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1. Home Intranasal Dexmedetomidine for Refractory Dystonia in Pediatric Palliative Care

Author

Sara Della Paolera, Lucia De Zen, Irene Del Rizzo, Aldo Skabar, Egidio Barbi, Valentina Taucar, De Zen, Lucia, Della Paolera, Sara, Del Rizzo, Irene, Taucar, Valentina, Skabar, Aldo, and Barbi, Egidio

Subjects
Dystonia, medicine.medical_specialty, business.industry, Palliative Care, MEDLINE, dexmedetomidine, medicine.disease, Pediatric palliative care, Anesthesiology and Pain Medicine, palliative, Refractory, medicine, Humans, Hypnotics and Sedatives, Nasal administration, dystonia, Neurology (clinical), Dexmedetomidine, Child, Intensive care medicine, business, Administration, Intranasal, General Nursing, medicine.drug
Abstract

N/A

Published
2020
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2. Adolescents with chronic disease and social media: A cross-sectional study

Author

Maria Rita Lucia Genovese, Andrea Trombetta, Sergio Ghirardo, Egidio Barbi, Laura De Nardi, Valentina Taucar, De Nardi, L., Trombetta, A., Ghirardo, S., Genovese, M. R. L., Barbi, E., and Taucar, V.

Subjects
Male, medicine.medical_specialty, Facebook, 020205 medical informatics, Adolescent, Cross-sectional study, Friends, 02 engineering and technology, Disease, Inflammatory bowel disease, 03 medical and health sciences, Young Adult, 0302 clinical medicine, Diabetes mellitus, 0202 electrical engineering, electronic engineering, information engineering, medicine, Humans, Social media, Interpersonal Relations, 030212 general & internal medicine, Parent-Child Relations, Descriptive statistics, business.industry, Loneliness, social networking, Social Support, Professional-Patient Relations, medicine.disease, adolescent health, Cross-Sectional Studies, chronic disease, Social Isolation, Adolescent Behavior, Family medicine, Pediatrics, Perinatology and Child Health, Cohort, Female, business, Attitude to Health, Social Media, Adolescent health
Abstract

ObjectiveThis study aims to explore the attitude of adolescents with chronic diseases toward social media exposure, focusing in particular on Facebook.DesignCross-sectional study.SettingAn anonymous semistructured survey was distributed to an Italian hospital-based cohort of adolescents with chronic disease to explore the role of Facebook in their daily life.PatientsWe recruited 212 adolescents (aged between 13 and 24 years) with a diagnosis of inflammatory bowel disease, coeliac disease, diabetes mellitus type 1 and cystic fibrosis.ResultsTwo hundred and seven of the 212 (97.6%) expressed the need of sharing their illness experience with friends, 201 out of 212 (94.8%) usually searched information on the internet to find new therapies and to discover their prognosis. One hundred and forty-nine out of 212 adolescents (70.3%) perceived dependence on their parents as the most negative aspect of having a chronic disease, and 200 out of 212 (94.3%) were looking for friends with the same disease on Facebook. Two hundred and ten out of 212 (99.1%) did not want their doctors or nurse on their social media platforms. During the active disease periods, the time spent with social media increased from an average of 5 to 11 hours.ConclusionsThis descriptive analysis focused on the Facebook impact on chronic disease perception among affected adolescents. It showed that they used to spend an increased amount of time on this platform during disease flare-up and highlighted their wish of keeping doctors and nurses away from their social dimension.

Published
2020

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