5 results on '"Vernooij-Dassen, Myrra"'
Search Results
2. A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme
- Author
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Hockley, Jo, Froggatt, Katherine, Van Den Block, Lieve, Onwuteaka-Philipsen, Bregje, Kylänen, Marika, Szczerbińska, Katarzyna, Gambassi, Giovanni, Pautex, Sophie, Payne, Sheila Alison, Arrue, Borja, Baranska, Ilona, Deliens, Luc, Engels, Yvonne, Finne-Soveri, Harriet, Kijowska, Viola, Ten Koppel, Maud, Mammarella, Federica, Smets, Tinne, Oosterveld-Vlug, Mariska, Pasman, Roeline, Piers, Ruth, Pivodic, Lara, Van Der Steen, Jenny, Van Den Noortgate, Nele, Van Hout, Hein, Wichmann, Anne, Vernooij-Dassen, Myrra, End-of-life Care Research Group, Clinical sciences, Public and occupational health, APH - Aging & Later Life, APH - Quality of Care, and General practice
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Cross-Cultural Comparison ,Palliative care ,Alzheimer`s disease Donders Center for Medical Neuroscience [Radboudumc 1] ,GOLD STANDARDS FRAMEWORK ,education ,Psychological intervention ,Social Sciences ,Intervention ,Development ,Health informatics ,Health administration ,PATHWAY ,03 medical and health sciences ,0302 clinical medicine ,Intervention (counseling) ,Medicine and Health Sciences ,Medicine ,Humans ,030212 general & internal medicine ,Pace ,Medical education ,Terminal Care ,Cross-cultural adaptation ,BARRIERS ,business.industry ,Long-term care facilities ,Nursing home ,4. Education ,030503 health policy & services ,Health Policy ,Nursing research ,lcsh:Public aspects of medicine ,lcsh:RA1-1270 ,Long-Term Care ,Quality Improvement ,Nursing Homes ,Europe ,End-of-life care ,Implementation ,ddc:618.97 ,OF-LIFE CARE ,0305 other medical science ,business ,Research Article - Abstract
Background The PACE Steps to Success programme is a complex educational and development intervention to improve palliative care in nursing homes. Little research has investigated processes in the cross-cultural adaptation and implementation of interventions in palliative care across countries, taking account of differences in health and social care systems, legal and regulatory policies, and cultural norms. This paper describes a framework for the cross-cultural development and support necessary to implement such an intervention, taking the PACE Steps to Success programme as an exemplar. Methods The PACE Steps to Success programme was implemented as part of the PACE cluster randomised control trial in seven European countries. A three stage approach was used, a) preparation of resources; b) training in the intervention using a train-the-trainers model; and c) cascading support throughout the implementation. All stages were underpinned by cross-cultural adaptation, including recognising legal and cultural norms, sensitivities and languages. This paper draws upon collated evidence from minutes of international meetings, evaluations of training delivered, interviews with those delivering the intervention in nursing homes and providing and/or receiving support. Results Seventy eight nursing homes participated in the trial, with half randomized to receive the intervention, 3638 nurses/care assistants were identified at baseline. In each country, 1–3 trainers were selected (total n = 16) to deliver the intervention. A framework was used to guide the cross-cultural adaptation and implementation. Adaptation of three English training resources for different groups of staff consisted of simplification of content, identification of validated implementation tools, a review in 2 nursing homes in each country, and translation into local languages. The same training was provided to all country trainers who cascaded it into intervention nursing homes in local languages, and facilitated it via in-house PACE coordinators. Support was cascaded from country trainers to staff implementing the intervention. Conclusions There is little guidance on how to adapt complex interventions developed in one country and language to international contexts. This framework for cross-cultural adaptation and implementation of a complex educational and development intervention may be useful to others seeking to transfer quality improvement initiatives in other contexts.
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- 2019
3. Strategies for the implementation of palliative care education and organizational interventions in long-term care facilities: A scoping review.
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Collingridge Moore, Danni, Payne, Sheila, Van den Block, Lieve, Ling, Julie, Froggatt, Katherine, Gatsolaeva, Yuliana, Honinx, Elisabeth, Pivodic, Lara, Miranda, Rose, Onwuteaka-Philipsen, Bregje D., van Hout, Hein, Pasman, H. Roeline W., Oosterveld-Vlug, Mariska, Ten Koppel, Maud, Piers, Ruth, Van Den Noortgate, Nele, Engels, Yvonne, Vernooij-Dassen, Myrra, Hockley, Jo, and Szczerbińska, Katarzyna
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CINAHL database ,HEALTH services accessibility ,MEDICAL information storage & retrieval systems ,PSYCHOLOGY information storage & retrieval systems ,INTEGRATED health care delivery ,LONG-term health care ,MEDICAL practice ,MEDLINE ,PALLIATIVE treatment ,STRATEGIC planning ,SYSTEMATIC reviews - Abstract
Background: The number of older people dying in long-term care facilities is increasing; however, care at the end of life can be suboptimal. Interventions to improve palliative care delivery within these settings have been shown to be effective in improving care, but little is known about their implementation. Aim: The aim of this study was to describe the nature of implementation strategies and to identify facilitators and/or barriers to implementing palliative care interventions in long-term care facilities. Design: Scoping review with a thematic synthesis, following the ENTREQ guidelines. Data sources: Published literature was identified from electronic databases, including MEDLINE, EMBASE, PsycINFO and CINAHL. Controlled, non-controlled and qualitative studies and evaluations of interventions to improve palliative care in long-term care facilities were included. Studies that met the inclusion criteria were sourced and data extracted on the study characteristics, the implementation of the intervention, and facilitators and/or barriers to implementation. Results: The review identified 8902 abstracts, from which 61 studies were included in the review. A matrix of implementation was developed with four implementation strategies (facilitation, education/training, internal engagement and external engagement) and three implementation stages (conditions to introduce the intervention, embedding the intervention within day-to-day practice and sustaining ongoing change). Conclusion: Incorporating an implementation strategy into the development and delivery of an intervention is integral in embedding change in practice. The review has shown that the four implementation strategies identified varied considerably across interventions; however, similar facilitators and barriers were encountered across the studies identified. Further research is needed to understand the extent to which different implementation strategies can facilitate the uptake of palliative care interventions in long-term care facilities. [ABSTRACT FROM AUTHOR]
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- 2020
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4. Perspectives of decision-making in requests for euthanasia: A qualitative research among patients, relatives and treating physicians in the Netherlands.
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Dees, Marianne K, Vernooij-Dassen, Myrra J, Dekkers, Wim J, Elwyn, Glyn, Vissers, Kris C, and Van Weel, Chris
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DECISION making , *EUTHANASIA , *INTERVIEWING , *PATIENTS , *LEGAL status of patients , *QUALITATIVE research , *DATA analysis , *THEMATIC analysis - Abstract
The article discusses a study to evaluate the decision-making process in cases where patients request euthanasia and understand the different themes relevant to help in the decision-making process. Participants included 32 cases, 31 relatives and 28 treating physicians from the Netherlands. The findings revealed that several factors like sharing information, relationship building and negotiation, legal requirements, and aftercare helped influence the decision of a request for euthanasia.
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- 2013
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5. Improving palliative care in selected settings in England using quality indicators: a realist evaluation
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Iliffe, Steve, Davies, Nathan, Manthorpe, Jill, Crome, Peter, Ahmedzai, Sam H, Vernooij-Dassen, Myrra, and Engels, Yvonne
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Male ,Alzheimer`s disease Donders Center for Medical Neuroscience [Radboudumc 1] ,Evidence-based practice ,Quality management ,Palliative care ,Referral ,Health Services for the Aged ,media_common.quotation_subject ,Best practice ,Care homes ,Quality indicators ,Patient Care Planning ,Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18] ,03 medical and health sciences ,0302 clinical medicine ,Nursing ,Electronic Health Records ,Humans ,Medicine ,Quality (business) ,030212 general & internal medicine ,Patient Comfort ,Quality improvement ,Quality Indicators, Health Care ,Quality of Health Care ,Cancer ,media_common ,Medicine(all) ,Terminal Care ,business.industry ,030503 health policy & services ,Medical record ,Hospices ,General Medicine ,Primary care ,3. Good health ,Hospitalization ,England ,Evidence-Based Practice ,Female ,Dementia ,0305 other medical science ,business ,Realist evaluation ,End-of-life care ,Research Article - Abstract
Background There is a gap between readily available evidence of best practice and its use in everyday palliative care. The IMPACT study evaluated the potential of facilitated use of Quality Indicators as tools to improve palliative care in different settings in England. Methods 1) Modelling palliative care services and selecting a set of Quality Indicators to form the core of an intervention, 2) Case studies of intervention using the Quality Indicator set supported by an expert in service change in selected settings (general practice, community palliative care teams, care homes, hospital wards, in-patient hospices) with a before-and-after evaluation, and 3) realist evaluation of processes and outcomes across settings. Participants in each setting were supported to identify no more than three Quality Indicators to work on over an eight-month period in 2013/2014. Results General practices could not be recruited to the study. Care homes were recruited but not retained. Hospital wards were recruited and retained, and using the Quality Indicator (QI) set achieved some of their desired changes. Hospices and community palliative care teams were able to use the QI set to achieve almost all their desired changes, and develop plans for quality improvements. Improvements included: increasing the utility of electronic medical records, writing a manual for end of life care, establishing working relationships with a hospice; standardising information transfer between settings, holding regular multi-disciplinary team meetings, exploration of family carers’ views and experiences; developing referral criteria, and improvement of information transfer at patient discharge to home or to hospital. Realist evaluation suggested that: 1) uptake and use of QIs are determined by organisational orientation towards continuous improvement; 2) the perceived value of a QI package was not powerful enough for GPs and care homes to commit to or sustain involvement; 3) the QI set may have been to narrow in focus, or more specialist than generalist; and 4) the greater the settings’ ‘top-down’ engagement with this change project, the more problematic was its implementation. Conclusions Whilst use of QIs may facilitate improvements in specialist palliative care services, different QI sets may be needed for generalist care settings. Electronic supplementary material The online version of this article (doi:10.1186/s12904-016-0144-1) contains supplementary material, which is available to authorized users.
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