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4 results on '"Cebanu T"'

1. Impact of COVID-19 Pandemic on Patients with Immune Thrombocytopaenia.

Author

Román MÁ, Jiménez Yuste V, García Barcenilla S, Ramírez López A, Monzón Manzano E, de la Cruz Benito B, Butta PA, Rivas Pollmar MI, Trelles Martínez R, González Zorrilla E, Martín Salces M, Cebanu T, and Butta NV

Subjects
Adult, Aged, Aged, 80 and over, Cohort Studies, Delivery of Health Care, Female, Humans, Incidence, Male, Medication Adherence, Middle Aged, Purpura, Thrombocytopenic, Idiopathic epidemiology, Quality of Health Care, Risk, SARS-CoV-2, Spain epidemiology, Young Adult, COVID-19 epidemiology, Immunosuppressive Agents therapeutic use, Purpura, Thrombocytopenic, Idiopathic drug therapy, Telemedicine
Abstract

Background and Objectives : The aim of this study was to determine the impact of the COVID-19 pandemic on the lives of patients with immune thrombocytopaenia (ITP) treated at our hospital. Materials and Methods : The study was conducted in the Community of Madrid, which has the highest number of COVID-19 cases in Spain. We included 143 adult patients with ITP (130 with chronic ITP, 8 with persistent ITP, and 5 with newly diagnosed ITP). We conducted a telephone survey to collect the data and created a registry. Materials and Methods : Overall, 24 patients presented symptoms suggestive of COVID-19, which was confirmed by RT-PCR in 8 cases. The cumulative incidence of confirmed SARS-CoV-2 infection was higher in the patients with ITP than in the Madrid population. There were no differences in the disease incidence or clinical course of infection in the patients treated with immunosuppressants. Almost all of the patients reported adherence to the prescribed treatment, although 49.2% of the hospital visits were either cancelled or postponed, 17.2% because of the patients' fear of coming to the centre. Nearly half of the cohort was considered vulnerable, and 17% had been granted a dependency or disability benefit. Conclusions : COVID-19 had a major impact on the psychosocial, occupational, and quality of care of patients with ITP.

Published
2021
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2. COVID-19 and telemedicine in haemophilia in a patient with severe haemophilia A and orthopaedic surgery.

Author

Álvarez-Román MT, De la Corte-Rodríguez H, Rodríguez-Merchán EC, Martín-Salces M, Rivas-Pollmar MI, Butta NV, García-Barcenilla S, Acuña P, Cebanu T, González E, Monzón-Manzano ME, and Jiménez-Yuste V

Subjects
COVID-19 therapy, Humans, Male, Middle Aged, Pandemics, Postoperative Care methods, SARS-CoV-2 isolation & purification, COVID-19 epidemiology, Hemophilia A physiopathology, Orthopedic Procedures methods, Telemedicine methods
Published
2021
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3. Clinical trials and Haemophilia during the COVID-19 pandemic: Madrid's experience.

Author

Álvarez-Román MT, García-Barcenilla S, Cebanu T, González-Zorrilla E, Butta NV, Fernandez-Bello I, Martín-Salces M, Rivas-Pollmar MI, and Jiménez-Yuste V

Subjects
COVID-19 epidemiology, COVID-19 virology, Delivery of Health Care methods, Delivery of Health Care trends, Humans, Pandemics, SARS-CoV-2 physiology, Spain epidemiology, COVID-19 prevention & control, Clinical Trials as Topic methods, Hemophilia A therapy, Telemedicine methods
Published
2020
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4. Registry of patients with congenital bleeding and COVID‐19 in madrid

Author

Álvarez Román, MT, Butta Coll, N, García Barcenilla, S, Pérez González, L, de la Plaza Collazo, I, De la Corte Rodríguez, H, Romero Garrido, JA, Martín Salces, M, Rivas Pollmar, MI, Cebanu, T, González‐Zorrilla, E, Acuña, P, Monzón Manzano, E, Merchán, EC, Trelles Martínez, R, Blanco Bañares, MJ, Gutiérrez Alvariño, M, and Jiménez Yuste, V

Subjects
Adult, Adolescent, rare bleeding disorders, Infant, Newborn, COVID-19, Infant, haemophilia A, Original Articles, Middle Aged, Hemophilia A, Young Adult, von Willebrand Diseases, COVID‐19, Spain, Child, Preschool, Humans, Original Article, telemedicine, Registries, von Willebrand disease, Child, Aged
Abstract

Introduction We present the first registry of patients with congenital bleeding disorders and COVID‐19. The study has been carried out in the Community of Madrid, which has the highest number of cases in Spain. The objective is to understand the incidence of COVID‐19, the course of the disease if it occurs and the psychosocial and occupational impact on this population. Methods We included 345 patients (246 of haemophilia, 69 of von Willebrand Disease, 2 rare bleeding disorders and 28 carriers of haemophilia). A telephone survey was used to collect the data. Results 42 patients presented symptoms suggestive of infection by COVID‐19 and in 6 cases the disease was confirmed by RT‐PCR. The cumulative incidence of our series was 1.73%. It is worth noting the complexity of the management of COVID‐19 in two patients on prophylaxis with non‐factor replacement therapy. Adherence to the prescribed treatment was maintained by 95.5% of patients. Although 94% were independent for daily living activities, 42.4% had a recognised disability and 58% required assistance, provided by the Madrid Haemophilia Association (Ashemadrid) in 75%of cases. Only 4.4% of consultations were held in person. Conclusions Patients with congenital bleeding disorders infected with SARS‐CoV‐2presented a mild course of the disease that did not require admission. Their identification and treatment by a specialist team from a Haemophilia Treatment Center is essential to make a correct assessment of the risk of haemorrhage/thrombosis.COVID‐19 had a major impact on the psychosocial aspects of these patients which must be remedied with recovery plans.

Published
2020

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