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This article considers the disclosure, sharing and exchange of information on being donor conceived within families, drawing on data from a study undertaken with donor-conceived adults registered with UK Donor Link (a voluntary DNA-linking register). This paper considers the narratives of how respondents found out they were donor-conceived and what events triggered disclosure of this information. This paper then goes on to examine the role secrecy played in their family life and uses the concept of 'display' to explore how secrecy affected their relationships with their immediate and extended family. Secrets are notoriously 'leaky' and we found complex patterns of knowing and uncertainty about whom in the family knew that the person was donor-conceived. We argue that what is kept secret and from whom provides insights into the multifaceted web of social relationships that can be created by donor-conception, and how knowledge can be managed and controlled in attempts to display and maintain family narratives of biogenetic connection., (© 2017 Foundation for the Sociology of Health & Illness.)

This paper reports on and discusses the findings of an online survey initiated by the Donor Sibling Registry of 108 parents of children conceived following oocyte donation. Respondents generally supported early disclosure of donor conception to the child, although some bias in favour of disclosure cannot be excluded, given the recruitment source. Even so, extensive uncertainty regarding the optimum time for disclosure was evident. Around half of the parents who had either expressly chosen (50.0%), or had been given no choice of, an anonymous donor (54.1%) subsequently wished they had used an open-identity donor. A total of 87% of respondents showed interest in identifying and making contact with their donor and with other families containing children sharing the same donor, and 19% had already made such contact. The survey revealed considerable variations in respondents' experiences of clinic practices regarding the availability of counselling, information provided about choice of donor type, advice regarding disclosure and the reporting of births, indicating keys areas for improved professional practice. This paper reports on and discusses the findings of an online survey initiated by the Donor Sibling Registry of 108 parents of children conceived following ooctye donation. Respondents generally supported early disclosure of donor conception to the child, although extensive uncertainty regarding the optimum time for disclosure was evident. Around half of the parents who had either expressly chosen, or had been given no choice of, an anonymous donor subsequently wished they had used an open identity donor. A number of respondents showed interest in identifying and making contact with their donor and with other families containing children sharing the same donor, and a minority had already made such contact. The survey revealed considerable variations in respondents' experiences of clinic practices regarding the availability of counselling, information provided about choice of donor type, advice regarding disclosure and the reporting of births, indicating keys areas for improved professional practice., (Copyright © 2012 Reproductive Healthcare Ltd. Published by Elsevier Ltd. All rights reserved.)

This paper reports on a Canadian study of the views of 15 women who had altruistically donated oocytes to a friend or a relative for family building and 18 women who had received oocytes donated by a friend or a relative towards disclosure of the donation to both the donor-conceived child and the child(ren) of the donor. Semi-structured interviews were undertaken with participants either in person or by telephone. The vast majority of donors and recipients reported concordance regarding disclosure. There was a greater tendency towards disclosure than for non-disclosure, especially where the donation had resulted in the birth of a child. Nevertheless, participants expressed considerable ambiguity around the optimum time for disclosure. The study highlights unique characteristics in co-ordinating disclosure plans to children in both families when the donors also had young child(ren) and how the relationships between donors and recipients and their families may be expected to impact on, and be impacted by, their disclosure decisions. These include the psychological and social costs that may occur when donors and recipients disagree regarding disclosure. Findings from this study contribute to the currently limited research evidence on disclosure to children in both donor and recipient families following known oocyte donation. This paper reports on a Canadian study of the views of 15 women who had altruistically donated oocytes to a friend or a relative for family building and 18 women who had received oocytes donated by a friend or a relative towards disclosure of the donation to both the donor-conceived child and the child(ren) of the donor. Semi-structured interviews were undertaken with participants either in person or by telephone. The vast majority of donors and recipients reported concordance regarding disclosure. There was a greater tendency towards disclosure than for non-disclosure, especially where the donation had resulted in the birth of a child. Nevertheless, participants expressed considerable ambiguity around the optimum time for disclosure. The study highlights unique characteristics in co-ordinating disclosure plans to children in both families when the donors also had young child(ren), and how the relationships between donors and recipients and their families may be expected to impact on, and be impacted by, their disclosure decisions. These include the psychological and social costs that may occur when donors and recipients disagree regarding disclosure. Findings from this study contribute to the currently limited research evidence on disclosure to children in both donor and recipient families following known oocyte donation., (Copyright © 2011 Reproductive Healthcare Ltd. Published by Elsevier Ltd. All rights reserved.)

Study Question: What contact arrangements are established between providers and recipients of embryos using Snowflakes® Embryo Adoption Program?Summary Answer: Contact arrangements varied considerably and were generally positively described, although some challenges were acknowledged.What Is Known Already: Reproductive technologies create new and diverse family forms, and the ways in which families created by embryo adoption are negotiated in practice have not been extensively investigated.Study Design, Size, Duration: This exploratory, mixed-methods study had two phases: (i) an online survey (open May-September 2013) and (ii) qualitative semi-structured interviews by email (conducted between 2014 and 2015), exploring participants' experiences of contact with their embryo provider or recipient.Participants/materials, Setting, Methods: Phase I included 17 providers (14 women and 3 men) and 28 recipients (27 women and 1 man). Phase II included 8 providers (5 women and 3 men) and 12 recipients (10 women and 2 men). All participants, except one, were located in the US.Main Results and the Role Of Chance: This study illustrates how embryo adoption in the US, as a form of conditional donation, can operate and how the participants define and negotiate these emerging relationships. All families were open with their children about how they were conceived and early contact between recipients and providers (frequently before birth) was valued. On the whole, participants were happy with the amount and type of contact they had, and where the current contact did not involve the children, it was seen as a way of keeping the channels open for future contact when the children were older. Participants often portrayed the opportunities for contact as being in the best interests of the child.Limitations, Reasons For Caution: The study participants are a particular group who had chosen to either receive or give their embryos via a conditional embryo adoption agency in the US and had established contact. Therefore, this is not a representative sample of those who provide or receive embryos for family building.Wider Implications Of the Findings: This embryo adoption model clearly fulfils a need; some people want to use a conditional embryo donation programme such as Snowflakes®. Some form of 'ongoing support mechanism' such as counselling could be useful for those negotiating the complex sets of new kinship patterns and balancing these relationships with their children's welfare.Study Funding/competing Interest(s): The authors have no conflict of interest to declare. Snowflakes is a commercial adoption agency and the authors have no relation to the organization, other than requesting that they participate in this research project.Trial Registration Number: N/A. [ABSTRACT FROM AUTHOR]

This paper presents the findings of a qualitative investigation of the experience of parents in the UK who have built their families through donor conception and have told their children about their origins. Key themes identified in the study include parental motivation for disclosure, the relationship between telling the child and telling others, the importance of the 'seed-planting' strategy for telling children, and 'ownership' of information about the child's conception. The paper concludes by discussing the implications of the research findings for encouraging parental disclosure of donor conception as advocated in the UK's Human Fertilisation and Embryology Act 2008. [ABSTRACT FROM AUTHOR]