1. The French Health Data Hub and the German Medical Informatics Initiatives Two National Projects to Promote Data Sharing in Healthcare
- Author
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Marc Cuggia, Stéphanie Combes, Laboratoire Traitement du Signal et de l'Image (LTSI), Université de Rennes (UR)-Institut National de la Santé et de la Recherche Médicale (INSERM), Laboratoire du Centre d'examens de santé de la CPAM de Côte-d'Or (Lab CES CPAM Dijon), Caisse primaire d'assurance maladie (CPAM), Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Rennes 1 (UR1), Université de Rennes (UNIV-RENNES)-Université de Rennes (UNIV-RENNES), and Jonchère, Laurent
- Subjects
Big Data ,Information privacy ,Knowledge management ,020205 medical informatics ,data sharing ,Interoperability ,Big data ,interoperability ,02 engineering and technology ,Health informatics ,Data governance ,03 medical and health sciences ,0302 clinical medicine ,Germany ,Health care ,0202 electrical engineering, electronic engineering, information engineering ,media_common.cataloged_instance ,030212 general & internal medicine ,European union ,Survey ,ComputingMilieux_MISCELLANEOUS ,media_common ,[SDV.IB] Life Sciences [q-bio]/Bioengineering ,Section 9: Clinical Research Informatics ,Health Information Interoperability ,Information Dissemination ,business.industry ,General Medicine ,Data sharing ,[SDV.IB]Life Sciences [q-bio]/Bioengineering ,France ,business ,Delivery of Health Care ,Medical Informatics - Abstract
Objective: The diversity and volume of health data have been rapidly increasing in recent years. While such big data hold significant promise for accelerating discovery, data use entails many challenges including the need for adequate computational infrastructure and secure processes for data sharing and access. In Europe, two nationwide projects have been launched recently to support these objectives. This paper compares the French Health Data Hub initiative (HDH) to the German Medical Informatics Initiatives (MII). Method: We analysed the projects according to the following criteria: (i) Global approach and ambitions, (ii) Use cases, (iii) Governance and organization, (iv) Technical aspects and interoperability, and (v) Data privacy access/data governance. Results: The French and German projects share the same objectives but are different in terms of methodologies. The HDH project is based on a top-down approach and focuses on a shared computational infrastructure, providing tools and services to speed projects between data producers and data users. The MII project is based on a bottom-up approach and relies on four consortia including academic hospitals, universities, and private partners. Conclusion: Both projects could benefit from each other. A Franco-German cooperation, extended to other countries of the European Union with similar initiatives, should allow sharing and strengthening efforts in a strategic area where competition from other countries has increased.
- Published
- 2019
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