1. Randomized clinical trial of a community navigation intervention to improve well-being in persons living with HIV and other co-morbidities.
- Author
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Webel A, Prince-Paul M, Ganocy S, DiFranco E, Wellman C, Avery A, Daly B, and Slomka J
- Subjects
- Adult, Chronic Disease epidemiology, Chronic Disease therapy, Community-Based Participatory Research, Comorbidity, Female, HIV Infections epidemiology, HIV Infections psychology, Humans, Male, Middle Aged, Outcome and Process Assessment, Health Care, Palliative Care methods, Self-Management, Adaptation, Psychological, HIV Infections therapy, Palliative Care organization & administration, Patient Navigation, Quality of Life, Social Support
- Abstract
Long-term survival of people living with HIV (PLWH) is associated with the development of co-morbid conditions and need for symptom management and other efforts to enhance quality of life. We conducted a longitudinal, randomized trial over 36 months to evaluate the effect of a community-based navigator intervention to provide early palliative care to 179 PLWH and other chronic conditions. Outcomes included quality of life, symptom management, coping ability, social support, self-management, and completion of advance directives. Data were analyzed using SAS mixed effects model repeat measurement. Our navigator program showed variable improvement over time of three outcome variables, self-blame, symptom distress, and HIV self-management. However, the program did not improve overall quality of life, social support, or completion of advance directives.
- Published
- 2019
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