1. Facilitators and barriers of help-seeking for persons with dementia in Asia-findings from a qualitative study of informal caregivers.
- Author
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Jeyagurunathan A, Yuan Q, Samari E, Zhang Y, Goveas R, Ng LL, and Subramaniam M
- Subjects
- Humans, Female, Male, Singapore, Middle Aged, Aged, Adult, Health Knowledge, Attitudes, Practice, Help-Seeking Behavior, Interviews as Topic, Dementia, Caregivers psychology, Qualitative Research, Patient Acceptance of Health Care statistics & numerical data, Patient Acceptance of Health Care psychology, COVID-19 psychology
- Abstract
Background and Aim: The deterioration in cognition of persons with dementia (PWD) makes their caregivers key players in their help-seeking process. This study aimed to identify the facilitators and barriers of help-seeking for persons with dementia in Asia from the perspective of their informal caregivers., Methods: A qualitative methodology was adopted in the current study. Twenty-nine informal caregivers of PWD in Singapore were interviewed between April 2019 and December 2020. All interviews were audio-recorded and transcribed verbatim for the analysis., Results: The transcripts were analyzed using inductive thematic analysis. The results revealed four major themes with 12 sub-themes, including (1) Barriers to diagnosis-seeking (i.e., lack of knowledge and awareness of dementia, emotional denial, resistance from PWD, and delays in the healthcare system); (2) Facilitators of diagnosis-seeking (i.e., synergy between awareness of dementia and an active diagnosis-seeking intention and incidental diagnosis resulting from seeking treatment for comorbid conditions); (3) Barriers to treatment-seeking (i.e., challenges from PWD and disease, challenges faced by caregivers when seeking treatment for PWD, and challenges imposed by the COVID-19 pandemic); (4) Facilitators of treatment-seeking (i.e., caregivers' capabilities of handling PWD, cooperation/compliance from PWD, and an integrated care plan for PWD)., Conclusion: The findings highlight the importance of raising public awareness, enabling health professionals to tailor psychosocial interventions better, and improving community support through dementia awareness and education., Competing Interests: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest., (Copyright © 2024 Jeyagurunathan, Yuan, Samari, Zhang, Goveas, Ng and Subramaniam.)
- Published
- 2024
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