1. Interprofessional provider educational needs and preferences regarding the provision of sexual and reproductive health care in cystic fibrosis
- Author
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Margaret M. Hayes, Eliza Nelson, Alan M. Leichtner, Donna Luff, S. Jean Emans, Elizabeth Miller, Gregory S. Sawicki, Traci M. Kazmerski, Lori R. Newman, and Miriam J. Haviland
- Subjects
0301 basic medicine ,Pulmonary and Respiratory Medicine ,Health Knowledge, Attitudes, Practice ,medicine.medical_specialty ,Adolescent ,Cystic Fibrosis ,Health Personnel ,media_common.quotation_subject ,education ,Urinary incontinence ,Fertility ,Interdisciplinary Studies ,Sex Education ,Young Adult ,03 medical and health sciences ,0302 clinical medicine ,Surveys and Questionnaires ,medicine ,Humans ,Young adult ,Medical History Taking ,Reproductive health ,media_common ,Descriptive statistics ,Social work ,business.industry ,Teaching ,body regions ,Reproductive Health ,030104 developmental biology ,030228 respiratory system ,Family planning ,Family medicine ,Pediatrics, Perinatology and Child Health ,Domestic violence ,Female ,Sexual Health ,medicine.symptom ,business ,Needs Assessment - Abstract
Background Sexual and reproductive health (SRH) is an important disease-specific concern for adolescent and young adult (AYA) women that is not consistently addressed in cystic fibrosis (CF) centers. This study identifies educational needs and preferences of interprofessional CF providers regarding SRH in AYA women with CF. Methods Interprofessional CF providers participated in an anonymous survey regarding general and CF-specific SRH knowledge and skills, factors for optimizing SRH care, and preferred approaches for SRH training. We calculated descriptive statistics for all respondents and stratified by provider type. Results A total of 523 providers completed the survey (39% physicians/advanced practice providers, 19% nurses, 20% social workers, and 22% other disciplines). Half reported comfort responding to female AYA SRH concerns; however, only one-third were comfortable asking appropriate questions and confident taking a sexual history. Only 29% were comfortable with their current CF-specific SRH knowledge. Respondents' preferred SRH topics for further training included: pregnancy/parenthood planning, sexual functioning, urinary incontinence, intimate partner violence, and taking a sexual history. Nearly two-thirds felt having connection to women's health specialists familiar with CF would facilitate SRH care. Approximately one-third desired SRH educational materials for providers to view at point-of-care or through online case-based learning; Conclusion Many interprofessional CF providers lack comfort and skills in addressing SRH with AYA women with CF. Provider training needs and approaches identified in this study can be used to develop tailored educational interventions to improve comprehensive CF care.
- Published
- 2019
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