7 results on '"PITE, Helena"'
Search Results
2. A practical toolbox for the effective transition of adolescents and young adults with asthma and allergies: An EAACI position paper.
- Author
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Vazquez‐Ortiz, Marta, Gore, Claudia, Alviani, Cherry, Angier, Elizabeth, Blumchen, Katharina, Comberiati, Pasquale, Duca, Bettina, DunnGalvin, Audrey, Garriga‐Baraut, Teresa, Gowland, M. Hazel, Egmose, Britt, Knibb, Rebecca, Khaleva, Ekaterina, Mortz, Charlotte G., Pfaar, Oliver, Pite, Helena, Podesta, Marcia, Santos, Alexandra F., Sanchez‐Garcia, Silvia, and Timmermans, Frans
- Subjects
YOUNG adults ,ALLERGIES ,MEDICAL personnel ,ASTHMA ,TEENAGERS - Abstract
Introduction: Adolescence is a critical stage of rapid biological, emotional and social change and development. Adolescents and young adults (AYA) with asthma and allergies need to develop the knowledge and skills to self‐manage their health independently. Healthcare professionals (HCP), parents and their wider network play an essential role in supporting AYA in this process. Previous work showed significant limitations in transition care across Europe. In 2020, the first evidence‐based guideline on effective transition for AYA with asthma and allergies was published by EAACI. Aim: We herein summarize practical resources to support this guideline's implementation in clinical practice. Methods: For this purpose, multi‐stakeholder Task Force members searched for resources in peer review journals and grey literature. These resources were included if relevant and of good quality and were pragmatically rated for their evidence‐basis and user friendliness. Results: Resources identified covered a range of topics and targeted healthcare professionals, AYA, parents/carers, schools, workplace and wider community. Most resources were in English, web‐based and had limited evidence‐basis. Conclusions: This position paper provides a valuable selection of practical resources for all stakeholders to support effective transitional care for AYA with asthma and allergies. Future research should focus on developing validated, patient‐centred tools to further assist evidence‐based transition care. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
3. Current transition management of adolescents and young adults with allergy and asthma
- Author
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Khaleva, Ekaterina, Vazquez-Ortiz, Marta, Comberiati, Pasquale, Dunngalvin, Audrey, Pite, Helena, Blumchen, Katharina, Garriga-Baraut, Teresa, Hox, Valerie, Santos, Alexandra F., Gore, Claudia, Knibb, Rebecca C., Alviani, Cherry, Mortz, Charlotte G., Angier, Elizabeth, Duca, Bettina, Jensen, Britt, Sanchez-Garcia, Silvia, Gowland, M. Hazel, Timmermans, Frans, Pfaar, Oliver, Roberts, Graham, Centro de Estudos de Doenças Crónicas (CEDOC), and NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)
- Subjects
Pulmonary and Respiratory Medicine ,Healthcare professional ,Young adult ,Adolescent ,Allergy ,SDG 3 - Good Health and Well-being ,education ,Transition ,Immunology ,Immunology and Allergy ,humanities - Abstract
Background: Transition from parent-delivered to self-management is a vulnerable time for adolescents and young adults (AYA) with allergy and asthma. There is currently no European guideline available for healthcare professionals (HCPs) on transition of these patients and local/national protocols are also mostly lacking. Methods: European HCPs working with AYA with allergy and asthma were invited to complete an online survey assessing challenges of working with these patients, current transition practices and access to specific healthcare resources. Results: A total of 1179 responses from 41 European countries were collected. Most HCPs (86%) reported a lack of a transition guideline and a lack of a transition process (20% paediatric HCPs, 50% of adult HCPs, 56% HCP seeing all ages). Nearly half (48%) acknowledged a lack of an established feedback system between paediatric and adult medical services. Many respondents never routinely asked about mental health issues such as self-harm or depression and are not confident in asking about self-harm (66.6%), sexuality (64%) and depression (43.6%). The majority of HCPs (76%) had not received specific training in the care of AYA although 87% agreed that transition was important for AYA with allergy and asthma. Conclusion: Although there was agreement that transition is important for AYA with allergy and asthma, there are crucial limitations and variations in the current provision of transition services across Europe. Standardisation of AYA management and specific training are required. This should improve management and continuity of care during adolescence and into adulthood to achieve the best healthcare outcomes.[Figure not available: See fulltext.] publishersversion published
- Published
- 2020
4. A systematic review
- Author
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Vazquez-Ortiz, Marta, Angier, Elizabeth, Blumchen, Katharina, Comberiati, Pasquale, Duca, Bettina, DunnGalvin, Audrey, Gore, Claudia, Hox, Valérie, Jensen, Britt, Pite, Helena, Santos, Alexandra F., Sanchez, Silvia, Alviani, Cherry, Garriga-Baraut, Teresa, Knibb, Rebecca, Mortz, Charlotte G., Gowland, M. Hazel, Timmermans, Frans, Roberts, Graham, NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM), and Centro de Estudos de Doenças Crónicas (CEDOC)
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food allergy ,SDG 3 - Good Health and Well-being ,adolescent ,Immunology ,rhinoconjunctivitis ,transition ,young adult ,Immunology and Allergy ,asthma ,allergy - Abstract
Background: Adolescence represents a vulnerable time for individuals with asthma and allergic conditions. They suffer an unexpected degree of morbidity. This systematic review aimed to understand the challenges faced by adolescents and young adults with these conditions. Methods: A systematic literature search was undertaken across eight databases. References were checked by two reviewers for inclusion. Study data were extracted, and their quality was assessed in duplicate. A narrative meta-synthesis was undertaken. Results: A total of 108 papers describing 106 studies were retrieved, most focused on asthma. Five themes were identified across studies: (a) Health-related quality of life—impairment was associated with poor disease control, psychosocial issues, adolescent-onset allergic disease and female sex; (b) Psychological factors—asthma and food allergy were associated with anxiety and depression, atopic dermatitis was associated with suicidal ideation, and that parental emotional support may be protective; (c) Adherence—suboptimal adherence was associated with older age, barriers to medication usage, poor symptom perception and failure to take responsibility, and positive factors were routines, simpler treatment regimes, better knowledge and perceptions about medications; (d) Self-management—facilitated by education, knowledge and a positive attitude; and (e) Supportive relationships—families could modify barriers to adherence and foster positive views about self-management, adolescents suggested that their peers should be more involved in supporting them, and adolescents also wished to have support from nonjudgemental healthcare professionals. Conclusions: We have some understanding of the challenges faced by adolescents with asthma, less so for other allergic conditions. This knowledge will be used to support guidelines for managing adolescents. publishersversion published
- Published
- 2020
5. Perceptions of adolescents and young adults with allergy and/or asthma and their parents on EAACI guideline recommendations about transitional care: A European survey.
- Author
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Khaleva, Ekaterina, Knibb, Rebecca, DunnGalvin, Audrey, Vazquez‐Ortiz, Marta, Comberiati, Pasquale, Alviani, Cherry, Garriga‐Baraut, Teresa, Gowland, Mary Hazel, Gore, Claudia, Angier, Elizabeth, Blumchen, Katharina, Duca, Bettina, Hox, Valérie, Jensen, Britt, Mortz, Charlotte G., Pite, Helena, Pfaar, Oliver, Santos, Alexandra F., Sanchez‐Garcia, Silvia, and Timmermans, Frans
- Subjects
YOUNG adults ,TRANSITIONAL care ,MEDICAL personnel ,PARENTS ,ASTHMATICS - Abstract
Background: The European Academy of Allergy and Clinical Immunology has developed a guideline to provide evidence‐based recommendations for healthcare professionals to support the transitional care of adolescents and young adults (AYA) with allergy and/or asthma. The goal of this work was to ensure that the draft recommendations are also important for patients. Methods: We surveyed patients aged 11–25 years with allergy and/or asthma and their parents across Europe between 17 February and 16 March 2020. The multilingual survey was distributed through national allergy and asthma patient organizations in Europe as well as through social media. Results: A total of 1210 responses from 24 European countries were collected. There were 415 (34.3%) AYA and 795 (65.7%) parents. The majority of AYA (72.3%) and parents (81.9%) were female. Patients had a history of asthma (61.1%), allergic rhinoconjunctivitis (54.1%), food allergy (53.8%), atopic eczema (42.6%) and anaphylaxis (28.8%). All recommendations achieved the median score of either 'important' or 'very important'. The least supported recommendations were the use of joint clinics with both paediatric and adult physicians attending and the use of web‐based or mobile technologies for communication with the AYA. The most supported recommendation was checking that the AYA is knowledgeable and compliant with their prescribed medication. Qualitative analysis revealed conditional approval for some recommendations. Conclusions: There was agreement from patients and parents on the importance of the draft recommendations on transitional care for AYA with allergy and/or asthma and their parents. The recommendations now need to be implemented into clinical practice across Europe. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
6. EAACI Guidelines on the effective transition of adolescents and young adults with allergy and asthma.
- Author
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Roberts, Graham, Vazquez‐Ortiz, Marta, Knibb, Rebecca, Khaleva, Ekaterina, Alviani, Cherry, Angier, Elizabeth, Blumchen, Katharina, Comberiati, Pasquale, Duca, Bettina, DunnGalvin, Audrey, Garriga‐Baraut, Teresa, Gore, Claudia, Gowland, M. Hazel, Hox, Valérie, Jensen, Britt, Mortz, Charlotte G., Pfaar, Oliver, Pite, Helena, Santos, Alexandra F., and Sanchez‐Garcia, Silvia
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YOUNG adults ,MEDICAL personnel ,TEENAGERS ,TRANSITIONAL care ,ASTHMA ,ALLERGIES - Abstract
Adolescent and young adult (AYA) patients need additional support, while they experience the challenges associated with their age. They need specific training to learn the knowledge and skills required to confidently self‐manage their allergies and/or asthma. Transitional care is a complex process, which should address the psychological, medical, educational and vocational needs of AYA in the developmentally appropriate way. The European Academy of Allergy and Clinical Immunology has developed a clinical practice guideline to provide evidence‐based recommendations for healthcare professionals to support the transitional care of AYA with allergy and/or asthma. This guideline was developed by a multidisciplinary working panel of experts and patient representatives based on two recent systematic reviews. It sets out a series of general recommendations on operating a clinical service for AYA, which include the following: (a) starting transition early (11‐13 years), (b) using a structured, multidisciplinary approach, (c) ensuring AYA fully understand their condition and have resources they can access, (d) active monitoring of adherence and (e) discussing any implications for further education and work. Specific allergy and asthma transition recommendations include (a) simplifying medication regimes and using reminders; (b) focusing on areas where AYA are not confident and involving peers in training AYA patients; (c) identifying and managing psychological and socio‐economic issues impacting disease control and quality of life; (d) enrolling the family in assisting AYA to undertake self‐management; and (e) encouraging AYA to let their friends know about their allergies and asthma. These recommendations may need to be adapted to fit into national healthcare systems. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
7. Understanding the challenges faced by adolescents and young adults with allergic conditions: A systematic review.
- Author
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Vazquez‐Ortiz, Marta, Angier, Elizabeth, Blumchen, Katharina, Comberiati, Pasquale, Duca, Bettina, DunnGalvin, Audrey, Gore, Claudia, Hox, Valérie, Jensen, Britt, Pite, Helena, Santos, Alexandra F., Sanchez, Silvia, Alviani, Cherry, Garriga‐Baraut, Teresa, Knibb, Rebecca, Mortz, Charlotte G., Gowland, M. Hazel, Timmermans, Frans, and Roberts, Graham
- Subjects
YOUNG adults ,TEENAGERS ,ADOLESCENCE ,QUALITY of life ,MEDICAL personnel ,ATTITUDES toward sex - Abstract
Background: Adolescence represents a vulnerable time for individuals with asthma and allergic conditions. They suffer an unexpected degree of morbidity. This systematic review aimed to understand the challenges faced by adolescents and young adults with these conditions. Methods: A systematic literature search was undertaken across eight databases. References were checked by two reviewers for inclusion. Study data were extracted, and their quality was assessed in duplicate. A narrative meta‐synthesis was undertaken. Results: A total of 108 papers describing 106 studies were retrieved, most focused on asthma. Five themes were identified across studies: (a) Health‐related quality of life—impairment was associated with poor disease control, psychosocial issues, adolescent‐onset allergic disease and female sex; (b) Psychological factors—asthma and food allergy were associated with anxiety and depression, atopic dermatitis was associated with suicidal ideation, and that parental emotional support may be protective; (c) Adherence—suboptimal adherence was associated with older age, barriers to medication usage, poor symptom perception and failure to take responsibility, and positive factors were routines, simpler treatment regimes, better knowledge and perceptions about medications; (d) Self‐management—facilitated by education, knowledge and a positive attitude; and (e) Supportive relationships—families could modify barriers to adherence and foster positive views about self‐management, adolescents suggested that their peers should be more involved in supporting them, and adolescents also wished to have support from nonjudgemental healthcare professionals. Conclusions: We have some understanding of the challenges faced by adolescents with asthma, less so for other allergic conditions. This knowledge will be used to support guidelines for managing adolescents. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
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