). Methods This study included 213 patients with MM recruited from the outpatient medical oncology and clinical hematology services from five hospitals. Patients who meet the study criteria were referred by physicians and invited to participate in the study by the researcher. All participants answered the following questionnaires: Hospital Anxiety and Depression Scale, Satisfaction with Social Support Scale, Short-Form Survivor Unmet Needs Survey, and The European Organization for Research and Treatment of Cancer’s Multiple Myeloma Module. Descriptive statistics, bivariate correlations, and structural equation modeling were performed to analyze the data. Results The indirect effect of psychological morbidity on patients’ future perspectives (MYFP) was partially mediated by information unmet needs (INF), while the indirect effect of psychological morbidity on treatment side effects (MYSE) was partially mediated by relationship and emotional unmet needs (REH). In turn, the indirect effect of psychological morbidity on disease symptoms (MYDS) was fully mediated by REH. Social support had an indirect effect on MYDS and MYSE fully mediated by REH. Conclusion Intervention programs tailored to promote MM patients’ QoL should specifically address information and emotional needs, raising awareness and training health professionals, caregivers, and family members to attend MM patients’ unmet needs., This study was supported by a grant from the Portuguese Association against Leukemia and the Portuguese Association of Leukemias and Lymphomas funded by Celgene
- Published
- 2020