8 results on '"Service user research"'
Search Results
2. ‘Cutting the dash’ — experiences of mental health and employment
- Author
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Arthur, Belinda, Knifton, Lee, Park, Margaret, and Doherty, Ellen
- Published
- 2009
- Full Text
- View/download PDF
3. Modernising day and employment services in South Essex: the role of service user researchers
- Author
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Secker, Jenny and Tebbs, Mark
- Published
- 2008
- Full Text
- View/download PDF
4. Lived experience research as a resource for recovery: a mixed methods study
- Author
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Leonie Dunn, Katherine M. Boydell, Barbara Tooth, Helen Glover, Justin Newton Scanlan, Anne Honey, Monique Hines, Trang Thuy Do, Katherine Gill, and Francesca Coniglio
- Subjects
lcsh:RC435-571 ,Process (engineering) ,Service user research ,Peer Group ,Knowledge translation ,Nature versus nurture ,Hope ,03 medical and health sciences ,0302 clinical medicine ,Resource (project management) ,Surveys and Questionnaires ,lcsh:Psychiatry ,Humans ,030212 general & internal medicine ,Mental health recovery ,Hopefulness ,Medical education ,Perspective (graphical) ,Mental health ,030227 psychiatry ,Lived experience research ,Psychiatry and Mental health ,Helpfulness ,Health Resources ,Psychology ,Research Article - Abstract
BackgroundLived experience research is conducted by people who have experience of mental health issues and is therefore better placed than more traditional research to illuminate participants’ experiences. Findings that focus on identifying enablers of recovery from a lived experience perspective have the potential to assist people in their recovery process. However, this lived experience research is often difficult to find, access and interpret. We co-produced user-friendly and engaging resources to disseminate findings from six lived experience research studies. This paper seeks to answer the research questions: a) Did exposure to lived experience research increase hopefulness for participants?; and b) How else did interacting with lived experience research resources influence participants’ lives?MethodsThirty-eight participants were introduced to four resources of their choosing by peer workers over a four-week period. The helpfulness of resources was evaluated using mixed methods, including a quasi-experimental analysis of change in hope, an anonymous survey and in-depth interviews.ResultsFindings indicated that the resources promoted hope, but that increases in hopefulness may not be seen immediately. Other impacts include that the resources: encouraged helpful activities; provided a positive experience; increased valued knowledge; encouraged people to reflect on their journey and think constructively about mental health issues; helped people to feel less alone; and assisted people to explain their situation to others.ConclusionsThe research suggests the potential usefulness of lived experience research resources, presented in user-friendly formats, in the lives of people who experience mental health issues and implies a need to nurture this type of research.
- Published
- 2020
- Full Text
- View/download PDF
5. ‘What difference does it make?’ Finding evidence of the impact of mental health service user researchers on research into the experiences of detained psychiatric patients.
- Author
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Gillard, Steven, Borschmann, Rohan, Turner, Kati, Goodrich‐Purnell, Norman, Lovell, Kathleen, and Chambers, Mary
- Subjects
- *
MENTAL health services , *RESEARCH methodology evaluation , *PSYCHOTHERAPY patients , *EMPIRICAL research - Abstract
Background Interest in the involvement of members of the public in health services research is increasingly focussed on evaluation of the impact of involvement on the research process and the production of knowledge about health. Service user involvement in mental health research is well-established, yet empirical studies into the impact of involvement are lacking. Objective To investigate the potential to provide empirical evidence of the impact of service user researchers (SURs) on the research process. Design The study uses a range of secondary analyses of interview transcripts from a qualitative study of the experiences of psychiatric patients detained under the Mental Health Act (1983) to compare the way in which SURs and conventional university researchers (URs) conduct and analyse qualitative interviews. Results Analyses indicated some differences in the ways in which service user- and conventional URs conducted qualitative interviews. SURs were much more likely to code (analyse) interview transcripts in terms of interviewees’ experiences and feelings, while conventional URs coded the same transcripts largely in terms of processes and procedures related to detention. The limitations of a secondary analysis based on small numbers of researchers are identified and discussed. Conclusions The study demonstrates the potential to develop a methodologically robust approach to evaluate empirically the impact of SURs on research process and findings, and is indicative of the potential benefits of collaborative research for informing evidence-based practice in mental health services. [ABSTRACT FROM AUTHOR]
- Published
- 2010
- Full Text
- View/download PDF
6. Still dreaming: Service users' employment, education & training goals.
- Author
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Secker, Jenny and Gelling, Leslie
- Subjects
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MENTAL health , *PUBLIC health , *EMPLOYEES , *UNEMPLOYMENT , *RESEARCH , *PSYCHIATRY , *MENTAL health services - Abstract
Background: Enabling service users to find and keep real jobs is a significant strand of UK mental health policy. An evidence-based approach to employment support is well documented, but is not widely implemented in the UK. Aim: To inform the development of vocational services in South Essex by ascertaining service users' employment, education and training goals. Method: Face-to-face interviews with a randomly selected sample of service users on enhanced CPA carried out by a team of service user researchers using an adapted version of a questionnaire developed for a previous similar survey. A postal survey of a further randomly selected sample of service users on enhanced CPA using a brief version of the questionnaire was also carried out. Results: Interviews were carried out with 82 service users. A further 159 returned a postal questionnaire. 42.7% had no regular day time activity. Only 15% were in paid work. 60.6% were definitely interested in finding work. Seventy-seven percent of respondents to the interviews who were interested in work were not currently receiving support to achieve this. The main help wanted was support in work, help with mental health problems and benefits advice. The main barriers identified were employers' attitudes and threat to benefits. Service user researchers reported benefits from undertaking the work. Conclusions: High numbers of mental health service users are interested in pursuing employment, education or training goals but currently lack the support they need to do so. Implementation of an evidence-based approach to employment support has the potential to enable service users to achieve their goals. Service users are well able to undertake research with considerable benefits for themselves and other stakeholders. Declaration of interest: None. [ABSTRACT FROM AUTHOR]
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- 2006
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- View/download PDF
7. Decision making and support available to individuals considering and undertaking electroconvulsive therapy (ECT): a qualitative, consumer-led study
- Author
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Sarah Jacek, Lisa Gomez, Joanna Ho, Justin Newton Scanlan, Karen Wells, Graeme Halliday, Scott Rutter, Hassan Mehdi, Nicola Hancock, Megan Still, Anthony Tuite, and Andrew Jones
- Subjects
Patient experience ,Adult ,Male ,Psychotherapist ,lcsh:RC435-571 ,medicine.medical_treatment ,Decision Making ,Service user research ,behavioral disciplines and activities ,Consumer-led research ,03 medical and health sciences ,0302 clinical medicine ,Electroconvulsive therapy ,Patient Education as Topic ,lcsh:Psychiatry ,mental disorders ,medicine ,Humans ,030212 general & internal medicine ,Qualitative Research ,Cognition ,Qualitative methods ,Patient Acceptance of Health Care ,Mental health ,030227 psychiatry ,Psychiatry and Mental health ,Family member ,Patient Satisfaction ,Female ,Psychology ,Qualitative research ,Research Article - Abstract
Background Electroconvulsive therapy (ECT) is one of the most controversial treatments in psychiatry. This controversy and diverse and often strongly held opinions can make decision making processes around ECT more complex. Method This consumer-led project explored the experiences of individuals who had received ECT in terms of the information they received, their experience of ECT and suggestions for ways that decision making processes and experiences of ECT can be improved. Interviews were conducted by consumer researchers who had also received ECT and transcripts were analysed using constant comparative techniques. Results Seventeen individuals participated. Four overarching categories were identified from participant interviews: Information matters; Preparation and decisions before ECT; Experience of ECT; and Suggestions for improvement. Most participants suggested that more information was required and that this information should be made available more regularly to support decision making. Additional suggestions included greater involvement of family and friends (including having a family member or friend present during the ECT procedure), opportunities to gain information from individuals who had received ECT and more support for managing memory and cognitive side effects. Conclusion This study provides valuable consumer-provided insights and recommendations for psychiatrists and mental health clinicians working within ECT clinics and with consumers considering or preparing for ECT. Electronic supplementary material The online version of this article (10.1186/s12888-018-1813-9) contains supplementary material, which is available to authorized users.
- Published
- 2018
8. Lived experience research as a resource for recovery: a mixed methods study.
- Author
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Honey, Anne, Boydell, Katherine M., Coniglio, Francesca, Do, Trang Thuy, Dunn, Leonie, Gill, Katherine, Glover, Helen, Hines, Monique, Scanlan, Justin Newton, and Tooth, Barbara
- Subjects
WASTE recycling ,MENTAL health ,EXPERIENCE - Abstract
Background: Lived experience research is conducted by people who have experience of mental health issues and is therefore better placed than more traditional research to illuminate participants' experiences. Findings that focus on identifying enablers of recovery from a lived experience perspective have the potential to assist people in their recovery process. However, this lived experience research is often difficult to find, access and interpret. We co-produced user-friendly and engaging resources to disseminate findings from six lived experience research studies. This paper seeks to answer the research questions: a) Did exposure to lived experience research increase hopefulness for participants?; and b) How else did interacting with lived experience research resources influence participants' lives? Methods: Thirty-eight participants were introduced to four resources of their choosing by peer workers over a four-week period. The helpfulness of resources was evaluated using mixed methods, including a quasi-experimental analysis of change in hope, an anonymous survey and in-depth interviews. Results: Findings indicated that the resources promoted hope, but that increases in hopefulness may not be seen immediately. Other impacts include that the resources: encouraged helpful activities; provided a positive experience; increased valued knowledge; encouraged people to reflect on their journey and think constructively about mental health issues; helped people to feel less alone; and assisted people to explain their situation to others. Conclusions: The research suggests the potential usefulness of lived experience research resources, presented in user-friendly formats, in the lives of people who experience mental health issues and implies a need to nurture this type of research. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
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