14 results on '"Engels, Yvonne"'
Search Results
2. A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme
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Hockley, Jo, Froggatt, Katherine, Van Den Block, Lieve, Onwuteaka-Philipsen, Bregje, Kylänen, Marika, Szczerbińska, Katarzyna, Gambassi, Giovanni, Pautex, Sophie, Payne, Sheila Alison, Arrue, Borja, Baranska, Ilona, Deliens, Luc, Engels, Yvonne, Finne-Soveri, Harriet, Kijowska, Viola, Ten Koppel, Maud, Mammarella, Federica, Smets, Tinne, Oosterveld-Vlug, Mariska, Pasman, Roeline, Piers, Ruth, Pivodic, Lara, Van Der Steen, Jenny, Van Den Noortgate, Nele, Van Hout, Hein, Wichmann, Anne, Vernooij-Dassen, Myrra, End-of-life Care Research Group, Clinical sciences, Public and occupational health, APH - Aging & Later Life, APH - Quality of Care, and General practice
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Cross-Cultural Comparison ,Palliative care ,Alzheimer`s disease Donders Center for Medical Neuroscience [Radboudumc 1] ,GOLD STANDARDS FRAMEWORK ,education ,Psychological intervention ,Social Sciences ,Intervention ,Development ,Health informatics ,Health administration ,PATHWAY ,03 medical and health sciences ,0302 clinical medicine ,Intervention (counseling) ,Medicine and Health Sciences ,Medicine ,Humans ,030212 general & internal medicine ,Pace ,Medical education ,Terminal Care ,Cross-cultural adaptation ,BARRIERS ,business.industry ,Long-term care facilities ,Nursing home ,4. Education ,030503 health policy & services ,Health Policy ,Nursing research ,lcsh:Public aspects of medicine ,lcsh:RA1-1270 ,Long-Term Care ,Quality Improvement ,Nursing Homes ,Europe ,End-of-life care ,Implementation ,ddc:618.97 ,OF-LIFE CARE ,0305 other medical science ,business ,Research Article - Abstract
Background The PACE Steps to Success programme is a complex educational and development intervention to improve palliative care in nursing homes. Little research has investigated processes in the cross-cultural adaptation and implementation of interventions in palliative care across countries, taking account of differences in health and social care systems, legal and regulatory policies, and cultural norms. This paper describes a framework for the cross-cultural development and support necessary to implement such an intervention, taking the PACE Steps to Success programme as an exemplar. Methods The PACE Steps to Success programme was implemented as part of the PACE cluster randomised control trial in seven European countries. A three stage approach was used, a) preparation of resources; b) training in the intervention using a train-the-trainers model; and c) cascading support throughout the implementation. All stages were underpinned by cross-cultural adaptation, including recognising legal and cultural norms, sensitivities and languages. This paper draws upon collated evidence from minutes of international meetings, evaluations of training delivered, interviews with those delivering the intervention in nursing homes and providing and/or receiving support. Results Seventy eight nursing homes participated in the trial, with half randomized to receive the intervention, 3638 nurses/care assistants were identified at baseline. In each country, 1–3 trainers were selected (total n = 16) to deliver the intervention. A framework was used to guide the cross-cultural adaptation and implementation. Adaptation of three English training resources for different groups of staff consisted of simplification of content, identification of validated implementation tools, a review in 2 nursing homes in each country, and translation into local languages. The same training was provided to all country trainers who cascaded it into intervention nursing homes in local languages, and facilitated it via in-house PACE coordinators. Support was cascaded from country trainers to staff implementing the intervention. Conclusions There is little guidance on how to adapt complex interventions developed in one country and language to international contexts. This framework for cross-cultural adaptation and implementation of a complex educational and development intervention may be useful to others seeking to transfer quality improvement initiatives in other contexts.
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- 2019
3. Correction: Technical-efficiency analysis of end-of-life care in long-term care facilities within Europe: A cross-sectional study of deceased residents in 6 EU countries (PACE)
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Wichmann, Anne B, Adang, Eddy M M, Vissers, Kris C P, Szczerbinska, Katarzyna, Kylänen, Marika, Payne, Sheila, Gambassi, Giovanni, Onwuteaka-Philipsen, Bregje D, Smets, Tinne, Van den Block, Lieve, Deliens, Luc, Vernooij-Dassen, Myrra J F J, Engels, Yvonne, PACE consortium, Family Medicine and Chronic Care, Clinical sciences, and End-of-life Care Research Group
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Terminal Care ,Multidisciplinary ,Agricultural and Biological Sciences(all) ,Biochemistry, Genetics and Molecular Biology(all) ,lcsh:R ,lcsh:Medicine ,Correction ,Long-Term Care ,Europe ,Cross-Sectional Studies ,Bias ,Humans ,Regression Analysis ,lcsh:Q ,European Union ,lcsh:Science - Abstract
An ageing population in the EU leads to a higher need of long-term institutional care at the end of life. At the same time, healthcare costs rise while resources remain limited. Consequently, an urgency to extend our knowledge on factors affecting efficiency of long-term care facilities (LTCFs) arises. This study aims to investigate and explain variation in technical efficiency of end-of-life care within and between LTCFs of six EU countries: Belgium (Flanders), England, Finland, Italy, the Netherlands and Poland. In this study, technical efficiency reflects the LTCFs' ability to obtain maximal quality of life (QoL) and quality of dying (QoD) for residents from a given set of resource inputs (personnel and capacity).Cross-sectional data were collected by means of questionnaires on deceased residents identified by LTCFs over a three-month period. An output-oriented data-envelopment analysis (DEA) was performed, producing efficiency scores, incorporating personnel and capacity as input and QoL and QoD as output. Scenario analysis was conducted. Regression analysis was performed on explanatory (country, LTCF type, ownership, availability of palliative care and opioids) and case mix (disease severity) variables.133 LTCFs of only one type (onsite nurses and offsite GPs) were considered in order to reduce heterogeneity. Variation in LTCF efficiency was found across as well as within countries. This variation was not explained by country, ownership, availability of palliative care or opioids. However, in the 'hands-on care at the bedside' scenario, i.e. only taking into account nursing and care assistants as input, Poland (p = 0.00) and Finland (p = 0.04) seemed to be most efficient.Efficiency of LTCFs differed extensively across as well as within countries, indicating room for considerable efficiency improvement. Our findings should be interpreted cautiously, as comprehensive comparative EU-wide research is challenging as it is influenced by many factors.
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- 2018
4. Development of a set of process and structure indicators for palliative care: the Europall project
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Woitha Kathrin, Van Beek Karen, Ahmed Nisar, Hasselaar Jeroen, Mollard Jean-Marc, Colombet Isabelle, Radbruch Lukas, Vissers Kris, and Engels Yvonne
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Quality indicator ,Organisation ,Europe ,Public health ,Palliative care ,Europall ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background By measuring the quality of the organisation of palliative care with process and structure quality indicators (QIs), patients, caregivers and policy makers are able to monitor to what extent recommendations are met, like those of the council of the WHO on palliative care and guidelines. This will support the implementation of public programmes, and will enable comparisons between organisations or countries. Methods As no European set of indicators for the organisation of palliative care existed, such a set of QIs was developed. An update of a previous systematic review was made and extended with more databases and grey literature. In two project meetings with practitioners and experts in palliative care the development process of a QI set was finalised and the QIs were categorized in a framework, covering the recommendations of the Council of Europe. Results The searches resulted in 151 structure and process indicators, which were discussed in steering group meetings. Of those QIs, 110 were eligible for the final framework. Conclusions We developed the first set of QIs for the organisation of palliative care. This article is the first step in a multi step project to identify, validate and pilot QIs.
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- 2012
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5. Strategies to implement evidence into practice to improve palliative care: Recommendations of a nominal group approach with expert opinion leaders Ethics, organization and policy
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van Riet Paap, Jasper, Vissers, Kris, Iliffe, Steve, Radbruch, Lukas, Hjermstad, Marianne Jensen, Chattat, Rabih, Vernooij-Dassen, Myrra, Engels, Yvonne, Van Riet Paap, Jasper, Vissers, Kri, Iliffe, Steve, Radbruch, Luka, Hjermstad, Marianne J., Chattat, Rabih, Vernooij-Dassen, Myrra, and Engels, Yvonne
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Europe ,Nominal group technique ,Evidence-Based Practice ,Research ,Medicine (all) ,Palliative Care ,Implementation strategie ,Quality improvement ,Delivery of Health Care ,Expert Testimony ,Human - Abstract
Background In the past decades, many new insights and best practices in palliative care, a relatively new field in health care, have been published. However, this knowledge is often not implemented. The aim of this study therefore was to identify strategies to implement improvement activities identified in a research project within daily palliative care practice. Methods A nominal group technique was used with members of the IMPACT consortium, being international researchers and clinicians in cancer care, dementia care and palliative care. Participants identified and prioritized implementation strategies. Data was analyzed qualitatively using inductive coding. Results Twenty international clinicians and researchers participated in one of two parallel nominal group sessions. The recommended strategies to implement results from a research project were grouped in five common themes: 1. Dissemination of results e.g. by publishing results tailored to relevant audiences, 2. Identification and dissemination of unique selling points, 3. education e.g. by developing e-learning tools and integrating scientific evidence into core curricula, 4. Stimulation of participation of stakeholders, and 5. consideration of consequences e.g. rewarding services for their implementation successes but not services that fail to implement quality improvement activities. Discussion The added value of this nominal group study lies in the prioritisation by the experts of strategies to influence the implementation of quality improvement activities in palliative care. Efforts to ensure future use of scientific findings should be built into research projects in order to prevent waste of resources. © 2015 van Riet Paap et al. Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/)
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- 2015
6. Technical-efficiency analysis of end-of-life care in long-term care facilities within Europe: A cross-sectional study of deceased residents in 6 EU countries (PACE).
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Wichmann, Anne B., Adang, Eddy M. M., Vissers, Kris C. P., Szczerbińska, Katarzyna, Kylänen, Marika, Payne, Sheila, Gambassi, Giovanni, Onwuteaka-Philipsen, Bregje D., Smets, Tinne, Van den Block, Lieve, Deliens, Luc, Vernooij-Dassen, Myrra J. F. J., Engels, Yvonne, and null, null
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TERMINAL care ,LONG-term care facilities ,QUALITY of life ,DATA envelopment analysis ,REGRESSION analysis - Abstract
Background: An ageing population in the EU leads to a higher need of long-term institutional care at the end of life. At the same time, healthcare costs rise while resources remain limited. Consequently, an urgency to extend our knowledge on factors affecting efficiency of long-term care facilities (LTCFs) arises. This study aims to investigate and explain variation in technical efficiency of end-of-life care within and between LTCFs of six EU countries: Belgium (Flanders), England, Finland, Italy, the Netherlands and Poland. In this study, technical efficiency reflects the LTCFs’ ability to obtain maximal quality of life (QoL) and quality of dying (QoD) for residents from a given set of resource inputs (personnel and capacity). Methods: Cross-sectional data were collected by means of questionnaires on deceased residents identified by LTCFs over a three-month period. An output-oriented data-envelopment analysis (DEA) was performed, producing efficiency scores, incorporating personnel and capacity as input and QoL and QoD as output. Scenario analysis was conducted. Regression analysis was performed on explanatory (country, LTCF type, ownership, availability of palliative care and opioids) and case mix (disease severity) variables. Results: 133 LTCFs of only one type (onsite nurses and offsite GPs) were considered in order to reduce heterogeneity. Variation in LTCF efficiency was found across as well as within countries. This variation was not explained by country, ownership, availability of palliative care or opioids. However, in the ‘hands-on care at the bedside’ scenario, i.e. only taking into account nursing and care assistants as input, Poland (p = 0.00) and Finland (p = 0.04) seemed to be most efficient. Conclusions: Efficiency of LTCFs differed extensively across as well as within countries, indicating room for considerable efficiency improvement. Our findings should be interpreted cautiously, as comprehensive comparative EU-wide research is challenging as it is influenced by many factors. [ABSTRACT FROM AUTHOR]
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- 2018
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7. Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals.
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Paap, Jasper van Riet, Mariani, Elena, Chattat, Rabih, Koopmans, Raymond, Kerhervé, Hélène, Leppert, Wojciech, Forycka, Maria, Radbruch, Lukas, Jaspers, Birgit, Vissers, Kris, Vernooij-Dassen, Myrra, and Engels, Yvonne
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ATTITUDE (Psychology) ,DEMENTIA ,CASE studies ,MEDICAL personnel ,NURSING care facilities ,PALLIATIVE treatment ,RESEARCH funding - Abstract
Background: People with dementia can benefit from a palliative care approach. Recommendations, such as those of the EAPC have been proposed to strengthen the provision of palliative care for this group of patients. Yet, it remains challenging for professionals to identify when a person with dementia is in need of palliative care. The objective of this study therefore was to explore when professionals in long-term care settings consider a person with dementia in need of palliative care. Methods: Teams with in total 84 professionals working in 13 long-term care settings from 6 countries (France, Germany, Italy, Norway, Poland and the Netherlands) received a case-vignette concerning a person with dementia recently admitted to a nursing home. Teams were asked to discuss when they considered people with dementia eligible for palliative care. The constant comparative method was used to analyse their answers. Results: Three different time points in the disease trajectory when people with dementia were considered to be eligible for palliative care were extracted: (1) early in the disease trajectory; (2) when signs and symptoms of advanced dementia are present; and (3) from the time point that curative treatment of co-morbidities is futile. Yet, none of these time points was uniformly considered by the professional teams across Europe. In some cases, professionals working in the same nursing home didn't even reach consensus when considering persons with dementia eligible for palliative care. Conclusion: The results of the study identified that professionals across Europe have different opinions regarding the time point when to consider a person with dementia in need of palliative care. [ABSTRACT FROM AUTHOR]
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- 2015
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8. Strategies to implement evidence into practice to improve palliative care: recommendations of a nominal group approach with expert opinion leaders.
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van Riet Paap, Jasper, Vissers, Kris, Iliffe, Steve, Radbruch, Lukas, Hjermstad, Marianne J., Chattat, Rabih, Vernooij-Dassen, Myrra, and Engels, Yvonne
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EXPERTISE ,MEDICAL personnel ,PALLIATIVE treatment ,RESEARCH funding ,EVIDENCE-based medicine ,QUALITATIVE research ,DESCRIPTIVE statistics - Abstract
Background: In the past decades, many new insights and best practices in palliative care, a relatively new field in health care, have been published. However, this knowledge is often not implemented. The aim of this study therefore was to identify strategies to implement improvement activities identified in a research project within daily palliative care practice. Methods: A nominal group technique was used with members of the IMPACT consortium, being international researchers and clinicians in cancer care, dementia care and palliative care. Participants identified and prioritized implementation strategies. Data was analyzed qualitatively using inductive coding. Results: Twenty international clinicians and researchers participated in one of two parallel nominal group sessions. The recommended strategies to implement results from a research project were grouped in five common themes: 1. Dissemination of results e.g. by publishing results tailored to relevant audiences, 2. Identification and dissemination of unique selling points, 3. education e.g. by developing e-learning tools and integrating scientific evidence into core curricula, 4. Stimulation of participation of stakeholders, and 5. consideration of consequences e.g. rewarding services for their implementation successes but not services that fail to implement quality improvement activities. Discussion: The added value of this nominal group study lies in the prioritisation by the experts of strategies to influence the implementation of quality improvement activities in palliative care. Efforts to ensure future use of scientific findings should be built into research projects in order to prevent waste of resources. [ABSTRACT FROM AUTHOR]
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- 2015
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- View/download PDF
9. Volunteers in Palliative Care - A Comparison of Seven European Countries: A Descriptive Study.
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Woitha, Kathrin, Hasselaar, Jeroen, Beek, Karen, Radbruch, Lukas, Jaspers, Birgit, Engels, Yvonne, and Vissers, Kris
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VOLUNTEERS ,INTERVIEWING ,RESEARCH methodology ,PALLIATIVE treatment ,QUESTIONNAIRES ,RESEARCH funding ,LEGAL status of volunteers ,LITERATURE reviews ,EDUCATION - Abstract
Objective In Europe, volunteers have an important role in the delivery of palliative care. As part of the EU co-funded Europall project, 4 aspects of volunteering in palliative care were studied for 7 European countries (Belgium, England, France, Germany, the Netherlands, Poland, and Spain). These included (1) involvement of volunteers in palliative care, (2) organization of palliative care volunteering, (3) legal regulations concerning volunteering, and (4) education and training of palliative care volunteering. Design/Setting/Methods A literature search combined with an interview study. Information from the scientific literature, and country-specific policy documents were obtained and completed, along with data of consecutive semi-structured interviews with experts in the field of palliative care in the participating countries. Results In all countries, volunteers appeared to be involved in palliative care, yet their involvement across health care settings differed per country. England, for example, has the highest number of volunteers whereas Spain has the lowest number. Volunteering is embedded in law and regulations in all participating countries except for England and the Netherlands. In all participating countries, training programs are available and volunteers are organized, both on a national and a regional level. Conclusion This study provides a descriptive overview of volunteer work in palliative care in 7 European countries, with a focus on the organizational aspects. Further research should concentrate on the roles and responsibilities of volunteers in the care for the terminally ill in different European health systems. [ABSTRACT FROM AUTHOR]
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- 2015
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10. Implementation of improvement strategies in palliative care: an integrative review.
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van Riet Paap, Jasper, Vernooij-Dassen, Myrra, Sommerbakk, Ragni, Moyle, Wendy, Hjermstad, Marianne J., Leppert, Wojciech, Vissers, Kris, Engels, Yvonne, and IMPACT research team
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PALLIATIVE treatment ,TREATMENT of dementia ,QUALITY of life ,MEDICAL quality control ,HEALTH outcome assessment ,DEMENTIA care mapping - Abstract
Background: The European population is ageing, and as a consequence, an increasing number of patients are in need of palliative care, including those with dementia. Although a growing number of new insights and best practices in palliative care have been published, they are often not implemented in daily practice. The aim of this integrative review is to provide an overview of implementation strategies that have been used to improve the organisation of palliative care.Methods: Using an integrative literature review, we evaluated publications with strategies to improve the organisation of palliative care. Qualitative analysis of the included studies involved categorisation of the implementation strategies into subgroups, according to the type of implementation strategy.Results: From the 2379 publications identified, 68 studies with an experimental or quasi-experimental design were included. These studies described improvements using educational strategies (n = 14), process mapping (n = 1), feedback (n = 1), multidisciplinary meetings (n = 1) and multi-faceted implementation strategies (n = 51). Fifty-three studies reported positive outcomes, 11 studies reported mixed effects and four studies showed a limited effect (two educational and two multi-faceted strategies).Conclusions: This review is one of the first to provide an overview of the available literature in relation to strategies used to improve the organisation of palliative care. Since most studies reported positive results, further research is needed to identify and improve the effects of strategies aiming to improve the organisation of palliative care. [ABSTRACT FROM AUTHOR]- Published
- 2015
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11. Consensus on quality indicators to assess the organisation of palliative cancer and dementia care applicable across national healthcare systems and selected by international experts.
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van Riet Paap, Jasper, Vernooij-Dassen, Myrra, Dröes, Rose-Marie, Radbruch, Lukas, Vissers, Kris, and Engels, Yvonne
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CANCER patients ,MEDICAL care ,DEMENTIA patients ,PUBLIC health ,PAIN - Abstract
Background: Large numbers of vulnerable patients are in need of palliative cancer and dementia care. However, a wide gap exists between the knowledge of best practices in palliative care and their use in everyday clinical practice. As part of a European policy improvement program, quality indicators(QIs) have been developed to monitor and improve the organisation of palliative care for patients with cancer and those with dementia in various settings in different European countries. Method: A multidisciplinary, international panel of professionals participated in a modified RAND Delphi procedure to compose a set of palliative care QIs based on existing sets of QIs on the organisation of palliative care. Panellists participated in three written rounds, one feedback round and one meeting. The panel's median votes were used to identify the final set of QIs. Results: The Delphi procedure resulted in 23 useful QIs. These QIs represent key elements of the organisation of good clinical practice, such as the availability of palliative care teams, the availability of special facilities to provide palliative care for patients and their relatives, and the presence of educational interventions for professionals. The final set also includes QIs that are related to the process of palliative care, such as documentation of pain and other symptoms, communication with patients in need of palliative care and their relatives, and end-of-life decisions. Conclusion: International experts selected a set of 23 QIs for the organisation of palliative care. Although we particularly focused on the organisation of cancer and dementia palliative care, most QIs are generic and are applicable for other types of diseases as well. [ABSTRACT FROM AUTHOR]
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- 2014
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12. Validation of quality indicators for the organization of palliative care: A modified RAND Delphi study in seven European countries (the Europall project).
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Woitha, Kathrin, Van Beek, Karen, Ahmed, Nisar, Jaspers, Birgit, Mollard, Jean M, Ahmedzai, Sam H, Hasselaar, Jeroen, Menten, Johan, Vissers, Kris, and Engels, Yvonne
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PALLIATIVE treatment ,AGING ,CLINICAL medicine ,DELPHI method ,DOCUMENTATION ,HEALTH services accessibility ,RESEARCH methodology ,MEDICAL quality control ,POPULATION ,DATA analysis ,KEY performance indicators (Management) - Abstract
Background: Validated quality indicators can help health-care professionals to evaluate their medical practices in a comparativemanner to deliver optimal clinical care. No international set of quality indicators to measure the organizational aspects of palliativecare settings exists.Aim: To develop and validate a set of structure and process indicators for palliative care settings in Europe.Design: A two-round modified RAND Delphi process was conducted to rate clarity and usefulness of a previously developed set of110 quality indicators.Setting/participants: In total, 20 multi-professional palliative care teams of centers of excellence from seven European countries.Results: In total, 56 quality indicators were rated as useful. These valid quality indicators concerned the following domains: thedefinition of a palliative care service (2 quality indicators), accessibility to palliative care (16 quality indicators), specific infrastructureto deliver palliative care (8 quality indicators), symptom assessment tools (1 quality indicator), specific personnel in palliative careservices (9 quality indicators), documentation methodology of clinical data (14 quality indicators), evaluation of quality and safetyprocedures (1 quality indicator), reporting of clinical activities (1 quality indicator), and education in palliative care (4 quality indicator).Conclusion: The modified RAND Delphi process resulted in 56 international face-validated quality indicators to measure andcompare organizational aspects of palliative care. These quality indicators, aimed to assess and improve the organization of palliativecare, will be pilot tested in palliative care settings all over Europe and be used in the EU FP7 funded IMPACT project. [ABSTRACT FROM AUTHOR]
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- 2014
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13. Developing a framework of, and quality indicators for, general practice management in Europe.
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Engels, Yvonne, Campbell, Stephen, Dautzenberg, Maaike, van den Hombergh, Pieter, Brinkmann, Henrik, Szécsényi, Joachim, Falcoff, Hector, Seuntjens, Luc, Kuenzi, Beat, and Grol, Richard
- Abstract
Objectives. To develop a framework for general practice management made up of quality indicators shared by six European countries. [ABSTRACT FROM PUBLISHER]
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- 2005
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14. Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals
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Raymond T.C.M. Koopmans, Yvonne Engels, Rabih Chattat, Maria Forycka, Lukas Radbruch, Hélène Kerhervé, Elena Mariani, Myrra Vernooij-Dassen, Wojciech Leppert, Jasper van Riet Paap, Kris Vissers, Birgit Jaspers, Van Riet Paap, Jasper, Mariani, Elena, Chattat, Rabih, Koopmans, Raymond, Kerhervé, Hélène, Leppert, Wojciech, Forycka, Maria, Radbruch, Luka, Jaspers, Birgit, Vissers, Kri, Vernooij-Dassen, Myrra, and Engels, Yvonne
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medicine.medical_specialty ,Alzheimer`s disease Donders Center for Medical Neuroscience [Radboudumc 1] ,Palliative care ,Consensus ,Attitude of Health Personnel ,Pain medicine ,Health Personnel ,education ,Grounded theory ,Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18] ,03 medical and health sciences ,Long-term care ,0302 clinical medicine ,Nursing ,mental disorders ,Medicine ,Dementia ,Humans ,030212 general & internal medicine ,Curative care ,Medicine(all) ,business.industry ,Nursing home ,Medicine (all) ,General Medicine ,medicine.disease ,Staff view ,3. Good health ,Variety (cybernetics) ,Europe ,Identification (information) ,030220 oncology & carcinogenesis ,Family medicine ,Staff views ,Patient Care ,business ,Research Article - Abstract
Contains fulltext : 152329.pdf (Publisher’s version ) (Open Access) BACKGROUND: People with dementia can benefit from a palliative care approach. Recommendations, such as those of the EAPC have been proposed to strengthen the provision of palliative care for this group of patients. Yet, it remains challenging for professionals to identify when a person with dementia is in need of palliative care. The objective of this study therefore was to explore when professionals in long-term care settings consider a person with dementia in need of palliative care. METHODS: Teams with in total 84 professionals working in 13 long-term care settings from 6 countries (France, Germany, Italy, Norway, Poland and the Netherlands) received a case-vignette concerning a person with dementia recently admitted to a nursing home. Teams were asked to discuss when they considered people with dementia eligible for palliative care. The constant comparative method was used to analyse their answers. RESULTS: Three different time points in the disease trajectory when people with dementia were considered to be eligible for palliative care were extracted: (1) early in the disease trajectory; (2) when signs and symptoms of advanced dementia are present; and (3) from the time point that curative treatment of co-morbidities is futile. Yet, none of these time points was uniformly considered by the professional teams across Europe. In some cases, professionals working in the same nursing home didn't even reach consensus when considering persons with dementia eligible for palliative care. CONCLUSION: The results of the study identified that professionals across Europe have different opinions regarding the time point when to consider a person with dementia in need of palliative care.
- Published
- 2015
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