1. A Qualitative Study of the Values, Needs, and Preferences of Patients Regarding Stroke Care: The ValueCare Study.
- Author
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BALLY, ESMÉE L. S., CHENG, DEMI, VAN GRIEKEN, AMY, VAN DAM-NOLEN, DIANNE H. K., MACCHIONE, STEFANIA, SANZ, MIREIA FERRI, CARROLL, ÁINE, ROOZENBEEK, BOB, DIPPEL, DIEDERIK W. J., and RAAT, HEIN
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HEALTH education , *PATIENT aftercare , *SOCIAL support , *ISCHEMIC stroke , *INTERVIEWING , *PATIENTS' attitudes , *QUALITATIVE research , *CONTINUUM of care , *SOUND recordings , *HEALTH , *INFORMATION resources , *PSYCHOSOCIAL factors , *STROKE patients , *RESEARCH funding , *THEMATIC analysis , *PATIENT education , *MEDICAL needs assessment , *EVALUATION - Abstract
Introduction: An in-depth understanding of patient perspectives contributes to highquality, value-based health care. The aim of this study was to explore the values, needs, and preferences of stroke patients across the continuum of care. Methods: We performed a qualitative study, as part of the larger ValueCare study, involving 36 patients who have had ischemic stroke within the past 18 months at the time of recruitment. Data were collected between December 2020 and April 2021 via one-to-one telephone interviews. All interviews were audio-taped and transcribed verbatim. The interview data were analysed using a thematic approach. Results: The analysis resulted in five themes: (1) patients' values about health care, (2) information and education, (3) psychological support, (4) follow-up care, and (5) continuity and coordination of care. Patients valued a compassionate professional who is responsive to their needs. Furthermore, patients indicated a need for tailored health information, psychosocial services, pro-active follow-up care and improved coordination of care. Discussion and conclusion: Stroke patients emphasised the need for tailored information, psychological support, pro-active follow-up, and improved coordination of care. It is advocated for professionals to use a value-based care approach in order to satisfy the individual needs of patients with regard to information, communication, and follow-up care. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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