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This article reports on the findings of a qualitative study about the experiences and perceptions of adolescents with cerebral palsy (CP) in relation to social participation. A phenomenological approach was used to interview 10 adolescents with CP, 17 to 20 years of age, selected using purposeful sampling. An iterative process of data collection and analysis resulted in four themes about social participation. The themes of "experience, barriers, and supports", and "tradeoffs" supported the current view of participation as a dynamic interaction between person and environment. The fourth theme of "making choices" described the unique challenges facing adolescents with CP in terms of deciding what was most important and meaningful to them now and in their future. Health care professionals can support adolescents as they develop the capacity to make their own decisions during the transition to adult living by ensuring that assessments and interventions address social participation. (Contains 2 tables and 1 figure.)

The purpose of this study was to describe how youth with cerebral palsy experience mobility in their daily lives using a phenomenological approach. The participants were 10 youth with cerebral palsy, 17 to 20 years of age, selected using purposeful sampling with maximum variation strategies. A total of 14 interviews were completed. Transcripts were analyzed for key concepts and themes. Credibility was established through triangulation of researchers and member checking. Participants viewed mobility as important for "self-sufficiency". Youth who walked and also used wheeled mobility spoke of "making choices". "Safety" and "efficiency" were important considerations when making choices. Some participants had mobility "preferences" at home that may not be safe, practical, or socially appropriate at school or in the community. Youth spoke of constantly "adapting to situations" that often reflected a lack of control over the environment. Youth indicated the need for "constantly planning ahead" to go places and do things. Most participants were dependent on others for transportation and expressed "dissatisfaction with public transportation". Safe and efficient mobility to enable participation in daily activities appears to be the primary concern of youth with cerebral palsy. (Contains 1 figure and 4 tables.)

HostSeq was launched in April 2020 as a national initiative to integrate whole genome sequencing data from 10,000 Canadians infected with SARS-CoV-2 with clinical information related to their disease experience. The mandate of HostSeq is to support the Canadian and international research communities in their efforts to understand the risk factors for disease and associated health outcomes and support the development of interventions such as vaccines and therapeutics. HostSeq is a collaboration among 13 independent epidemiological studies of SARS-CoV-2 across five provinces in Canada. Aggregated data collected by HostSeq are made available to the public through two data portals: a phenotype portal showing summaries of major variables and their distributions, and a variant search portal enabling queries in a genomic region. Individual-level data is available to the global research community for health research through a Data Access Agreement and Data Access Compliance Office approval. Here we provide an overview of the collective project design along with summary level information for HostSeq. We highlight several statistical considerations for researchers using the HostSeq platform regarding data aggregation, sampling mechanism, covariate adjustment, and X chromosome analysis. In addition to serving as a rich data source, the diversity of study designs, sample sizes, and research objectives among the participating studies provides unique opportunities for the research community. [ABSTRACT FROM AUTHOR]

The effectiveness and efficiency of decision making in Canadian universities are discussed in relation to the same processes in British and German institutions, in relation to other complex systems, and in terms of institutional autonomy and current pressures toward greater external control. (MSE)

The "woke movement" is now under fire globally. Seeking to right social injustice and battle racism, the woke movement has laudable intentions, but its implementation can exacerbate social inequalities. In the case of Canada, a social movement seeks to ferret out "Pretendians" or those White individuals deemed to be falsely assuming, and thus appropriating, Indigenous identity. Though this movement may seem righteous, the problem arises that individuals targeted are those who are Non-Status Indians and have yet to be recognised by the state, as well as Métis (or mixed-heritage people) whose historical communities have yet to be sanctioned by governments or courts, and who are also portrayed as being "Fétis" or fake Métis. Our challenge as researchers is to do the deep ethnographic, historical, and legal research to provide a nuanced understanding of indigeneity that does not constrain it solely to colonial models as the case studies provided will demonstrate. [ABSTRACT FROM AUTHOR]

In follow-up studies on chronic disease cohorts, individuals are often observed at irregular visit times that may be related to their previous disease history and other factors. This can produce bias in standard methods of estimation. Working in the context of multistate models, we consider a method of nonparametric estimation for state occupancy probabilities that adjusts for dependent follow-up through the use of inverse-intensity-of-visit weighted estimating functions and smoothing. The methodology is applied to the estimation of viral rebound probabilities in the Canadian Observational Cohort on HIV-positive persons. Copyright © 2016 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR]

The article discusses the research project "Naanaagide'enmodaa Nibi: Let's Look After the Water" which was funded by the Canadian Water Network and the collaboration of diverse women on their responsibilties for indigenous water and wastewater. It mentioned the issue on October 2008 of the "Water Declaration of the First Nations in Ontario" where the indigenous women have authority to oversee the well-being of the waters and the call on the indigenous knowledge application.

Recurrent event data arise commonly in medical and public health studies. The analysis of such data has received extensive research attention and various methods have been developed in the literature. Depending on the focus of scientific interest, the methods may be broadly classified as intensity-based counting process methods, mean function-based estimating equation methods, and the analysis of times to events or times between events. These methods and models cover a wide variety of practical applications. However, there is a critical assumption underlying those methods-variables need to be correctly measured. Unfortunately, this assumption is frequently violated in practice. It is quite common that some covariates are subject to measurement error. It is well known that covariate measurement error can substantially distort inference results if it is not properly taken into account. In the literature, there has been extensive research concerning measurement error problems in various settings. However, with recurrent events, there is little discussion on this topic. It is the objective of this paper to address this important issue. In this paper, we develop inferential methods which account for measurement error in covariates for models with multiplicative intensity functions or rate functions. Both likelihood-based inference and robust inference based on estimating equations are discussed. The Canadian Journal of Statistics 40: 530-549; 2012 © 2012 Statistical Society of Canada [ABSTRACT FROM AUTHOR]

We consider the analysis of spell durations observed in event history studies where members of the study panel are seen intermittently. Challenges for analysis arise because losses to followup are frequently related to previous event history, and spells typically overlap more than one observation period. We provide methods of estimation based on inverse probability of censoring weighting for parametric and semiparametric Cox regression models. Selection of panel members through a complex survey design is also addressed, and the methods are illustrated in an analysis of jobless spell durations based on data from the Statistics Canada Survey of Labour and Income Dynamics. The Canadian Journal of Statistics 40: 1-21; 2012 © 2012 Statistical Society of Canada [ABSTRACT FROM AUTHOR]

Background: To maximize public health impact and cost-effectiveness, HIV pre-exposure prophylaxis (PrEP) must reach individuals at high HIV risk. Referrals for PrEP can be self- or provider-initiated, but there are several challenges to both. We assessed whether HIV risk differed by referral source among gay, bisexual and other men who have sex (gbMSM) screening for an HIV PrEP demonstration project.Methods: PREPARATORY-5 was an open-label PrEP demonstration project enrolling gbMSM at high risk of HIV acquisition in Toronto, Canada. Study eligibility criteria related to high risk was defined as scoring ≥10 on the HIV Incidence Risk Index for MSM (HIRI-MSM) and engaging in at least 1 act of condomless receptive anal sex within the past 6 months. Recruitment was promoted through self-referrals (ads in a sexual networking app and gay newspaper/website) and provider-referrals (10 community-based organizations, CBOs). HIV risk score (HIRI-MSM) and syndemic health burden were measured among gbMSM screened for study participation and compared according to referral source.Results: Between October 16 and December 30, 2014, online ads generated 1518 click-throughs and CBOs referred 115 individuals. Overall, 165 men inquired about the trial, of which 86 underwent screening. The majority of screened men were self-referrals (60.5%), scored ≥10 on HIRI-MSM (96.5%), and reported condomless receptive anal sex in the past 6 months (74.2%). Self- and provider-referrals had similarly high HIV risk profiles, with a median (IQR) HIRI-MSM score of 26.0 (19.0-32.5) and 28.5 (20.0-34.0) (p = 0.3), and 75.0% and 73.5% reporting condomless receptive anal sex (p = 0.9), respectively. The overall burden of syndemic health problems was also high, with approximately one-third overall identified as having depressive symptoms (39.5%), alcohol-related problems (39.5%), multiple drug use (31.4%), or sexual compulsivity (31.4%). There were no significant differences in syndemic health problems by referral source.Conclusions: HIV risk and syndemic burden were high among gbMSM presenting for this PrEP demonstration project regardless of referral source. Self-referral may be a useful and efficient strategy for identifying individuals suitable for PrEP use. Online strategies and CBOs working in gay men's health may play important roles in connecting individuals at high HIV risk to PrEP services.Trial Registration: ClinicalTrials.gov NCT02149888 . Registered May 12th 2014. [ABSTRACT FROM AUTHOR]

Introduces articles on Canadian folklore in the spring 2002 issue of 'Journal of American Folklore.'