1. Novel Use of a Social-Media-Based Survey to Detect Regional Differences in Management of Monochorionic-Diamniotic Twins
- Author
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Christina S. Han, Martin Walker, Kerry Holliman, Bettina W. Paek, Emily Scibetta, Lawrence D. Platt, Ilina D. Pluym, Lorna Kwan, Yalda Afshar, Thalia Wong, Hui Liu, and Rashmi Rao
- Subjects
Adult ,medicine.medical_specialty ,Internationality ,Facebook ,Adolescent ,medicine.medical_treatment ,social media ,Clinical Sciences ,MEDLINE ,Support group ,Paediatrics and Reproductive Medicine ,03 medical and health sciences ,Young Adult ,0302 clinical medicine ,Pregnancy ,Clinical Research ,Surveys and Questionnaires ,Behavioral and Social Science ,medicine ,Humans ,Social media ,survey ,Obstetrics & Reproductive Medicine ,Provider type ,monochorionic diamniotic ,Pediatric ,030219 obstetrics & reproductive medicine ,business.industry ,Obstetrics and Gynecology ,Twin ,Fetofetal Transfusion ,web-based research ,twins ,Middle Aged ,Perinatology ,Cross-Sectional Studies ,Good Health and Well Being ,Family medicine ,Pediatrics, Perinatology and Child Health ,Pregnancy, Twin ,Patient survey ,Female ,Guideline Adherence ,business ,Social Media ,Regional differences - Abstract
Objective This study aims to evaluate the utility of social media to distribute a patient survey on differences in management and outcomes of monochorionic–diamniotic (MCDA) pregnancies. Study Design A cross-sectional survey was posted to an English-language MCDA twins patient-centered support group within the social media site, Facebook from April 2, 2018 to June 26, 2018. Subjects were recruited through a technique called “snowballing,” whereby individuals shared the survey to assist with recruiting. Patient reported data were analyzed using Chi-square and Kruskal–Wallis's tests to explore characteristics associated with surveillance and outcomes as related to region and provider type. Results Over 3 months, the post “reached” 14,288 Facebook users, among which 5,653 (40%) clicked on the post. A total of 2,357 respondents with MCDA pregnancies completed the survey. Total 1,928 (82%) were from the United States (US) and 419 (18%) from other countries. Total 85% of patients had co-management with maternal–fetal medicine (MFM), more in the US compared with the rest of the world (87 vs. 74%, p Conclusion A survey distributed via social media can be effective in evaluating real-life management and outcomes of an uncommon obstetrical diagnosis. This survey elucidates wide international variation in adherence to guidelines, management, and outcomes.
- Published
- 2020