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Artificial Intelligence (AI) is increasingly being adopted across many domains such as transport, healthcare, defence and sport, with football codes no exception. Though there is a range of potential benefits of AI, concern has also been expressed regarding potential risks. An important first step in ensuring that AI applications in football are usable, beneficial, safe and ethical is to understand the current range of applications, the AI models adopted and their proposed functions. This systematic review aimed to identify different applications of AI across football codes to synthesise current knowledge and determine whether potential risks are being considered. The systematic review included 190 peer-reviewed articles. Nine areas of application were found ranging from athlete evaluation and event detection to match outcome prediction and injury detection and prediction. In total, 27 different AI models were identified, with artificial neural networks the most frequently applied. Five AI assessment metrics were identified including specificity, recall, precision, accuracy and F1-score. Four potential risks were identified, concerning data security, usability, data biases and inappropriate athlete load management. It is concluded that, though a wide range of AI applications currently exist, further work is required to develop AI for football and identify and manage potential risks. [ABSTRACT FROM AUTHOR]

This section explores the challenges involved in translating genomic research into genomic medicine. A number of priorities have been identified in the Australian National Health Genomics Framework for addressing these challenges. Responsible collection, storage, use and management of genomic data is one of these priorities, and is the primary theme of this section. The recent release of Genomical, an Australian data-sharing platform, is used as a case study to illustrate the type of assistance that can be provided to the health care sector in addressing this priority. The section first describes the National Framework and other drivers involved in the move towards genomic medicine. The section then examines key ethical, legal and social factors at play in genomics, with particular focus on privacy and consent. Finally, the section examines how Genomical is being used to help ensure that the move towards genomic medicine is ethically, legally and socially sound and that it optimises advances in both genomic and information technology. [ABSTRACT FROM AUTHOR]

The relationship between new technologies and security is well established in the fields of defence, law enforcement, communications and public health. This has been highlighted by recent public debate about the security implications of data held by companies operating in social media and information technology (such as TikTok and Huawei). While genomic technology had been less high profile in the context of security, this changed following the COVID-19 pandemic, which focused attention on the significant implications of this form of data. This article discusses commercial genomic technology, related government interests and the growing implications for data security and regulation, such as through the example of the Beijing Genomics Institute, a large company providing genomic testing services to consumers worldwide. We suggest that commercial genomic data has growing implications for countries such as the United States and Australia and argue for greater attention to be directed to this form of technology and associated data security and regulation, including security assessment to address the risks associated with international transfer via corporate entities. [ABSTRACT FROM AUTHOR]

Objective: To assess Australian and New Zealand emergency clinicians' attitudes towards the use of artificial intelligence (AI) in emergency medicine. Methods: We undertook a qualitative interview‐based study based on grounded theory. Participants were recruited through ED internal mailing lists, the Australasian College for Emergency Medicine Bulletin, and the research teams' personal networks. Interviews were transcribed, coded and themes presented. Results: Twenty‐five interviews were conducted between July 2021 and May 2022. Thematic saturation was achieved after 22 interviews. Most participants were from either Western Australia (52%) or Victoria (16%) and were consultants (96%). More participants reported feeling optimistic (10/25) than neutral (6/25), pessimistic (2/25) or mixed (7/25) towards the use of AI in the ED. A minority expressed scepticism regarding the feasibility or value of implementing AI into the ED. Multiple potential risks and ethical issues were discussed by participants including skill loss from overreliance on AI, algorithmic bias, patient privacy and concerns over liability. Participants also discussed perceived inadequacies in existing information technology systems. Participants felt that AI technologies would be used as decision support tools and not replace the roles of emergency clinicians. Participants were not concerned about the impact of AI on their job security. Most (17/25) participants thought that AI would impact emergency medicine within the next 10 years. Conclusions: Emergency clinicians interviewed were generally optimistic about the use of AI in emergency medicine, so long as it is used as a decision support tool and they maintain the ability to override its recommendations. This qualitative study found that emergency clinicians in Australia and New Zealand were generally optimistic about the use of artificial intelligence (AI)‐enabled decision support tools in EDs. A number of issues were raised that require attention before full acceptance. AI‐enabled tools must operate as decision support only, be locally validated, be effectively integrated into existing workflows and take ethical concerns into consideration. [ABSTRACT FROM AUTHOR]

Data security assurance is crucial due to the increasing prevalence of cloud computing and its widespread use across different industries, especially in light of the growing number of cybersecurity threats. A major and everpresent threat is Ransomware-as-a-Service (RaaS) assaults, which enable even individuals with minimal technical knowledge to conduct ransomware operations. This study provides a new approach for RaaS attack detection which uses an ensemble of deep learning models. For this purpose, the network intrusion detection dataset "UNSWNB15" from the Intelligent Security Group of the University of New South Wales, Australia is analyzed. In the initial phase, the rectified linear unit-, scaled exponential linear unit-, and exponential linear unit-based three separate Multi-Layer Perceptron (MLP) models are developed. Later, using the combined predictive power of these three MLPs, the RansoDetect Fusion ensemble model is introduced in the suggested methodology. The proposed ensemble technique outperforms previous studieswith impressive performance metrics results, including 98.79% accuracy and recall, 98.85% precision, and 98.80% F1-score. The empirical results of this study validate the ensemble model's ability to improve cybersecurity defenses by showing that it outperforms individual MLPmodels. In expanding the field of cybersecurity strategy, this research highlights the significance of combined deep learning models in strengthening intrusion detection systems against sophisticated cyber threats. [ABSTRACT FROM AUTHOR]

Electronic health records (EHRs) have been widely adopted in Australian public sector healthcare and will remain an ongoing, essential data system. However, recent substantial data breaches from hacked business data systems in Australian enterprises, as well as international healthcare providers, mean that EHR data breaches are increasingly likely in Australia. Risks include medical identity theft and extortion attempts based on threats to release sensitive patient information. Hacking is now a foreseeable additional risk of medical treatment. Risk mitigation for the consequences of data breaches needs to be considered, as well as support for patients (and families) and healthcare workers. This includes identity theft protection services, cybersecurity insurance, and psychological support. [ABSTRACT FROM AUTHOR]

Background: Artificial intelligence (AI) has been increasingly recognized as a potential solution to address mental health service challenges by automating tasks and providing new forms of support. Objective: This study is the first in a series which aims to estimate the current rates of AI technology use as well as perceived benefits, harms, and risks experienced by community members (CMs) and mental health professionals (MHPs). Methods: This study involved 2 web-based surveys conducted in Australia. The surveys collected data on demographics, technology comfort, attitudes toward AI, specific AI use cases, and experiences of benefits and harms from AI use. Descriptive statistics were calculated, and thematic analysis of open-ended responses were conducted. Results: The final sample consisted of 107 CMs and 86 MHPs. General attitudes toward AI varied, with CMs reporting neutral and MHPs reporting more positive attitudes. Regarding AI usage, 28% (30/108) of CMs used AI, primarily for quick support (18/30, 60%) and as a personal therapist (14/30, 47%). Among MHPs, 43% (37/86) used AI; mostly for research (24/37, 65%) and report writing (20/37, 54%). While the majority found AI to be generally beneficial (23/30, 77% of CMs and 34/37, 92% of MHPs), specific harms and concerns were experienced by 47% (14/30) of CMs and 51% (19/37) of MHPs. There was an equal mix of positive and negative sentiment toward the future of AI in mental health care in open feedback. Conclusions: Commercial AI tools are increasingly being used by CMs and MHPs. Respondents believe AI will offer future advantages for mental health care in terms of accessibility, cost reduction, personalization, and work efficiency. However, they were equally concerned about reducing human connection, ethics, privacy and regulation, medical errors, potential for misuse, and data security. Despite the immense potential, integration into mental health systems must be approached with caution, addressing legal and ethical concerns while developing safeguards to mitigate potential harms. Future surveys are planned to track use and acceptability of AI and associated issues over time. [ABSTRACT FROM AUTHOR]

Background: In Australia, national policy prioritises the integration of clinical genetic data with networked electronic medical records (EMRs) for enhanced coordination of care and clinical decision-making. Objective: To examine the needs, privacy expectations and concerns of patients, family members, patient advocates and clinicians in relation to the use of networked EMRs for clinical genetic information. Method: Purposive sampling was used to recruit 27 participants for a semi-structured qualitative interview, primarily over Zoom. The interviews were audio and video-recorded and externally transcribed. Interview transcripts were then coded and analysed in NVivo, using an inductive thematic approach. Results: Thematic analysis revealed diverse preferences regarding genetic information access and handling across participants, with five core themes being identified: degree of access and control; central role of genetic professionals as information gatekeepers; complexities of familial implications; external risks; and law, governance and policy; all strong themes that emerged across numerous participants. Conclusion: This project yielded unprecedented and significant insights into the views, needs and concerns of key stakeholders in Australia regarding the inclusion of health-related genetic test results in networked EMRs. Implications: These findings provide a critical reference point for much-needed law reform and policy-making around genetic test results in Australia. [ABSTRACT FROM AUTHOR]

There is an increasing demand for the return of raw genomic data by research participants in translational genomic research. This article discusses the scope and application of privacy and freedom of information legislative provisions in Australia. Whether there is a right to access a copy of such data under Australian privacy legislation is contingent on whether raw genomic data can identify an individual and this article explores the opportunities for genomic data to be linked to individuals. We conclude that despite the complexity and overlapping nature of privacy laws in Australia, there is a clear right on the part of research participants to access their raw genomic data. [ABSTRACT FROM AUTHOR]

In the global interconnected economy, China-made information-collecting technologies such as closed-circuit television (CCTV) surveillance cameras have become popular products for routine video-based surveillance. Hikvision and Dahua are the two largest global suppliers of CCTV cameras, with both companies supplying their products to over 200 countries. Despite their popularity, national security concerns are commonly cited when adopting these cameras, citing manufacturer links with the Communist Party of China (CPC), cybersecurity vulnerabilities, and sales recorded in the Xinjiang region, that has records of human rights violations. This paper is structured in three parts: first, we explore the predominance of China-made information-gathering technologies in Australia; second, we summarise common national security concerns usually associated with China-based technology manufacturers; and third, we propose regulatory measures to regulating China-made CCTV cameras in Australia. The paper suggests that while state and Federal decision-makers are free to remove Chinese CCTV surveillance cameras, they should avoid overt politisation. Overall, a stronger focus should be placed on evaluating cybersecurity risks of Internet of Things (IoT) information-collecting technologies and considering their timely and effective regulation from the perspective of individual and national interests. [ABSTRACT FROM AUTHOR]

The recently passed Privacy Legislation Amendment (Enforcement and Other Measures) Act 2022 (Cth) introduced important changes to the Australian Privacy Act 1988 (Cth) which increase penalties for serious and repeated interferences with privacy and strengthen the investigative and enforcement powers of the Information Commissioner. The amendments were made subsequent to a number of high profile data breaches and represent the first set of changes to the Privacy Act following the review of the Act commenced by the Attorney-General in October 2020. The submissions made to the review emphasized the need for more effective enforcement mechanisms to increase individuals' control over their personal information and as a form of deterrence. This article reviews the recent amendments to the Privacy Act and explains their effect. It comments upon the relevance of the amendments for health and medical data and other data collected in the context of healthcare, and refers to the Attorney-General's Department's review of the Privacy Act regarding other proposals relating to enforcement which have not as yet been put into effect in legislation. [ABSTRACT FROM AUTHOR]

After a brief overview of ethical issues in an Australian context catalyzed by the current pandemic, this article focuses on data protection in the light of recent debates about COVID-19 data tracking in Australia and globally. This article looks at the issue of trust as a fundamental principle of effective and ethical COVID-safe measures undertaken by the government. Key to ensuring such trust are Habermasian participatory dialogs, which assume trust as a condition of authentic illocution, and an emphasis on short-term data capture. [ABSTRACT FROM AUTHOR]

Australia has a high prevalence of diabetes, with approximately 1.2 million Australians diagnosed with the disease. In 2012, the Australasian Diabetes Data Network (ADDN) was established with funding from the Juvenile Diabetes Research Foundation (JDRF). ADDN is a national diabetes registry which captures longitudinal information about patients with type-1 diabetes (T1D). Currently, the ADDN data are directly contributed from 42 paediatric and 17 adult diabetes centres across Australia and New Zealand, i.e., where the data are pre-existing in hospital systems and not manually entered into ADDN. The historical data in ADDN have been de-identified, and patients are initially afforded the opportunity to opt-out of being involved in the registry; however, moving forward, there is an increased demand from the clinical research community to utilise fully identifying data. This raises additional demands on the registry in terms of security, privacy, and the nature of patient consent. General Data Protection Regulation (GDPR) is an increasingly important mechanism allowing individuals to have the right to know about their health data and what those data are being used for. This paper presents a mobile application being designed to support the ADDN data collection and usage processes and aligning them with GDPR. The app utilises Dynamic Consent—an informed specific consent model, which allows participants to view and modify their research-driven consent decisions through an interactive interface. It focuses specifically on supporting dynamic opt-in consent to both the registry and to associated sub-projects requesting access to and use of the patient data for research purposes. [ABSTRACT FROM AUTHOR]

Australia's national electronic health record (EHR), My Health Record (MHR), raises concerns about information privacy and the presumption of consent to participation. In contrast to the "opt-out" framework for participation, consumers must "opt-in" to obtain additional privacy features to protect their health information on MHR. We review ethical considerations relating to opt-in and opt-out frameworks in the context of EHRs, discussing potential reasons why consent for additional safeguards is not currently presumed. Exploring the implications of recent amendments to strengthen consumer privacy, we present recommendations to promote equity in health information security for all Australians using MHR. [ABSTRACT FROM AUTHOR]

Understanding users' individual differences may provide clues to help identify computer users who are prone to act insecurely. We examine factors that impact home users' reported computer security behaviour. We conducted two online surveys with a total of 650 participants to investigate the relationship between self-reported security behaviour and users' knowledge, motivation, confidence, risk propensity and sex-typed characteristics. We found that all of these factors impacted security behaviour, with knowledge as the most important predictor. We further show that a user's affinity to feminine or masculine characteristics is a better determinant of security behaviour than using binary male/female descriptors. Our study enabled us to confirm earlier results in the literature in a non-organisational setting, and to extend the literature by studying additional factors and by comparing the relative importance of each factor as a predictor of security behaviour. [ABSTRACT FROM AUTHOR]

Inequity in health outcomes is pervasive, with poorer health outcomes identified in rural, regional and remote communities. An international call to action emphasises the need for service models adapted for less well‐resourced settings. The aim of this study was to identify key elements of a framework for the adaptation of specialist community‐based child and family health (CFH) service models for rural and other under‐resourced settings. A modified Delphi study was undertaken with a 12‐person expert panel in CFH including Australian and international professionals and parents from rural and remote communities. The study was informed by the WHO Framework for Strengthening Health Service Systems building blocks, the outcomes of an integrative review of literature and a Participatory Action Research study. Experts assessed 107 potential elements for service model development and rated them for importance when adapting service models for different contexts. Round 1 of the Delphi generated considerable consensus with 80 of the 107 potential elements identified as necessary for the service model adaptation framework. A further 17 elements for CFH service models were added in round 2. While multiple varied elements are important for adapting CFH service models for diverse settings, some elements had common themes. Experts highlighted the importance of community engagement and participation; utilising both data and local knowledge to develop a robust understanding of the community context; and the need for a flexible approach to funding and modes of service delivery to address barriers to implementation and access. [ABSTRACT FROM AUTHOR]

Blockchain (BCT) is an emerging technology that promises many benefits for organizations, for instance, disintermediation, data security, data transparency, a single version of the truth, and trust among trading partners. Despite its multiple benefits, the adoption rate of BCT among organizations has not reached a significantly high level worldwide, thus requiring further research in this space. The present study addresses this issue in the Australian context. There is a knowledge gap in what specific factors, among the plethora of factors reported in the extant literature, affect the organizational adoption of BCT in Australia. To fill this gap, the study uses the qualitative interpretative research approach along with the technology-organization-environment (TOE) framework as a theoretical lens. The data was mainly drawn from the literature review and semi-structured interviews of the decision-makers and senior IT people from the BCT adopter and potential adopter organizations in Australia. According to the findings, perceived information transparency, perceived risks, organization innovativeness, organization learning capability, standards uncertainty, and competition intensity influence organizational adoption of BCT in Australia. These factors are exclusively identified in this study. The study also validates the influence of perceived benefits and perceived compatibility on BCT adoption that are reported in the past studies. Practically, these findings are helpful for the Australian government and public and private organizations to develop better policies and make informed decisions for the organizational adoption of BCT. The findings would guide decision-makers to think about the adoption of BCT strategically. The study also has theoretical implications explained in the discussion section. [ABSTRACT FROM AUTHOR]

Technology is empowering advances in health care, extending beyond the clinical interface to the collection, collation and use of personal data. While this advance has the potential for population-wide benefits, there are legal and ethical challenges which carry the risk of both individual and collective harms. This section critically appraises the existing approach to the governance of health data in Australia. This approach is grounded in the principles of autonomy, privacy and respect for individual choice. This section then identifies the broader imperatives of social good, public health, improvement of outcomes and advancement of knowledge and the importance of balancing individual and collective interests. Central to this discussion are the concepts of social licence and avoiding ethical debt. A significant challenge to the appropriate sharing and use of health data are the existing regulatory barriers (both perceived and actual) and these are explored in some detail. [ABSTRACT FROM AUTHOR]

This article examines the contested terrain of protecting or providing biometric data in the workplace. Through a major case study in Australia, a decision to terminate employment on the grounds of non-consent for biometric data to be collected was overturned through the legislative system. The case is important in that it highlights the increased impetus to collect such data and the arbitrary nature of legal protection. However, the results of this significant case do provide improved clarity and guidance on the usage, collection, storage and management of biometric data. It also signals to management the need to understand employees' rights and their own obligations around the informational privacy of employees. [ABSTRACT FROM AUTHOR]

Background: Most people receive most of their health care in in Australia in primary care, yet researchers and policymakers have limited access to resulting clinical data. Widening access to primary care data and linking it with hospital or other data can contribute to research informing policy and provision of services and care; however, limitations of primary care data and barriers to access curtail its use. The Australian Health Research Alliance (AHRA) is seeking to build capacity in data-driven healthcare improvement; this study formed part of its workplan.Methods: The study aimed to build capacity for data driven healthcare improvement through identifying primary care datasets in Australia available for secondary use and understand data quality frameworks being applied to them, and factors affecting national capacity for secondary use of primary care data from the perspectives of data custodians and users. Purposive and snowball sampling were used to disseminate a questionnaire and respondents were invited to contribute additional information via semi-structured interviews.Results: Sixty-two respondents collectively named 106 datasets from eclectic sources, indicating a broad conceptualisation of what a primary care dataset available for secondary use is. The datasets were generated from multiple clinical software systems, using different data extraction tools, resulting in non-standardised data structures. Use of non-standard data quality frameworks were described by two-thirds of data custodians. Building trust between citizens, clinicians, third party data custodians and data end-users was considered by many to be a key enabler to improve primary care data quality and efficiencies related to secondary use. Trust building qualities included meaningful stakeholder engagement, transparency, strong leadership, shared vision, robust data security and data privacy protection. Resources to improve capacity for primary care data access and use were sought for data collection tool improvements, workforce upskilling and education, incentivising data collection and making data access more affordable.Conclusions: The large number of identified Australian primary care related datasets suggests duplication of labour related to data collection, preparation and utilisation. Benefits of secondary use of primary care data were many, and strong national leadership is required to reach consensus on how to address limitations and barriers, for example accreditation of EMR clinical software systems and the adoption of agreed data and quality standards at all stages of the clinical and research data-use lifecycle. The study informed the workplan of AHRA's Transformational Data Collaboration to improve partner engagement and use of clinical data for research. [ABSTRACT FROM AUTHOR]

This study explores Industry 4.0 in the Australian context, where manufacturing is dominated by smaller firms servicing the domestic market. We interviewed 20 advanced Australian manufacturers from diverse fields, capturing detailed descriptions of the Industry 4.0 implementation process. We compared the themes that emerged from their descriptions with the factors typically assessed in Industry 4.0 frameworks to draw out differences in emphasis. Consistent with these frameworks, Australian manufacturers were focused on using Industry 4.0 technologies to automate the capture, integration and analysis of data. To enable this activity, they were reorganising workforce roles and developing new skill sets. Knowledge sharing and collaborations within and across the organisation were seen to be especially important for small Australian manufacturers (with limited funding for technology investment and research and development) to maintain global competitiveness. However, while most Industry 4.0 frameworks describe supply chain applications, the development of smart products and services, and the need to adopt a strategy-led approach, relatively few participants spoke about these opportunities. Even fewer addressed the need for improved governance, standards and data security in the context of Industry 4.0. We argue that these gaps are best addressed through government policy and investment focusing beyond manufacturers, to support Industry 4.0 uplift across key domestic supply chains. [ABSTRACT FROM AUTHOR]

Background: Privacy preserving record linkage (PPRL) methods using Bloom filters have shown promise for use in operational linkage settings. However real-world evaluations are required to confirm their suitability in practice.Methods: An extract of records from the Western Australian (WA) Hospital Morbidity Data Collection 2011-2015 and WA Death Registrations 2011-2015 were encoded to Bloom filters, and then linked using privacy-preserving methods. Results were compared to a traditional, un-encoded linkage of the same datasets using the same blocking criteria to enable direct investigation of the comparison step. The encoded linkage was carried out in a blinded setting, where there was no access to un-encoded data or a 'truth set'.Results: The PPRL method using Bloom filters provided similar linkage quality to the traditional un-encoded linkage, with 99.3% of 'groupings' identical between privacy preserving and clear-text linkage.Conclusion: The Bloom filter method appears suitable for use in situations where clear-text identifiers cannot be provided for linkage. [ABSTRACT FROM AUTHOR]

Background: The implementation of emerging technologies has resulted in an increase of data breaches in healthcare organisations, especially during the COVID-19 pandemic. Health information and cybersecurity managers need to understand if, and to what extent, breach types and locations are associated with their organisation's business type., Objective: To investigate if breach type and breach location are associated with business type, and if so, investigate how these factors affect information systems and protected health information in for-profit versus non-profit organisations., Method: The quantitative study was performed using chi-square tests for association and post-hoc comparison of column proportions analysis on an archival data set of reported healthcare data breaches from 2020 to 2022. Data from the Department of Health and Human Services website was retrieved and each organisation classified as for-profit or non-profit., Results: For-profit organisations experienced a significantly higher number of breaches due to theft, and non-profit organisations experienced a significantly higher number of breaches due to unauthorised access. Furthermore, the number of breaches that occurred on laptops and paper/films was significantly higher in for-profit organisations., Conclusion: While the threat level of hacking techniques is the same in for-profit and non-profit organisations, certain breach types are more likely to occur within specific breach locations based on the organisation's business type. To protect the privacy and security of medical information, health information and cybersecurity managers need to align with industry-leading frameworks and controls to prevent specific breach types that occur in specific locations within their environments., Competing Interests: Declaration of conflicting interestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Background: There is good evidence of both community support for sharing public sector administrative health data in the public interest and concern about data security, misuse and loss of control over health information, particularly if private sector organizations are the data recipients. To date, there is little research describing the perspectives of informed community members on private sector use of public health data and, particularly, on the conditions under which that use might be justified. Methods: Two citizens' juries were held in February 2020 in two locations close to Sydney, Australia. Jurors considered the charge: 'Under what circumstances is it permissible for governments to share health data with private industry for research and development?' Results: All jurors, bar one, in principle supported sharing government administrative health data with private industry for research and development. The support was conditional and the juries' recommendations specifying these conditions related closely to the concerns they identified in deliberation. Conclusion: The outcomes of the deliberative processes suggest that informed Australian citizens are willing to accept sharing their administrative health data, including with private industry, providing the intended purpose is clearly of public benefit, sharing occurs responsibly in a framework of accountability, and the data are securely held. Patient and Public Contribution: The design of the jury was guided by an Advisory Group including representatives from a health consumer organization. The jurors themselves were selected to be descriptively representative of their communities and with independent facilitation wrote the recommendations. [ABSTRACT FROM AUTHOR]

Context : Coronavirus disease (COVID-19) caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) has precipitated an unprecedented volume of medical research. Articles reporting two studies were recently retracted from prestigious journals for reasons including the (thus far) unverifiable provenance of data. This commentary adopts a health information management lens to focus on aspects of data in one of the studies (investigating the use of hydroxychloroquine or chloroquine with or without a macrolide for treatment of COVID-19). The issues : Referencing the Australian context, the current article considers some of the study's reported hospital administrative and coded data categories within the context of Australian hospitals' health information management practices. It highlights potential risks associated with the collection and interpretation of 'big' health data. Implications : This article identifies pitfalls that confront researchers undertaking multi-country studies and the need to consider country-specific: (i) collected administrative data items; (ii) health information-related ethical, legal and management policy constraints on the use of confidential hospital records and derived data; and (iii) differences in health classification systems and versions used in the coding of diagnoses and related procedures, interventions and health behaviours. Conclusions : The article concludes that the inclusion of a qualified, senior Health Information Manager in research teams and on institutional Human Research Ethics Committees would help to prevent potential problems. [ABSTRACT FROM AUTHOR]

The Privacy Act 1988 (Cth) is focused on information that relates to identified or identifiable persons. If understood narrowly, this approach risks failure to acknowledge the importance of data relating to multiple persons (group data) and its appropriate control within the framework of data governance. There is an increasingly urgent need to address this risk. Indeed, the COVID-19 pandemic has already demonstrated how group data might have tangible impact: by shifting an understanding of priority and what constitutes a reasonable trade-off between individual and public interests. This article considers the extent to which governance mechanisms could, through the vehicle of existing privacy law, protect persons from potentially harmful uses of group data in a modern information economy. [ABSTRACT FROM AUTHOR]

Background: In Australia, data generated from the carefully selected, treated and monitored patients enrolled in clinical trials largely inform routine care and funding approvals. Medicine Access Programmes (MAP) enable drug access and while potentially a rich source of data, historically have not collected data beyond a participant list. Aims: To explore the feasibility of using MAP to identify patient populations for inclusion in non‐interventional studies. Methods: Clinicians affiliated with the Walter and Eliza Hall Institute engaged with Roche to implement PeRSIA, a secondary data use non‐interventional study of patients receiving neoadjuvant pertuzumab for non‐metastatic HER2+ breast cancer. The study utilised a pre‐existing Roche‐sponsored MAP to identify clinicians as data contributors. Data security, ownership and reporting issues were addressed utilising the BioGrid platform and standards developed for existing Walter and Eliza Hall Institute registries. Disease experts developed project‐specific Case Report Forms documenting treatment, surgical and cancer‐specific outcomes, and adverse events. Results: To date, 12 of 16 (75%) clinicians approached to participate in PeRSIA are contributing de‐identified data. From February through September 2018, data on 41 patients from seven centres were collected. Median patient age is 56 years (range 36–81), 36 (88%) had Stage 2 to 3 disease and 27 (66%) were node positive. The median number of cycles of neoadjuvant pertuzumab planned was 4. Conclusions: This initial report is, to our knowledge, the first description of a secondary data use non‐interventional study collecting comprehensive data on patients enrolled, independently, in a MAP. This effort continues and opportunities with other industry partners are being pursued. [ABSTRACT FROM AUTHOR]

The article focuses on the cybersecurity landscape in 2024. It highlighting the rising threat of cybercrime in Australia, particularly targeting small enterprises and the increasing sophistication of cyber attacks; supply chain attacks and social engineering campaigns; the surge in cybercrime reports; strategies for strengthening cybersecurity defenses for small to medium enterprises (SMEs); and the role of cyber insurance in mitigating the impact of cyber attacks.

Aviation security failures have an impact much more significant than just the first-line victims. A literature review shows entire industries (eg tourism) and countries (and regions) suffer as a result of a successful attack. The Australian case is examined, in which a documented history of especially government realisation that the current security funding system is unfair and increasingly unaffordable exists. Security charge data is used to calculate the full cost of security provision at a number of Australia's security controlled airports. A clear pattern is identified. The aviation security system is designed to keep the aviation network safe. It is, however, found that regional and rural passengers are subsidising those from major airports. Considering the data and various international security funding models, it is found that a domestic network security charge will drastically reduce the security cost of all rural, regional and a number of major airports in Australia to only AU$2.71 per passenger. Two major airports are identified that on a per-person basis will be required to make additional contributions to the national aviation network. A number of issues around transparency, affordability and fairness are raised by the data. [ABSTRACT FROM AUTHOR]

This article argues that Australia's recently-passed data breach notification legislation, the Privacy Amendment (Notifiable Data Breaches) Act 2017 (Cth), and its coming into force in 2018, makes an internationally important, yet imperfect, contribution to data breach notification law. Against the backdrop of data breach legislation in the United States and European Union, a comparative analysis is undertaken between these jurisdictions and the Australian scheme to elucidate this argument. Firstly, some context to data breach notification provisions is offered, which are designed to address some of the problems data breaches cause for data privacy and information security. There have been various prominent data breaches affecting Australians over the last few years, which have led to discussion of what can be done to deal with their negative effects. The international context of data breach notification legislation will be discussed, with a focus on the United States and European Union jurisdictions, which have already adopted similar laws. The background to the adoption of the Australia legislation will be examined, including the general context of data privacy and security protection in Australia. The reform itself will be then be considered, along with the extent to which this law is fit for purpose and some outstanding concerns about its application. While data breach notification requirements are likely to be a positive step for data security, further reform is probably necessary to ensure strong cybersecurity. However, such reform should be cognisant of the international trends towards the adoption of data security measures including data breach notification, but lack of alignment in standards, which may be burdensome for entities operating in the transnational data economy. [ABSTRACT FROM AUTHOR]

The digital transformation of hospitals in Australia is occurring rapidly in order to facilitate innovation and improve efficiency. Rapid transformation can cause temporary disruption of hospital workflows and staff as processes are adapted to the new digital workflows. The aim of this paper is to outline various types of digital disruption and some strategies for effective management.Alarge tertiary university hospital recently underwent a rapid, successful roll-out of an integrated electronic medical record (EMR). We observed this transformation and propose several digital disruption "syndromes" to assist with understanding and management during digital transformation: digital deceleration, digital transparency, digital hypervigilance, data discordance, digital churn and post-digital 'depression'. These 'syndromes' are defined and discussed in detail. Successful management of this temporary digital disruption is important to ensure a successful transition to a digital platform. [ABSTRACT FROM AUTHOR]

This article presents an initial appraisal of the emerging Australian approach to applying privacy and data protection laws to automated technologies. These laws and the general context in which they operate will be explained, with appropriate comparisons made to the European Union frameworks. In order to examine their specific application vis-à-vis automated technologies, three case studies – automated facial recognition technologies (AFRT), unmanned aerial vehicles (UAVs – better known as ‘drones’) and autonomous vehicles (or ‘driverless cars’) – are selected to examine the extent to which existing privacy and data protection laws, and their application, can be considered adequate to address privacy and data protection risks that these technologies bring. These case studies evidence existing deficiencies with privacy protection in Australia and the inadequacy of recent reform processes, demonstrating that Australian data privacy laws are not well placed to protect individuals' rights vis-à-vis automated technologies. [ABSTRACT FROM AUTHOR]

Background: Most countries face an ageing population, increasing chronic diseased, and constrictions on budget for providing health services. Involving patients in their own care by allowing them access to their patient data is a trend seen in many places.Methods: Data on the type and level of access citizens have to their own health data in three countries was gathered from public sources.Results: Data from each individual country is presented and the experiences of Denmark, Estonia and Australia are examined whilst similarities and differences explored. The discussion adopts a citizen-centred perspective to consider how the different e-portal systems support, protect and structure citizen interactions with their own health data in three key areas: Security, privacy and data protection; User support; and Citizen adoption and use.Conclusions: The paper highlights the impact of opt-in/opt-out approaches on citizen access and the lack of a structured approach to addressing differences in citizen health and e-health literacy. This research also confirms while current data provides detail on the availability and use of personal health data by citizens, questions still remain over the ultimate impact on patient outcomes of these initiatives. It is anticipated the insights generated from the three countries experiences, supporting citizen access to their health data will be useful to improve these initiatives and guide other countries aspiring to support similar initiatives. [ABSTRACT FROM AUTHOR]

A significant body of research has developed over the last sixty years concerning the factors that influence and impact taxpayer compliance. In particular, a number of recent studies have examined tax practitioners' ethical behaviour and the implications this has for taxpayer compliance. However, fewer studies have conducted systematic empirical research into tax practitioner ethics in Australia, and more specifically with regards to the Code of Professional Conduct under the Tax Agent Services Act 2009 (Cth), since its operation from March 2010. As tax practitioners lodge returns on behalf of approximately 75% of Australian individual taxpayers, there is great potential for them to influence the compliance landscape. Failure to investigate the discrepancies between tax practitioner ethics/practices and those stipulated in the Code of Professional Conduct could potentially result in professional malpractice and excessive revenue leakage for the government. Consequently, this preliminary study addresses this research gap by specifically investigating tax practitioners' level of commitment to, and compliance with, the Code of Professional Conduct. The research study conducted both a quantitative and qualitative analysis of data obtained directly from Australian tax practitioners. The findings revealed that tax practitioners were generally supportive of the professional standards under the code, but the findings were more qualified with regard to the appropriateness and knowledge of penalties under the code. The results were also mixed with regard to other ethical issues, such as the outsourcing and transfer of client information. The suggested tax policy implications stemming from the study include: the reintroduction of compulsory engagement letters; clear guidelines regarding the maintenance of in-house tax practitioner guidelines at all levels; introduction of protocols and standards for data security and outsourcing of services; improving the education and training of tax practitioners with regard to penalties; and consideration of the possible "black listing" of agents in public documents who commit serious offences under the code. These findings provide useful information for the Tax Practitioners Board, professional tax and accounting organisations and the Australian taxation authority. [ABSTRACT FROM AUTHOR]

Clinical Practice Guidelines are widely used to inform and improve the quality and consistency of clinical practice. Developing and publishing Clinical Practice Guidelines is a complex task involving multiple components. Electronic Content Management Systems are increasingly employed to make this task more manageable. The Content Management System market offers a variety of options for publishing content on the Internet. However, there are limited products that comprehensively address the requirements of publishing Clinical Practice Guidelines. The authors are involved in publishing guidelines for remote clinical practitioners in Australia and present their perspective about identifying an appropriate Content Management System. Several elements essential to addressing their unique editing needs are defined in this article. Unfortunately, customisation is very expensive and laborious: few Content Management System providers can comprehensively meet the needs of Clinical Practice Guidelines publishing. Being pragmatic about the level of functionality a product can offer to support publication is essential. [ABSTRACT FROM AUTHOR]

Conservation on private land is a growing part of international efforts to stem the decline of biodiversity. In many countries, private land conservation policy often supports in perpetuity covenants and easements, which are legally binding agreements used to protect biodiversity on private land by restricting activities that may negatively impact ecological values. With a view to understand the long-term security of these mechanisms, we examined release and breach data from all 13 major covenanting programs across Australia. We report that out of 6,818 multi-party covenants, only 8 had been released, contrasting with approximately 130 of 673 single-party covenants. Breach data was limited, with a minimum of 71 known cases where covenant obligations had not been met. With a focus on private land conservation policy, we use the results from this case study to argue that multi-party covenants appear an enduring conservation mechanism, highlight the important role that effective monitoring and reporting of the permanency of these agreements plays in contributing to their long-term effectiveness, and provide recommendations for organizations seeking to improve their monitoring programs. The collection of breach and release data is important for the continuing improvement of conservation policies and practices for private land. [ABSTRACT FROM AUTHOR]

The article presents the discussion on policy related to digital health. Topics include development of electronic medical records in hospitals exploding in the 2000s with rapid development in most Australian public hospitals and some private hospitals; and allowing opportunities for hospital avoidance and home-based care and rethinking the possibilities for the health systems.

Diagnostic genomic sequencing generates unprecedented amounts of data. In addition to its primary use, this data could be used for a wide range of secondary purposes, including research and informing future healthcare for the data donor. These opportunities may require data to be shared with third parties. Although effective data sharing relies on public support, there are barriers which may prevent people from choosing to donate their genomic data and surprisingly few studies explore these barriers in depth. To address this need, this study aimed to qualitatively explore the Australian public's views and preferences for storing and sharing genomic data. Online focus groups were recorded, transcribed, and analysed using inductive content analysis. A total of 7 focus groups were conducted with 39 members of the Australian public ranging from 18 to 67 years of age. Participants were mostly supportive of genomic data being stored and shared for secondary purposes, recognising the potential benefits for individual health and wider medical research. However, some concerns were identified. Participants felt genomic data was particularly sensitive information, and raised the potential for discrimination, stigma, and other malicious uses of such data. Concerns for privacy and security of the data were also prevalent. Trustworthiness of data users was important when considering who genomic data should be shared with. Although participants were supportive of data being freely available to health professionals and researchers, they were opposed to insurance companies and employers accessing the data. There was greater controversy around sharing data with law enforcement and pharmaceutical companies. Participants recognised both benefits and harms to sharing with law enforcement. They were also cognizant of the dual purpose of pharmaceutical companies as both research and profit-driven organisations. Finally, participants expressed varying perspectives about sharing genomic data with family members, yet most agreed that explicit consent from the data donor should be required to share their information with relatives. This study highlighted several of the Australian public's perceived barriers and motivators for the storage and sharing of genomic data. Participants recognised both the benefits of collecting, storing and sharing such data widely but also the potential for harm from data misuse. While public acceptance of such endeavours is required to maximise the volume of data made available, the concerns around data access and security need to be addressed before this can occur. These findings also highlight the nuance and ethical complexity of decisions about who we should allow to access donated genomic data. These perspectives will be essential in helping to shape the way large-scale genomic data storage and sharing is developed and implemented in Australia, and internationally. [ABSTRACT FROM AUTHOR]

Background: The issue of home care for older people is concerned with availability of information. Aim: To compare delivery of electronic health record (EHR) in home care for older people. Methods: An applied-comparative library study was conducted in 2015. The study population included Canada, Australia, England, Denmark and Taiwan. Data were extracted from literature related to EHR on home care and older people. Results: The main functions included collection, documentation of lab and imaging results. Common data elements were demographic information, prescriptions and nursing observations. Security needs were identified according to the Personal Information Protection and Electronic Document Act, enacted in Canada and the Privacy Act 1988 in Australia. Conclusions: The basic functions of EHR are determined as collection, documentation and retrieval of information. It is recommended that legislation protects access to information on personal health and implementation of a national unique identifier applicable to shared data. [ABSTRACT FROM AUTHOR]

The article focuses on a debate on universal electronic health record system called the ‘My Health Record', discussing its creation of records automatically for the individual citizens of Australia. It reports that the main motive behind the creation of My Health Record for the improvement of coordination of care, preventing duplication of services and investigations and helping avoid drug errors. The health record system benefits various sectors.

Digital health tools, such as apps, have the potential to promote healthy behaviours, especially self-monitoring, which can facilitate pregnancy management and reduce the risk of associated pregnancy health conditions. While pregnancy apps are popular amongst pregnant women, there is limited information about the overall quality of their content or self-monitoring tools and the number of behaviour change techniques (BCTs) that they include. The aim of this study was thus to assess the quality of pregnancy apps for self-monitoring, and their usage of BCTs. We identified pregnancy apps by web scraping the most popular global apps for self-monitoring in the Apple App Store and Google Play Store available in Australia. The app quality was evaluated using the scorecard approach and the inclusion of BCTs was evaluated using the ABACUS tool. We identified 31 pregnancy apps that met our eligibility criteria. We found that pregnancy apps tended to score the highest in the domains of 'cost and time', 'usability', and 'technical', and lowest on 'clinical' and 'end-user requirements'. Additionally, the majority of apps contained minimal BCTs. Based on our findings, we propose a digital health scorecard visualisation that would break down app quality criteria and present them in a more accessible way to clinicians and pregnant users. We conclude that these findings highlight the shortcomings of available commercial pregnancy apps and the utility of a digital health scorecard visualisation that would empower users to make more informed decisions about which apps are the most appropriate for their needs.

Australian biobanks are largely autonomous and funded by local health care institutions, although some biobanks also receive funding from the National Health and Medical Research Council (NHMRC). There is no formal biobank legislation, but the NHMRC has developed biobanking guidelines. The regulation of biobanks is mainly through privacy laws and human research ethics committees. Australia is moving toward the use of broad consent for biobanking. International data sharing is permitted. [ABSTRACT FROM AUTHOR]

Smart mobile devices are a potential attack vector for cyber criminal activities. Two hundred and fifty smart mobile device owners from the University of South Australia were surveyed. Not surprisingly, it was found that smart mobile device users in the survey generally underestimated the value that their collective identities have to criminals and how these can be sold. For example, participants who reported jail-breaking/rooting their devices were also more likely to exhibit risky behaviour (e.g. downloading and installing applications from unknown providers), and the participants generally had no idea of the value of their collective identities to criminals which can be sold to the highest bidder. In general, the participants did not understand the risks and may not have perceived cyber crime to be a real threat. Findings from the survey and the escalating complexities of the end-user mobile and online environment underscore the need for regular ongoing training programs for basic online security and the promotion of a culture of security among smart mobile device users. For example, targeted education and awareness programmes could be developed to inform or educate smart mobile device users and correct misconceptions or myths in order to bring about changes in attitudes and usage behaviour (e.g. not taking preventative measures such as strong passwords to protect their devices). Such initiatives would enable all end users (including senior University management who use such devices to access privileged corporate data and accounts) to maintain current knowledge of the latest cyber crime activities and the best cyber security protection measures available. [ABSTRACT FROM AUTHOR]

The author reflects on the Council of Small Business Organisations Australia (COSBOA) National Small Business Summit, held in Sydney, New South Wales on April 5-6, 2022. He cites the rise of online consumerism which signifies digitalisation of small businesses as a driver of success. He observes the increased uptake of telehealth, rise of deliveries by courier services, and concerns of small businesses about cybersecurity, hackers, scams and loss of privacy, and trends on security systems.

Australia is stepping up to the new e-health environment. With this comes new legislation and new demands on information security. The expanded functionality of e-health and the increased legislative requirements, coupled with new uses of technology, means that enhancement of existing security practice will be necessary. This paper analyses the new operating environment for Australian healthcare and the legislation governing it, and highlights the changes that are required to meet this new context. Individuals are now more responsible for security and organisations should be prompted to review their security measures in light of the new demands of legislative compliance. [ABSTRACT FROM AUTHOR]

The article offers information on the need of the mandatory data breach notification laws of the Australian government. Topics discussed include methods of implementation of mandatory data breach notification laws in Australia, release of a mandatory data breach notification bill by prime minister, Julia Gillard's in May 2013 and federal Privacy Act.