1. European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE) : Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe
- Author
-
Nacul, Luis, Authier, François Jérôme, Scheibenbogen, Carmen, Lorusso, Lorenzo, Helland, Ingrid Bergliot, Martin, Jose Alegre, Sirbu, Carmen Adella, Mengshoel, Anne Marit, Polo, Olli, Behrends, Uta, Nielsen, Henrik, Grabowski, Patricia, Sekulic, Slobodan, Sepulveda, Nuno, Estévez-López, Fernando, Zalewski, Paweł, Pheby, Derek, Castro-Marrero, Jesús, Sakkas, Giorgos K., Capelli, Enrica, Brundsdlund, Ivan, Cullinan, John, Krumina, Angelika, Bergquist, Jonas, Murovska, Modra, Vermuelen, Ruud C. W., Lacerda, Eliana, Universitat Autònoma de Barcelona, Child and Adolescent Psychiatry / Psychology, Institut Català de la Salut, [Nacul L] London School of Hygiene and Tropical Medicine, Faculty of Infectious and Tropical Diseases, London WC1E 7HT, UK. BC Women’s Hospital, Vancouver, BC V6H 3N1, Canada. [Authier FJ] Faculty of Medicine Créteil—Paris Est, 94010 Creteil, France. [Scheibenbogen C] Institute of Medical Immunology, Charité-Universitätsmedizin Berlin, 10117 Berlin, Germany. [Lorusso L] Neurology and Stroke Unit—Neuroscience Department—A.S.S.T.—Lecco, 23900 Merate, Italy. [Helland IB] National Advisory Unit on CFS/ME, Oslo University Hospital, Rikshospitalet OUS, 0372 Oslo, Norway. [Martin JA] Unitat de Fatiga Crònica, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Vall d’Hebron Institut de Recerca (VHIR), Barcelona, Spain. Universitat Autònoma de Barcelona, Bellaterra, Spain. [Castro-Marrero J] Secció de Reumatologia, Unitat de Recerca en Síndrome de Fatiga Crònica / Encefalomielitis Miàlgica (SFC/EM), Vall d’Hebron Institut de Recerca (VHIR), Barcelona, Spain, and Vall d'Hebron Barcelona Hospital Campus
- Subjects
Chronic Fatigue Syndrome ,Medicine (General) ,diagnosis ,Service provision ,Encephalomyelitis ,Care ,Malalties - Presa de decisions ,Health services ,0302 clinical medicine ,Health care ,Diagnosis ,Other subheadings::/diagnosis [Other subheadings] ,030212 general & internal medicine ,health care economics and organizations ,Fatigue Syndrome, Chronic ,General Medicine ,Psychological Phenomena::Mental Processes::Thinking::Decision Making::Consensus [PSYCHIATRY AND PSYCHOLOGY] ,ddc ,Europe ,Nervous System Diseases::Central Nervous System Diseases::Encephalomyelitis::Nervous System Diseases::Fatigue Syndrome, Chronic [DISEASES] ,localizaciones geográficas::Europa (continente) [DENOMINACIONES GEOGRÁFICAS] ,fenómenos psicológicos::procesos mentales::pensamiento::toma de decisión::consenso [PSIQUIATRÍA Y PSICOLOGÍA] ,Myalgic Encephalomyelitis ,Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi ,musculoskeletal diseases ,medicine.medical_specialty ,Opinion ,Consensus ,Otros calificadores::/diagnóstico [Otros calificadores] ,Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ,Geographic Locations::Europe [GEOGRAPHICALS] ,Síndrome de fatiga crònica - Diagnòstic - Europa ,03 medical and health sciences ,R5-920 ,medicine ,Chronic fatigue syndrome ,Humans ,care ,health services ,enfermedades del sistema nervioso::enfermedades del sistema nervioso central::encefalomielitis::enfermedades del sistema nervioso::síndrome de fatiga crónica [ENFERMEDADES] ,business.industry ,Network on ,Expert consensus ,Health Care Service and Management, Health Policy and Services and Health Economy ,medicine.disease ,Family medicine ,Clinical diagnosis ,business ,Delivery of Health Care ,030217 neurology & neurosurgery - Abstract
Encefalomielitis miàlgica/síndrome de fatiga crònica; Cura; Diagnòstic Myalgic encephalomyelitis/chronic fatigue syndrome; Care; Diagnosis Encefalomielitis miálgica/síndrome de fatiga crónica; Cuidado; Diagnóstico Designed by a group of ME/CFS researchers and health professionals, the European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE) has received funding from the European Cooperation in Science and Technology (COST)—COST action 15111—from 2016 to 2020. The main goal of the Cost Action was to assess the existing knowledge and experience on health care delivery for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in European countries, and to enhance coordinated research and health care provision in this field. We report our findings and make recommendations for clinical diagnosis, health services and care for people with ME/CFS in Europe, as prepared by the group of clinicians and researchers from 22 countries and 55 European health professionals and researchers, who have been informed by people with ME/CFS. This research received no external funding. EUROMENE receives funding for networking activities from the COST programme (COST Action 15111), via the COST Association.
- Published
- 2021