Search

Your search keyword '"Virgili Casas, Nuria"' showing total 11 results
Start Over Author "Virgili Casas, Nuria" Topic home parenteral nutrition
11 results on '"Virgili Casas, Nuria"'

1. Nutrición parenteral domiciliaria en pacientes con obstrucción intestinal maligna. Consideraciones éticas.

Author

Moreno-Villares, José Manuel, Virgili-Casas, Nuria, Ashbaugh, Rosa Ana, Wanden-Berghe-Lozano, Carmina, and Cantón-Blanco, Ana

Subjects
*BOWEL obstructions, *PATIENTS' families, *PARENTERAL feeding, *FUNCTIONAL status, *PALLIATIVE treatment
Abstract

Background: patients with cancer are one of the main group of patients on home parenteral nutrition (HPN). Patients with malignant bowel obstruction (MBO) represent a challenging group when considering HPN. At the Ethics Working Group of SENPE ethical considerations on this subject were reviewed and a guidelines proposal was made. Methods: a literature search was done and a full set of questions arose: When, if ever, is HPN indicated for patients with MBO? How should the training program be? When withdrawal of HPN should be considered? Other questions should be also taken into consideration. May any Oncologist send home a patient with HPN? The educational program could be shortened? When considering to withdraw parenteral nutrition? Results: HPN in MBO has better outcomes when patients have a good functional status (Karnofsky ≥ 50 or ECOG ≤ 2), expected survival > 2-3 months, and low inflammatory markers. Very few data have been reported on quality of life, but HPN allows a valuable time at home albeit with a considerable burden for both patients and their families. Proposal: once a patient is considered for HPN, there is a need for a deep talk on the benefits, complications and risks. In this initial talk, when HNP should be stopped needs to be included. The palliative care team with the help of the nutrition support team should follow the patient, whose clinical status must be assessed regularly. HPN should be withdrawn when no additional benefits are achieved. Conclusion: HPN may be considered an option in patients with MBO when they have a fair or good functional status and a desire to spend their last days at home. [ABSTRACT FROM AUTHOR]

Published
2024
Full Text
View/download PDF

2. Home and Ambulatory Artificial Nutrition (NADYA) Group report: home parenteral nutrition in Spain, 2019

Author

Wanden-Berghe,Carmina, Virgili Casas,Nuria, Cuerda Compes,Cristina, Ramos Boluda,Esther, Pereira Cunill,José Luis, Maiz Jiménez,María Irene, Universidad de Sevilla. Departamento de Medicina, and Universidad de Sevilla. CTS444 : Endocrinología, Metabolismo y Nutrición clínica.

Subjects
Home parenteral nutrition, Registry, Soporte nutricional, Epidemiology, Cuidados domiciliarios, Registros, Epidemiología, Records, Nutrición parenteral domiciliaria, Nutrición parenteral, Home care services, Parenteral nutrition, Nutritional support
Abstract

Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del grupo NADYA-SENPE (www.nadya-senpe. com) del año 2019. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE desde el 1 de enero al 31 de diciembre de 2019. Resultados: se registraron 283 pacientes (51,9 %, mujeres), 31 niños y 252 adultos procedentes de 47 hospitales españoles, lo que representa una tasa de prevalencia de 6,01 pacientes/millón de habitantes/año 2019. El diagnóstico más frecuente en los adultos fue “oncológico paliativo” y “otros” (21,0 %). En los niños fue la enfermedad de Hirschsprung junto a la enterocolitis necrotizante, las alteraciones de la motilidad intestinal y la pseudoobstrucción intestinal crónica, con 4 casos cada uno (12,9 %). El primer motivo de indicación fue el síndrome del intestino corto tanto en los niños (51,6 %) como en los adultos (37,3 %). El tipo de catéter más utilizado fue el tunelizado tanto en los niños (75,9 %) como en los adultos (40,8 %). Finalizaron 68 episodios, todos en adultos: la causa más frecuente fue el fallecimiento (54,4 %). Pasaron a la vía oral el 38,2 %. Conclusiones: el número de centros y profesionales colaboradores con el registro NADYA va incrementándose. Se mantienen estables las principales indicaciones y los motivos de finalización de la NPD. Aim: to communicate the home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe. com) for the year 2019. Material and methods: a descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1 to December 31, 2019. Results: a total of 283 patients (51.9 % women), 31 children, and 252 adults from 47 Spanish hospitals were registered, which represents a prevalence rate of 6.01 patients per million inhabitants for year 2019. The most frequent diagnosis in adults was “palliative oncological” and “others” (21.0 %). In children, it was Hirschsprung’s disease together with necrotizing enterocolitis, alterations in intestinal motility, and chronic intestinal pseudo-obstruction, with 4 cases each (12.9 %). The first reason for the indication was short-bowel syndrome in both children (51.6 %) and adults (37.3 %). The most used type of catheter was tunnelled both in children (75.9 %) and in adults (40.8 %). Sixty-eight episodes ended, all in adults, and the most frequent cause was death (54.4 %); 38.2 % were switched to oral. Conclusions: the number of collaborating centers and professionals in the NADYA registry is increasing. The main indications and reasons for HPN termination remain stable.

Published
2021

3. Nutrición parenteral domiciliaria en España, 2019: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA.

Author

Wanden-Berghe, Carmina, Virgili Casas, Nuria, Cuerda Compes, Cristina, Ramos Boluda, Esther, Pereira Cunill, José Luis, Maiz Jiménez, María Irene, Cuerda Compés, Cristina, Maíz Jiménez, María Irene, Burgos Peláez, Rosa, Gómez Candela, Carmen, Penacho Lázaro, María Ángeles, Sánchez Martos, Eva Ángeles, de Luis, Daniel Antonio, Zugasti Murillo, Ana, Martínez Faedo, Ceferino, Álvarez Hernández, Julia, Campos Martín, Cristina, Rioja-Vázquez, Rosalía, Irles Rocamora, Juan Antonio, and Díaz Guardiola, Patricia

Abstract

Introduction: Aim: to communicate the home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2019. Material and methods: a descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1 to December 31, 2019. Results: a total of 283 patients (51.9 % women), 31 children, and 252 adults from 47 Spanish hospitals were registered, which represents a prevalence rate of 6.01 patients per million inhabitants for year 2019. The most frequent diagnosis in adults was "palliative oncological" and "others" (21.0 %). In children, it was Hirschsprung's disease together with necrotizing enterocolitis, alterations in intestinal motility, and chronic intestinal pseudo-obstruction, with 4 cases each (12.9 %). The first reason for the indication was short-bowel syndrome in both children (51.6 %) and adults (37.3 %). The most used type of catheter was tunnelled both in children (75.9 %) and in adults (40.8 %). Sixty-eight episodes ended, all in adults, and the most frequent cause was death (54.4 %); 38.2 % were switched to oral. Conclusions: the number of collaborating centers and professionals in the NADYA registry is increasing. The main indications and reasons for HPN termination remain stable. [ABSTRACT FROM AUTHOR]

Published
2021
Full Text
View/download PDF

4. Home and Ambulatory Artiificial Nutrition (NADYA) Group Report - Home parenteral nutrition in Spain, 2016

Author

Wanden-Berghe, Carmina, Virgili Casas, Nuria, Ramos Boluda, Esther, Cuerda Compes, Cristina, Moreno Villares, José Manuel, Pereira Cunill, José Luis, Gómez Candela, Carmen, Burgos Peláez, Rosa, Penacho Lázaro, M.ª Ángeles, Pérez de la Cruz, Antonio, Álvarez Hernández, Julia, Gonzalo Marín, Montserrat, Matía Martín, Pilar, Martínez Faedo, Ceferino, Sánchez Martos, Eva Ángeles, Sanz Paris, Alejandro, Campos Martín, Cristina, Martín Folgueras, Tomás, Martín Palmero, M. Ángela, Martín Fontalba, María de los Ángeles, Luengo Pérez, Luis Miguel, Zugasti Murillo, Ana, Martínez Ramírez, María José, Carabaña Pérez, Fátima, Martínez Costa, Cecilia, Díaz Guardiola, Patricia, Tejera Pérez, Cristina, Parés Marimón, Rosa M.ª, Irles Rocamora, José Antonio, Garde Orbaiz, Carmen, Ponce González, Miguel Ángel, García Zafra, María Victoria, Sánchez Sánchez, Rebeca, Urgeles Planella, Juan Ramón, Apezetxea Celaya, Antxón, Sánchez-Vilar Burdiel, Olga, Joaquín Ortiz, Clara, Suárez Llanos, José Pablo, Pintor de la Maza, Begoña, Leyes García, Pere, Gil Martínez, M.ª Carmen, Mauri Roca, Silvia, and Carrera Santaliestra, María José

Subjects
Home parenteral nutrition, Soporte nutricional, Epidemiology, Cuidados domiciliarios, Registros, Epidemiología, Nutrición parenteral domiciliaria, Nutrición parenteral, Registries, Home care services, Parenteral nutrition, Nutritional support
Abstract

Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA-SENPE; www.nadya-senpe.com) del año 2016. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE desde el 1 de enero al 31 de diciembre de 2016. Resultados: se registraron 286 pacientes (54,2% mujeres), 34 niños y 252 adultos, procedentes de 42 hospitales españoles con 294 episodios, lo que representa una tasa de prevalencia de 6,16 pacientes/millón de habitantes/año 2016. El diagnóstico más frecuente en adultos fue de oncológico paliativo (25,8%), seguido de otros. En niños, fue de alteraciones de la motilidad con 6 casos (17,6%), la enfermedad de Hirschsprung y la enterocolitis necrotizante, ambos con 5 niños (14,7%). El primer motivo de indicación fue síndrome de intestino corto tanto en niños (64,7%) como en adultos (37,3%), seguido de obstrucción intestinal, 28,6% en adultos y 14,7% en niños. El tipo de catéter más utilizado fue el tunelizado tanto en niños (70,6%) como en adultos (37,9%), y la complicación más frecuente en adultos fue la infección relacionada con el catéter, que presentó una tasa de 0,48 infecciones/1.000 días de NPD. Durante este periodo, finalizaron 71 episodios en adultos siendo la causa de finalización principal el fallecimiento (57,7%) y paso a vía oral (31%). Conclusiones: se constata un incremento progresivo de centros y profesionales colaboradores en el registro de pacientes que reciben NPD. Las principales indicaciones de NPD y de motivo de finalización se mantienen estables. Objective: To communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2016. Material and methods: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2016 to December 31 st, 2016. Results: There were 286 patients from 42 Spanish hospitals (54.2% women), 34 children and 252 adults, with 294 episodes, which represent a prevalence rate of 6.16 patients / million inhabitants / year 2016. The most frequent diagnosis in adults was "palliative cancer" (25.8%), followed by "others". In children it was "motility alterations" with 6 cases (17.6%), Hirschsprung's disease and necrotising enterocolitis, both with 5 children (14.7%). The first indication was short bowel syndrome in both children (64.7%) and adults (37.3%), followed by intestinal obstruction in 28.6% adults and 14.7% in children. The most frequently used type of catheter was tunnelled in both children (70.6%) and adults (37.9%). The most frequent complication in adults was infection related to the catheter, which presented a rate of 0.48 infections / 1,000 days of NPD. During this period, 71 episodes ended in adults and the main cause was death (57.7%) followed by resuming the oral route (31%). Conclusions: There is a progressive increase of centers and professional collaborators in the registry who report patients receiving parenteral nutrition at home. The main indications of HPN and the motive for ending have remained stable.

Published
2017

5. Nutrición parenteral domiciliaria en España durante 2015: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Author

Wanden-Berghe, Carmina, Campos Martín, Cristina, Cuerda Compes, Cristina, Gómez Candela, Carmen, Burgos Peláez, Rosa, Moreno Villares, José Manuel, Pereira Cunill, José Luis, Pérez de la Cruz, Antonio, Virgili Casas, Nuria, Martínez Faedo, Ceferino, Álvarez Hernández, Julia, Garde Orbaiz, Carmen, Penacho Lázaro, M.ª Ángeles, Sánchez Martos, Eva Ángeles, Sanz Paris, Alejandro, Gonzalo Marín, Montserrat, Zugasti Murillo, Ana, Matía Martín, Pilar, Martín Folgueras, Tomás, Carabaña Pérez, Fátima, Díaz Guardiola, Patricia, Tejera Pérez, Cristina, Luis Román, Daniel de, Luengo Pérez, Luis Miguel, Santacruz Carmona, Nieves, Apezetxea Celaya, Antxón, Ponce González, Miguel Ángel, Urgeles Planella, Juan Ramón, Laborda González, Lucía, Martínez Olmos, Miguel Ángel, Sánchez-Vilar Burdiel, Olga, Joaquín Ortiz, Clara, Martínez Costa, Cecilia, Suárez Llanos, José Pablo, Calleja Fernández, Alicia, Leyes García, Pere, Gil Martínez, M.ª Carmen, Mauri, Silvia, García Zafra, María Victoria, and Carrera Santaliestra, Maria José

Subjects
Home parenteral nutrition, Soporte nutricional, Epidemiolgy, Cuidados domiciliarios, Registros, Epidemiología, Nutrición parenteral domiciliaria, Nutrición parenteral, Registries, Home care services, Parenteral nutrition, Nutritional support
Abstract

Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2015. Material y métodos: recopilación de los datos de NPD del registro online del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2015 al 31 de diciembre de 2015. Resultados: se registraron 236 pacientes, con 243 episodios de NPD procedentes de 40 hospitales, lo que representa una tasa de 5,08 pacientes/millón de habitantes/año 2015. La patología más frecuente en los adultos fue "otros" (26,3%) seguido por "oncológico paliativo" (21,6%). La complicación más frecuente fue la séptica relacionada con el catéter, que presentó una tasa de 0,53 infecciones/1.000 días de NPD. Finalizaron 64 episodios, la principal causa fue el fallecimiento (43,7%) y el "paso a la vía oral" (32,8%). Conclusiones: constatamos el aumento de los centros y profesionales colaboradores, dando respuesta a la cantidad progresivamente mayor de pacientes con soporte nutricional parenteral en domicilio. Se mantienen estables las principales indicaciones para el establecimiento de NPD y las causas de finalización del tratamiento. Aim: To communicate the results of the Spanish Home Parenteral Nutrition (HEN) registry of the NADYA-SENPE group for the year 2015. Material and methods: Data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2015. Results: Two hundred and thirty-six patients with 243 episodes of NPD were recorded from 40 hospitals. This represents a rate of 5.08 patients/million habitants for 2015. The most frequent pathology in adults was other (26.3%) followed by palliative oncological (21.6%). The most common complication was catheter-related sepsis which presented a rate of 0.53 infections/1,000 days of HPN. Sixty-four episodes were finished; the main cause was death (43.7%) and resuming to oral via (32.8%). Conclusions: we find increasing centers and professional partners, responding to the progressively more patients with parenteral nutrition support at home. The main indications for the establishment of NPD and causes termination of treatment remain stable.

Published
2016

6. Nutrición parenteral domiciliaria en España durante 2014: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Author

Wanden-Berghe, Carmina, Pereira Cunill, José Luis, Cuerda Compes, Cristina, Moreno Villares, José Manuel, Pérez de la Cruz, Antonio, Burgos Peláez, Rosa, Gómez Candela, Carmen, Virgili Casas, Nuria, Penacho Lázaro, M.ª Ángeles, Martínez Faedo, Ceferino, Garde Orbaiz, Carmen, Gonzalo Marín, Montserrat, Sanz Paris, Alejandro, Álvarez, Julia, Sánchez Martos, Eva Ángeles, Martín Folgueras, Tomás, Campos Martín, Cristina, Matía Martín, Pilar, Zugasti, Ana, Carabaña Pérez, Fátima, García Zafra, María Victoria, Ponce González, Miguel Ángel, Suárez Llanos, José Pablo, Martínez Costa, Cecilia, Luis, Daniel de, Apezetxea Celaya, Antxón, Luengo Pérez, Luis Miguel, Díaz Guardiola, Patricia, Gil Martínez, M.ª Carmen, Olmo García, M.ª Dolores del, Leyes García Grupo, Pere, Vidal Casariego, Alfonso, Joaquín Ortiz, Clara, Sánchez-Vilar Burdiel, Olga, and Laborda González, Lucía

Subjects
Home parenteral nutrition, Soporte nutricional, Epidemiolgy, Cuidados domiciliarios, Registros, Epidemiología, Nutrición parenteral domiciliaria, Nutrición parenteral, Registries, Home care services, Parenteral nutrition, Nutritional support
Abstract

Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del año 2014. Material y métodos: recopilación de los datos de NPD del registro "on-line" del grupo de Nutrición Artificial Domiciliaria y Ambulatoria (NADYA) desde el 1 de enero de 2014 al 31 de diciembre de 2014. Resultados: se registraron 220 pacientes, con 229 episodios de NPD, procedentes de 37 hospitales; lo que representa una tasa de 4,73 pacientes/millón de habitantes/ año 2014. Las patologías más frecuentes en los adultos fueron: ‘otros diagnósticos' (22,3%), la neoplasia paliativa (20,4%), seguida por la neoplasia activa radical (11,8%) y la isquemia mesentérica (10,9%). En los niños las patologías más frecuentes fueron: ‘alteraciones congénitas intestinales' (33,3%), seguidas por ‘intestino corto traumático' y ‘otro diagnóstico'. Conclusiones: se observa un aumento del número de pacientes que reciben nutrición parenteral domiciliaria y de los centros colaboradores. Consideramos que la NPD debería ser regulada por la Administración Sanitaria en el marco del Consejo Interterritorial del Sistema Nacional de Salud, y que su inclusión en la Cartera de Servicios de los diferentes Servicios de Salud de las diferentes comunidades autónomas redundaría en un beneficio para el paciente y los profesionales. Aim: to communicate the results of the Spanish Home Parenteral Nutrition (HEN) registry of the NADYASENPE group for the year 2014. Material and methods: data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2014. Results: a total of 220 patients and 229 episodes of HPN were registered from 37 hospitals that represents a rate of 4.7 patients/million habitants/year 2014. The most frequent disease in adults was other diseases (23.3%), neoplasm (20.4%) followed by radical active neoplasm (11.8%) and mesenteric ischemia (10.9%). The most frequent diagnosis for children were the congenital intestinal disorders (33.3%) followed by traumatic short bowel and other diagnosis. Conclusions: the number of participating centers and registered patients increased progressively respect to preceding years. We consider that the HPN should be regulated by the Sanitary Administration within the framework of the National Health Service Interregional Council. And its inclusion in the portfolio of health services of the different Autonomous Comunities would be beneficial for patients and professionals.

Published
2015

7. A Home and Ambulatory Artificial Nutrition (NADYA) group report, Home Parenteral Nutrition in Spain, 2013

Author

Wanden-Berghe, Carmina, Cuerda Compes, J Cristina, Burgos Peláez, Rosa, Gómez Candela, Carmen, Virgili Casas, Nuria, Pérez de la Cruz, Antonio, Moreno Villares, José Manuel, Carabaña Pérez, Fátima, Garde Orbaiz, Carmen, Martínez Faedo, Ceferino, Penacho Lázaro, Ma Ángeles, Gonzalo Marín, Montserrat, García Luna, Pedro Pablo, Matía Martín, Pilar, Sanz Paris, Alejandro, Luengo Pérez, Luis Miguel, Martín Folgueras, Tomás, García Zafra, María Victoria, Álvarez Hernández, Campos Martín, Cristina, Suárez Llanos, José Pablo, Zugasti, Ana, Apezetxea Celaya, Antxón, Urgeles Planella, Juan Ramon, Laborda González, Lucía, Sánchez-Vilar Burdiel, Olga, Joaquín Ortiz, Clara, Martínez Costa, Cecilia, Vidal Casariego, Alfonso, Leyes García, Pere, Ponce González, Miguel Angel, Gil Martínez, Ma Carmen, Sánchez Martos, Eva Ángeles, del Olmo García, Ma Dolores, Díaz Guardiola, Patricia, Grupo NADYA-SENPE, and [Wanden-Berghe,C] FISABIO-Hospital General Universitario de Alicante. Universidad Miguel Hernández (Elche), Alicante. [Cuerda Compes,JC] Hospital Gregorio Marañón. [Burgos Peláez,R] Hospital Vall d’Hebrón, Barcelona. [Gómez Candela,C] Hospital La Paz. [Virgili Casas,N] Hospital Universitario Bellvitge, L’Hospitalet de Llobregat, Barcelona. [Pérez de la Cruz,A] Hospital Virgen de las Nieves, Granada. [Moreno Villares,JM] Hospital Universitario 12 de Octubre, Madrid. [Carabaña Pérez,F] Hospital Ramón y Cajal, Madrid. [Garde Orbaiz,C] Hospital Universitario Donostia, Guipuzkoa. [Martínez Faedo,C] Hospital Universitario Central de Asturias. [Penacho Lázaro,MA] Hospital El Bierzo, Ponferrada, León. [Gonzalo Marín,M] Hospital Universitario Carlos Haya. Málaga. [García Luna,PP] Hospital Universitario Virgen del Rocío, Sevilla. [Matía Martín,P] Hospital Clínico San Carlos, Madrid. [Sanz Paris,A] Hospital Universitario Miguel Servet, Zaragoza. [Luengo Pérez,LM] Hospital Infanta Cristina, Badajoz. [Martín Folgueras,T] Complejo Hospitalario Universitario de Canarias, Santa Cruz de Tenerife. [García Zafra,MV] Hospital Universitario Virgen de la Arrixaca, Murcia. [Álvarez Hernández] Hospital Príncipe de Asturias ,Alcalá de Henares, Madrid. [Campos Martín,C] Hospital Universitario Virgen Macarena, Sevilla. [Suárez Llanos,JP] Hospital Universitario Nuestra Señora de la Candelaria, Santa Cruz de Tenerife. [Zugasti,A] Hospital Virgen del Camino, Pamplona. [Apezetxea Celaya,A] Hospital Basurto, Bilbao. [Urgeles Planella,JR] Hospital Universitario Son Espases, Palma de Mallorca. [Laborda González,L] Hospital de Cruce, Bilbao. [Sánchez-Vilar Burdiel,O] Fundación Jiménez Díaz, Madrid. [Joaquín Ortiz,C] Hospital Germans Trias i Pujol, Barcelona. [Martínez Costa,C] Hospital Clínico Universitario, Valencia. [Vidal Casariego,A] Complejo Asistencial de León. [Leyes García,P] Hospital Clinic, Barcelona. [Ponce González,MA] Hospital Universitario Dr Negrín, Gran Canaria. [Gil Martínez,MC] Hospital Central de la Defensa Gomez Ulla, Madrid. [Sánchez Martos,EA ] Corporació Sanitària Parc Taulí, Barcelona. [del Olmo García,MD] Hospital Universitario Severo Ochoa , Leganés, Madrid. [Díaz Guardiola,P] Hospital Infanta Sofía, San Sebastian de los Reyes, Madrid. Spain.

Subjects
Adult, Male, Adolescent, Nutrición parenteral domiciliaria, Nutrición parenteral, Analytical, Diagnostic and Therapeutic Techniques and Equipment::Therapeutics::Feeding Methods::Parenteral Nutrition::Parenteral Nutrition, Home [Medical Subject Headings], Organisms::Eukaryota::Animals::Chordata::Vertebrates::Mammals::Primates::Haplorhini::Catarrhini::Hominidae::Humans [Medical Subject Headings], Young Adult, Epidemiolgy, Analytical, Diagnostic and Therapeutic Techniques and Equipment::Investigative Techniques::Epidemiologic Methods::Epidemiologic Study Characteristics as Topic::Epidemiologic Studies::Cohort Studies::Longitudinal Studies::Follow-Up Studies [Medical Subject Headings], Named Groups::Persons::Age Groups::Adult [Medical Subject Headings], Ambulatory Care, Registros, Epidemiología, Humans, Registries, Nutritional support, Child, Named Groups::Persons::Age Groups::Child [Medical Subject Headings], Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases [Medical Subject Headings], Aged, Aged, 80 and over, Home parenteral nutrition, Disciplines and Occupations::Social Sciences::Sociology::Minority Groups [Medical Subject Headings], Age Factors, Infant, Home care services, Diseases::Neoplasms [Medical Subject Headings], Middle Aged, Parenteral nutrition, Soporte nutricional, Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases::Intestinal Obstruction [Medical Subject Headings], Spain, Child, Preschool, Cuidados domiciliarios, Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases::Mesenteric Ischemia [Medical Subject Headings], Female, Analytical, Diagnostic and Therapeutic Techniques and Equipment::Investigative Techniques::Epidemiologic Methods::Data Collection::Registries [Medical Subject Headings], Diseases::Digestive System Diseases::Gastrointestinal Diseases::Intestinal Diseases::Malabsorption Syndromes::Short Bowel Syndrome [Medical Subject Headings], Parenteral Nutrition, Home
Abstract

AIM: To communicate the results of the Spanish Home Parenteral Nutrition (HPN) registry of the NADYA-SENPE group for the year 2013. MATERIAL AND METHODS: Data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2013. RESULTS: A total of 197 patients and 202 episodes of HPN were registered from 35 hospitals that represents a rate of 4,22 patients/million habitants/year 2013. The median age was 53 years (IQR 40-64) for 189 adult patients and 7 months (IQR 6-35,5) for children. The most frequent disease in adults was neoplasm (30,7%) followed by other diseases (20,1%) and mesenteric ischemia (12,7%). Short bowel syndrome and intestinal obstruction (25,9%) were in 35.7% cases the indications for HPN. The most frequent diagnosis for children were the congenital intestinal disorders and other diagnosis, both with a (37,5%) and short bowel syndrome and intestinal obstruction were the indication for treatment, each was present in 50% of the sample. Tunneled catheters (50%) and subcutaneous reservoirs (27,7%) were frequently used. The septic complications related with catheter were commonly frequent with a rate of 0.74 infections/1000 HPN days. HPN duration presented a median of 1,69 days. A total of 86 episodes finalized during the year, death was the principal reason (45%), followed by "resumed oral via" (43,75%) while it happened inversely for children, 66,7% of them resumed oral via and 16,7% deceased. Fifteen per cent were considered for intestinal transplant, children were proportionally candidates, p-value 0.002. CONCLUSIONS: The number of participating centers and registered patients increased progressively respect to preceding years. Since 2003 Neoplasm is still being the principal pathological group. Death is adult's principal reason for finalizing HPN and "resuming oral via" for children. Despite that NADYA registry is consolidate as a essential source of relevant information about the advances in Home Artificial Nutrition in our country, currently is in an improvement process of the available information about patients characteristics with a special emphasis on children even though they still being a minority group. Yes Objetivo: comunicar los datos del registro de Nutrición Parenteral Domiciliaria (NPD) del grupo de trabajo NADYA-SENPE del años 2013. Material y métodos: recopilación de los datos del registro “on-line” introducidos por los colaboradores del grupo NADYA responsables del seguimiento de la NPD desde el 1 de enero de 2013 al 31 de diciembre de 2013. Resultados: se registraron 197 pacientes, procedentes de 35 hospitales, lo que representa una tasa de 4,22 pacientes/ millón habitantes/año 2013, con 202 episodios de NPD. La edad media de los 189 pacientes mayores de 14 años fue de 53 años (IIQ 40 – 64), y en los niños de 7 meses (IIQ 6 – 35,5). La patología más frecuente en los adultos fue la neoplasia (30,7%) seguida por otras patologías (20,1%) y la isquemia mesentérica (12,7%). En el 35,4% de los casos el motivo de indicación fue el síndrome de intestino corto, seguido de la obstrucción intestinal (25,9%). En los niños el diagnóstico más frecuente fueron las alteraciones congénitas intestinales y ‘otros diagnósticos’, ambas con un 37,5 %, y la causa de la indicación el síndrome de intestino corto y la obstrucción intestinal, que se repartieron el 50% de la muestra. Los catéteres más utilizados fueron los tunelizados (50%) y los reservorios subcutáneos (27,7%). Las complicaciones más frecuentes fueron las sépticas, relacionadas con el catéter, con una tasa de 0,74 infecciones/1.000 días de NPD. La duración de la NPD presentó una mediana de 1,69 años. Durante el año finalizaron 86 episodios, la principal causa de la finalización en adultos fue el fallecimiento (45%) seguido del ‘paso a la vía oral’ (43,75%) y en los niños a la inversa 66,7% pasan a vía oral y 16,7% fallecen. Se consideraron candidatos para trasplante intestinal el 15% de los pacientes, siendo proporcionalmente los candidatos niños, p-valor 0,002. Conclusiones: se observa un aumento progresivo de los centros participantes y de los pacientes registrados respecto a años anteriores. El principal grupo patológico sigue siendo oncológico, ocupando el primer lugar desde 2003. La principal causa de finalización de la NPD es en los adultos el fallecimiento y en los niños el ‘paso a vía oral’. Aunque el registro NADYA es un registro consolidado y ha sido y es fuente imprescindible de información relevante para el conocimiento de los avances de la Nutrición Artificial Domiciliaria en nuestro país, se encuentra en proceso de mejorar la información que ofrece sobre las características de los pacientes, con especial atención en el grupo de niños, aunque estos siguen siendo un número reducido.

Published
2015

8. Nutrición parenteral domiciliaria en España 2016; informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA.

Author

Wanden-Berghe, Carmina, Virgili Casas, Nuria, Ramos Boluda, Esther, Cuerda Compes, Cristina, Moreno Villares, José Manuel, Pereira Cunill, José Luis, Gómez Candela, Carmen, Burgos Peláez, Rosa, Penacho Lázaro, Maria Ángeles, de la Cruz, Antonio Pérez, Álvarez Hernández, Julia, Gonzalo Marín, Montserrat, Matía Martín, Pilar, Martínez Faedo, Ceferino, Sánchez Martos, Eva Ángeles, Sanz Paris, Alejandro, Campos Martín, Cristina, Martín Folgueras, Tomás, Palmero, M. Ángela Martín, and de los Ángeles Martín Fontalba, María

Subjects
*GASTROINTESTINAL disease treatment, *HOME care service statistics, *OUTPATIENT medical care, *GASTROINTESTINAL diseases, *HOME care services, *NUTRITION, *ACQUISITION of data
Abstract

Objective: To communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2016.Material and Methods: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2016 to December 31st, 2016.Results: There were 286 patients from 42 Spanish hospitals (54.2% women), 34 children and 252 adults, with 294 episodes, which represent a prevalence rate of 6.16 patients / million inhabitants / year 2016. The most frequent diagnosis in adults was "palliative cancer" (25.8%), followed by "others". In children it was "motility alterations" with 6 cases (17.6%), Hirschsprung's disease and necrotising enterocolitis, both with 5 children (14.7%). The first indication was short bowel syndrome in both children (64.7%) and adults (37.3%), followed by intestinal obstruction in 28.6% adults and 14.7% in children. The most frequently used type of catheter was tunnelled in both children (70.6%) and adults (37.9%). The most frequent complication in adults was infection related to the catheter, which presented a rate of 0.48 infections / 1,000 days of NPD. During this period, 71 episodes ended in adults and the main cause was death (57.7%) followed by resuming the oral route (31%).Conclusions: There is a progressive increase of centers and professional collaborators in the registry who report patients receiving parenteral nutrition at home. The main indications of HPN and the motive for ending have remained stable. [ABSTRACT FROM AUTHOR]

Published
2017
Full Text
View/download PDF

9. Nutrición parenteral domiciliaria en España 2018. Informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA.

Author

Wanden-Berghe, Carmina, Cuerda Compes, Cristina, Maíz Jiménez, María Irene, Pereira Cunill, José Luis, Ramos Boluda, Esther, Gómez Candela, Carmen, Virgili Casas, Nuria, Burgos Peláez, Rosa, Antonio de Luis Román, Daniel, Penacho Lázaro, Maria Ángeles, Sánchez Martos, Eva Ángeles, Martínez Faedo, Ceferino, Díaz Guardiola, Patricia, Álvarez Hernández, Julia, Murillo, Ana Zugasti, Campos Martín, Cristina, Sanz Paris, Alejandro, de los Ángeles Martín Fontalba, María, Lobo, Gabriela, and Matía Martín, Pilar

Subjects
*PARENTERAL feeding, *CHILD patients, *PALLIATIVE treatment of cancer, *ENTEROCOLITIS, *INTESTINAL diseases
Abstract

Introduction: Aim: to communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2018 Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2018 to December 31st, 2018. Results: there were 278 patients from 45 Spanish hospitals (54.7% women), 23 children and 255 adults, which represent a prevalence rate of 5.95 patients/million inhabitants/year 2018. The most frequent diagnosis in adults was "palliative cancer" (22.0%), followed by "others". In children it was Hirschsprung's disease together with necrotizing enterocolitis, with four cases (17.4%). The first indication was short bowel syndrome in both children (60.9%) and adults (35.7%). The most frequently used type of catheter was tunneled in both children (81.0%) and adults (41.1%). Ending 75 episodes, the most frequent cause was death (52.0%) and change to oral feeding (33.3%). Conclusions: the number of centers and collaborating professionals in the registry of patients receiving HPN remains stable, as well as the main indications and reasons for termination of HPN. [ABSTRACT FROM AUTHOR]

Published
2020
Full Text
View/download PDF

10. Nutrición parenteral domiciliaria en España 2017. Informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA.

Author

Wanden-Berghe, Carmina, Pereira Cunill, José Luis, Cuerda Compes, Cristina, Ramos Boluda, Esther, Maiz Jiménez, María Irene, Gómez Candela, Carmen, Virgili Casas, Nuria, Burgos Peláez, Rosa, de la Cruz, Antonio Pérez, Penacho Lázaro, Maria Ángeles, Sánchez Martos, Eva Ángeles, de Luis Román, Daniel Antonio, Martínez Faedo, Ceferino, de los Ángeles Martín Fontalba, María, Álvarez Hernández, Julia, Matía Martín, Pilar, Díaz Guardiola, Patricia, Carabaña Pérez, Fátima, Sanz París, Alejandro, and Garde Orbaiz, Carmen

Subjects
*ARTIFICIAL feeding, *PARENTERAL feeding, *HOME care services, *OUTPATIENT medical care, *NUTRITIONAL status, *MEDICAL care, *TUMOR treatment, *HOME care service statistics, *HIRSCHSPRUNG'S disease, *NUTRITION, *PALLIATIVE treatment, *ACQUISITION of data, *SHORT bowel syndrome
Abstract

Aim: to communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2017.Material and Methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2017 to December 31st, 2017.Results: there were 308 patients from 45 Spanish hospitals (54.5% women), 38 children and 270 adults, with 3,012 episodes, which represent a prevalence rate of 6.61 patients/million inhabitants/year 2017. The most frequent diagnosis in adults was "palliative cancer" (25.6%), followed by "others". In children, it was Hirschsprung's disease with six cases (15.8%). The first indication was short bowel syndrome in both children (55.3%) and adults (33.7%). The most frequently used type of catheter was tunneled in both children (73.4%) and adults (38.2%). Ending 81 episodes, the most frequent cause was death (62.9%) and transition to oral feeding (34.7%).Conclusions: the progressive increase of collaborating centers and professionals in the registry of patients receiving NPD is maintained. The main indications of HPN and the motive for ending have remained stable. [ABSTRACT FROM AUTHOR]

Published
2018
Full Text
View/download PDF

11. Home Parenteral Nutrition in Spain, 2015. Home and Ambulatory Artificial Nutrition (NADYA) Group report

Author

Wanden-Berghe C, Martin C, Compes C, Candela C, Pelaez R, Villares J, Cunill J, de la Cruz A, Casas N, Faedo C, Hernandez J, Orbaiz C, Lazaro M, Martos E, Paris A, Marin M, Murillo A, Martin P, Folgueras T, Perez F, Guardiola P, Perez C, Roman D, Perez L, Carmona N, Celaya A, Gonzalez M, Planella J, Gonzalez L, Olmos M, Burdiel O, Ortiz C, Costa C, Llanos J, Fernandez A, Garcia P, Martinez M, Mauri S, Zafra M, Santaliestra M, Grp NADYA-SENPE, [Wanden-Berghe, Carmina] Hosp Gral Univ Alicante, ISABIAL FISABIO, Alicante, Spain, [Campos Martin, Cristina] Univ Hosp Virgen Macarena, UGC Endocrinol Nutr, Unidad Nutr Clin & Dietet, Seville, Spain, [Cuerda Compes, Cristina] Hosp Gral Univ Gregorio Maranon, Madrid, Spain, [Gomez Candela, Carmen] Hosp Univ La Paz, Madrid, Spain, [Burgos Pelaez, Rosa] Hosp Valle De Hebron, Barcelona, Spain, [Moreno Villares, Jose Manuel] Hosp Univ 12 Octubre, Madrid, Spain, [Pereira Cunill, Jose Luis] Hosp Univ Virgen del Rocio, Seville, Spain, [Perez de la Cruz, Antonio] Hosp Univ Virgen de las Nieves, Granada, Spain, [Virgili Casas, Nuria] Hosp Univ Bellvitge, Barcelona, Spain, [Martinez Faedo, Ceferino] Hosp Univ Cent Asturias, Oviedo, Spain, [Alvarez Hernandez, Julia] Hosp Univ Principe Asturias, Madrid, Spain, [Garde Orbaiz, Carmen] Hosp Univ Donostia, Guipuzkoa, Spain, [Penacho Lazaro, Ma Angeles] Hosp El Bierzo, Leon, Spain, [Sanchez Martos, Eva Angeles] Corp Sanitaria Parc Tauli, Barcelona, Spain, [Sanz Paris, Alejandro] Hosp Univ Miguel Servet, Zaragoza, Spain, [Gonzalo Marin, Montserrat] Hosp Univ Carlos Haya, Malaga, Spain, [Zugasti Murillo, Ana] Hosp Virgen del Camino, Pamplona, Spain, [Matia Martin, Pilar] Hosp Clin San Carlos, Madrid, Spain, [Martin Folgueras, Tomas] Complejo Hosp Univ Canarias, Santa Cruz De Tenerife, Spain, [Carabana Perez, Fatima] Hosp Univ Ramon y Cajal, Madrid, Spain, [Diaz Guardiola, Patricia] Hosp Univ Infanta Sofia, Madrid, Spain, [Tejera Perez, Cristina] Complejo Hosp Univ Ferrol, La Coruna, Spain, [de Luis Roman, Daniel] Hosp Clin Univ Valladolid, Valladolid, Spain, [Luengo Perez, Luis Miguel] Hosp Infanta Cristina, Badajoz, Spain, [Santacruz Carmona, Nieves] Hosp Gral Univ Alicante, Alicante, Spain, [Apezetxea Celaya, Antxon] Hosp Basurto, Bilbao, Spain, [Ponce Gonzalez, Miguel Angel] Hosp Univ Gran Canaria Dr Negrin, Las Palmas Gran Canaria, Spain, [Urgeles Planella, Juan Ramon] Hosp Univ Son Espases, Palma De Mallorca, Spain, [Laborda Gonzalez, Lucia] Hosp Cruces, Bilbao, Spain, [Martinez Olmos, Miguel Angel] Complejo Hosp Univ Santiago, Santiago De Compostela, A Coruna, Spain, [Sanchez-Vilar Burdiel, Olga] Fdn Jimenez Diaz, Madrid, Spain, [Joaquin Ortiz, Clara] Hosp Germans Trias i Pujol, Barcelona, Spain, [Martinez Costa, Cecilia] Hosp Clin Univ, Valencia, Spain, [Suarez Llanos, Jose Pablo] Hosp Univ Nuestra Senora de la Candelaria, Santa Cruz De Tenerife, Spain, [Calleja Fernandez, Alicia] Complejo Asistencial Leon, Leon, Spain, [Leyes Garcia, Pere] Hosp Clin Barcelona, Barcelona, Spain, [Gil Martinez, Ma Carmen] Hosp Cent Def Gomez Ulla, Madrid, Spain, [Mauri, Silvia] Hosp Univ Dr Josep Trueta, Girona, Spain, [Garcia Zafra, Maria Victoria] Hosp Univ Virgen de la Arrixaca, Murcia, Spain, and [Carrera Santaliestra, Maria Jose] Hosp del Mar, Barcelona, Spain

Subjects
Home parenteral nutrition, Epidemiolgy, Registries, Home care services, Parenteral nutrition, Nutritional support
Abstract

Aim: To communicate the results of the Spanish Home Parenteral Nutrition (HEN) registry of the NADYA-SENPE group for the year 2015.Material and methods: Data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2015.Results: Two hundred and thirty-six patients with 243 episodes of NPD were recorded from 40 hospitals. This represents a rate of 5.08 patients/million habitants for 2015. The most frequent pathology in adults was other (26.3%) followed by palliative oncological (21.6%). The most common complication was catheter-related sepsis which presented a rate of 0.53 infections/1,000 days of HPN. Sixty-four episodes were finished; the main cause was death (43.7%) and resuming to oral via (32.8%).Conclusions: we find increasing centers and professional partners, responding to the progressively more patients with parenteral nutrition support at home. The main indications for the establishment of NPD and causes termination of treatment remain stable.

Published
2016

Catalog

Books, media, physical & digital resources
See catalog results