13 results on '"Goerling, Ute"'
Search Results
2. Information, communication, and cancer patients’ trust in the physician: what challenges do we have to face in an era of precision cancer medicine?
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Pichler, Theresia, Rohrmoser, Amy, Letsch, Anne, Westphalen, C. Benedikt, Keilholz, Ulrich, Heinemann, Volker, Lamping, Mario, Jost, Philipp J., Riedmann, Kristina, Herschbach, Peter, and Goerling, Ute
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- 2021
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3. Caring for dependent children impacts practical and emotional problems and need for support, but not perceived distress among cancer patients.
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Fugmann, Dominik, Richter, Peter, Karger, André, Ernstmann, Nicole, Hönig, Klaus, Bergelt, Corinna, Faller, Hermann, Maatouk, Imad, Hornemann, Beate, Stein, Barbara, Teufel, Martin, Goerling, Ute, Erim, Yesim, Geiser, Franziska, Albus, Christian, Senf, Bianca, Wickert, Martin, and Weis, Joachim
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CHILD care ,SOCIAL support ,CANCER patients ,PSYCHOLOGICAL distress ,CANCER patient care ,PSYCHO-oncology - Abstract
Objective: More than one in 10 cancer patients care for dependent children. It is unclear whether this status makes a difference in terms of the distress and associated problems they experience, or whether it is linked to differences in the need for or utilization of psychosocial support. Methods: Secondary analysis of a cross‐sectional German study in National Comprehensive Cancer Centers using self‐report standardized questionnaires administered to inpatients. Patients living with dependent children (n = 161) were matched by age and sex with a subsample of 161 cancer patients not living with dependent children. The resulting sample was tested for between‐group differences in Distress Thermometer (DT) scores and the corresponding DT Problem List. Additionally, between‐group differences in measures of the need for and utilization of psychosocial support were examined. Results: More than 50% of all patients suffered from clinically relevant distress. Patients living with dependent children reported significantly more practical (p < 0.001, η2p = 0.04), family (p < 0.001, η2p = 0.03), and emotional problems (p < 0.001, η2p = 0.01). Although reporting a greater need for psychological support, parents with cancer were not found to more frequently utilize any type of psychosocial support. Conclusions: The specific problems and needs of parents with cancer who care for dependent children are currently not sufficiently addressed in the clinical care pathways. All families should be helped to establish open and honest communication as well as understand the available support systems and what they can provide. Tailored interventions should be implemented for highly distressed families. [ABSTRACT FROM AUTHOR]
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- 2023
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4. Quality of Life of Patients with Head and Neck Cancer Receiving Cetuximab, Fluorouracil, Cisplatin Comparing to Cetuximab, Fluorouracil, Cisplatin, and Docetaxel within the CEFCID Trial
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Goerling, Ute, Gauler, Thomas, Dietz, Andreas, Grünwald, Viktor, Knipping, Stephan, Guntinas-Lichius, Orlando, Frickhofen, Norbert, Lindeman, Hans-Walter, Fietkau, Rainer, Haxel, Boris, Große-Thie, Christina, Maschmeyer, Georg, Zipfel, Matthias, Martus, Peter, Knoedler, Maren, Keilholz, Ulrich, Klinghammer, Konrad, and Lindemann, Hans-Walter
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Recurrent and metastatic ,Cancer Research ,Squamous Cell Carcinoma of Head and Neck ,Medizin ,Cetuximab ,Hematology ,Therapy intensification ,Docetaxel ,Oncology ,Head and Neck Neoplasms ,Antineoplastic Combined Chemotherapy Protocols ,Quality of Life ,Humans ,Fluorouracil ,Cisplatin ,Neoplasm Recurrence, Local ,Head and neck cancer ,600 Technik, Medizin, angewandte Wissenschaften::610 Medizin und Gesundheit::610 Medizin und Gesundheit ,Fatigue - Abstract
Introduction: CeFCiD was a multicenter phase II study comparing the efficacy of cetuximab (C), 5-flourouracil, and cisplatin with the same regimen adding docetaxel (D) in recurrent/metastatic head and neck cancer. The primary analysis trial did not demonstrate survival benefit from therapy intensification in first-line recurrent and/or metastatic squamous cell carcinoma of the head and neck (SCCHN). The current analysis of the trial assessed the impact of treatment on quality of life (QoL). Methods: The European Organization for Research and Treatment of Cancer Quality of life Questionnaire QLQ-C30 and the tumor-specific module for head and neck cancer (QLQ-H&N35) were used to assess QoL at baseline (visit 1), after 2 (visit 3), 4 (visit 5), and 6 (visit 7) cycles of chemotherapy. Results: Of 180 patients included in this study, 86 patients (47.8%) completed the questionnaires at baseline. Considering selected scores over treatment time, there was no difference in global QoL, dyspnea, swallowing, and speech between the treatment arms in the course. For fatigue, a significant increase from baseline to visit 3 (p = 0.02), visit 5 (p = 0.002), and to visit 7 (p = 0.003) was observed for patients receiving D, cisplatin or carboplatin (P), 5-fluorouracil (F), and C. At the end of chemotherapy, the manifestation of fatigue was similar compared in the 2 treatment arms. Discussion/Conclusion: Therapy intensification not adversely affects selected scores of QoL of patients with recurrent and/or metastatic SCCHN. Nevertheless, fatigue seems to be pronounced in patients treated with D.
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- 2021
5. Prognostic Awareness in Advanced Disease: A Review Update and Concept Analysis
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K��hne, Franziska, Hermann, Myriel, Preisler, Martina, Rohrmoser, Amy, Letsch, Anne, and Goerling, Ute
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palliative care ,systematic review ,150 Psychologie ,Mini Review ,advanced disease ,oncology ,Psychology ,cancer ,prognosis ,patient-centered care ,General Psychology - Abstract
Purpose: Although subjective knowledge about the prognosis of an advanced disease is extremely important for coping and treatment planning, the concept of prognostic awareness (PA) remains inconsistently defined. The aims of the scoping review were to synthesize a definition of PA from the most recent literature, describe preconditions, correlates and consequences, and suggest a conceptual model. Methods: By using scoping review methodology, we searched the Web of Science and PubMed databases, and included publications, reviews, meta-analyses or guidelines on all physical diagnoses, as well as publications offering a conceptual or an operational definition of PA. The data were analyzed by means of content analysis techniques. Results: Of the 24 included publications, 21 referred exclusively to cancer, one to patients with hip fractures and two to palliative care in general. The deduced definition of PA comprised the following facets: adequate estimation of chances for recovery, knowledge of limited time to live, adequate estimation of life expectancy, knowledge of therapy goals, and knowledge of the course of the disease. Further content analysis results were mapped graphically and in a detailed table. Conclusion: There appears to be a lack of theoretical embedding of PA that in turn influences the methods used for empirical investigation. Drawing on a clear conceptual definition, longitudinal or experimental studies would be desirable., Zweitver��ffentlichungen der Universit��t Potsdam : Humanwissenschaftliche Reihe; 745
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- 2021
6. Psychooncological care for patients with cancer during 12 months of the Covid‐19 pandemic: Views and experiences of senior psychooncologists at German Comprehensive Cancer Centers.
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Dinkel, Andreas, Goerling, Ute, Hönig, Klaus, Karger, André, Maatouk, Imad, Petermann‐Meyer, Andrea, Senf, Bianca, Woellert, Katharina, Wünsch, Alexander, Zimmermann, Tanja, and Schulz‐Kindermann, Frank
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COVID-19 pandemic , *CANCER patient care , *SARS-CoV-2 , *PSYCHOLOGICAL adaptation , *PANDEMICS - Abstract
Key points: A monthly videoconference was maintained over 1 year, allowing senior psychooncologists from German Comprehensive Cancer Centers to discuss the implications of the Covid‐19 pandemic for psychooncological care.In the early phase of the pandemic, a widespread disruption of psychooncological services was noted.Rapidly developed adaptations of regular services worked well and sometimes brought about unexpected, creative solutions.In March 2021, the high numbers of infections, the occurrence of new variants of the coronavirus, and the slow progress in vaccination raise fears about new disruptions and restrictions in service provision.In coping with the pandemic, many therapists have felt like many cancer patients do feel in the process of coping with cancer, and this might help to better understand our patients. [ABSTRACT FROM AUTHOR]
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- 2021
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7. Prognostic Awareness in Advanced Disease: A Review Update and Concept Analysis.
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Kühne, Franziska, Hermann, Myriel, Preisler, Martina, Rohrmoser, Amy, Letsch, Anne, and Goerling, Ute
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SCIENCE databases ,PROGNOSIS ,PALLIATIVE treatment ,OPERATIONAL definitions ,PHYSICAL diagnosis ,HIP fractures - Abstract
Purpose: Although subjective knowledge about the prognosis of an advanced disease is extremely important for coping and treatment planning, the concept of prognostic awareness (PA) remains inconsistently defined. The aims of the scoping review were to synthesize a definition of PA from the most recent literature, describe preconditions, correlates and consequences, and suggest a conceptual model. Methods: By using scoping review methodology, we searched the Web of Science and PubMed databases, and included publications, reviews, meta-analyses or guidelines on all physical diagnoses, as well as publications offering a conceptual or an operational definition of PA. The data were analyzed by means of content analysis techniques. Results: Of the 24 included publications, 21 referred exclusively to cancer, one to patients with hip fractures and two to palliative care in general. The deduced definition of PA comprised the following facets: adequate estimation of chances for recovery, knowledge of limited time to live, adequate estimation of life expectancy, knowledge of therapy goals, and knowledge of the course of the disease. Further content analysis results were mapped graphically and in a detailed table. Conclusion: There appears to be a lack of theoretical embedding of PA that in turn influences the methods used for empirical investigation. Drawing on a clear conceptual definition, longitudinal or experimental studies would be desirable. [ABSTRACT FROM AUTHOR]
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- 2021
- Full Text
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8. Perspectives of patients with multiple myeloma on accepting their prognosis—A qualitative interview study.
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Hermann, Myriel, Kühne, Franziska, Rohrmoser, Amy, Preisler, Martina, Goerling, Ute, and Letsch, Anne
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MULTIPLE myeloma ,PSYCHOLOGICAL distress ,PSYCHOLOGICAL adaptation ,SOCIAL acceptance ,ACCEPTANCE sampling - Abstract
Objective: Prognostic awareness is essential for making treatment decisions in malignant diseases. Being confronted with a poor prognosis, however, can affect patients' mental health. Therefore, it is important to study coping in the context of malignant diseases. Acceptance is an adaptive coping strategy associated with less psychological distress. This study sought to explore the facilitators and barriers for prognostic acceptance in a sample in which both hope and uncertainty regarding prognosis are pronounced: multiple myeloma patients. Methods: In a German university hospital, 20 multiple myeloma patients participated in semistructured interviews. Following thematic content analysis by Kuckartz, the interview transcripts were coded for facilitators and barriers for prognostic acceptance. Additionally, patients completed questionnaires on prognostic awareness and sociodemographic characteristics. Results: Patients described the following facilitators for prognostic acceptance: social support, positive thinking, focusing on the Here and Now, proactive confrontation, having little to no symptoms, and being there for others. The indicated barriers were distressing physical symptoms and restricted functioning, social distress, and additional distress from other areas of life. Conclusions: Patients reported a variety of factors—related to the social realm, symptom burden, and specific attitudes—that help or hinder them in accepting their prognosis. Oncologists and psycho‐oncologists may support prognostic acceptance by encouraging patients to both actively deal with realistic information as well as enjoy pleasant and meaningful moments in the present during which the disease and its prognosis recedes into the background. [ABSTRACT FROM AUTHOR]
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- 2021
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9. Cancer patients' expectations when undergoing extensive molecular diagnostics-A qualitative study.
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Rohrmoser, Amy, Pichler, Theresia, Letsch, Anne, Westphalen, C. Benedikt, Keilholz, Ulrich, Heinemann, Volker, Goerling, Ute, and Herschbach, Peter
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MOLECULAR diagnosis ,CANCER patients ,INFORMED consent (Medical law) ,QUALITATIVE research ,PATIENT participation - Abstract
Objective: Precision cancer medicine (PCM) aims at identifying tumor-driving molecular characteristics to improve therapy. Despite early successes for some cancers, the approach faces manifold challenges. Patients undergoing extensive molecular diagnostics (MD) may hope for personal benefit, although chances are small. In order to offer suitable support to this group, health-care professionals need to gain insight into patients' experience. Thus, this study sought to explore the expectations of cancer patients undergoing MD of their tumor.Methods: In two German Comprehensive Cancer Centers, 30 patients with advanced-stage cancer who had exhausted conventional treatment and had consented to extensive, research-oriented MD (whole-genome sequencing n = 24, panel sequencing n = 6) participated in semi-structured interviews. Following thematic content analysis by Kuckartz, the interview transcripts were coded for expectations of MD participation and topics closely related. Moreover, patients completed questionnaires on their sociodemographic characteristics, medical history, and psychosocial distress.Results: Patients reported to be expecting (a) an improvement of their treatment, (b) a contribution to research, and/or (c) additional insight to their own cancer. Further, they described to feel individually appreciated and to have a reason to maintain hope for cure or recovery by participating in MD.Conclusions: Molecular diagnostics participation led patients to feel treated in a more "personalized" way, allowing them a greater sense of control in their situation of severe illness. Oncologists and psycho-oncologists need to ensure comprehensive information and empathetic support for patients undergoing extensive MD to balance their expectations and actual chances of clinical benefit. [ABSTRACT FROM AUTHOR]- Published
- 2020
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10. Information needs in cancer patients across the disease trajectory. A prospective study.
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Goerling, Ute, Faller, Hermann, Hornemann, Beate, Hönig, Klaus, Bergelt, Corinna, Maatouk, Imad, Stein, Barbara, Teufel, Martin, Erim, Yesim, Geiser, Franziska, Niecke, Alexander, Senf, Bianca, Wickert, Martin, Büttner-Teleaga, Antje, and Weis, Joachim
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INFORMATION needs , *CANCER patients , *LONGITUDINAL method , *PATIENT satisfaction , *SATISFACTION , *TUMOR treatment , *RESEARCH , *RESEARCH methodology , *MEDICAL cooperation , *EVALUATION research , *COMPARATIVE studies , *MENTAL depression , *ANXIETY , *MEDICAL needs assessment - Abstract
Objective: As satisfaction with information received is an important precondition of adherence to treatment in cancer patients, we aimed to examine the level of perceived information, information satisfaction and information needs, and examine the prospective association between information satisfaction and anxiety.Methods: In a multicenter study in Germany, 1398 cancer patients were evaluated in terms of this at baseline, after 6 and 12 months.Results: At baseline, the majority of patients reported to feel well-informed. Nevertheless, a considerable proportion reported to wish more information. The proportion of patients reporting unmet information needs declined over time (p < 0.001). Anxiety at baseline is negatively associated with information satisfaction after 6 months (β = -0.10, p < 0.01). Conversely, information satisfaction at baseline is negatively associated with anxiety after 6 months (β = -0.10, p < 0.01). At 12 months, only the negative path leading from anxiety to information satisfaction was significant (β = -0.12, p < 0.01).Conclusion: We found high levels of information received and high information satisfaction. Nevertheless, there was a considerable quantity of unmet information needs. A bidirectional relationship between information satisfaction and anxiety symptoms emerged after 6 months.Practice Implications: These results underline the priority of providing information and emotional support to cancer patients to improve satisfaction with information. [ABSTRACT FROM AUTHOR]- Published
- 2020
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11. Psychosocial distress and utilization of professional psychological care in cancer patients: An observational study in National Comprehensive Cancer Centers (CCCs) in Germany.
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Weis, Joachim, Hönig, Klaus, Bergelt, Corinna, Faller, Hermann, Brechtel, Anette, Hornemann, Beate, Stein, Barbara, Teufel, Martin, Goerling, Ute, Erim, Yesim, Geiser, Franziska, Niecke, Alexander, Senf, Bianca, Wickert, Martin, Schmoor, Claudia, Gerlach, Angelika, Schellberg, Dieter, Büttner‐Teleaga, Antje, and Schieber, Katharina
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ANXIETY diagnosis ,MENTAL depression ,CANCER diagnosis ,CANCER patient care ,CANCER hospitals - Abstract
Objective: The study aimed to assess cancer patients' use of psychological care and its correlates in a large sample of cancer patients in Comprehensive Cancer Centers (CCCs) in Germany. Methods: In a multicenter study in Germany, cancer patients with various diagnoses were evaluated for self‐reported use of psychological support. We measured psychological distress, depression and anxiety, quality of life, and social support with standardized questionnaires and analyzed its association with the utilization of psychological care using multivariable logistic regression. This paper focuses on a cross‐sectional analysis of the data assessed during inpatient care. Results: Three thousand fifty‐four (50%) of hospitalized patients were asked for participation, and n = 1632 (53.6%) participated. We were able to analyze n = 1,398 (45.9%) patients. Three hundred ninety‐seven (28.4%) of the sample utilized psychological support. Users of psychological care were significantly younger than nonusers (odds ratio [OR]: 0.967, P < 0.001) and were more often female (OR: 1.878, P < 0.001), whereas educational level was not associated with the use of psychological care. In the multivariable analysis, effects on the use of psychological care were observed for Hospital Anxiety and Depression Scale (HADS) anxiety (OR: 1.106, P = 0.001) and both subscales of the 12‐item Short Form Health Survey (SF‐12) quality of life measure (mental, OR: 0.97, P = 0.002; physical, OR: 0.97, P = 0.002). Conclusion: Psychological distress and anxiety are higher, and quality of life is lower in users of psychological care in comparison with nonusers during inpatient cancer treatment. Although psychooncological services should be provided to all patients who need them, special efforts should be made to reach populations that report low utilization. [ABSTRACT FROM AUTHOR]
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- 2018
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12. Early palliative care for those who care: A qualitative exploration of cancer caregivers' information needs during hospital stays.
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Preisler, Martina, Rohrmoser, Amy, Goerling, Ute, Kendel, Friederike, Bär, Konrad, Riemer, Manuel, Heuse, Silke, and Letsch, Anne
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CANCER patients ,PSYCHOLOGY of caregivers ,HOSPITAL care ,HOSPITAL wards ,INTERVIEWING ,RESEARCH methodology ,NEEDS assessment ,ONCOLOGY ,PALLIATIVE treatment ,QUALITATIVE research ,SOCIOECONOMIC factors ,BURDEN of care ,INFORMATION needs ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
Background: The supporting role of caregivers is crucial to cancer patients' care and well‐being. Periods of inpatient hospital treatment are common in the cancer trajectory. There is insufficient systematic knowledge of caregivers' experiences and information needs in hospital context. Aim: Aim of this study is to identify information needs and factors contributing to unmet information needs of caregivers in hospital. Design: A qualitative approach was used to identify major themes and specific types of information needs. Interviews with caregivers were conducted and analysed using a qualitative three‐step process. Setting/participants: The study was conducted in a hospital oncology department. Seventeen caregivers of patients with advanced cancer were interviewed. Results: Caregivers' needs during inpatient treatment vary and are largely unmet. Four major themes emerged from the analysis, revealing information needs of caregivers related to the cancer disease, patient, caregivers themselves and hospital context. The most mentioned issues were appropriate treatment, treatment outcomes and the related consequences for caregivers' life, hospital processes and transition back home. Conclusion: Caregivers have a variety of specific information needs which often remain unmet. Based on our findings, we provide recommendations for integrating caregivers into oncology care, which should be implemented in clinical practice, policy decisions and research. [ABSTRACT FROM AUTHOR]
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- 2019
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13. Patientenorientierte Gesprächsführung in der Onkologie – Möglichkeiten und Grenzen.
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Goerling, Ute and Schlag, Peter M.
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Copyright of DoctorConsult - The Journal. Wissen fur Klinik und Praxis is the property of Elsevier B.V. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2010
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