23 results on '"Prins, Judith"'
Search Results
2. Cognitive Behavior Therapy for Fear of Cancer Recurrence: A Case Study
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van de Wal, Marieke, Servaes, Petra, Berry, Rebecca, Thewes, Belinda, and Prins, Judith
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- 2018
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3. Psychometric properties of the 45-item supportive care needs survey—partners and caregivers - Dutch (SCNS-P&C45-D) in partners of patients with breast cancer
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Rietveld, Mark J. A., Peters, Esmee J., Husson, Olga, Ploos van Amstel, Floortje K., Kamm, Y., Sijtsema, Sieta, Diepenbroek, Marieke, Heier, Josca, Zoetbrood, Celine, Zielstra, Marijke, Lambert, Sylvie D., Prins, Judith B., and Ottevanger, Petronella B.
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- 2019
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4. Prevalence and correlates of high fear of cancer recurrence in late adolescents and young adults consulting a specialist adolescent and young adult (AYA) cancer service
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Thewes, Belinda, Kaal, Suzanne E. J., Custers, Jose A. E., Manten-Horst, Eveliene, Jansen, Rosemarie, Servaes, Petra, van der Graaf, Winette T. A., Prins, Judith B., and Husson, Olga
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- 2018
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5. Towards an evidence-based model of fear of cancer recurrence for breast cancer survivors
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Custers, José A. E., Gielissen, Marieke F. M., de Wilt, Johannes H. W., Honkoop, Aafke, Smilde, Tineke J, van Spronsen, Dick-Johan, van der Veld, William, van der Graaf, Winette T. A., and Prins, Judith B.
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- 2017
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6. Reasons for non‐participation in a psychological intervention trial for distress in colorectal cancer survivors.
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Custers, José A. E., Döking, Sarah, van der Hoeven, Yvonne C. W., Thewes, Belinda, Dekker, Joost, Braamse, Annemarie M. J., and Prins, Judith B.
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PSYCHOTHERAPY ,COGNITIVE therapy ,COLORECTAL cancer ,CANCER survivors ,PSYCHOLOGICAL distress - Abstract
Objective: High psychological distress is reported by one third of colorectal cancer survivors (CRCS). However, intervention studies for CRCS have reported low participation rates. In this study, reasons for non‐participation and low uptake in a psychological intervention trial were investigated. Methods: CRCS were recruited for a randomized clinical trial on the efficacy of blended cognitive behavior therapy for psychological distress via databases, follow‐up consultations, advertisements and an ongoing population‐based study. The recruitment flow and reasons for non‐participation were analyzed for patients recruited between 2016 and 2020. Subgroups were compared based on demographic, clinical and screening data. High distress as study entry criterion was measured with the Distress Thermometer (DT ≥ 5) and the problem list (PL). Results: From all recruitment methods together, 1326 CRCS responded to the invitation letter of whom 510 (38%) were interested in receiving a screening questionnaire. Interested CRCS were significantly younger than non‐interested CRCS (p < 0.001). Most non‐interested CRCS reported having no complaints. Of interested CRCS, 448 (88%) completed screening with the DT of which 213 (48%) CRCS scored above the DT cutoff for high distress. The majority expressed no need for help resulting in 84 (4% of eligible) CRCS included in the trial. Younger age, shorter time since diagnosis and more problems on the PL were positively related to participation. Conclusions: In this study a low participation rate was found. However, patients with high distress and most in need for help were included in the trial. For future research it is recommended to perform pilot‐ and feasibility studies to optimize recruitment. [ABSTRACT FROM AUTHOR]
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- 2023
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7. Fear of cancer recurrence in colorectal cancer survivors
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Custers, José A. E., Gielissen, Marieke F. M., Janssen, Stephanie H. V., de Wilt, Johannes H. W., and Prins, Judith B.
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- 2016
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8. Evaluating the capacity of the distress thermometer to detect high fear of cancer recurrence.
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Deuning‐Smit, Esther, Custers, José A. E., Kwakkenbos, Linda, Hermens, Rosella P. M. G., and Prins, Judith B.
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PSYCHOLOGICAL distress ,CANCER relapse ,PSYCHO-oncology ,RECEIVER operating characteristic curves ,CANCER treatment ,COLORECTAL cancer - Abstract
Objectives: Fear of cancer recurrence (FCR) is common and burdensome to patients, but often remains undetected. Oncology professionals report need for tools to improve FCR detection in routine care. Oncology care guidelines recommend the Distress Thermometer (DT) for distress screening, but it has not been validated for FCR. This study evaluated the capacity of the DT and accompanying problem list to detect FCR. Methods: Amalgamated data of two studies with 149 breast cancer and 74 colorectal cancer survivors were used. We evaluated the Dutch DT including the DT score, problem list fears item and emotional domain score using Receiver Operating Characteristic analyses. The Dutch Cancer Worry Scale‐6 (CWS‐6) was used as reference measure, with validated cut‐off scores ≥10 and ≥12 for high FCR. Sensitivity, specificity, negative and positive predictive values were calculated. Results: The DT score showed poor performance in discriminating between low and high FCR. The recommended cut‐off ≥4 had low sensitivity (65% for CWS‐6≥10; 72% for CWS‐6 ≥12) and specificity (67% and 58%). No other cut‐off had an acceptable combination of sensitivity and specificity. The fears item had low sensitivity (29% and 44.9%) and high specificity (95% and 94%). The emotional domain score had fair performance in discriminating between low and high FCR but there was no cut‐off with acceptable sensitivity and specificity. Conclusion: The DT as currently recommended in oncology care guidelines is not suitable to effectively detect FCR in routine care. To improve patients access to psychosocial care, it should be investigated how FCR‐specific measures can be integrated in oncology practice. [ABSTRACT FROM AUTHOR]
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- 2023
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9. Nurse-led follow-up care for head and neck cancer patients: a quasi-experimental prospective trial
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de Leeuw, Jacqueline, Prins, Judith B., Teerenstra, Steven, Merkx, Matthias A. W., Marres, Henri A. M., and van Achterberg, Theo
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- 2013
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10. Female BRCA mutation carriers with a preference for prophylactic mastectomy are more likely to participate an educational-support group and to proceed with the preferred intervention within 2 years
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Landsbergen, Karin M., Prins, Judith B., Kamm, Yvonne J. L., Brunner, Han G., and Hoogerbrugge, Nicoline
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- 2010
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11. A Systematic Review: The Effect of Cancer on the Divorce Rate.
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Fugmann, Dominik, Boeker, Martin, Holsteg, Steffen, Steiner, Nancy, Prins, Judith, and Karger, André
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DIVORCE ,CINAHL database ,CERVICAL cancer ,INTERNET searching ,DATABASE searching - Abstract
Introduction: Research on the impact of cancer on close relationships brings up conflicting results. This systematic review collects empirical evidence on the research questions whether a cancer diagnosis in general or the type of cancer affects the divorce rate. Materials and Methods: This systematic review was conducted according to the guidelines of the Cochrane Collaboration and the PRISMA statement. The following electronic databases were searched: Web of Science, Ovid SP MEDLINE, PsycINFO, PsyINDEX, CINAHL, ERIC. Risk of bias assessment was performed with the preliminary risk of bias for exposures tool template (ROBINS-E tool). The grading of methodological quality was assessed with the Newcastle-Ottawa Scale. Results: Of 13,929 identified records, 15 were included in the qualitative synthesis. In 263,616 cancer patients and 3.4 million healthy individuals, we found that cancer is associated with a slightly decreased divorce rate, except for cervical cancer, which seems to be associated with an increased divorce rate. Discussion: According to this systematic review, cancer is associated with a tendency to a slightly decreased divorce rate. However, most of the included studies have methodologic weaknesses and an increased risk of bias. Further studies are needed. [ABSTRACT FROM AUTHOR]
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- 2022
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12. Psychological problems among cancer patients in relation to healthcare and societal costs: A systematic review.
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Van Beek, Florie E., Wijnhoven, Lonneke M. A., Holtmaat, Karen, Custers, José A. E., Prins, Judith B., Verdonck‐de Leeuw, Irma M., and Jansen, Femke
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ADJUSTMENT disorders ,JOB absenteeism ,CANCER patients ,MENTAL illness ,PATIENT-family relations ,DRUGS - Abstract
Objective: This study systematically reviewed the association of psychological problems among cancer patients with healthcare and societal resource use and costs. Methods: PubMed, PsycINFO, and Embase were searched (until 31 January 2021) for studies on psychological symptoms (anxiety, depression, distress, fear of recurrence) or psychiatric disorders (anxiety, depression, adjustment) and healthcare use (e.g., mental, inpatient healthcare), economic losses by patients and family, economic losses in other sectors (e.g., absence from work), and costs. The search, data extraction, and quality assessment were performed by two authors. Results: Of the 4157 identified records, 49 articles were included (psychological symptoms (n = 34), psychiatric disorders (n = 14), both (n = 1)) which focused on healthcare use (n = 36), economic losses by patients and family (n = 5), economic losses in other sectors (n = 8) and/or costs (n = 13). In total, for 12 of the 94 associations strong evidence was found. Psychological symptoms and psychiatric disorders were positively associated with increased healthcare use (mental, primary, inpatient, outpatient healthcare), losses in other sectors (absence from work), and costs (inpatient, outpatient, total healthcare costs). Moderate evidence was found for a positive association between (any) psychiatric disorder and depression disorder with inpatient healthcare and medication use, respectively. Conclusions: Psychological problems in cancer patients are associated with increased healthcare use, healthcare costs and economic losses. Further research is needed on psychological problems in relation to understudied healthcare use or costs categories, productivity losses, and informal care costs. [ABSTRACT FROM AUTHOR]
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- 2021
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13. Not as Stable as We Think: A Descriptive Study of 12 Monthly Assessments of Fear of Cancer Recurrence Among Curatively-Treated Breast Cancer Survivors 0–5 Years After Surgery.
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Custers, José AE, Kwakkenbos, Linda, van der Graaf, Winette TA, Prins, Judith B, Gielissen, Marieke FM, and Thewes, Belinda
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CANCER survivors ,CANCER relapse ,BREAST cancer ,FEAR ,ACQUISITION of data - Abstract
Purpose : Previous studies suggest one-third of breast cancer survivors (BCS) experience elevated fear of cancer recurrence (FCR) and that it remains stable. Most studies include long assessment intervals and aggregated group data. This study aimed to describe the individual trajectories of FCR when assessed monthly using both a statistical and descriptive approach. Methods : Participants were curatively-treated BCS 0–5 years post-surgery. Questionnaire data were collected monthly for 12 months. Primary outcome was FCR [Cancer Worry Scale (CWS)]. For the descriptive approach, 218 participants were classified as low (CWS ≤ 13 at each assessment), high (CWS ≥ 14 at each assessment), or fluctuating FCR (CWS scores above and below cut-off). Latent class growth analysis (LCGA; n = 377) was conducted to identify trajectories over time. Results : Around 58% of the women reported fluctuating CWS scores, 22% reported a consistently high and 21% consistently low course. Results of the LCGA confirmed the three-class approach including a stable high FCR group (13%), a low FCR group (40%), and a moderate FCR group (47%). Both the moderate and low scoring groups reported declining scores over time. Younger patients, higher educated patients, and those less satisfied with the medical treatment were more likely to belong to the moderate or high trajectory. Conclusion : Assessed monthly, the majority of BCS report fluctuating levels of FCR. Stepped-care models should assess FCR on multiple occasions before offering tailored interventions. [ABSTRACT FROM AUTHOR]
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- 2020
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14. Does a regular nurse-led distress screening and discussion improve quality of life of breast cancer patients treated with curative intent? A randomized controlled trial.
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Ploos van Amstel, Floortje K., Peters, Marlies E. W. J., Donders, Rogier, Schlooz‐Vries, Margrethe S., Polman, Lenny J. M., Graaf, Winette T. A., Prins, Judith B., Ottevanger, Petronella B., Schlooz-Vries, Margrethe S, and van der Graaf, Winette T A
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BREAST tumor treatment ,MENTAL health ,QUALITY of life ,RESEARCH ,RESEARCH methodology ,EARLY detection of cancer ,EVALUATION research ,MEDICAL cooperation ,COMPARATIVE studies ,RANDOMIZED controlled trials ,NURSES ,RESEARCH funding ,PSYCHOTHERAPY ,BREAST tumors - Abstract
Objective: We performed a randomized controlled trial (RCT) to investigate whether regular screening with the distress thermometer (DT) by a nurse improved global quality of life (QOL) of patients with breast cancer (BC) treated with curative intent.Methods: BC patients were randomized between regular screening for distress with a nurse-led DT intervention (NDTI) and usual care (UC). Both groups filled out questionnaires at baseline, after each received treatment modality and at follow-up visits up to 2 years. At these points, the intervention group received also the NDTI. The primary outcome was the global QOL of the EORTC QLQ C30 at 2 years after the end of treatment. Analyses were done on an intention-to-treat basis, using analysis of covariance (ANCOVA), generalized least squares, and interaction analyses.Results: Of 194 randomized patients, 153 filled out the questionnaires up to 2 years after treatment. There was no significant difference between NDTI and UC in global QOL 2 years after the end of treatment (mean diff. = -1∙273, P = .610; 95% CI [-6.195; 3.649]). Subgroup analysis of patients who received multimodality treatment (surgery, radiotherapy, and chemotherapy, n = 66) showed a significant between-group difference in global QOL over time (mean diff. = -10, P < .001; 95% CI [-14.835; -5.167]) together with other secondary outcome measures in favor of the NDTI.Conclusion: NDTI did not lead to a significant improvement in global QOL 2 years after the end of treatment for patients with BC. However, the findings indicate that BC patients who received multimodality treatment may benefit from NDTI. [ABSTRACT FROM AUTHOR]- Published
- 2020
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15. Identifying the key characteristics of clinical fear of cancer recurrence: An international Delphi study.
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Mutsaers, Brittany, Butow, Phyllis, Dinkel, Andreas, Humphris, Gerald, Maheu, Christine, Ozakinci, Gozde, Prins, Judith, Sharpe, Louise, Smith, Allan "Ben", Thewes, Belinda, and Lebel, Sophie
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CANCER relapse ,ALLIED health personnel ,DELPHI method ,HYPOCHONDRIA ,OCCUPATIONAL roles - Abstract
Objective: Without an agreed-upon set of characteristics that differentiate clinical from nonclinical levels of fear of cancer recurrence (FCR), it is difficult to ensure that FCR severity is appropriately measured, and that those in need of intervention are identified. The objective of this study was to establish expert consensus on the defining features of clinical FCR.Method: A three-round Delphi was used to reach consensus on the defining features of clinical FCR. Sixty-five experts in FCR (researchers, psychologists, physicians, nurses, and allied health professionals) were recruited to suggest and rate potential features of clinical FCR. Participants who indicated they could communicate diagnoses within their clinical role were also asked to consider the application of established DSM-5 and proposed ICD-11 diagnostic criteria (Health Anxiety, Illness Anxiety Disorder, Somatic Symptom Disorder) to clinical FCR.Results: Participants' ratings suggested that the following four features are key characteristics of clinical FCR: (a) high levels of preoccupation; (b) high levels of worry; (c) that are persistent; and (d) hypervigilance to bodily symptoms. Of participants whose professional role allowed them to diagnose mental disorders, 84% indicated it would be helpful to diagnose clinical FCR, but the use of established diagnostic criteria related to health anxiety or somatic-related disorders to clinical FCR was not supported. This suggests that participants consider clinical FCR as a presentation that is specific to cancer survivors.Conclusion: Clinical FCR was conceptualized as a multidimensional construct. Further research is needed to empirically validate the proposed defining features. [ABSTRACT FROM AUTHOR]- Published
- 2020
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16. Distress in suspected lung cancer patients following rapid and standard diagnostic programs: a prospective observational study
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Brocken, Pepijn, van der Heijden, Erik H. F. M., Oud, Karen T. M., Bootsma, Gerben, Groen, Harry J. M., Donders, A. Rogier T., Dekhuijzen, P. N. Richard, and Prins, Judith B.
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DISORDERS ,QLQ-C30 ,distress ,COMMUNICATION ,DEPRESSION ,humanities ,PREVALENCE ,lung cancer ,quality of life ,oncology ,cancer ,BREAST-CANCER ,SHORT-TERM ,ANXIETY ,CLINICAL-TRIALS ,POPULATION ,rapid diagnosis - Abstract
ObjectiveTimeliness may influence emotional distress during the diagnostic phase of suspected lung cancer patients. We performed a prospective observational study to compare distress and quality of life (QoL) in two medical centres with a Rapid Outpatient Diagnostic Program (RODP) and two using conventional Stepwise Diagnostic Approach (SDA) on the basis of trained nurse-led care. MethodsOutpatients with radiological suspicion of lung cancer completed the Hospital Anxiety and Depression Scale (HADS), European Organization for Research and Treatment of Cancer 30-item Quality of Life Questionnaire (QLQ-C30) and its 13-item Lung Cancer specific module (QLQ-LC13) upon first visit, 2days later, thereafter weekly for 5weeks and after 3months. ResultsThe 72 SDA patients and 121 RODP patients had a mean pre-diagnostic HADS-total score of 13.5 (SD 7.6); 63.4% had a score 10. Baseline QLQ-C30 global QoL was 61.6 (SD 22.7) exceeding reference values for lung cancer patients. Generalized least square models showed a significant centre by time interaction effect: during the first 6weeks, HADS-total scores decreased in RODP patients (13.8-11.9) but sustained in SDA patients (13.1-13.6), whereas QoL showed no relevant changes. Times to diagnosis and discussion of therapy plan for RODP patients were 7 and 11days shorter, respectively. ConclusionsSuspected lung cancer patients had high baseline distress levels. A decrease over time was found in RODP compared with SDA patients. QoL did not change relevantly. Albeit observational, these data indicate that patients experience less distress in rapid diagnostic programs than in stepwise diagnostic evaluation. Copyright (c) 2014 John Wiley & Sons, Ltd.
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- 2015
17. Re-validation and screening capacity of the 6-item version of the Cancer Worry Scale.
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Custers, José A.E., Kwakkenbos, Linda, Wal, Marieke, Prins, Judith B., Thewes, Belinda, and van de Wal, Marieke
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CANCER relapse ,CANCER patients ,ONCOLOGY ,MENTAL depression ,ANXIETY disorders - Abstract
Objective: Fear of cancer recurrence (FCR) is one of the major existential unmet needs of cancer survivors. Due to growing availability of evidenced-based interventions for high FCR, valid and reliable brief measures of FCR are needed. This study aimed to validate the 6-item Cancer Worry Scale (CWS) and to establish a cut-off score for high FCR.Methods: Participants in this study were 1033 cancer survivors and patients recruited as part of 5 existing studies on FCR involving patients and survivors with gastro-intestinal stromal tumors, colorectal, breast, and prostate cancer. De-identified data of the CWS, Fear of Cancer Recurrence Inventory (FCRI), Impact of Event Scale, Hospital Anxiety and Depression Scale, and EORTC-QLQ-C30 were amalgamated for the analyses. Confirmatory factor analysis of the CWS was performed. Sensitivity and specificity were tested with the FCRI as gold standard.Results: Results confirmed that the 6-item version of the CWS maintained good construct validity, convergent and divergent validity, and high internal consistency (α 0.90). The optimal cut-off for the 6-item CWS was 9 versus 10 using the 12 vs 13 FCRI-SF score (sensitivity 82%, specificity 83%) and the 15 vs 16 FCRI-SF score (sensitivity 88%, specificity 73%). Using the highest FCRI-SF cut-off (21 vs 22), the optimal CWS cut-off was 11 vs 12 (sensitivity 88%, specificity 81%).Conclusions: The present results provide researchers and clinicians with a brief valid and reliable measure of FCR which is suitable for measuring FCR in cancer patients and survivors. [ABSTRACT FROM AUTHOR]- Published
- 2018
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18. Group medical consultations (GMCs) and tablet-based online support group sessions in the follow-up of breast cancer: A multicenter randomized controlled trial.
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Visser, Annemiek, Prins, Judith B., Jansen, Lisette, van Dalen, Thijs, Radema, Sandra A., van Laarhoven, Hanneke W.M., and Schlooz, Margrethe S.
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HEALTH ,ONCOLOGY ,BREAST cancer ,MEDICAL consultation ,SUPPORT groups for cancer patients - Abstract
Objective Group medical consultations (GMCs) provide individual medical visits in the presence of ≤7 peer-patients. In the follow-up of breast cancer, we evaluated the efficacy of a new type of blended care My-GMC, a GMC combined with a tablet-based online app, consisting of three online support group sessions (SGS) and additional information. Methods This randomized controlled trial compared the effect of My-GMC (n = 59) with one individual medical visit (n = 50) (care as usual). Between-group differences on the outcomes distress and empowerment were analyzed 1 week, 3 and 6 months after the visit. Results No between-group differences were found for the primary outcomes distress and empowerment. More themes were discussed in GMCs compared to individual visits. Significantly more patients experienced peer-support in GMCs (78%) than via the online app (29%). Satisfaction with the online app was low. Conclusions My-GMC did not result in improvements in distress or empowerment, which might partly be explained by low baseline distress levels. This paper provides valuable information concerning factors on organizational level as well as individual level influencing the evaluation of a blended care intervention. Practice implications My-GMC provided an innovative alternative, combining professional and peer-support in face-to-face and online SGS, resulting in additional information provision and peer-support. Further improvement of the apps is needed to improve user satisfaction. Netherlands Trial Register NTR3771. [ABSTRACT FROM AUTHOR]
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- 2018
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19. One way or another: The opportunities and pitfalls of self-referral and consecutive sampling as recruitment strategies for psycho-oncology intervention trials.
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Thewes, Belinda, Rietjens, Judith A. C., van den Berg, Sanne W., Compen, Félix R., Abrahams, Harriet, Poort, Hanneke, van de Wal, Marieke, Schellekens, Melanie P. J., Peters, Marlies E. W. J., Speckens, Anne E. M., Knoop, Hans, and Prins, Judith B.
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PATIENT selection ,PSYCHO-oncology ,RANDOMIZED controlled trials ,CANCER patient psychology ,HEALTH promotion - Abstract
The article compares consecutive sampling and self-referral recruitment methods for psycho-oncology intervention (POI) randomized controlled trials (RCT), defined as interventions to manage the psychological, behavioural, and/or social aspects of cancer to promote health. Topics covered include how POI differ from many other cancer treatments, the ability of self-referral recruitment to enhance patient-centred care, and ethical aspects of self-referral recruitment methods.
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- 2018
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20. Fear of cancer recurrence: a significant concern among partners of prostate cancer survivors.
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Wal, Marieke, Langenberg, Simône, Gielissen, Marieke, Thewes, Belinda, Oort, Inge, and Prins, Judith
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PROSTATE cancer patients ,CANCER relapse ,PSYCHO-oncology ,FEAR ,QUALITY of life ,ANXIETY ,MENTAL health ,PROSTATE tumors treatment ,PHOBIAS ,PROSTATE tumors ,QUESTIONNAIRES ,REGRESSION analysis ,PSYCHOLOGY of Spouses ,DISEASE prevalence ,CROSS-sectional method ,PSYCHOLOGY - Abstract
Objectives: The aims of the study were to (1) describe the prevalence of fear of cancer recurrence (FCR) in partners of prostate cancer (PCa) survivors; (2) to compare the proportions of high FCR in partners with high FCR in PCa survivors; (3) to explore partners' demographic and survivors' clinical characteristics associated with high FCR in partners; and (4) to identify the relationship between high FCR and health-related quality of life (HRQoL) in partners.Methods: Questionnaires were sent to partners of disease-free PCa survivors. Outcomes included FCR severity (Cancer Worry Scale [CWS]) and HRQoL (RAND-36). The t and chi-square tests were used to compare partner FCR with survivor FCR. Regression analyses were performed to determine if demographic and clinical characteristics were significantly associated with partner FCR. The multivariate analysis of variance identified differences in HRQoL between partners with high and low FCR.Results: Questionnaires were completed by 168 partners. Mean levels of FCR were comparable between partners and survivors (P = .144). Thirty-five percent of partners reported high FCR (CWS ≥ 14) compared to 38% of PCa survivors (CWS ≥ 13) (P = .542). Higher survivor FCR and younger partner age were significantly associated with higher partner FCR. Partners with high FCR scored significantly lower on social functioning, emotional role functioning, mental health, general health, and vitality than those with low FCR (all P < .05).Conclusions: Findings from this study illustrate that FCR is a significant concern for partners of PCa survivors. Clinicians should be aware of partner FCR when delivering care to men with PCa. [ABSTRACT FROM AUTHOR]- Published
- 2017
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21. The Cancer Empowerment Questionnaire: Psychological Empowerment in Breast Cancer Survivors.
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van den Berg, Sanne W., van Amstel, Floortje K. Ploos, Ottevanger, Petronella B., Gielissen, Marieke F. M., and Prins, Judith B.
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QUESTIONNAIRES ,BREAST tumors ,CANCER patients ,CANCER patient medical care ,STATISTICAL correlation ,DISCRIMINANT analysis ,FACTOR analysis ,INTERPERSONAL relations ,RESEARCH methodology ,SCIENTIFIC observation ,QUALITY of life ,RELIABILITY (Personality trait) ,RESEARCH evaluation ,SCALE analysis (Psychology) ,SELF-efficacy ,SELF-evaluation ,PSYCHOLOGICAL stress ,SOCIAL support ,UNOBTRUSIVE measures ,MULTITRAIT multimethod techniques ,CROSS-sectional method ,RESEARCH methodology evaluation ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
New models of cancer care and survivorship ask for empowered patients. But how do we measure that patients can derive strength from themselves (intrapersonal) and their perceived social support (interpersonal)? The 40-item Cancer Empowerment Questionnaire (CEQ) measures psychological empowerment as an individual outcome measure. The CEQ was validated in 140 nonmetastatic female breast cancer survivors (mean 5.5 years postsurgery). Principal component analysis elicited four factors representing intrapersonal (personal strength) and interpersonal (social support, community, health care) aspects of empowerment. The CEQ provides a reliable (Cronbach's α = 0.73–0.94) and valid first attempt to operationalize psychological empowerment in cancer care. [ABSTRACT FROM PUBLISHER]
- Published
- 2013
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22. Nurse-led follow-up care for head and neck cancer patients: a quasi-experimental prospective trial.
- Author
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Leeuw, Jacqueline, Prins, Judith, Teerenstra, Steven, Merkx, Matthias, Marres, Henri, and Achterberg, Theo
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HEAD & neck cancer patients , *MEDICAL consultation , *NURSING , *QUALITY of life - Abstract
Purpose: The aim of this study was to compare conventional medical follow-up with follow-up containing additional nursing consultations regarding the psychosocial adjustment and health-related quality of life (HRQOL) of head and neck cancer patients. Methods: Using a quasi-experimental design, patients were enrolled consecutively into two groups. Experimental care covered six 30-min bimonthly nursing follow-up consultations during the first year posttreatment. Data were collected at posttreatment months 1 (baseline), 6, and 12 for both groups. Results: The intervention group was significantly worse at baseline, based on two of the seven adjustment scales and on the majority of HRQOL scales. However, their outcome at 6 and 12 months was consistent with that of the group which received conventional follow-up. Thus, the intervention group had a larger improvement in scores, and this was significant for one of the seven adjustment scales and 19 of the 33 HRQOL scales at 6 and 12 months, respectively. Most of the differences in HRQOL scales were clinically relevant at 6 months. Conclusion: These results suggest that nurse-led consultations for patients with head and neck cancer have a positive effect, primarily with respect to HRQOL. Nurse-led follow-up leads to a similar psychosocial adjustment as conventional follow-up, even among patients who showed worse performance at the start of follow-up. Thus, nurse-led follow-up may be a cost-effective way to improve follow-up care for this patient group. [ABSTRACT FROM AUTHOR]
- Published
- 2013
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23. The faster the better?-A systematic review on distress in the diagnostic phase of suspected cancer, and the influence of rapid diagnostic pathways.
- Author
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Brocken, Pepijn, Prins, Judith B., Dekhuijzen, P. N. Richard, and van der Heijden, Henricus F. M.
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PSYCHOLOGICAL distress , *CANCER diagnosis , *CLINICAL trials , *COHORT analysis , *QUALITY of life , *BREAST cancer , *CANCER patients - Abstract
Objective: To perform a systematic review of articles published in the last 25 years on prevalence and course of distress and quality of life surrounding the diagnostic process of suspected cancer, and the influence of rapid diagnostic programs. Methods: Twenty-three articles were identified via Pubmed, PsycINFO, and reference lists of articles. Except for three randomized clinical trials and one case control study all studies were uncontrolled cohort studies. Results: Most studies involved patients with suspected breast cancer and therefore had a sex selection bias. Four studies on the effect of rapid outpatient diagnostic programs were found. Studies showed very high prevalence of anxiety, decreasing in case of a benign diagnosis but increasing or sustaining in patients waiting for results or after cancer diagnosis though not significantly more in rapid programs. Quality of life was low and showed varying patterns. Conclusions: Distress in the diagnostic phase of cancer is a major problem and the rapid decrease of anxiety in patients eventually not diagnosed with cancer suggests a benefit of rapid diagnostic programs. The available evidence however is limited and shows some inconsistencies. Studies differ in subjects, objective and are limited by quality and quantity. Conflicting results prohibit a conclusion on patients ultimately diagnosed with cancer. Copyright © 2011 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR]
- Published
- 2012
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