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This study explored the health-related quality of life (HRQL) and health behaviours of children with sickle cell disease (SCD) and healthy siblings, drawing on Gap theory, which suggests HRQL is the discrepancy between current and ideal selves. Thirty-two interviews, facilitated by children's drawings of their current and ideal selves were thematically analysed. Two themes were identified. First, limitations of SCD and adjusted expectations. Children with SCD report some discrepancy in HRQL as they would like to participate in more physical activity, but overall, they appear to have normalised their condition and adjusted their expectations in the context of the limits of their condition. Healthy siblings worry about their sibling and have greater expectations about engaging in adventurous activities and for their future. Second, coping with SCD. Children have limited social support, although children with SCD seek support from their mothers. They also modify health behaviours, like reducing exercise to help prevent and cope with sickle-related pain. Children have some discrepancies in their HRQL but adjusted expectations among children with SCD may reduce discrepancy. Adapting health behaviours may help to cope with SCD but it is important that reductions in physical activity do not impair HRQL. [ABSTRACT FROM AUTHOR]

Recent social science research in the field of parenting following assisted conception has focused on the experiences of donor-assisted conception and surrogacy. This article draws from a study which explored the experiences of the transition to early parenthood in 16 heterosexual non-donor couples and includes a specific consideration of the experiences of men as they navigate this journey. We argue that these couples' transition to early parenthood can be as complex and provisional as in other newer forms of family making as they struggle with an emerging identity as a parent after successful non-donor in vitro fertilisation following their experiences of infertility. Their family making is contingent upon their ability to work at integrating their experiences of infertility and in vitro fertilisation into their emerging identity as a parent. This struggle is prominent when they contemplate a further pregnancy. Considering a sibling causes them further uncertainty and anxiety because it reminds them of their infertile identify and the possibility of further in vitro fertilisation. We report novel findings about the experiences of this transition to parenthood: how couples' identity as parents is shaped by the losses and grief of infertility and the anxiety of in vitro fertilisation. We argue that their struggle with an emerging parenthood identity challenges the normative, naturalised view of non-donor heterosexual in vitro fertilisation parenthood. Our work contributes to the work on identity in parenthood after in vitro fertilisation in an ongoing effort to understand how assisted technologies shape infertile parents' lives. This article reports a small study with a relatively homogeneous sample recruited from one fertility clinic. Nevertheless as an exploratory study of an under researched topic, we discuss useful insights and ideas for further research with larger and more diverse samples. [ABSTRACT FROM AUTHOR]

Introduction: Many UK smokers use e-cigarettes as a quitting aid; however, a substantial number discontinue use of the e-cigarette and revert to smoking. Understanding why this may happen is important both for individuals and for stop smoking services. Aims: To explore young adult smokers' experiences of use and discontinued use of the e-cigarette. Methods: Semi-structured interviews were conducted with six participants who tried e-cigarettes for at least seven days and returned to smoking. Data was transcribed and analysed using interpretative phenomenological analysis. Results: Findings suggested participants held conflicting attitudes about using e-cigarettes, which undermined attempts to quit smoking, and led to the discontinuation of the e-cigarette. These conflicts centred on participants' discomfort with the e-cigarette or vaping identity, lack of abstinence self-efficacy and navigation of barriers to e-cigarette use. The complex interplay of these factors may have led to an underestimation of the individual effort required to continue vaping and reinforced participants' perception of the e-cigarette as an inferior product to the cigarette. Conclusions: Future research should focus on the role of identity, self-efficacy, control and smokers' expectations of e-cigarettes on smoking cessation as these may be important factors to consider for a more tailored service for e-cigarette users. [ABSTRACT FROM AUTHOR]

Introduction: Smokers with respiratory diseases are less likely to quit than those without impaired lung function, yet few studies have investigated the effectiveness of smoking cessation interventions with this population, and none have used a computer-tailored approach. Aims: This paper aims to fill this gap in the literature by exploring smokers’ experiences when trying to quit and their perceptions of a computer-tailored intervention. Methods: Semi-structured interviews were conducted with 26 smokers recruited from six general practises in North London. Thematic analysis was conducted to examine participants’ previous experiences of quitting and their perceptions of receiving personal tailored feedback reports to aid smoking cessation. Results: Participants discussed how their positive smoking experiences coupled with their negative cessation experiences led to conflicts with quitting smoking. Although the computer-tailored intervention was key in prompting quit attempts and participants valued its personal approach; it was not sufficient as a stand-alone intervention. Conclusions: The results highlight the difficulties that smokers experience when quitting and the need for a more personalised stop smoking service in smokers with respiratory diseases. The study also demonstrates the application and potential for computer-tailored intervention as part of a wider programme of long-term smoking cessation. [ABSTRACT FROM AUTHOR]

The diversity in patient populations due to immigration in the UK has implications for adequate understanding of a patients’ culture by the clinician as well as patient–clinician cultural matching for enhanced service use and outcome. This qualitative study investigated how Nigerian clergy and health professionals perceived health-seeking behaviours among Nigerians in the UK, while considering the impact of their own beliefs and values as care providers. Six participants were interviewed (clergy,n = 2; health professionals,n = 4). Data were analysed using Interpretative Phenomenological Analysis. Results showed that the clergy and health professionals themselves use religious/cultural cure and formal healthcare methods, and believed Nigerian immigrants as predominantly using religious/cultural methods which can affect healthcare utilisation, although differences between the professionals were reported. The potentials for integrating other cure methods into the formal healthcare services were considered, while highlighting the challenges that may arise from such collaborative effort. [ABSTRACT FROM PUBLISHER]

Migration from different cultures carries with it some acclimatisation challenges. This study explored various health-seeking behaviours and potential barriers to healthcare utilisation among Nigerian Christians in the UK. This qualitative study involved 10 adult male and female participants, with both interviews and focus group discussion (FG) for data collection (Interviews:n = 4, FG:n = 6). Thematic analysis revealed that religious and cultural beliefs were barriers to healthcare utilisation. The implication is that further research on cultural matching between care providers and service users is needed; where religious leaders and health providers from Nigeria can influence health decisions among this migrant community. Limitations of the current study are discussed, with directions for further research identified. [ABSTRACT FROM AUTHOR]

Unlike many contemporary social work tasks, the work of Parental Order Reporters (PORs) in surrogacy cases in England is infrequent and unresearched. This study offers insights into how experienced social workers approach work in little-regulated but ethically complex contexts outside the mainstream. Sixteen PORs took part in telephone interviews about their experiences in providing court reports on over 135 applications. There was little evidence of controversy about surrogacy, but there were variations in approaches to the task, including that of financial scrutiny. Perceptions of risk arising from genetic difference were thought to be low in light of apparently strong parentchild bonding, commitment of commissioning parents, openness with the child about their origins and awareness of longer-term identity and contact needs. Concern about parents' potential to achieve the latter was limited. However, concerns about the impact on surrogates' children and PORs' constraints of entering the process too late were high. Findings suggest a need for regulation of surrogacy agencies and improved child-focused suitability assessments and preparation of surrogates and commissioning parents, including external scrutiny. More reference to courts over financial aspects and increased use of analytic, research-informed approaches by PORs is also indicated. [ABSTRACT FROM AUTHOR]

Objective: The aim of this study was to qualitatively assess the socio-culturally and religion-driven lived experiences before, during and after pregnancy from Persian men and women's perspectives using descriptive phenomenological analysis. This study also assessed the application of components of socio-cognitive theory on couples' lifestyle behaviours. Background: Social and cultural influences on preconception, pregnancy and postnatal behaviours of women have been acknowledged in the research literature, but remain under-studied in men and in countries driven by strong religious and cultural influences. Methods: A descriptive phenomenological approach was employed using 16 participants (8 male and 8 female), recruited from an Obstetric Hospital Clinic in Iran. Data were analysed by means of thematic content analysis. Results: Five major themes were identified, incorporating positive and negative dimensions to enhancing healthy pre- and perinatal lifestyle behaviours: access to information regarding lifestyles; external obstacles to healthy lifestyle behaviours; personal constraints; factors influencing quality of life; and factors encouraging healthy lifestyles. Conclusion: Analysis revealed that lifestyle behaviours before, during and after pregnancy were influenced by a number of interrelating factors involving personal, socio-cultural/environmental and psychological variables, with cultural norms prevailing over Western medical advice. These findings may inform culturally diverse health care systems and be useful in formulating recommendations for policies to improve future quality of care. [ABSTRACT FROM AUTHOR]

For women opting to use surrogacy to overcome subfertility, a choice can be made to have a genetically related or unrelated baby. Similarly, women opting to become surrogate mothers also have to choose to gestate and relinquish a genetically related or unrelated baby. This study explored the cognitions behind the initial choices made and determined the strength of those cognitions six months post-delivery of the surrogate baby. Surrogate and Intended mothers (N=81) undergoing Artificial Insemination (AI, genetic) or Embryo Transfer (ET, gestational) were studied separately (four groups) at the start of their surrogate arrangement and those with a positive outcome (n=34) were re-interviewed at six months post-relinquishment. There were significant differences between surrogate and intended mothers in their confidence about the arrangement. Beliefs about the importance of a genetic link were predictors of ET arrangements. Responses were consistent over a one and a half-year study period. The ethical and clinical implications of the results are discussed in relation to appropriate self-selection and confidence with the surrogate process and the importance of genetic offspring. [ABSTRACT FROM AUTHOR]